NF Program
UAB NF program provides clinical care, research, and education regarding neurofibromatosis The program is led by Bruce Korf, M.D., Ph.
The UAB Neurofibromatosis (NF) Program provides clinical care, research and education related to all forms of neurofibromatosis, including NF1, NF2, and schwannomatosis. D., who has more than 30 of experience in caring for patients with all forms of NF as well as developing and managing investigational research studies focused on identifying the genetic mechanisms involved in these disorders. A co
18/11/2023
REGISTRATION FOR THE 2024 NF SUMMIT IN SAN ANTONIO IS NOW OPEN!
nfsummit.org
Important dates & details:
🟢 The NF Summit is April 11-13, 2024 at the Hyatt Regency San Antonio Riverwalk
🔵 The 2024 agenda focuses on the role of patients and care advocates in advancing NF research, not only as research subjects but as representatives of the NF community.
🟢 Session topics will cover clinical care in all forms of NF; quality of life and self-advocacy; and patient engagement
🔵 Opportunities to network and socialize at the Thursday Evening Welcome Reception and Friday Evening at the Alamo!
🟢 The application for scholarships is also now open: https://docs.google.com/forms/d/e/1FAIpQLSe8goy1WNDE2_I2cren_6jXCqxs23ibt4VbcaE6JTh-lwaZow/viewform
🔵 Looking for the scholarship application in Spanish? Click here: https://docs.google.com/forms/d/e/1FAIpQLSdRaIbyRXo5oN3ZFZ6792tYwmW32BM9PIxRvecna8q4xH_38w/viewform
🟢 Register for the NF Summit today at nfsummit.org
The Children's Tumor Foundation's annual patient & family conference, the NF Summit, brings together NF patients and families, volunteers, event organizers, researchers, clinicians, patient advocates, friends, and supporters. all who have a connection to neurofibromatosis or schwannomatosis. Whether you come for education, empowerment, networking, or as a way to connect with others on a similar journey, you will leave with a renewed understanding and a refreshed motivation to .
30/08/2023
https://www.uab.edu/medicine/nfprogram/blog/marking-40-years-of-my-involvement-in-neurofibromatosis
Marking 40 years of my Involvement in Neurofibromatosis - Neurofibromatosis Program | UAB Our experienced, multidisciplinary team of specialists provides comprehensive care for all forms of NF and supports the emotional well-being of patients and families through educational and genetic counseling services that provide answers and guidance.
Our Story
The UAB Neurofibromatosis (NF) Program provides clinical care, research and education related to all forms of neurofibromatosis, including NF1, NF2, and schwannomatosis.
The program is led by Bruce Korf, M.D., Ph. D., who has more than 30 of experience in caring for patients with all forms of NF as well as developing and managing investigational research studies focused on identifying the genetic mechanisms involved in these disorders.
A cornerstone of our program is the UAB NF Clinic, which provides comprehensive care to both children and adults in a multidisciplinary setting that gives patients access to a range of specialists with expertise in the treatment and management of NF and its related complications.
We also support the emotional well-being of patients and families by providing exceptional education and genetic counseling services designed to provide answers and guidance for those dealing with the lifelong implications of an NF diagnosis. The UAB Neurofibromatosis Program also maintains a robust, innovative research effort aimed at developing new treatment approaches for NF-related complications. In support of this effort, our team of internationally renowned and dedicated UAB genetic scientists is actively engaged in the development of new animal models, stem cell lines, and drug discovery efforts.