Epilepsy Foundation of Australia, Melbourne, VIC Videos

Raise $200 on your Walk for Epilepsy fundraising page by this Sunday 15 September, and go in the draw to win a $300 Coles gift card 🙌 It's time to start really connecting and striving for those donations. Reach out to family, friends and colleagues to gather their support and make sure you're sharing your fundraising page as much as possible. Every dollar makes a difference 💜 Connect and strive for 1 in 25 this October ☀️🚶🚶‍♀️ Register at www.walkforepilepsy.org.au/3DCBB9 #EpilepsyFoundation #WalkForEpilepsy #ConnectAndStrive #1In25 #1In25Challenge #Incentives

Make a self-donation of $25 or more to your Walk for Epilepsy fundraising page by this Sunday 8 September, and go in the draw to win a $200 Coles gift card 🙌 A self-donation is a great way to kick off your fundraising or keep the funds flowing in 👌 It's a little extra way to amplify your support for people living with epilepsy 💜 Connect and strive for 1 in 25 this October. Register and make a self-donation at www.walkforepilepsy.org.au/3DCBB9 #EpilepsyFoundation #WalkForEpilepsy #ConnectAndStrive #1In25 #1In25Challenge #Incentives

STXBP1 Encephalopathy is a rare neurodevelopmental condition and genetic epilepsy, which involves abnormal brain function and intellectual disability. Symptoms can include muscle weakness, movement disorders and features of autism. STXBP1 usually begins in infancy, with around 85 percent of people with developing epilepsy. The most common seizure types include: - Infantile spasms - Myoclonic seizures - Atonic seizures - Absence seizures - Tonic-clonic seizures. Diagnosis is through genetic testing. For further information about rare and genetic epilepsies, please visit https://bit.ly/3X9aE9I or contact the National Epilepsy Support Service on 1300 761 487 or [email protected] #EpilepsyFoundation #STXBP1 #EpilepsyAwareness #EpilepsySupport #GeneticEpilepsy #Genetics #Seizures #SeizureAwareness #SeizureManagement #EpilepsyManagement

Only one month to go until Walk for Epilepsy kicks off 👟 Are you ready to go the distance for people living with epilepsy? Sign up for the 1 in 25 Challenge and walk, run or ride 100km in 25 days. Alternatively, you can set your own distance and do what works for you ☀️🚶‍♀️🚶‍♂️ Participate in teams or go it alone - it's your choice! Connect and strive for 1 in 25 this October. Register for the 1 in 25 Challenge now at www.walkforepilepsy.org.au/3DCBB9 #EpilepsyFoundation #WalkForEpilepsy #ConnectAndStrive #1In25 #1In25Challenge

Register for Walk for Epilepsy by this Sunday 1 September, and go in the draw to win a $150 Coles gift card 🙌 All you have to do is create a fundraising page, add a profile picture and bio to be in with a chance to win. It's that easy 👌 Connect and strive for 1 in 25 this October ☀️🚶‍♀️🚶‍♂️ Register now at www.walkforepilepsy.org.au/3DCBB9 #EpilepsyFoundation #WalkForEpilepsy #ConnectAndStrive #1In25 #1In25Challenge #Incentives

Did someone say, “Merch drop”? 🙌 Check out our limited edition Walk for Epilepsy 2024 t-shirts and hoodies! Look flash and feel comfortable while you get your steps in and help raise awareness for people living with epilepsy. Items on sale include: 👕 Walk for Epilepsy 2024 adult t-shirt 👕 Walk for Epilepsy 2024 youth t-shirt 🧥 Walk for Epilepsy 2024 hoodie 🧥 Walk for Epilepsy 2024 connect and strive hoodie Grab your Walk for Epilepsy 2024 merch today. Visit www.walkforepilepsy.org.au/8AB327 Please note: caps are only available as part of our incentive prizes. #EpilepsyFoundation #WalkForEpilepsy #ConnectAndStrive #1In25 #1In25Challenge #Merchandise

Everyday is a challenge for people living with epilepsy. Health concerns, societal barriers and stigma are things they face on an ongoing basis. So, this October, let's all come together and take on a challenge of our own 💪 Introducing the 1 in 25 Challenge - walk, run or ride 100km in 25 days for the 1 in 25 people diagnosed with epilepsy ☀️🚶‍♀️🚶‍♂️ How it works: 1️⃣ Register for the challenge at walkforepilepsy.org.au 2️⃣ Share your fundraising page with family, friends and colleagues and encourage them to donate. 3️⃣ From 1-25 October, rack up your kms. When you break it down, it's only 4km a day! 4️⃣ Use the Fitbit or Stava app to track your distance. Anyone who completes the challenge and raises over $1,000 will receive a limited edition 1 in 25 Challenge t-shirt 👕 Connect and strive for 1 in 25 this October. Register for the 1 in 25 Challenge now at www.walkforepilepsy.org.au/3DCBB9 #EpilepsyFoundation #WalkForEpilepsy #ConnectAndStrive #1In25 #1In25Challenge

Chromosome 8p is a rare genetic condition with symptoms that can vary widely. Most people with this condition experience developmental delays affecting their cognitive and social abilities, including delays in reaching milestones. Some diagnoses associated with Chromosome 8p include: - Epilepsy - Autism - Intellectual disability - Congenital heart defects - Sensory processing disorders - Agenesis of corpus callosum (a rare congenital brain defect). Chromosome 8p typically results from de novo (spontaneous) errors early in embryonic development. These errors are not inherited, and their cause remains unknown. For more information on epilepsy and related genetic conditions, please visit www.epilepsyfoundation.org.au or contact 1300 761 487 or [email protected]. Face-to-face meetings are by appointment only. #EpilepsyFoundation #Epilepsy #Chromosome8p #EpilepsySupport #EpilepsyAwareness #EpiInsights #EpilepsyResources

Periventricular Nodular Heterotopia (PVNH) is a developmental brain disorder that causes learning disabilities and seizures. This happens when nerve cells abnormally clump around the brain's ventricles. PVNH mostly affects women with epilepsy, but men can also be affected - sometimes more severely. Symptoms in men can include epilepsy, intellectual disabilities, and other congenital irregularities. People with PVNH experience focal and generalised tonic-clonic seizures. The type of seizures depend on where the clumps are and which brain region is affected. Diagnosis is best done through magnetic resonance imaging (MRI) and an electroencephalogram (EEG) if seizures are a concern. For more information on epilepsy and related genetic conditions, please visit www.epilepsyfoundation.org.au or contact 1300 761 487 or [email protected] Face-to-face meetings are by appointment only. #EpilepsyFoundation #Epilepsy #WorldPVNHAwarenessDay #EpilepsyAwareness #EpilepsySupport #EpilepsyResources #EpiInsights

Walk for Epilepsy 2024 registrations are now open 🙌🎉 This year's theme is ‘Connect and Strive for 1 in 25’. It's all about bringing epilepsy out of the shadows and creating a safe space for everyone to join together and go the distance for the 1 in 25 people diagnosed with epilepsy in their lifetime. Here's what's new this year: 🚶‍♀️ The 1 in 25 Challenge - We're asking you to walk, run or ride 100km in 25 days from 1-25 October. Alternatively, you still have the option to set your own distance goal. 🏆 Exciting incentive prizes - There are a range of great vouchers and merchandise prizes up for grabs. Be sure to check out the incentives page of the website for more information. 👕 Merchandise - We've introduced new clothing options, including hoodies and t-shirts with fresh W4E designs. 💻 Website resources - New posters, virtual background and social media tiles are available on the Resources page of the website to assist with your fundraising promotions and communications. 👟 Treadmill Challenge - Treadmill Challenges will be taking place in VIC, NSW, and QLD, where ambassadors, sponsors and epilepsy support staff will compete to raise donations for the cause. These events will be broadcast on the state service provider's social media for everyone to watch. Connect and strive for 1 in 25 this October. Register for the 1 in 25 Challenge now at www.walkforepilepsy.org.au/3DCBB9 #EpilepsyFoundation #WalkForEpilepsy #ConnectAndStrive #1In25 #1In25Challenge

We're about to step things up! Are you ready? Walk for Epilepsy 2024 registrations open on 1 August. #EpilepsyFoundation #WalkForEpilepsy #ConnectAndStrive #1In25 #ComingSoon

Macquarie University's eCentreClinic is looking for adults with epilepsy to join a clinical trial for the Wellbeing Neuro Course. The Wellbeing Neuro Course is a free online program designed to help manage mental health, such as depression and anxiety, and improve daily functioning, including cognitive challenges. The trial is exploring different ways to offer this course, with or without mental health professional contact. Here's what you can expect: - Six online lessons and practice exercises over 10 weeks - Inspiring case stories from others with epilepsy - Progress tracking through questionnaires For more information and to register, please visit www.ecentreclinic.org/wellbeing-neuro-course #EpilepsyFoundation #MacquarieUniversity #WellbeingNeuroCourse #eCentreClinic #EpilepsySupport #ResearchStudy

Dravet syndrome isn't just epilepsy; it's a lifelong battle against seizures that begins early in life. This usually involves frequent and prolonged seizures striking within the first year, often triggered by fever or high temperature in infants. Formerly known as Severe Myoclonic Epilepsy of Infancy (SMEI), this condition affects just one in 15,700 individuals. Around 80 percent of those impacted carry a mutation in their SCN1A gene. Dravet syndrome isn't just about seizures. Co-existing conditions like developmental delays and abnormal EEGs often fly under the radar until the second or third year of life. Achieving complete seizure freedom is often out of reach for many battling Dravet syndrome. So, the focus shifts to maximising quality of life and minimising medication side effects. For further information, please visit dravetfoundation.org or contact the National Epilepsy Support Service on 1300 761 487 or [email protected] Face-to-face meetings are by appointment only. Share this Epi-Insight card to help raise awareness of Dravet syndrome and epilepsy. #EpilepsyFoundation #DravetSyndrome #Epilepsy #EpilepsySupport #EpilepsyAwareness #EpilepsyResources #InternationalDravetSyndromeAwarenessDay

Today is all about Synaptic ras GTPase-activating protein 1 (SYNGAP1). This gene is integral for cognition and synapse function. But alterations in SYNGAP1 can lead to epilepsy, usually beginning during infancy and early childhood. Eyelid myoclonia, absence seizures, myoclonic-atonic seizures, myoclonic seizures, and photosensitivity are common symptoms. From mild to severe intellectual disability, and Autism Spectrum Disorder (ASD), to low muscle tone, and a myriad of sleep, behaviour, and eating issues, SYNGAP1 gene alterations cast a wide net of challenges. Diagnosis is possible through genetic testing. For further information, please visit www.syngapaustralia.org or contact the National Epilepsy Support Service on 1300 761 487 or [email protected] Face-to-face meetings are by appointment only. Share this Epi-Insight card to help raise awareness of SYNGAP1 and epilepsy. #EpilepsyFoundation #Epilepsy #SYNGAP1 # InternationalSYNGAP1AwarenessDay #EpilepsySupport #EpilepsyAwareness

CDKL5 isn't just any gene – it's crucial for normal brain development and function. However, changes in this gene can lead to developmental and epileptic encephalopathy (DEE). CDKL5 epilepsy typically kicks in during the first few months of life, hitting females more often than males. The effects can include severe intellectual disability, motor skill challenges, respiratory issues, and speech limitations. Diagnosis for CDKL5 epilepsy is possible through genetic testing. For further information, please visit www.cdkl5.com or contact the National Epilepsy Support Service on 1300 761 487 or [email protected] Face-to-face meetings are by appointment only. Share this Epi-Insight card to help raise awareness of CDKL5 and epilepsy. #EpilepsyFoundation #CDKL5 #Epilepsy #EpilepsySupport #EpilepsyAwareness #EpilepsySupport #InternationalCDKL5AwarenessDay