CRPS Awareness - The Purple Bucket Foundation Inc.

We appreciate your support 🧡💜🧡

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Are you currently prescribed opioids and keen to make a difference?

Monash University are looking for people to test their new opioid toolkit.

You will be remunerated for your time and will go into the draw to win an iPad.

Click the link to find out more https://www.post.study/

Hope.
It's different for everyone, but it's always powerful.
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1st Southern Hemisphere Pain Self-Management Conference (Online) Supported Pain Self-Management Conference. Joint conference of Self-Managers and Healthcare Professionals

"To succeed in life, you need three things: a wishbone, a backbone, and a funny bone." Reba McIntire

Our accredited trainers will provide the volunteers and staff of the Australian Chronic Pain sector Su***de Prevention Training free of charge. ***deFromPain
Chronic Pain Australia Painaustralia

Hope is sometimes an ember that can be fanned into the flame that makes recovery possible.

Are you keen to meet up socially? Get in touch with us at [email protected]

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Exercise Right Week: Empowering Chronic Pain Management, Advocacy and Action with Accredited Exercise Physiologist Jessica Ebbersten - Chronic Pain Australia In celebration of Exercise Right Week, we are delighted to highlight the critical role that Accredited Exercise Physiologists (AEPs) play in managing chronic

Have you done the survey yet? It closes May 26th, so make sure you have your say.
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The invisible nature of chronic pain fuels stigma, leading to disbelief and a lack of empathy.

This is a reality for over 3.6 million Australians living with chronic pain.

Be a painchanger today and complete the 2024 National Pain Survey here: https://redcap.link/klhtqu0c

What helpful advice would you offer?

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Mind psychologist services on the Medicare Benefits Schedule | Mind Australia Eligible people can now get up to 10 sessions of support from a Mind Australia registered psychologist through the Medicare Benefits Schedule (MBS).There is currently no wait list for this new Mind service, so eligible people can access this service rig...

Unexplained itching can be the main symptom in some people with CRPS.

There's only ONE WEEK LEFT until our Art Exhibition and Silent Auction! Do you have your tickets? Secure yours now from Eventbrite: https://tpbf-silent-art-auction.eventbrite.com.au

Below is just some of the amazing art that will be available to bid on! All art created by local artists across Brisbane, Logan and Gold Coast, with pieces starting at $10.

When: Saturday 11 May 2024, 5:30pm
Where: Springwood Hotel
Price: $10 per ticket at the door or $11.90 via Eventbrite
Please RSVP and share: https://www.facebook.com/events/2111285432555518

The event is guaranteed to be a fun-filled night out that you won't want to miss! We'll have food, a bar, fantastic raffle prizes and loads of amazing artwork you could make your own! By attending, you'll support local artists, raise awareness of CRPS and help us continue to provide resources, education and support to people with CRPS and their families. 🧡💜🧡

If you can't make it on the night but you'd still like to support us, please donate at https://www.paypal.com/paypalme/crpsawarenesstpbf

MEMOIR is an Australian government-funded clinical trial for people living with Complex Regional Pain Syndrome (CRPS). MEMOIR is testing two new interventions for people with CRPS – a medicine and a newly developed rehabilitation program.
MEMOIR will be conducted via Telehealth, allowing for Australia-wide recruitment of eligible participants.

MEMOIR – A clinical trial for Complex Regional Pain Syndrome MEMOIR is an Australian government-funded clinical trial for people living with Complex Regional Pain Syndrome (CRPS). MEMOIR is testing two new interventions for people with CRPS – a medicine and newly developed rehabilitation program.

Thrilled to be delivering “Amethyst Dreamscape” to today for their Exhibition and Silent Auction. Such an incredible cause.

Brissy friends, if you are able to attend and bid, you will support local artists, raise awareness of CRPS and help The Purple Bucket Foundation Inc. continue to provide resources, education and support to people with CRPS and their families.

When: Saturday 11 May 2024, 5:30pm
Where: Springwood Hotel
Price: $10 per ticket
RSVP via the link in their bio

The power of kindness!

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LDN works as an opioid antagonist and boosts endorphins and enkephalins. In low doses, it releases endorphins over an extended amount of time, contributing to a reduction of inflammation and an improvement of immune function. It may minimise the symptoms and progression of chronic disease.

Have you had experience with LDN for CRPS?

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VOLUNTEER OPPORTUNITY 🌟 Do you want to make a real difference in the lives of those living with chronic pain?

We're looking for compassionate individuals to join our Painlink team as Peer-to-Peer Phone Operators. If you're available on Fridays and have a heart for helping others, this could be the perfect opportunity for you!

As a volunteer with Painlink, you'll provide invaluable support and assistance to those navigating the challenges of chronic pain. Your kindness and understanding can make a world of difference to someone in need.

Check out the job ad and apply today to become part of our dedicated team: https://www.volunteer.com.au/volunteering/95510/painlink-peer-to-peer-phone-operator-friday-shift

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📢🚨 Monash University are looking for participants for 'user testing' with our new opioid safety toolkit in the first week of May.

You are eligible if you live in Australia and:
- You've been prescribed opioids for pain relief (i.e. after surgery)
- You've been prescribed opioids for over 3 months
- You've been prescribed opioids for cancer pain

🗣️💊 Click the following link to find out more: https://monash.az1.qualtrics.com/jfe/form/SV_2tsOs4NzkQsnhl4

🚨There's less than 1 MONTH to go until our Art Exhibition and Silent Auction! Do you have your tickets? Secure yours now from Eventbrite: https://tpbf-silent-art-auction.eventbrite.com.au 🚨

We have some amazing artists exhibiting this year! Check out some photos sent in of some of the pieces being created that will be available to bid on.

When: Saturday 11 May 2024, 5:30pm
Where: Springwood Hotel
Price: $10 per ticket
RSVP and share: https://www.facebook.com/events/2111285432555518

The event is guaranteed to be a fun-filled night out that you won't want to miss! We'll have food, drinks, fantastic raffle prizes and loads of amazing artwork you could make your own! By attending and bidding, you'll support local artists, raise awareness of CRPS and help us continue to provide resources, education and support to people with CRPS and their families. 🧡💜🧡

Which topical treatments or over-the-counter solutions have worked the best for you?

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Chronic Pain Australia, representing the interests of 3.6 million Australians living with chronic pain, is deeply concerned by the findings presented in the recent investigative report by ABC Four Corners titled “Pain Factory.” The revelations regarding the harm inflicted on individuals seeking relief from chronic pain are alarming and demand urgent attention.

The investigation has highlighted a concerning trend of adverse events related to spinal cord stimulators, with the Therapeutic Goods Administration (TGA) receiving 2000 reported adverse events. This is reminiscent of past scandals involving medical implants, such as the use of hernia mesh that resulted in 224 adverse events reported to the TGA.

As advocates for individuals living with chronic pain, we emphasise the urgent need for evidence-based practices and patient-centred care. It is imperative that patient safety remains the top priority, and measures are put in place to ensure that individuals living with chronic pain can access safe, evidence-based and effective treatments without fear of harm.

Read the full statement here: https://chronicpainaustralia.org.au/media-release/chronic-pain-australia-urges-national-inquiry-and-bipartisan-support-for-reform/

How do your friends and family support you and your CRPS journey? What are some things others can do or shouldn't do?

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