Fibro and fab chronically so

The world is a stage. Joker: Folie à Deux trailer coming April 9. 🃏

You’ve been amazing support ♥️♥️♥️♥️

Hi All,

Jane is aware that some orders are a little late going out.
Please rest assured they will be posted, as soon as Jane can.

She has had so much going on, and we all know how that feels… with family, flare ups and whatever else we go through.

It’s our turn to share a little love & Hugs with our Janey… ♥️♥️

X # # #

Please join our private group
Friendship from those that understand xx link to group in posts below 🩷
Look forward to seeing you there xx

"To the mom in the baby water park at Kentucky Kingdom yesterday, (Friday, July 22), I talked to you about your kids. Their behavior struck me in such a way that I did something I normally don't do, and I asked your son where his mother was so I could have a word with her. We spoke and I don't think you fully understood how your children and their behavior affected me, so I am writing this.. maybe it will find its way to you and you will know who you are. Maybe it wont but other moms will see it and maybe take something away from it as well. It may not seem like a big deal to other people. But I do know that there are some people who will really get it.

I was at the park with Baylee, my 5 year old. She is autistic, and mostly non verbal. We were practicing very hard on waiting in line, and she was doing well for the most part. We had a routine. Wait in line.. then when we were 4 from the front, sit on the step, then down into the water then scoot up, then wait at the top of the slide for the ok to go from the lifeguard. This was our routine, and every time she did it, her understanding of the routine improved and her patience increased. But alas, children are children, there are little ones who don't understand waiting and jump right in front of the next in line and for the most part no big deal, except for a kiddo like mine, who really doesn't mind much that she had to wait longer, but is very upset that the steps of the routine she just learned are now out of whack. And to her it feels like the end of the world! Coping with unexpected change is another skill we practice every day. It is one of the more difficult skills to practice and especially in public when people, especially other children do not understand why she is reacting the way she does. I dread it. Not what she will do but what other people will.

So this happened, and as she was expecting to move up to the next step in the waiting game, and couldn't, I braced myself for what would happen, and that is when your daughter looked up at me and said "she can go ahead of me" Baylee had not had an opportunity to get upset yet, so I am not sure exactly why she did it. I felt like maybe she could tell by the way I had been talking to her that she had special needs. It was so sweet and I told her what a sweet girl she was. And we moved on. Of course as busy as the park is, it wasn't long before we found ourselves in the same situation, when a young boy this time was in front and offered to let Baylee go ahead because he could tell she was not understanding what happened. Again, I praised his good behavior and kindness and we went ahead, and I was struck that two different children would be so intuitive and kind. Like most autistic children, Baylee does not LOOK any different than any other child. And it's not really immediately obvious by her behavior either. It takes some observation and usually children their age don't realize she has autism. I guessed them to be 8-10ish. When I then seen them together it made sense. They were brother and sister. I told them both how great it was that they looked out for someone who was different.. and the difference that small acts of kindness make even if it doesn't seem like much. They really touched my heart.

So I asked your son to point you out for me. I made sure to let your kids know how nice it was for them to be kind and understanding but I wanted YOU to know that you are raising two wonderful children. When I came to you and told you about my experience with your kids and told you that they were super kids and you are doing a great job, you said "I don't know about that." Well, mom, you are. A small gesture like theirs may not seem like much. But I promise it was.

As a mom of a child with Autism, we do not know what to expect for her. She grows and learns more every day, but I still worry. Every time she has a big improvement or meets a goal she has worked for, my joy is immediately dimmed by the concern I have for the kinds of struggles she faces in a world that is not always kind. She is so funny and smart, and brings a smile to the face of most people who she comes into contact with, but sometimes we encounter people who do not immediately see how sweet and funny she is. I know there are people out there who will refuse to see those things simply because she is different. It scares me. I worry, I dread, and sometimes we stay home because we don't want to deal with some of the unpleasant things we sometimes experience.

Sure your children's kindness helped in that moment to avoid a meltdown, and that is kind of a big deal for kids on the spectrum, but I will tell you what is an even bigger deal though, and that is that it gave me some HOPE! When I looked at those sweet little faces, filled with pride as I praised them, it made me happy to know that more moms are raising their children the way you are!

So I just wanted to take the opportunity again to thank you and let you know you are doing a really really good job!"
Credit: Stephanie Jones

ALSO READ :
A man picked up a child with down syndrome who had been abandoned by more than 20 families 😳 An example of true charity and kindness 🤗💗 what does the girl look like today?
See their pictures 👉 aunett.com/a-man-took-in-a-child-who-had-been-abandoned-by-more-than-20-families-what-does-the-girl-look-like-today

❤️

TRUTH! 🤗💕🙏

Join our private group we are a small community of people that are now friends please come and join us for suppport and friendship ( link found below in previous posts ❤️)

💜 💜💜💜

Come and join our little community of like minded sufferers of all things ”chronic” you will be very welcome xx

https://www.facebook.com/groups/225498302372262/?ref=share_group_link

This is us in our group , don’t take my word for it come and join and see xx

https://www.facebook.com/groups/225498302372262/?ref=share_group_link

A poem I wrote about chronic illness using our friends in the Hundred Acre Wood.

"In the Hundred Acre Wood, where the trees stand tall,
There lived a bear, whose name was Pooh, and he knew it all.
He knew of the struggles that came with each day,
Of the pain and fatigue that just wouldn't go away.
He saw his friend, Eeyore, who was always so sad,
And he knew it was because of the illness he had.
Eeyore's body was weak, but his spirit was strong,
And he kept on going, no matter how long.
Pooh saw his friend's bravery, and it touched his heart,
He knew that living with chronic illness was not easy, from the start.
He knew that sometimes, it was hard to be positive and strong,
But he also knew that Eeyore's courage could help carry him along.
So they walked through the woods, together hand in hand,
And talked about life and how it can be so grand.
They laughed and they cried, they shared stories of pain,
But they also shared hope, that they would feel good again.
And as the sun set, and the stars shone bright,
Pooh and Eeyore knew that they would be alright.
For they had each other, and that was enough,
To face another day, with love and with stuff. " -Phil Jones

Wether you’re at the start of your fibro journey or used to it now , please come and join us in our loving support group xx press the link 👇👇👇👇👇👇👇👇

https://www.facebook.com/groups/225498302372262/?ref=share_group_link

https://www.facebook.com/groups/225498302372262/?ref=share_group_link

The things you aren’t prepared for !! Click the above link to join us xx we can do this together xx

https://www.facebook.com/groups/225498302372262/?ref=share_group_link

If you are newly diagnosed or further on in your journey please come and join us Ee would love to see you there x

Have you been diagnosed or waiting a diagnosis for a long term chronic illness ? Are you struggling to accept what’s happening to you ?
Please come and join us in our friendly warm and welcoming group , we have people at all stages of the process and we all have the same thing in common , trying to live a normal life with conditions that are far from normal !
The link below will take you to the group x
https://www.facebook.com/groups/225498302372262/?ref=share_group_link

Took me a good 20 mins. 😳

https://www.facebook.com/groups/225498302372262/?ref=share_group_link

Press the above link to join our private group it would be lovely to have you x

This is so true , we all need good friends even if they are on line ones x especially when suffering chronic long term pain xx
Join our private group you can write what you like with freedom , only members in the same position will see and support you 💜

This article that Susan just sent me is really interesting and explains all about why we need magnesium and the type of magnesium that is good for us x
Have a little read x

Studies on Magnesium and Thyroid Health - Dr. Izabella Wentz Magnesium deficiency can be a major issue for people with thyroid disease. Discover how to overcome it and why it'll improve your health.

Jane earned the NYE Quest badge on Word Wars! Join the fun!

Jane earned 30+ points on Word Wars Jane played CRUELS for 30 points

Swear posties could survive and thrive in any climate 😂

Lolol too true this x

This is so so true x
If you’re having a bad day
Or a good day
Please join us in our private group we would love to see you there xx

https://www.facebook.com/groups/225498302372262/?ref=share_group_link

Just tap the link xx