Corbans journey duchenne warrior

Corban has been promoted to big brother 😁❤️💙🥰

💙💙🙌🌟

My little superstar 🌟

My little smiler at the fair 🥰💙

Yesterday was hobbie day at school..
Corbans teacher has been teaching him to play the guitar 😊❤️
My sweet little boy 🥰

The difference from last year to this!
Some people wont agree but for us steriods were literally destroying my baby.
He went from walking everywhere to crying his legs hurt all the time his back was hurting. He wouldn't even look at pictures of him self because of the weight gain. Was on antibiotics every month for some kind of infection! This year hes finally finding himself again and his mobility and his flexibility has improved soo much. Hes happy again! We only have to deal with normal school bugs and yes we do still get some falls he is a 6 year old after all but nothing like before ❤️
You literally steal the heart of everyone you meet corbz and you have the world wrapped around them tiny fingers. My little warrior forever proud 💙

Loving his days in Tenerife 💙

Life is better in the sun 🌞😎

Feeding the ducks and a play in the park 💙
We love the sunshine ☀️

Corbans easter bonnet cat walk.
His little smile ☺️
Always a winner to me ❤️

Super happy with his easter bonnet 😊🐰🐇🐣

❤️

Disabled Access Day!

A day to raise awareness about the importance of accessibility and inclusion for people with disabilities.

Everyone should have equal access to venues, services, and experiences, regardless of their physical or cognitive abilities.

Although Carmela is still able to walk and uses her wheelchair when tired, she is unable to climb stairs safely on her own so does need a careful eye on her, and so finding venues and parks with no steps and wide enough for wheelchairs is still an ongoing battle.

Unfortunately, finding a local park Carmela can use is always a long drive away. In the photo below, Carmela is on an accessible play roundabout, but it took 35 mins drive to use it!!

It hasn't just been venue entrance and park equipment that has been challenging, but just using public transport with a wheelchair has never been straightforward.

Finding a hotel near a location you want to stay in is forever a challenge, because their one and only accessible room is always booked up, despite having so many standard rooms, or their accessible room isn't fully accessible for people with physical disabilities.

School transition and moving house has taken over 2 years for us, due to poor accessibility inside and outside at most schools and houses/bungalows.

Life is difficult enough for people using wheelchairs with an ongoing health condition, battling poor access outside of home too, really is unnecessary and plays a big part in the mental welfare of these kids and adults, and totally shouldn't be this difficult anymore in this day and age with live in.

Let's all make a noise about places that are still not accessible by commenting below and sharing.

Plus, do give a shout out to places and businesses who have fantastic accessibility, by commenting below.

Wiltshire Times BBC News ITV News Channel 5

Blood tests today.
Such a brave boy!
No tears.
Was absolutely amazing 💪💙

This cheeky little character is just amazing 😍
His parents evening was ace!
Super proud of you corbz. 💙

World book day
Our little peter pan 😍😍

Getting these little messages 😁
My little corbz ❤️

🧡🧡

On Friday 1st March, me and my family and my school, will Go Bright to raise awareness and vital funds for MDUK.

We rely heavily on support from them, and would love to see the support from my followers if you can. A bright tie, bright socks or even go bright with your full outfit.

Tag me and share a photo on your feed with hashtags

If you can, donate any amount to Muscular Dystrophy UK

At the moment, there is no cure or treatment for my condition - and we hope that with your help, we can raise the necessary money to be able to fund vital research for her condition.

Please join us and Go Bright.

Corban you are my superhero. 💙

Your a little super star 🌟
Keep being Amazing

Last weeks trip to Birmingham children's hospital for ecg.
Hearts all fine 🙏
My sweet little boy 💙

So lucky we are under such a great team at the heartlands.
Well done ❤️👍

Huge congratulations to the Paediatric Neuromuscular Team at Heartlands Hospital, who have been awarded the Centre of Excellence award by Muscular Dystrophy UK for a second time.

The award recognises services that provide outstanding care, promote best practice and who demonstrate their commitment to improving the health and care for people living with muscle wasting and weakening conditions.

Well done to everyone involved! 👏 🌟

6 years of loving you.
Happy birthday corban.
Hope your day is as perfect as you.
You brighten the world with your smile.
Love you soo much 💙😘

Corban had the best Christmas 💙
Hope everyone had a lovely xmas and start to thenew year.. 😁

Yesterday we went to corbans 6 month check and he did fantastic. Running better and climbing better. Could not be more proud of this little man 💙 we also met santa and picked a lovely bear from the xmas tree. Thankyou heartlands hospital you are brilliant. ❤️

What a little superstar corban was today 😍💙
The best little sheep i have ever seen.

Today corban went the snow dome with the school, he had the best time playing in the snow and seeing santas animals ❄️💙⛄