Nystagmus Professionals - Nystagmus Network

Nystagmus Professionals - Nystagmus Network

The Nystagmus Network provides CPD training and funds nystagmus research. It is a registered charity in England and Wales.

07/11/2024

The International Nystagmus Symposium 2024
Hosted online by the Nystagmus Network, once again the symposium was an enormous success. With 7 eminent speakers and 89 delegates from across the world, there were some thought-provoking presentations and some very interesting and lively discussions and exchanges of ideas between the talks, which can only lead to furthering our knowledge of this most complex condition.
Read a full report on our blog here: https://buff.ly/40Bi0qz

International Nystagmus Symposium 2024 17/10/2024

International Nystagmus Symposium 2024
National and international clinical and research experts will present their latest findings in diagnostics, causes, impact, therapies and genetics at the symposium on Friday 25 September, 1pm to 5.30pm.
Join us online to hear the presentations and take part in discussions:

International Nystagmus Symposium 2024 Researchers, clinicians, academics and students interested in nystagmus research are invited to attend this FREE event.

01/08/2024

Not sure the symposium is for you?
Watch the highlights from 2023
https://www.youtube.com/watch?v=8rjG-0kdE48

01/08/2024

Reserve your spot for the International Nystagmus Symposium 2024
Last year there were some really interesting discussions in the Q+A sessions between the main presentations. You have to be there to take part!
Online booking is via Eventbrite here: https://www.eventbrite.co.uk/e/international-nystagmus-symposium-2024-registration-897460347057?aff=oddtdtcreator

01/08/2024

Submit an abstract!
Whether you're a world-renowned nystagmus expert or an early career researcher we want to hear from you. For the opportunity to present your work to a truly international audience, submit your abstract by no later than 30 September.
Please submit your abstracts to [email protected]
More details on our website here: https://nystagmusnetwork.org/nystagmus-symposium-2024/

01/08/2024

The International Nystagmus Symposium 2024 is now open for abstracts and reservations
Leading nystagmus researchers from across the globe will gather online for the International Nystagmus Symposium on Friday 25 October 2024. Reserve your FREE place now.
https://nystagmusnetwork.org/nystagmus-symposium-2024/

03/04/2024

The Richard Wilson Essay Prize - seeking new talent in nystagmus research
First Prize - £500 Extension to 1 May
Entries are invited from undergraduate and postgraduate students, including PhD, in orthoptics, medicine, ophthalmology, optometry, or a visual related science, registered with a UK-based institution. For full details of this year's essay question, judging criteria and how to submit your entry, please see our website here: https://buff.ly/4aSojbK

11/01/2024

The Richard Wilson Essay Prize
Who can take part?
Undergraduate and postgraduate students, including PhD, in orthoptics, medicine, ophthalmology, optometry, or a visual related science. Entrants must be registered with a UK-based institution.
Prizes
Cash prizes of £500 (first prize), £200 (second prize) and £100 (highly commended) will be awarded each year at the discretion of the judges. The winner of the first prize will also receive an invitation to speak at the next Nystagmus Network Symposium and/or other events. All winning essays will be published on the Nystagmus Network website. The top prize in 2024 will be presented by Richard’s widow, Mrs Jackie Wilson at a VIP event in London in November.
Judges
The 2024 panel includes Dr Gemma Arblaster, Lecturer in Orthoptics at the University of Sheffield and Dr Nikita Thomas, Lecturer in Optometry at Anglia Ruskin University. They will be supported in their decision making by Nystagmus Network trustees.
Judging criteria
For entries to be considered they must:
provide background and significance to the proposed subject
describe the unmet need and/or challenges and/or opportunities that specifically relate to either fundamental research and/or diagnosis and/or management of nystagmus (of any form)
outline the possible conclusions and/or outcomes and/or impact of the proposed answer to the question AND its relevance to the nystagmus community
Essay Question for 2024
If resources were unlimited, what aspect of nystagmus research should be prioritised, and why?
Format
Essays to be a maximum of 3000 words in length (excluding any diagrams, graphs, references, bibliography). The essay must include the full name and contact details of the entrant, the name of their institution and the course they are currently following and their highest academic qualification to date.
Timeline
Applications open in January 2024. The deadline for submissions is 31 March 2024.
Submission
Completed essays should be emailed to [email protected] clearly marked ‘Richard Wilson Essay Prize’ in the subject line.
https://nystagmusnetwork.org/our-ruby-year/the-richard-wilson-essay-prize/
ALT: Richard Wilson OBE, chair of the Nystagmus Network 2010-2019 stands at a podium with his arms raised in celebration.

Symposium2023 30/08/2023

The Nystagmus Network is proud to host the International Nystagmus Symposium 2023 online on Friday 22 September.
Speakers from across the globe will take delegates on a journey from the aetiology of nystagmus, through diagnosis and treatment research to digital interventions.
See our website for full details: https://nystagmusnetwork.org/research/symposium2023/
Register now on Eventbrite: https://www.eventbrite.co.uk/e/symposium2023-registration-570532918317?aff=oddtdtcreator

Symposium2023 Welcome to the Nystagmus Network international nystagmus symposium 2023.

07/07/2023

Joint Small Grant Award Scheme open to applications
The Nystagmus Network is delighted to announce that we are again partnering with Fight for Sight this year to offer the Small Grant Award Scheme. The grants are available for clinical research addressing visual impairment associated with nystagmus, focusing on quality of life or causes (including genetic), diagnostic testing/analysis or treatments.

We are delighted to inform you that the scheme is now open for applications, with the deadline of 13:00 on Wednesday 13 September 2023.

This year we particularly welcome applications from Early Career Researchers.

Small Grant Awards are intended to support early career research, which should be used to collect preliminary/pilot data to make research ideas more competitive when developing larger follow-on funding applications. These awards offer competitive funding of up to £15,000 to clinical or research scientists to conduct stand-alone research projects for up to 12 months.
Please visit the Fight for Sight website for more details, including in depth guidance, and to access the online grant management system.
For any queries during the process, please email [email protected].
You can contact us if you require any additional information, and we look forward to working with you through the process.

https://nystagmusnetwork.org/call-for-research-grant-applicants/

07/07/2023

International Nystagmus Symposium 2023 - registration is now open
The world's leading research, clinical and academic experts will come together online on Friday 22 September for the Nystagmus Network's International Nystagmus Symposium.
Delegates will have the opportunity to
Hear the latest thinking on nystagmus diagnosis and treatment
Learn about new avenues for research
Explore every aspect of this complex condition
Collaborate with their peers from around the globe
For more details and the link to register for a place, please see our website here: https://nystagmusnetwork.org/research/symposium2023/

Timeline photos 16/03/2023

Sue is at VIEW
The Nystagmus Network's Sue is attending the first in person VIEW conference since March 2020. VIEW is the representative group of staff working across the education sector for VI Children and Young People. Delegates attending the conference are QTVIs, Teaching Assistants and student teachers. Sue is there to ensure that everyone knows about the educational needs of children and young people with nystagmus and the support and training available to them from the charity.

09/03/2023

Nystagmus friendly practices
Accommodating nystagmus in the high street

People with nystagmus are usually signed off from hospital eye clinics as soon as their vision appears stable. This means they are looking to high street optical practices for their ongoing eye care. As a result, here at the Nystagmus Network we are constantly being asked to recommend ‘nystagmus friendly’ practices.

That’s why we’re introducing our ‘nystagmus friendly practices’ programme, bringing Optometrists and Dispensing Opticians together with people living with nystagmus.

Find out more on our website here: https://nystagmusnetwork.org/nystagmus-friendly-practices/

News 09/03/2023

RNC Professionals' Open Day
Thursday 27 April 2023

This event is open for anyone who works with a visually impaired young person. During the day you will be able to go on a detailed tour around our College including exploring the residential, academic and vocational areas. Also part of the day, a special panel and seminar session featuring staff from various departments such as funding, academic and safeguarding. During the day, there will be a student session, where they will answer any of your questions. There is also the opportunity to network with other attendees.

The whole event is free!

Apply online here:

News Here is all the news from The Royal National College for the Blind (RNC). We share what's going at College, our student successes and achievements, alumni updates and everything you need to know about what's going on at RNC.

Welcome 24/02/2023

Come and meet the Nystagmus Network at this weekend. Stand M43
CPD training - nystagmus friendly practices - referrals for your patients

Welcome 100% Optical is the UK's largest optical event, attracting 9,750 UK and International visitors and more than 200 exhibitors. The show provides a platform for optical professionals to source the latest eyewear and equipment, gain CET points from our world-leading education programme, and network.

01/12/2022

Is your practice nystagmus friendly?
Would you like the Nystagmus Network to signpost nystagmus patients to you?
You can apply now to become a nystagmus friendly practice.
Please contact us at [email protected] for more information.

Timeline photos 26/09/2022

Support - Awareness - Research
At virtual Open Day 2022 we will bring you all of the above and so much more.
If you have already registered to attend or are a member of the Nystagmus Network you will receive your digital programme and Zoom link to join us very soon.
You can register to attend on Eventbrite here: https://buff.ly/3w52YJs

Training eye care professionals - Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales. Our charitable objectives are to provide support and information, raise awareness and fund research.

In 2020 the Nystagmus Network embarked on a programme of training for eye care professionals, giving optometrists and dispensing opticians the opportunity to increase their knowledge and understanding of nystagmus.

At least 1 in 1,000 people are born with nystagmus and many more acquire nystagmus later on. Make sure your practice is prepared to meet the needs of the nystagmus community.

Watch our video: Nystagmus Professional Perspectives here: https://youtu.be/n0Awdks9Eag

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