Cri du Chat Support Group

A BIG WARM WELCOME to Cri du Chat Support Group who have joined our platfform. You can now support and to the them all year round when sending out greeting cards and ecards for all occassions via gb.makingadifference.cards/supporting/cri-du-chat-support-group

, cards all availabl and more.... # in print and cards and cards- take a look at our range and start your support today.

Can you help the Cri du Chat Support Group by doing some fundraising? We do not receive any government or regular funding so donations from supporters means the world to us.

More details on fundraising can be found on our website https://criduchat.org.uk/ or by getting in touch with us directly.

Home - Cri du Chat Support Group Community | Networking | Support Cri du Chat syndrome is a rare genetic disorder caused by the deletion of some, or all, of the 5th chromosome. This can lead to a variety of health complications to developmental delays and a distinctive cat cry in newborns. A spectrum disorder, those with CdCs can h...

Become a Member

If you are based in the UK or Ireland and are a person with Cri du Chat syndrome or a parent/guardian/carer/family member of a person with Cri du Chat syndrome then you are eligible to sign up for free membership of the society which will allow you to access our private Facebook group, family fun days and grants.

Home - Cri du Chat Support Group Community | Networking | Support Cri du Chat syndrome is a rare genetic disorder caused by the deletion of some, or all, of the 5th chromosome. This can lead to a variety of health complications to developmental delays and a distinctive cat cry in newborns. A spectrum disorder, those with CdCs can h...

Hello everyone, this is to let you know that our old private group has now been archived. In practice this means that all of the posts and conversations that have been posted there over the years will still be viewable but no one will be able to add new posts or respond to old ones.

The Cri du Chat Support Group has a new private and moderated Facebook group that is only available to registered members of the CDCSG. If you are a member and would like to request access please email us ([email protected]). If you are not a member you can check eligibility (residents in UK and Ireland) and join via https://criduchat.org.uk/

There is no cost to being a member of the support group.

Home - Cri du Chat Support Group Community | Networking | Support Cri du Chat syndrome is a rare genetic disorder caused by the deletion of some, or all, of the 5th chromosome. This can lead to a variety of health complications to developmental delays and a distinctive cat cry in newborns. A spectrum disorder, those with CdCs can h...

We are currently registering for our next Family Fun Day on the 28th September in Weymouth. This free event is for members only (membership is free and you can apply via www.criduchat.org.uk) and is a great way to connect with other families in a relaxed and fun environment. To register please email [email protected]

Home - Cri du Chat Support Group Community | Networking | Support Cri du Chat syndrome is a rare genetic disorder caused by the deletion of some, or all, of the 5th chromosome. This can lead to a variety of health complications to developmental delays and a distinctive cat cry in newborns. A spectrum disorder, those with CdCs can h...

Tomorrow is the 5th May. Who's participating in '5 things for 5p'?

• We are asking our community to come up with a plan of doing 5 things to raise awareness of 5p syndrome (the US name for Cri du Chat Syndrome)
• This can be anything from running 5km, juggling 5 balls to eating 5 cakes - just have some fun with it.
• Whatever you come up with simply document yourself doing this and upload the results on your social media profiles on May 5th 2024 with a little note about what CdCS is and what the group does using text from www.criduchat.org.uk
• And tag us in if possible so we can share the best of them (with permission) in our next newsletter
• Whilst this is just a little bit of fun if you were able to raise funds for the group at the same time by setting up a page via JustGiving (https://justgiving.com/criduchat) it would be much appreciated

It's May which means a focus on raising awareness of Cri du Chat Syndrome.

Joanne Edge is doing a full month of activities including walking 5k every day. 🤯

You can find out more here https://www.justgiving.com/page/joanne-edge-1714493194594 but we will be sharing her progress as well.

Huge thanks to Jo!

PS if this has inspired you to do something to help us raise awarness please do get in touch [email protected]

Joanne 's fundraiser for The Cri Du Chat Syndrome Support Group Help Joanne Edge raise money to support The Cri Du Chat Syndrome Support Group

Become a Member

If you are based in the UK or Ireland and are a person with Cri du Chat syndrome or a parent/guardian/carer/family member of a person with Cri du Chat syndrome then you are eligible to sign up for free membership of the society which will allow you to access our soon to be launched online forum as well as our private Facebook group, family fun days and grants.

Become a Member - Cri du Chat Support Group If you are based in the UK or Ireland and are a person with Cri du Chat syndrome or a parent/guardian/carer/family member of a person with Cri du Chat syndrome then you are eligible to sign up for free membership of the society which will allow you to access our soon to be launched online

Our little lottery (powered by One Lottery) is proving to be a really important source of fundraising for us.

If you are not currently participating please do consider joining the fun. Tickets are £1 per line per week.

https://www.onelottery.co.uk/support/cri-du-chat-support-group