Action for Ashley
Our goal is to raise money for Global Research into Duchenne Muscular Dystrophy and help our boy liv
Action for Ashley is a fund set up by his family and friends to raise money to find a cure for Ashley. In June 2014 Ashley was diagnosed with Duchenne Muscular Dystrophy (DMD). DMD is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable muscle-wasting disease, boys affected
Its a killer.
A 100% fatal ticking bomb.
Duchenne Muscular Dystrophy, the most severe form of MD.
No treatment for the underlying cause.
Its a killer.
A 100% fatal ticking bomb.
Duchenne Muscular Dystrophy, the most severe form of MD.
No treatment for the underlying cause.
Please watch ⬇️
https://www.facebook.com/MuscularDystrophyAwarenessWarrnambool/videos/321398812253048/
02/07/2023
Captain Ashley loved today ⚽️♿️🤦♀️
Huge congratulations to academy team who were crowned winners of the Murray Watson Cup in the final round of Yorkshire League. Ending their season on a high with 3 wins & a draw.
16/05/2023
Day 2 of GCSEs.
Engineering yesterday … Biology today.
Good luck Bash ❤️
Standards of Care - Duchenne. Great job
Claire Sowden Alex Johnson and Ashley’s Consultant Anne-marie.
Thanks to for tackling this issue.
08/01/2023
A smiley number 8 Captain Ashley 😍 with his team mate George.
Hull & East Yorkshire Power Chair Football training.
Merry Christmas from the Weggsters. A tough old year but Ashley’s had a lovely Christmas according to the PlayStation purchases that have been emailed to me 😆.
18/11/2022
Have a listen. This is Ashley’s mate Nick Tudor - released today.
👏👏👏👏
Blue Hymns Provided to YouTube by Ditto MusicBlue Hymns · Nick TudorBlue Hymns℗ Paul TeasdaleReleased on: 2022-11-18Auto-generated by YouTube.
Thank you for inviting Action For Ashley to speak at the Awards Dinner on Friday.
The tombola drum is ready 🙂
11/09/2022
Still so grateful to all of the runners that ran for Action for Ashley in the Great North Run, raising thousands of pounds for Duchenne research. Thank you for being his legs ❤️.
2017
A year ago I was looking at Ashley wearing a plastic toy medal given to him by Grumpy. Ashley loved his medal and wore it non stop.
I wondered how I could find an event to get him a real medal considering the mobility problems he has.
Fast forward a year and with the help of such amazing family & friends and friends of friends, there were lots of medals, even one for Ashley.
What a brilliant weekend we had at the Great North Run. Thank you so much to everyone that joined us, for being there, to those that came to support their friends and families. Team Ashley supporters raised THOUSANDS at this event which will be directed to fund more clinical trials in the North for those living with Duchenne.
Thank you everyone for the hours of training, taking the time to travel to Newcastle and being part of the World's favourite half marathon. YOU ARE LEGENDS 👏👏👏👏
Melissa Wegg Leslie Wegg Valerie Johnson Lisa Hair Elizabeth King Rob King Ali, Fiona, Amy, Samantha Riley, Ashley Walker, Wayne, Tom, Andrea Walker, Lucy Walker, Owen Walker, Lisa Robinson Bev Cooney Natasha Faers Matt Faers. Not forgetting our injured volunteers Ian Phillips and Chris Edwards - thank you for offering your services. Sara Wilcox Tahera Kay - thanks for looking after everyone ❤️
Videos (show all)
