Northants British Polio Fellowship & Disabled Associates and Carers.
We are a group of disabled volunteers who offer advice, to disabled persons, their families and carer
23/07/2024
The World Health Organization is “extremely worried” about the possibility of an outbreak of the highly infectious polio virus in Gaza after traces were found in wastewater.
Polio in Gaza: WHO 'extremely worried' about possible outbreak Traces of the highly infectious virus were found in sewage samples from two sites a month ago.
15/06/2024
IMPORTANT !!
Demand a better future for disabled people Will you add your name to demand change for disabled people during this election?
Wikipedia
"Daventry is a constituency in Northamptonshire represented in the House of Commons of the UK Parliament since 2010 by Chris Heaton-Harris of the Conservative Party, who has served as Secretary of State for Northern Ireland since 2022. On 18 May 2024, he announced that he would not seek re-election as an MP at the next general election".
No way would this happen in the UK.
19/04/2024
Wow !! https://lottie.org/fees-funding/pip-list-of-medical-conditions-uk/
The five most common conditions people claim PIP for :
Below are the conditions which people most commonly claim Personal Independence Payment (PIP) for, according to the Department for Work and Pensions (DWP). As of October 2023, these five conditions comprised over 85% of total claims.
1. Psychiatric disorders - 1,253,056 claims - 37.30% of total claims
This includes stress, anxiety, mood disorders, cognitive disorders, eating disorders and learning disabilities.
2. Musculoskeletal diseases (general) - 669,706 claims - 19.93% of total claims
This includes osteoarthritis, fracture complications, muscle pain and joint pain.
3. Neurological diseases - 423,552 claims - 12.61% of total claims
This includes epilepsy, multiple sclerosis, headaches, head injuries, cerebral palsy and neuropathy.
4. Musculoskeletal diseases (regional) - 396,387 claims - 11.80% of total claims
This includes disorders affecting specific body parts such as the shoulders, wrists and hands, neck, back, hips, knees, ankles and feet.
5. Respiratory diseases - 139,058 claims - 4.14% of total claims
This includes asthma, cystic fibrosis, pulmonary fibrosis and diseases of the upper respiratory tract
All Medical Conditions That Qualify For PIP In the UK | Lottie People in the UK could be eligible to claim almost £750 per month through Personal Independence Payment (PIP). Here are the 21 medical conditions that qualify.
10/04/2024
HATTON ROTARY CHEQUE PRESENTATION TO THE
BRITISH POLIO FELLOWSHIP NORTHAMPTONSHIRE BRANCH TO SUPPORT
THE WEEKLY POLIO SURVIVORS HYDROTHERAPY EXERCISE PROGRAMME
The opportunity was taken on Sunday 7th April’ whilst at the Rotary 1070
Disability Games, at the Ratcliffe College, Ratcliffe on the Wreake to make a
cheque presentation from the Hatton Rotary President Tony Frankland, to
Mike Jackson Welfare Officer, in support of the weekly Hydrotherapy exercise
programme for polio survivors.
At a Race Night on the 7th Oct 2023, organised by Hatton Rotary member
Zoe Lawrence, and supported by both members of Hatton Rotary, friends and
BPF branch members, the evening raised £711.41. On behalf of all his branch
members, Mike Jackson thanked Tony Frankland for the donation, and Zoe for
organising the Race Night to raise funds for the Hydro
10/04/2024
ROTARY DISTRICT 1070 THE DISABILITY GAMES 2024
SUNDAY 7th APRIL RATCLIFFE COLLEGE, RATCLIFFE ON THE WREAKE
In the absence of Dick Parsley the Foundation Officer for Wellingborough Hatton
Rotary who had organised for 6 members of the BPF Northamptonshire branch to
take part in the games, the team were managed on the day by Nigel and Sheila
Cheetham. supported by the Hatton Welingborough Rotary President Tony
Frankland . The branch competitors were Mike Jackson; Michael Noble; Michael
O’Grady; Virginia Olds; Trevor Rennie, and Carl Weininger.
The competitors were supported by family and branch members The games
commenced at 10am with 120 taking part in Swimming; Boccia; Table Tennis;
Basketball Hoop Shooting; Kurling; Weightlifting; Darts; Wheelchair Dash and
Wheelchair Slalom. The BPF team took part in 6 of the 9 events with Michael
O’Grady winning the Kurling against 45 other competitors and Virginia Olds won the
Wheelchair Slalom against stiff competition from 6 other competitors. Both Michael
and Virginia were awarded a cup as the winning finalists. A great result for the team
thanks to the support of Dick Parsley and all the members of both Hatton
Wellingborough Rotary and the Inner Wheel.
09/04/2024
Rotary Disability Games 2024
27/03/2024
At aged 6 'they' told me to stop crawling around on the floor because no one was gong to help me up. I was told in no uncertain terms that the only person who would, or who could help me through life was myself. Never was a truer word said to me. And the same still applies now at aged 72. The day I give up trying will be my last.
‘They told me I wouldn’t live past 30’ Key takeaways:The disease is nearly eradicated today, but polio is a part of health care history across the world.The polio virus invades the nervous system and can cause serious symptoms including paralysis. Long term impacts are also possible.Decades ago, treatment like an iron lung was common for...
20/03/2024
Optimal Clinical Pathway | British Polio Some people with Polio would have had paralysis, muscle weakness and shrinking of the muscles. But usually, these problems would have either gone away over the following weeks or months, or remained the same for years afterwards.
20/03/2024
Important and Fully Updated Clinical Pathway for Polio Survivors from the British Polio Fellowship.
Optimal Clinical Pathway | British Polio Some people with Polio would have had paralysis, muscle weakness and shrinking of the muscles. But usually, these problems would have either gone away over the following weeks or months, or remained the same for years afterwards.
The BPF National Indoor games will be taking place at the Marriott Hotel, Leicester, Smith Way Grove Park, Leicester LE19 1SW this Saturday 16th March. Members from branches around the country will be taking part in a number of games throughout the morning. The afternoon will have a number of activities for everyone to take part in. The BPF Head office team will be in attendance and there will be polio related information available throughout the day. Trevor Rennie will be competing on behalf of the BPF Easter region defending his Boccia trophy that he has won for the past three years. We welcome you to come along during the day to meet with members from the Northamptonshire branch, and to meet members from other branches, as well as the BPF Head Office team Regards Mike Jackson.
17/02/2024
Zoom !! Zoom !! Thursday 22nd February, at 1100.
Don't forget to register for British Polio Fellowship Zoom Cafe at 11:00am this Thursday 22 February. We're joined by The Wheelchair Alliance to explain how they can support survivors. Everyone is welcome. Register: https://ow.ly/jqbk50QAxzk
14/01/2024
It's not just 'Physical Pain' in my case there is also a great deal of 'Frustration' which often makes me 'Short Tempered' and even 'Angry' on occasion. And I frequently now ask myself, why do I bother to try any more !!
What's the point of pain? - BBC Ideas Watch the "What's the point of pain?" video at BBC Ideas. Explore other related content via our curated "Health and wellbeing" playlist.
14/01/2024
The misdiagnosis that sent me to psychiatric hospital - BBC Ideas Watch the "The misdiagnosis that sent me to psychiatric hospital" video at BBC Ideas. Explore other related content via our curated "Health and wellbeing" playlist.
14/01/2024
https://www.bbc.co.uk/ideas/videos/whats-the-point-of-pain/p0gbsy0y?playlist=health-and-wellbeing
What's the point of pain? - BBC Ideas Watch the "What's the point of pain?" video at BBC Ideas. Explore other related content via our curated "Health and wellbeing" playlist.
14/01/2024
https://www.bbc.co.uk/ideas/videos/how-does-therapy-work/p0fnr2nj?playlist=health-and-wellbeing
How does therapy work? - BBC Ideas Watch the "How does therapy work?" video at BBC Ideas. Explore other related content via our curated "Health and wellbeing" playlist.
07/12/2023
Video of last month's excellent lecture from Dr. Marny Eulberg is now available on the PHI website at https://post-polio.org/education/post-polio-experts-present/
Our full library of informative videos can be found on the PHI YouTube channel: https://www.youtube.com/-poliohealthinternational
Be sure to subscribe to our YouTube channel so you don't miss out on more great content from PHI!
07/12/2023
Post-Polio Health International (PHI)
Video of last month's excellent lecture from Dr. Marny Eulberg is now available on the PHI website at https://post-polio.org/education/post-polio-experts-present/
Our full library of informative videos can be found on the PHI YouTube channel: https://www.youtube.com/-poliohealthinternational
Be sure to subscribe to our YouTube channel so you don't miss out on more great content from PHI!
07/12/2023
Carl Weininger
I took part in this study on Tuesday and would recommend anyone with a serious Disability such as Polio and / or Post Polio Syndrome, as well as 'Long Covid', which is akin in many ways to Post Polio Syndrome, to take part in this important survey because the results will hopefully get to the Minister of Health in due course and then be brought to the attention of the UK government.
We are now recruiting for our new study! We are testing a questionnaire for people living with a long-term condition. If you are interested, look below for more details and how to get involved!
Join here: https://linktr.ee/ltc_study
Email us here: [email protected]
I contracted Polio as a child in 1957 and have always received good treatment throughout the NHS, including when, and after, being told that I likely have PPS as well. Even though there is no definite diagnosis for PPS and no one really knows what it is exactly. I accept that there is very little any Doctor or Medical Expert can do to help with PPS, other than to advise you to try not to overuse the muscles you have left. Hence, my visits to my GP or any Consultant are not usually about Polio or PPS, because there is little point in discussing this with them because firstly, few know anything much about Polio and or PPS, and secondly which is more to the point they cannot do anything to help much with either of the conditions, which we all know anyway. The only person that can help us with the burden of Polio / PPS is ourselves, and we have to self manage and live with these debilitating conditions as best we can, however difficult this may be. And, I for one, am fully resigned to this despite it getting me down, big time, on occasion, especially during cold weather. And for the record I do not either take, or believe in taking, any strong / addictive painkillers, sedatives or anti-depressants, however much pain I may be in, or however bad I feel, full stop.
Carl Weininger.
20/11/2023
Yes !!
MPs say cost-of-living payments to disabled people should have been higher A committee of MPs has called for any further cost-of-living payments made by the government to disabled people to be increased in proportion to the extra disability-related costs they face. The Co…
20/11/2023
Interesting Results from BPF Member Survey.
Big member survey produces interesting results In March and April of this year, the British Polio Fellowship conducted a Big Survey of its members and over a thousand people responded. The results suggested support and guidance for polio survivors is needed more than ever. Over the years there has been a rise in polio survivors being diagnosed w...
08/11/2023
‘A different spirit’ of research: Yale clinic seeks to unravel the mystery of long Covid - Yale Daily News At the Yale Multidisciplinary Long Covid Clinic, researchers and clinicians are racing to help patients and uncover the biology behind post-acute syndromes.
07/11/2023
No history book needed. Lake County woman, 84, tells the story of life after childhood polio June Renner, now 84, hasn’t run since October 1953, when she contracted polio as a high school freshman. She survived, and through grit and determination, learned to walk again with braces, and even drive a car using hand controls.
02/10/2023
26/07/2023
https://www.youtube.com/watch?v=nO2Y1ctkf9o
This is very worth looking at / listening to : It if from PHI (Post-Polio Health International) PHI Lecture - Exercise Guideline for Polio Survivors.
PHI Lecture - Exercise Guideline for Polio Survivors Part of the 2023 PHI Educational SeriesJuly 18, 2023Presenter:Carol Vandenakker AlbaneseDr. Vandenakker Albanese is a Health Sciences Clinical Professor in ...