Scleroderma Awareness Philippines
The page aims to raise awareness about Scleroderma / Systemic Sclerosis in the Philippines It is complex, debilitating, progressive, and sometimes fatal.
Scleroderma or Systemic Sclerosis is a rare, autoimmune, connective tissue disease. The cause is not known and some treatments are available but there is no cure. The immediate goal of this Page is to raise an awareness campaign about the disease and attain at least two (2) things:
1. In coordination with the Scleroderma Society of the Philippines, have a Registry of patient members who have been
04/07/2024
World Scleroderma Day- June 29, 2024
Thank you to our sponsor, Mr. Isaac Syed and to the main organizers, Dr. Aileen Agbanlog Dimatulac and the St. Luke's
Medical Center-QC Rheumatology Fellows. Thank you as well to Mr. and Mrs. Velasco.
Faces of Scleroderma Awareness Philippines
Join us as we celebrate World Scleroderma Day on June 29, 2024!
28/06/2024
Today is World Scleroderma Day.
June 29 is World Scleroderma Day.
26/06/2024
Represented Scleroderma Awareness Philippines
21/06/2024
Thankful to be part of this for Scleroderma Awareness.
01/06/2024
June is Scleroderma Awareness month
27/05/2024
Sclero-Cocoon
14/05/2024
Free Skin & Bone Consultation on May 20th, 8am-12nn at Dapitan Sports Center (Sampaloc, Manila). Get expert advice on skin & bone issues.
Taking Charge of Your Health: Free Skin & Bone Consultation!
Mark your calendars! On Monday, May 20th, from 8am to 12nn, we're offering a FREE Skin & Bone Consultation at the Dapitan Sports Center (1131 Instruccion St, Sampaloc, Manila).
This exciting event is brought to you in partnership with the Philippine Dermatological Society, the Philippine Rheumatology Association, the City of Manila, and our media partner 702 DZAS - FEBC Radio.
This is your chance to:
Get expert advice on skin conditions and rheumatic problems.
Connect with others on a similar health journey.
Find support and resources to feel hopeful about your future.
Together, we can take control of your health!
Don't miss out!
For more information, visit our official page or www.psorphil.org.
Your brighter future starts here!
06/05/2024
World Pulmonary Hypertension Day
Today is World Pulmonary Hypertension Day! Individuals living with scleroderma often experience pulmonary hypertension. To learn more, visit https://scleroderma.org/resources-center/
03/05/2024
ABANGAN SA EHEMPLO! 👀
DR. ROWENA LOU A. SIA - ORTIZ
* SCLERODERMA WARRIOR & ADVOCATE
Isang ina👩👧👦, dentista👩🏻⚕️, boluntaryo🤗, at Co-Founder ng Scleroderma Awareness Philippines, isang autoimmune rare disease.
page: https://www.facebook.com/Scleroderma.Awareness.Phils?mibextid=LQQJ4d
Samahan si Jo Cabrera-Alabastro sa ganap na 7:30AM hanggang 8:30AM.
01/05/2024
15/03/2024
ABANGAN NGAYONG SABADO SA EHEMPLO👀
MR. JOSEFINO “JOSEF” DE GUZMAN
FOUNDER, PSORIASIS PHILIPPINES
ADVOCATE, PEOPLE LIVING WITH PSORIASIS & PSORIATIC ARTHRITIS
Siya ang nasa likod ng matagumpay na organisasyon sa bansa ang Psoriasis Philippines na nagsimula lamang sa seven volunteers na ngayon ay may mahigit 37,000 followers na sa Facebook. 🤝🏼👥
PSORPHIL: https://www.facebook.com/PsorPhilippines
Panourin at pakinggan ang kanyang kwento kung paano nalagpasan ang diskriminasyon dulot ng sakit na Psoriasis🖐🏻🦶🏼.
Kasama natin si Jo Cabrera-Alabastro💁🏻♀️ sa darating na March 16, 2024 sa ganap na 7:30AM hanggang 8:30AM
Kitakits, Ka-Agapay!
07/03/2024
The Kids Get Scleroderma, Too! and National Scleroderma Conference scholarships are now open. The scholarship covers the cost of travel, lodging and registration to attend this year’s conference. For more information, download the fillable form at our website. The deadline to submit your application is March 20, 2024.
https://scleroderma.org/wp-content/uploads/2024/02/2024-Conference-scholarship-final.pdf?bbeml=tp-JWRarjDScUO0zGLKk5a83g.jqoVJMSVZtESNYp7uDtoo2w.rZ9Z1VJAfuUqEWB4rWmfbhg.l-G2nFytvYUeJJTBPxkt8Qg
07/03/2024
World Congress on Rare Skin Diseases
03/03/2024
March is Autoimmune Disease Awareness Month
Dr. Aileen Agbanlog-Dimatulac
Ms. Coleen Velasco
17/02/2024
Rare Disease Day 2024 - Scleroderma Awareness Day
General Assembly and Lay Forum for Scleroderma Patients
St. Luke's Medical Center - Quezon City
17 February 2024
General Assembly and Lay Forum for Scleroderma Patients
16/02/2024
The Sunflower is the symbol of scleroderma. Just as the sunflower follow the sun for warmth, people with scleroderma tend to favor the sun.
15/02/2024
February is Rare Disease Awareness Month.
10/02/2024
February is Rare Disease Awareness Month.
01/02/2024
25/01/2024
Did you know that lupus and scleroderma have several features in common?📚
Although they're very distinct autoimmune diseases, lupus and scleroderma have 3️⃣ key similarities:
1️⃣ Autoimmune diseases: Both are autoimmune diseases in which the immune system mistakenly attacks the body's own tissues.
2️⃣ Chronic diseases: Both conditions are chronic, requiring ongoing management to improve quality of life.
3️⃣ Overlapping symptoms: Lupus and scleroderma may share common symptoms, like joint pain, fatigue, and Raynaud's phenomenon, which can make diagnosis difficult and require further testing. In fact, studies show that scleroderma patients may also be affected by lupus.
Join us in our mission to improve care and empower patients by liking and sharing this post 💡🩺
Scleroderma Awareness Philippines
The immediate goal of this Page is to raise an awareness campaign about the disease and attain at least two (2) things:
1. In coordination with the Scleroderma Society of the Philippines, have a Registry of patient members who have been diagnosed with the disease. The use of social media will be of great help for this purpose. If you know someone who suffers from Scleroderma or its symptoms, feel free to send us a message.
2. Push our legislators to sponsor a bill to further support persons who suffer from Scleroderma. An example was a Senate Bill sponsored by the late Senator Miriam Defensor-Santiago (Scleroderma Research and Awareness Act – Senate Bill No. 1443, 16th Congress). Unfortunately, the Senate then did not deem the bill as an urgent one. Now, we can make a louder noise and demand our legislators to recognize our right to participate in policy-making.
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