1600 Lives
1600 children are born each year with the little known disorder called CDH half won't make it to the We can change that through awareness and education.
Little is known about CDH yet it affects the same number of children as does the more known cystic fibrosis or spina bifida. In a statistic recently released by the NIH (National Institute on Health) $79M annually is spent on cystic fibrosis with great advancement and only $4M is spent on the little known CDH. That is just what this 1600-mile walk is destined to do.
Love our girl!!
Now that she had her hip surgery and is out of the cast/brace we are switching gears and prepping for our next stem cell therapy and intensive back in Phoenix! Yesterday we got in our home chamber again for the first time in a while with the goal of making it in at least once a day until we leave August 7th (currently in it as I type). Definitely looking forward to seeing how she does as this will be the first time we are able to do it in the recommended 6 month separated time frame. She's been doing so well with everything that it has me excited! AND this time I won't be flying solo with the three kiddos 🙌
A child’s resilient battle for life As 88th Air Base Wing command chief, Chief Master Sgt. Jason Shaffer doesn’t just talk about resilience. He and his family have battled through it.Their story starts in 2014 when his wife, Tawny, gave
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