Fragile X on the Spectrum
I want to share my experience as a parent of a child with Fragile X and ASD.
Learning about Fragile X through my daily life as a mom has taught me the importance of having a voice and taking note of the different ways we use them so we can diffuse the bombs, that can build inside all, with empathy.
06/22/2021
![MY REACTION TO DONT TAKE MY LIFE- [TS MADISON]](https://img3.findglocal.com/662/885/318859006628858.jpg)
06/16/2021
MY REACTION TO DON'T TAKE MY LIFE-[TS MADISON]
A response to the rant.
MY REACTION TO DONT TAKE MY LIFE- [TS MADISON] A response to the rant.
Emelia is now in love with the park! But with the cold and wet all we can do is walk around and making silly faces! I'm excited for the future as my E proves time and time again she can break through her roadblocks! I think maybe I will too!
The last time my 6 year old enjoyed herself at a park was at age 3. Since then it has been an up and down challenge for her to play with others and enjoy all the playground fun. Her anxiety got the best of her most days and we just stopped for long periods of time. This day she asked to go to the park and with hesitation I took her. It is hard to watch my child struggle and I feel uncomfortable so selfishly I stop trying. But she proves me wrong every time! As we scooted together to slide I felt her joy bubbling up. The swing was next! My girl does NOT do swings! Well she again showed me what her will can do! It started off rocky but she endured and I watched her push through her fear and soar!
Upon discovery of these emojis E and I have our bedtime routine on repeat LOL!
12/14/2020
https://www.instagram.com/tv/CIyfY20DUXs/
We miss our friends but still manage to have some Christmas cheer this year!
11/11/2020
Pet Store Visit and Sensory Play Our Saturday was great hangin out at the pet store and the house!
May baby tried to fit it all in this morning lol!
11/04/2020
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10/29/2020
New Orleans zoo with Milzville!
New Orleans Zoo 2020 I really appreciate seeing my child enjoying herself out of her safety net. Each time we go out of our the comfort of our home I never know what to expect an...
10/25/2020
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10/22/2020
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Motivationals quotes: Overcoming Obstacles
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10/12/2020
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Instagram https://www.instagram.com/fragilex_onthe_spectrum/
Facebook: Fragile X on the Spectrum
Motivationals quotes: Overcoming Obstacles
Help us grow on YouTube at
“FragileX ontheSpectrum” Give us your feedback! We’d love to hear from you!
10/11/2020
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Check out Milzville on IG!!❤️
10/11/2020
10/07/2020
What makes you smile?
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10/06/2020
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10/05/2020
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10/04/2020
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10/02/2020
10/01/2020
09/30/2020
09/29/2020
E enjoying her morning ride to therapy school! What’s your morning vibe?
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09/28/2020
QT time! E enjoying her grandmother!
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09/28/2020
Imagine being in a place where you are overwhelmed with sounds, curiousity, desires and fear. You’re overwhelmed, very overwhelmed. You need help but you struggle with communication. You know that someone around can help you but you can’t reach out to them. What would you want that person (that could help you) to do? Do it!
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09/26/2020
Usually traveling includes my daughter and a lot of worries regarding logistics, safety, etc. This is the first time leaving her behind. If youve experienced this, please share tips on how to ease the anxiety.
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09/25/2020
E loves her OT! A really good Occupational Therapist is like a good hug from the right person! They help make your life better!
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09/24/2020
Nothing says empowered like a person in a tutu!
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09/23/2020
One way to underestimate the power of their love is to not acknowledge it. People with Autism have feelings. The beauty of communicating with them is like learning a new language that is unique to you and that individual.
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09/23/2020
When you have a cute outfit and a good snack! E’s outfit of the day! She’s a whole mood!
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09/22/2020
Happy Tuesday! This is E on our morning ride to school today! I’m grateful for the smiles, when she gives them.
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09/22/2020
Pushed
https://youtu.be/_X_5c-42wSM
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Pushed Pushed
09/22/2020
Change is required for growth. Let’s grow together!
People with special needs don’t need pity, just understanding.
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09/21/2020
E’s outfit of the day! She’s determined to be independent and demanded to wear this shirt to school today.
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09/20/2020
We are working on getting her comfortable with her new play yard. E likes sitting and trying to climb up the slide. Her OT is working on climbing skills with her. She has what they call Gravitational Insecurity. What is something your child is conquering?
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09/20/2020
Sometimes it takes believing in things we cannot yet see!
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09/20/2020
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