Lyme Treatment Foundation

Ninja Foods holiday giveaway! 💚🎉 Tag 2 friends below for a chance to win! You can also purchase a Ninja Foods book for a child battling Lyme here: https://www.amazon.com/Ninja-Foods-Included-Christina-Glowac-ebook/dp/B09XVPY4N5 💚

Help make a difference in the lives of those battling Lyme disease! 💚 Every single dollar donated goes directly to patients in need. Donations are being matched up to $500. Help us reach our goal this GivingTuesday!

Join our Giving Tuesday fundraiser here: https://www.facebook.com/donate/1338503140363399/
Thank you for your support! 💚

Shop with our amazing brand collaborators and support Lyme Treatment Foundation this holiday season! 💚

Shop all the brands here: https://lymetreatmentfoundation.org/shop-%26-support

We appreciate your ongoing support!

TiCK MiTT
Life Redefined Co.
Mighty Well
Palm Beach Coaster Company

New York friends! 💚 kelseyquinn.photography and Railyard Arts Studio are hosting a holiday photo fundraiser tomorrow in Croton Falls, NY!

Learn more here:

https://railyardartsstudio.com/?utm_source=google&utm_medium=organic&utm_campaign=googlemybusiness

We hope to see you there!
. .

REPOST from Railyard Arts Studio 🤍

Light for Lyme is TOMORROW from 12-3pm! We will be taking walk ins for holiday photos! Stop by for photos, fun, and to support an incredible cause!

Happy Thanksgiving from all of us here at the Lyme Treatment Foundation! We hope you have a wonderful day!

“I have had Chronic Lyme for approximately the last 15 years. After years of going to many different Drs trying to find out what was wrong with me I was finally diagnosed with in 2017.
 
It was a relief to finally know that I was not crazy and there was actually something going on in my body that was reeking havoc. I live in Texas and Lyme was not that prevalent so no one ever thought to check me for Lyme. My main symptoms started out as anxiety and depression. I was in a car wreck and that turned my world upside down.
 
The Lyme had been dormant and after the car wreck it flared and I became very sick to the point I could not walk up the stairs to my apartment. I ended up having to move back home with my parents and was basically bedridden for 3 years.
 
The Drs I went to would tell me there is no such thing as Lyme or I don’t believe in Lyme. We finally went to a Dr. who wanted to get to the root cause of what was going on and began running test on me. That is when I finally found out I had Lyme disease.
 
Then the journey began to find help to get well. I tried so many different treatments and my parents had to take on a lot of debt to help me. I found a Dr who helped me get a lot better but the treatments are very expensive and it’s hard to maintain when you are unable to work.
 
I started online school 2 years ago and worked through illness mostly from bed to become a board-certified Holistic Health Practitioner. My dream is to help others to get well and not have to go through what I have been through!
 
The Lyme Treatment Foundation has been such an amazing blessing to me and my family. I have been able to get the supplements and IV’s that I need without having to take on more debt!! It has been such a blessing, and I will be forever grateful for the help!! My family and I hope to be able to pay it forward someday!! It was such a relief not to have to worry how to get the treatments I needed.
 
Share a quote with us that has helped you heal:
I can do all things through Christ who gives me strength!!”
-LTF Grant recipient Meaghan S.

This week only! 💚 Shop our LTF tee shirt collections here: https://www.bonfire.com/store/lyme-treatment-foundation-store-front/ and use code: FIGHTLYME15 for 15% off your order!

All proceeds benefit our treatment grant programs! 💚 Swipe to see some photos throughout the years.

Thank you for your support and feel free to tag us wearing your gear! 👕

Shop here: https://www.bonfire.com/store/lyme-treatment-foundation-store-front/

We love to see our supporters repping their LTF gear! 💚 Tag 3 people below for a chance to win a Lyme Treatment Foundation “fighter” bracelet. And feel free to email us at [email protected] to send in your photos for a chance be featured! Thanks supporters! 💚

Grant applications are now open! Application open to those in Canada, Germany, Ireland, the U.K. and U.S. Learn more about our testing and treatment grants today at lymetreatmentfoundation.org/application-information. 💚

ICYMI: For the first time, the National Center for Emerging and Zoonotic Infectious Diseases (NCEZID) acknowledged that “some disease agents have been linked to chronic symptoms, like Borrelia burgdorferi (the bacteria causing Lyme disease)”.

We are excited to see progress being made! 💚

Lyme disease treatment and testing grant applications open on Monday, November 6th! 💚 Applications open to those in Canada, Germany, the U.K. and U.S. No age restrictions. Learn more at lymetreatmentfoundation.org.

Let’s all wish our founder Wendy Phillips a happy birthday! 💚She’s currently attending the .lyme conference up in Boston learning the latest on Lyme and tick-borne diseases. Happy birthday Wendy! 🎉

“Johns Hopkins Medicine researchers report distinctive changes in the “white matter” and other brain tissue physiology of those with post-treatment Lyme disease.”

“This study helps substantiate and validate that memory, and other cognitive difficulties experienced long-term by individuals with post-treatment Lyme disease [Lyme disease], are linked to functional and structural changes in the brain.”

Full article available here: https://www.eurekalert.org/news-releases/969283 💚

PARTICIPANTS NEEDED: Call for participation in a new Lyme disease study from UNC Gillings School of Global Public Health! 💚

The objective of this study is to better understand the attitudes and perceptions of individuals who are demonstrating interest in participating in clinical trials for Lyme and other tick-borne diseases.

Findings from this study will help to inform future communications and strategies around patient recruitment for Lyme & tick-borne disease clinical trials.

Participants will review a consent statement. Once they opt in to participate in the study, a brief Qualtrics survey will be distributed, data will be collected and analyzed.

For all questions, please contact the research team directly by emailing [email protected].
UNC IRB 23-1991.

The link to participate:
https://unc.az1.qualtrics.com/jfe/form/SV_1XtxKfhZOY0P8hw

Thank you!

Introducing our newest brand collaboration, Life Redefined Co.! 🩵🩵 A portion of all sales is being donated to Lyme Treatment Foundation. Shop their amazing collections here: https://liferedefinedco.com!

Life Redefined Co. is owned by a Lyme warrior and we are so excited to share this brand. Shop at liferedefinedco.com today!💚

“It is nice to have validation from a foundation who truly cares about individuals who are trying to better themselves, get the help they need and who are struggling financially to afford Lyme treatment.”

Thank you for your kind words Jeanette!

The next oppportunity to apply for a testing or treatment grant will be November! Date TBA. 💚

Our mission is to provide medical treatment and testing grants to those in need all around the world. 🌎 We also award research grants to researchers studying and advocate on behalf of Lyme patients. 💚

Make a donation today to support our granting programs. Donate online at lymetreatmentfoundation.org/donate or via the link in bio. Thank you for your continued support! 💚

NEW LYME STUDY:

'A Longitudinal Study of a Large Clinical Cohort of Patients with Lyme Disease and Tick-Borne Co-Infections Treated with Combination Antibiotics'

"There were statistically significant reductions in the incidence of pain (41.43%) and neurological (37.50%) symptoms between follow-ups. Thus, our study demonstrates that combination antibiotics effectively relieve TBI symptoms with good patient tolerance."

https://pubmed.ncbi.nlm.nih.gov/37763996/

A Longitudinal Study of a Large Clinical Cohort of Patients with Lyme Disease and Tick-Borne Co-Infections Treated with Combination Antibiotics - PubMed The rising prevalence of tick-borne infections (TBIs) necessitates further attention. This study retrospectively investigated the types of TBIs, symptoms, and if combination antibiotics were helpful within a patient cohort at an infectious disease clinic in Ireland. In this chart audit of 301 indivi...

Our founder Wendy Phillips shared her story with the TiCK MiTT this week! Read about her journey with Lyme disease below. 💚
Repost from TiCK MiTT
•
Meet Wendy! She was diagnosed with Bartonella, Babesia and Lyme disease in 2017 after a year and a half of looking for a diagnosis. Her symptoms included seizures, throat tightness, neuropathy, heart problems, vision loss, back pain, weight fluctuation, dizziness, air hunger/breathing problems, stomach twitching, chemical sensitivities, whole-body inflammation, and memory loss.

Wendy lost the ability to read and comprehend, which led to her leaving her graduate program in California.

The hardest part of her journey was the diagnosis process. When she was finally diagnosed, she was put on 2 antibiotics because of the severity of symptoms. She has added vitamins and supplements since then and in 2020, added disulfiram, which really made a substantial difference in about 4 months.

She currently takes antibiotics and disulfiram about 2 times per week and daily vitamins and supplements. “I feel like I am almost in remission and am having periods of no symptoms, which I am forever grateful for!”

Some advice from Wendy:

“Stay strong and give yourself grace. This disease is challenging on so many levels and you are doing the best you can! 💚 Ask for help when you need it. Speak your voice to your doctor. Share your story. And keep your thoughts in the light. You can get better! And finally, if you are in need of funds to see a Lyme doctor, or if you are in need of a blood test, visit Lyme Treatment Foundation for more! Hugs to you all! 💗”

Thank you Wendy for sharing your story 💚 If you want to be featured on our next Tell Your Story Thursday, fill out the Google form linked on our story!

Lymedisease.org

Thank you all for your amazing support! 💚 In 2023, we awarded $187,000 in testing, treatment and research grants! Grant applications will open again this November. 🩵 Stay tuned for more information or visit lymetreatmentfoundation.org!

“For those who are witnessing it, you are quite literally watching the people you love being tortured before your eyes.” 💚

Thank you Chris Meloni for using your voice and advocating for the Lyme community! Photo from Lymedisease.org article linked below from the Today Show 🤍

https://www.msn.com/en-us/health/medical/chris-meloni-says-family-members-1st-signs-of-lyme-disease-were-confused-for-stomach-flu/ar-AA1h0pgc

LTF testing and treatment grant applications are opening this November! 💚 Date TBA. Those in the U.S., Canada, Ireland, Germany, and the UK are eligible to apply. The application will be directly on our website. Visit lymetreatmentfoundation.org/application-information for all the details! 💚

Read grant recipient Nicole’s Lyme disease story using the link below. She is a fighter who is battling hard against Lyme disease with the help of her mom and pup, Panda Rae. 💚

“A big part of the help has been from the Lyme Treatment Foundation grant. Without the assistance, many of the tests and treatments I may not have been able to afford to try to see if they would help with the Lyme Disease.

I’m having to re-discover myself through Lyme treatment especially since I’ve never been able to get a steady foot in life. I don’t know who I am but I’m trying to get there.

And I’d like to find other people to help especially as I get better so I can fight for the little guy that doesn’t have a voice or power to speak up.”

When asked to give advice to another Lyme fighter, she’s says, “listen to your body and do whatever it takes to be a .” 💚

Warning: the below article deals with the sensitive topic of su***de.
https://lymetreatmentfoundation.org/grant-recipient-stories-1

Singer FLETCHER diagnosed with Lyme disease 💚

“Lyme has affected me in a variety of ways and while it has not only taken a tremendous toll on my physical body, it has also caused concern for my voice as well,” she continued.

“This has won on my soul in a way that’s hard to even put words to as singing is the thing I love most in this world and my voice is my vessel for expression.”

Full story available here: https://people.com/singer-fletcher-diagnosed-with-lyme-disease-7969439

John was bitten 11 years ago and his symptoms then began a year later. He had slow progression of neurologic symptoms including numbness, dysphonia, light and sound sensitivity.... Not associated with ALS. He was then diagnosed with 5 and 1/2 years ago. The neurologist dismissed Lyme.

He took an IGeneX test last year and it came back positive for and co-infections. “It's been a long journey but hopefully, I will turn it around now.”

Share a quote that has helped you heal: “You miss 100% of the shots you don't take.”

Share a piece of advice for those battling Lyme disease:
“Try to get through all the conflicting information and find the right doctor and treatment plan for you.”

Additional comments:
“Wendy Phillips is an angel on earth. We are so lucky to have advocates like her and others.”

John was a 2023 Lyme Treatment Foundation grant recipient. 💚
Lymedisease.org
The Avril Lavigne Foundation

Today we remember and honor the memory of all those we lost 22 years ago. 💙🇺🇸

Thank you to all of our incredible partners! 💚 We are proud to be working with so many amazing people and groups!

Those who are working on amazing research projects at the University of Oxford, thank you! Keep up to date with them on their page at The Morten Group - Oxford. 🔬

Thank you to IGeneX and ArminLabs for providing free and discounted blood testing to our grant recipients!

Thank you to the Canadian Lyme Research Network who have so kindly supported our founder and Lyme Treatment Foundation since 2020! 💚

We are also proud to help support the Center for Lyme Action since 2022!

And of course the incredible The Avril Lavigne Foundation who have supported our treatment grants around the world! 🌎

Thank you all for your amaizng support! 💚 Let’s keep working together to make change.