SMAelin Strong, Buffalo, NY Videos
Videos by SMAelin Strong in Buffalo. On 5/21/21 our baby girl was diagnosed with spinal muscular atrophy, a rare genetic disease that affects the motor nerve cells in the spinal cord and impacts the muscles used for activities. We will be posting all updates of her journey on this page.
there are no words. We've got a standing toddler y'all!!! nothing can stop her.
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Aelin in her wheels
Par for the course I haven't updated here in a long time. I have been off social media all together for a few months, but this day needed to be announced and celebrated!
Aelin got her first set of wheels today, thanks the Bella's Bumba's. I will let her smile speak for itself, she was ecstatic. Seeing your child have independent mobility for the first time in her life at the age of 19 months is so emotional, we are so proud of all of her hard work. God is good, all the time!
I have been absolutely terrible at updating this page and so much has changed over the last six or seven months. But today our little nugget did THIS!! it may seem small but we’ve been fighting and working for this for so long. Full detail update to come this week regarding all of Aelin’s skills and new info! Thank you everyone for every prayer, they are being answered in His time. To God be all the glory.
PRAISE GOD 🙌🏼 👏🏼 🙌🏼 👏🏼 Aelin has been working hard this last week on extending and reaching up with her left arm. She figured it all the way out today to grab her daddy’s hat. This girl is going to defy all the odds.
Here’s our sweet fighter grabbing at her toes and practicing her rolling, with a little help from mama 🥰