FSHD Society North Texas Chapter
We are the world's largest and most progressive grassroots network of FSH Muscular Dystrophy (FSHD) patients, their families and research activists.
https://www.fshdsociety.org/about-us/our-mission/ Thank you for visiting the Facebook news page for the North Texas Chapter of the FSHD Society. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure. Until then, we hope to bring a greater awareness to the community, and to
08/28/2024
Join us tonight for a Zoom to discuss the upcoming Walk & Roll!
Learn more here...https://give.fshdsociety.org/event/2024-north-texas-walk-and-roll-to-cure-fshd/e587694
06/10/2024
Have you heard the exciting news? For the first time ever, Team Captains who sign up for the Walk & Roll to Cure FSHD by World FSHD Day, June 20th, will receive this amazing Team Captain t-shirt! Register as a Team Captain today to receive your t-shirt and get your team ready to Walk & Roll!
Register Here: https://www.fshdsociety.org/fsh.../walk-roll-to-cure-fshd/
05/22/2024
Did you know we have 2 regular monthly Zoom meetings? Have you always wondered what exactly it is we get up to?? Now is your chance to check it out if you haven't!
Our meeting on May 29th is our first ever FRIENDS & FAMILY event for all of Texas! If you are new to the FSHD world or if you love someone who is part of the community, this is an easy way to pop in and see what we're all about.
We will be recapping some info about recent events, sharing news from the FSHD Society and chatting about what we're doing in the coming months.
Feel free to invite your parents, siblings, cousins, neighbors, etc. We would love to have you all join!
North Texas Virtual Chapter Meeting | FSHD Society Please join us on the last Wednesday of the month for a virtual chapter meeting for individuals living with FSHD in North Texas. This will be our time to come together – where Connections, Hope, Healing, and Awareness happen on a consistent basis!
09/26/2023
wow, Wow, WOW!!
Y'all showed up this past weekend! Our 2nd Annual North Texas 2023 Walk & Roll was a great success because of YOU, out community! Together we raised over $37,000! Every dollar and every event pushes us towards finding a treatment and a cure for FSHD! Thank you again to all of our teams, captains and volunteers. We couldn't have done this without you!
09/11/2023
THIS!
This is what it's all about! While we still don't know what the outcome of this trial will be, we're moving forward with hope!
It is only a matter of time until we have treatment and a CURE! Without the support of our community, none of this would be possible.
But together, we have community, hope, healing and awareness!
We’re thrilled to announce a significant milestone in the battle against FSHD! Fulcrum Therapeutics has confirmed the completion of patient enrollment in the Phase 3 REACH clinical trial for losmapimod, a potential groundbreaking therapy for FSHD. Read more about this exciting news in our latest blog post! https://bit.ly/3ExbTqW
09/05/2023
Good Tuesday Morning!
It's so exciting to see all the posts from around all of North America getting ready for the Walk & Roll season! Don't forget to register for the NorTex Walk & Roll taking place on Sept 24th!
If you are curious to learn more or want to meet some of the other participants, join us for a zoom chat tonight!
North Texas Virtual Chapter Meeting | FSHD Society North Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Did you catch the latest episode of the FSHD Radio Hour? A great discussion about the importance of our annual Walk & Roll!
08/29/2023
It's FUNdraising Week y'all!!
Are you FIRED UP??
Register your members today and join the fun!
https://give.fshdsociety.org/event/north-texas-walk-and-roll/e484488
Fundraising Week is here! From now through September 4th, we are celebrating your fundraising for the upcoming Walk & Roll to Cure FSHD.
Your fundraising makes the most difference in the lives of those managing the day-to-day, life-altering effects of FSH muscular dystrophy.
We're adding fun with a friendly competition! The top 3 Team Captains & top 10 Individuals with the highest funds raised this week will win flame socks for their efforts to ignite the torch for treatments by 2025! 🔥
08/03/2023
Want to help us DOUBLE our efforts? Donate and your gift will be matched!
2023 NorTex Walk & Roll is Sunday, September 24th
Register today and join the fun!
learn more here:
North Texas Walk & Roll I am participating in the Walk & Roll to cure FSHD! Your donation will move us closer to treatments and a cure for FSH muscular dystrophy. The Walk & Roll builds connections, empowers community members, raises awareness, and, most importantly, funds critical research.
04/21/2023
Calling all Texas!
Join NorTex for an informative chat with Debra Kerber at EASY ACCESS TRAVEL next Wednesday, April 26th at 7pm. Be sure to RSVP so we can be ready for everyone who wants to learn more about traveling with disabilities!
All-Texas Chapter Meeting: Travel Tips | FSHD Society All-Texas Chapter Meeting with Debra Kerber from Easy Access Travel for tips on accessible travel
02/07/2023
Tonight! Join us at 7pm for an update on what's going on with our North Texas Chapter!
North Texas Virtual Chapter Meeting | FSHD Society North Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
01/23/2023
Are you up to date with the latest in FSH research? FSHD Society Blog has great info!
Blog | FSHD Society Access all our blog posts here! Everything from Living with FSHD to Fundraising and Events, Research and more. There is something for everyone.
01/12/2023
We're gearing up for an active 2023...
Get ready for virtual happy hours, in-person gatherings and more! Join the next zoom to learn more!
North Texas Virtual Chapter Meeting | FSHD Society North Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
10/31/2022
Join us Tuesday for our chapter zoom! We'll be discussing several topics including plans for an in-person lunch.
North Texas Virtual Chapter Meeting | FSHD Society North Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
09/26/2022
!! Zoom Chapter Meeting !!
Join us on the 28th at 7pm for a Chapter Meeting via Zoom. Hear a recap about the Walk & Roll and meet your fellow FSH-ers from around North Texas. Use this link to RSVP today!
https://www.fshdsociety.org/event/north-texas-virtual-chapter-meeting/
North Texas Virtual Chapter Meeting | FSHD Society North Texas Chapter Thursday, September 28, 2022 7:00pm-8:00pm CT Join Us Virtually HERE Please join us on Wednesday, September 28th for a virtual chapter meeting. This will be our time to come together – where Connections, Hope, Healing, and Awareness happen on a consistent basis! Hope to “see....
09/26/2022
WOW!!
We had an absolutely wonderful Inaugural North Texas Walk & Roll at the Ft. Worth Zoo on Saturday. With the help of our community we raised more than $35,000!! We were blown away by the support of those who love and care about us! Check out these photos of the fun and look out for more great things from the North Texas Chapter!
09/21/2022
THIS SATURDAY! There's still time to join the fun at the Ft. Worth Zoo. Sign up and show up to meet fellow FSHers or show your support for those you care about.
https://team.fshdsociety.org/dallaswalkroll
2022 North Texas Walk & Roll to Cure FSHD North Texas Walk & Roll to Cure FSHD
09/15/2022
T-minus 9 days! If you haven't had a chance to sign up, click the link below. We're going to have a great time at the Ft. Worth Zoo on Sept 24th! Help us reach our goal to !
https://team.fshdsociety.org/dallaswalkroll
2022 North Texas Walk & Roll to Cure FSHD North Texas Walk & Roll to Cure FSHD
08/30/2022
Are you free tonight? Want to attend a great party for all FSH Texas families plus hear from the Chief Science Officer of the FSHD Society? Use this link to register and log in at 6:30pm tonight! We'll also be discussing the NorTex Walk & Roll on Sept 24th!
https://www.fshdsociety.org/event/all-texas-chapter-meeting/
All Texas Chapter Meeting | FSHD Society All Texas Chapter Meeting Tuesday, August 30th, 2022 6:30pm – 8:00pm Central Time The CenTex chapter invites you to join us for a research update from Jamshid Arjomand, FSHD Society’s Chief Science Officer. We will also discuss Texas events like the Ft. Worth Walk & Roll and Central Texas Tacos ...
08/25/2022
Listen to Beth Johnston explain more about the walk & why our community is so important!
Learn all about the 2022 Walk & Roll to Cure FSHD in today's FSHD Radio Show: Hot off the Press! Find the podcast right now on your favorite podcast platform, or watch the video interview TONIGHT at 9pm ET/6pm PT here on Facebook!
Our host Tim will be chatting with Beth Johnston, FSHD Society's Chief Community Engagement Officer. She will be speaking all about the 2022 Walk & Roll to Cure FSHD - what it is, how you can be involved, and most importantly, why it matters! Together, we move toward a CURE and Beth will be sharing how participating in the Walk & Roll helps move us toward this goal!
08/16/2022
Hypothetical question: What if you wanted to support the NorTex Walk & Roll but don’t live in the area?
Real world answer: YOU CAN STILL JOIN AND PARTICIPATE!!
Being part of the NorTex Walk & Roll is not restricted to those who can attend our Ft. Worth Zoo event. Join or start a team today from wherever you are. Help us raise support and awareness. Then, on September 24th, go for a walk around YOUR local community and post a selfie. Feel free to use the tags
Let’s see how far we can reach today!
https://team.fshdsociety.org/dallaswalkroll
2022 North Texas Walk & Roll to Cure FSHD North Texas Walk & Roll to Cure FSHD
08/10/2022
It’s Wednesday North Texas. Time to talk about The Walk!
Do you know what happens when you support FSHD Society?
Local families facing the daunting reality of a new diagnosis can find HOPE.
Individuals feeling isolated can find COMMUNITY.
Researchers can get grant funding to help us find our way to HEALING.
You become an essential element in our effort to raise AWARENESS.
Lucky for you, all of this can be done AND you can enjoy a beautiful day at the Ft. Worth Zoo! Use this link now to let us know you’re coming and we’ll put you on the list!
If you sign up before midnight on Saturday the 13th you’ll be entered for a drawing for a $100 Amazon gift card.
https://team.fshdsociety.org/dallaswalkroll
2022 North Texas Walk & Roll to Cure FSHD North Texas Walk & Roll to Cure FSHD
08/01/2022
Looking for a way to support those with FSHD, have fun with the family AND get up close and personal with animals? Join us for the 2022 Walk & Roll at the Ft. Worth Zoo on Sept 24th! Meet other FSH families and the CEO of the FSHD Society, Mark Stone. Join a team or start your own today!
https://team.fshdsociety.org/dallaswalkroll
2022 North Texas Walk & Roll to Cure FSHD North Texas Walk & Roll to Cure FSHD
11/30/2021
06/20/2021
Today is ! The staff at FSHD Society is sharing their orange slice selfies in support of World FSHD Day. Join us by posting your selfie and your story today!
We support each individual and family in the FSHD community. We are working hard to reach our goal to deliver treatments to our families by 2025. Today is YOUR day. Share your story - we can't wait to read them!
Throughout the day, we will be showing some of our favorite FSHD Radio Show interviews on the FSHD Society page to celebrate World FSHD Day. We hope you enjoy them!
03/09/2021
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