Redeemable Life

Just incase you missed this!

Canada has issued a drug recall for certain lots of Inderal LA (propranolol hydrochloride), a beta blocker used by some people with : https://recalls-rappels.canada.ca/en/alert-recall/pfizer-recalls-inderal-propranolol-hydrochloride-capsules-due-nitrosamine-impurity. This recall does not apply to propranolol in other countries, unless you bought it from a Canadian pharmacy.

Have you seen this? Love seeing research advancing!

Platelet Storage Pool Deficiency and Elevated Inflammatory Biomarkers Are Prevalent in Postural Orthostatic Tachycardia Syndrome A significant number of postural orthostatic tachycardia syndrome (POTS) patients have platelet delta granule storage pool deficiency (δ-SPD). The etiology of POTS is unknown but a number of laboratories, including ours, have reported elevations of G-protein-coupled adrenergic receptor and mus...

One of our followers, Samantha, had a great idea to make decals to raise awareness for POTS and donate proceeds for POTS research! What a great idea, right?! Here is the information from her and the Etsy shop so you can check them out. These sales are not affiliated with this page. Just simply sharing to support the fundraiser ♥️

“WE NOW HAVE AVAILABLE OUR POTS WARRIOR DECALS IN SUPPORT OF POTS AWARNESS. PLACE YOUR ORDERS NOW LIMITED STOCK AVAILABLE.
30% OF ALL PROCEEDS WILL BE FOR Dysautonomia International POTS Research Fund!
EACH DECAL IS as follows small are $5.00, mediums are $8.00, large are $10.00 and xlarge which are 12 x 12 are $20.00. MESSAGE ME IF YOU WOULD LIKE TO PLACE AN ORDER. CAN ALSO MAKE CUSTOMIZABLE DECALS IF YOU WOULD LIKE ONE FEEL FREE TO PLACE AN ORDER. WE HAVE PAYPAL, cash app AND FACEBOOK PAY AS PAYMENT OPTIONS. I was diagnosed November 17th of 2013 with pots as well as a damaged vagus nerve, my heart rate went sky high then dropped and i remember seeing the screen saying my heart rate was 56 and then i saw nothing. my heart had stopped! Pots syndrome has affected me physically, mentally and emotionally, i have developed pulmonary heart disease as a result of my heart always sky rocketing and then dropping. so i want to help find a cure in anyway i possibly can as well as help support my small family. i can also custom make any thing you would like to have done. any pots syndrome items will go towards helping find a cure not just for me but for all of us, i am hoping to spread awareness around the world i just need everyones help to do so.”

You can order here: https://www.etsy.com/shop/MsPotsCustomDesigns?fbclid=IwAR249eCqzmrcjXgN7c6GEnqBAWw1ntjpwvpw83gu_031kVAZ9hExpmYIwNE

Anyone else relate? 🤣

If you are not already in our private POTS group, join us! It’s a great place to get support, ask questions, and be part of a community who just understands what you’re going through.

https://www.facebook.com/groups/potssupportandawareness/

Great information on what it take to get diagnosed with MCAS! This syndrome is commonly diagnosed with POTS, EDS, and other chronic conditions.

If you are not familiar, it basically makes you have allergic reactions without actually being clinically “allergic” to the substances. It can range from mild allergy symptoms, to symptoms that prevent someone from leaving their home.

Common treatments are:
- H1 and H2 blockers
- vitamin regimen
- low histamine diet
- ditching toxic cleaners and personal care products
- adjusting life to avoid triggers

There is no “cure”, but most people are able to learn the adjustments needed to mange their symptoms over time with trial and error and/or find success with medications.

THIS!! Every single one of you have the best track record with your health when it comes to pushing through ♥️🙌🏼

How many of you have heard this? The sinking feeling in the pit of your stomach while you process what was just said... How one simple sentence makes you feel completely invisible and misunderstood. You experience symptoms all day every day, but because you don’t “look sick” that somehow makes your suffering not matter.

I have had this said to me by family, friends, strangers, and even doctors. It is heartbreaking that even after so many years of there being awareness for chronic health conditions, this is still something that is commonly said.

Invisible illnesses are very real. Someone can have failing health and still act “normal”. What you aren’t seeing is the crash that comes afterwards and the amount of energy it is taking them to get through those moments.

Those with chronic health conditions shouldn’t feel the need to balance wanting to feel normal at a social function while also not increasing others exceptions of their abilities for a later time.

Just because they were able to make it an hour through that social gathering, doesn’t mean they will be up for going out to a 30 minute lunch the following week.

Let’s normalize awareness of invisible illness and empathy for those around us ♥️

Have you been through this? Share this post along with your story to help raise awareness.

For those with a form of Dysautonomia, what does it feel like to you?

What Does Dysautonomia Feel Like? Dysautonomia International asked patients and doctors what it feels like living with a form of dysautonomia. You can help us fund the research needed to find better…

Disclaimer: these were all written in 2015-2016 under our old foundation page. The statistics may be slightly outdated, but still good for learning and sharing to raise awareness!

Disclaimer: these were all written in 2015-2016 under our old foundation page name. The information may be slightly outdated, but still helpful ♥️

Redeemable Life updated their information in their About section.

Anyone else experience truth in this?

What is one positive thing that has come out of your struggles from chronic illness that have made you stronger?

For me two things come to mind, not stressing over things I can’t change and being able to stand my ground when it comes to advocating for my health ✨

This page is coming out of hibernation and getting some construction done! I’m so excited about this change and I think you will be too ♥️

I think I will be having another name change once FB allows too so be aware of that 😊

When I started this page, I was bedridden from POTS, EDS, MCAD, and gastroparesis. By the grace of God over other the past 10 years I have gone from that bed ridden teenager to a college graduate, married woman, and mom of two beautiful little girls. Today my symptoms are 90% under control thanks to A LOT of trial and error with lifestyle changes.

I have been wanting to get this page up and running again for some time, but didn’t know the way to go about it. I have so much else going besides POTS and have a passion for instilling a community where everyone can share their experiences for others to learn from. This page was just cut and dry facts and awareness for just one condition. I want it to be bigger than that now.

So, I am changing this page from solely facts about POTS for to a more personal place for support and hopefully education not just from me but others who want to share as well. Of course, not everyone is the same and what has helped one of us may not help the other, but I think a lot of good could come from us sharing our experiences. If nothing else, I hope to provide a place of inspiration for those struggling to keep fighting and to not give up hope ♥️

In a nut shell, we are going from a formal foundation to more of a community blog type feel. I want us to inspire each other to make intentional changes to better our health and mental well being.

So, have patience with me over the next couple days. You may see some random things pop up on your newsfeed as I change things around. Just stickwith me here!

The group that goes with this page will be staying open and with the same name as it’s still very active and fruitful for the people in it so no need to worry about that going anywhere.

AWARENESS:

Living Life With An Invisible Illness Becoming more than "the girl who passes out"

Oh, the joys of POTS!

AWARENESS:

What Is POTS and Why Haven't More People Heard of It? The condition, often misdiagnosed as anxiety, can be debilitating and demoralizing.

"Like" this page and make sure to vote to help a POTSie win Ms. Wheelchair to raise awareness!

https://www.facebook.com/PerfectOpportunitiesToShine/

Ms. Wheelchair Florida 2016 - Heather Taylor Advocate, educator and musician, Heather Taylor is the voice of persons with disabilities throughout the state of Florida. Please send appearance requests.

I can tell you from experience, that these things really can work! Have you had any success at lessening brain fog? What did you do?

5 Simple Ways to Beat Brain Fog We all experience those moments from time to time — a forgotten name, a hazy memory, misplaced keys. After all, in today’s age of multitasking madness, it’s easy to lose track of a few details. But when these “senior moments” happen regularly, they become more than just passing ...

How many of you have Gastroparesis in addition to POTS?

Gastroparesis is Not Rare Gastroparesis and related illnesses are not rare. Please learn all you can. Many lives depend on it. I wrote and published "Is There a Doctor in the Country?...

Brain fog is something that many with POTS suffer from. Often times it is due to the lack of blood flow to the brain that we experience on a daily basis. For many, it is one of the most troubling symptoms because it leads us to question our intelligence. POTSies, do not let your brain fog moments define you. You are still as smart as you always have been (maybe even more so now with your unintended medical education). Keep your head up and just remember that no matter what anyone else has to say, you know what you are talking about even when you can not remember the words to describe it. Loved ones, be patient with us and keep in mind that even though we need you to remind us of some things, the last thing we need to be reminded of is how much we forget. We are very much aware.



http://themighty.com/2016/05/the-difference-between-brain-fog-and-forgetfulness/

The Difference Between Brain Fog and Forgetfulness "Forgetfulness and brain fog bring about two different kinds of feelings because they are two different things."

One of our followers wrote a book! Check it out to support a fellow POTSie! Make sure to share with us what you think about it!

"Hello all!
I placed in a writing contest and am now publishing a book describing my POTS journey! I hope to break down some stigma that surrounds invisible illness and increase awareness of the disorder.
If you would like a FREE copy of my book, just go to http://www.chasingnormal.siterubix.com and sign up. Feel free to share this link with anyone that might be interested.
Wishing you the best of health,
Erin (Pen name Elena)!"

Chasing Normal: From Marathons to Invisible Illness A true story that describes the massive change people undergo when they are diagnosed and have the symptoms of an invisible illness.

AWARENESS: What an inspiring story!

Living with POTS – The Ignored Nervous System Disorder | JustBreathe With each inconclusive diagnosis, I became more determined to discover what disease or disorder was causing these maddening and debilitating symptoms. Finally, my research led me to a disorder known as POTS, postural orthostatic tachycardia syndrome. POTS is an autonomic nervous system disorder, whi...

Trust in your track record!

AWARENESS:

When You Love Someone With Postural Orthostatic Tachycardia Syndrome Here's what you need to know.

"I want to share something special with all of you. This last week marked five years of being diagnosed with POTS. Five years ago I was 17 years old, stuck in bed, and forced to leave school. I lost contact with all my friends, and even some family. It felt as if I went from a somebody to a nobody in the matter of days all due to my body failing me. I spent countless days in the hospital and at appointments. I was told that I would not be able to graduate high school until I was at least 23 years old, I would never be able to live on my own, and that college was not going to be an option. I had doctors diagnosing me with one chronic illness after another. I was certified as disabled by the state, and I was told to expect to only get worse.

Even though my body was failing, my mind was only getting more motivated. I like a good challenge, and chronic illness is the biggest one I have ever faced. You can't just step back and ask for a break because you are fighting your own body. You need to constantly be ready for battle. I had days that I just wanted to give up and accept the fate I was told was given, but I kept fighting. I decided to look at every day as an individual battle. I took it one day at a time to lessen the stress of looking into the future. I made the decision to sign up for online school, and graduated high school on time at age 18. I immediately started online college and bit by bit got myself working again. Then, at age 21 I moved to the other side of the country to attend college on my own. Moving into my apartment was my biggest accomplishment because it marked the last thing that I was told I could never do.

It is not easy to fight against your own body. I still haven't won. I am still fighting off symptoms everyday, but over time I have learned ways to keep them under control. I have learned that part of fighting my body is to accept that I can not change it. I needed to embrace it and make it work for me.

If you take anything from this, recognize that predictions can be wrong. Nothing is set in stone. Just because your doctor, loved ones, or even yourself thinks you can never achieve something, does not mean it will never happen. Just take it one small battle at a time. It may take you five years like it did for me, maybe even more, but improvement is possible! Do not give up hope. Keep fighting. Trust in God. If I can do it, anyone can!"

- D. Fletcher

*This is a picture that I took last week on top of the first mountain I have ever climbed! It was a small mountain, but a huge accomplishment for me. I had my water bottle and a pocket of emergency salty snacks, but I made it! The girl who used to pass out walking down an eight foot long hallway to the bathroom climbed a mountain.

AWARENESS:

POTS kills quality of life for millions of teens POTS (Postural Orthostatic Tachycardia Syndrome), a form of dysautonomia, is affecting millions of youth and young adults, including many in Maryland.