Micah’s Journey

Hi everyone!!!

Life has been life-ing for us. Micah continues to make his post clinic appts. We just learned that on his recent clinic visit from last week he tested positive for HLA II antibodies. In layman’s terms his body’s immune system has dropped to the point where the body now recognizes there is something new. That’s not a good thing 😳

When a transplant recipient receives a new organ their bodies/immune system has to be up enough so that body is “fooled” by the new organ as it is foreign. In Micah’s case his system now knows there is something new and don’t like it.

The next steps are for Micah to have infusions to build his system back up. It will not be long term which is a good thing. We know we have God on our side and He will prevail always.

Please continue to pray for Micah and provide encouragement as this is another obstacle he will conquer!!!

Love y’all ❤️❤️❤️❤️

Seven months in everyone and Micah continues to do well and gaining energy…we continue to be blessed and thankful for this gift of life
❤️

In celebrating Micah’s 6 month post transplant…please check out COTA and help in supporting organ transplant recipients ❤️

COTA for Micahs Journey Micah is a 17-year-old reserved, but funny, and smart teenager who loves boxing and TikTok. He loves to be around family and friends, but he also loves to be in his room relaxing or playing on his PS4. Micah has been a warrior since birth (born early, learning disability,and muscle weakness) but he....

Another praise moment…it is Micah’s 6 month post transplant and he had his biopsy today…things went well waiting on the results

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This is a good pic of Micah and his Dad while he recovered from the transplant this summer. Today we are so blessed beyond measures. This date Micah has made it to a major milestone…today is his 18th birthday!!!

Thank you Lord continue to bring your blessings!!!

Time flies when you are embracing life and what the Lord has blessed us with!!!

Micah continues to do well and is celebrating 3 months post transplant 😍. He’s on the lowest dosage of anti rejection medications (3 he will be taking lifetime). Clinic visits have reduced and now 🥁🥁🥁 Micah can resume “normal” activities like going to games, church, school, and other events. He’s so excited to be OUTSIDE 🤣.

Again, we’re are thankful for this gift of life and Micah has even reflected on what this means for him now. He still has a road ahead of him but he knows he has his family and the Lord who will carry him through. We will continue to thank everyone who has called, prayed, visited, and helped us in ensuring Micah will be ok.

And he’s doing more than “OK”!!!

Celebrating 3 months post transplant
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Celebrating 2 months post transplant 💚💚💚💚💚

COTA for Micahs Journey Micah is a 17-year-old reserved, but funny, and smart teenager who loves boxing and TikTok. He loves to be around family and friends, but he also loves to be in his room relaxing or playing on his PS4. Micah has been a warrior since birth (born early, learning disability,and muscle weakness) but he....

Sorry we haven’t posted in a minute…we’re a busy, active family 🤷🏽‍♀️☺️

Anyway…today marks 2 months Post transplant for Micah, and a lot has changed. He is not on as many meds as he was in the beginning. Which that is a good thing. His clinic visits have now reduced from twice a week to now only weekly visits (that’ll be good for our vehicle). And Micah is able to move around more venturing out (walks in the neighborhood, going to the convenient store). He cannot attend big crowded groups like church yet but in due time cause he is wanting to go. Micah is gaining weight and having more energy which that is a huge plus for his health in the long term.

We are so blessed in Micah being able to have the transplant in having a normal as possible life. Mom and Dad are energy-drained but we still making it through for Micah. We want to continue to thank everyone again for the continued calls, love, and support checking in on Micah. He definitely sees the love and support 💗.

But it doesn’t stop as there are so many children and adults are in need of transplant, whether it is kidney, heart, or any other organ. We ask for each of you to ensure you take doctor appointments seriously. If you know of anyone in your family or circle of friends in need of a organ donation, find out what you can do to help. It doesn’t hurt to at least try. We know that someone unfortunately passed away in order for Micah to receive the gift of life, and we hope soon we can reach out to the family to give our thanks.

Take the time for you…accept that challenge…give and love from your heart…reach out make sure family and friends are OK 💗

Love y’all!!!!

Hi everyone

Just giving another update regarding Micah. He continues to do well post transplant. On yesterday, he had his outpatient procedure to remove the stent on the new kidney. Everything went well. Micah continues to have weekly clinic visits to ensure the kidney is doing well and there are no signs of rejection.

Micah is a young man of few words but he is so appreciative of all the support given. We continue to take things day by day. There’s still a long road ahead of us but we’re know the Lord is making a way.

Thanks again for all the prayers, calls, and all in between. We love you all 🥰

It’s been 1-month post-transplant for Micah 👏🏾👏🏾

To celebrate, we bring to your attention the importance of COTA and the work they do. Please take the time to check their website, donate, and share to others.

COTA for Micahs Journey Micah is a 17-year-old reserved, but funny, and smart teenager who loves boxing and TikTok. He loves to be around family and friends, but he also loves to be in his room relaxing or playing on his PS4. Micah has been a warrior since birth (born early, learning disability,and muscle weakness) but he....

We’re still on a blessed high…Micah continues to do well and attending his outpatient clinic visits

Thanks to everyone, I do mean everyone for all prayers, calls, checkins, and all in between…Micah is now home and resting 👏🏾👏🏾

If anyone would like to send get well wishes to Micah…go to choa.org and click on the hourglass to type in SmileGram…it will directly take you to “Send a SmileGram” and you complete the form make sure you select “Egleston” for the hospital as that is where Micah is located…

He would love to hear from y’all 🥰

They do ask for patient’s name and room number…its Micah Berry, room 6243

Pediatric Healthcare | Children's Healthcare of Atlanta Children need specialized pediatric care. Our team is committed to caring for your child and making sure they are better today for a healthier tomorrow.

All Praises 🙏🏾🙏🏾🙏🏾

Micah walked the halls today. Physical therapy will come every day while he is still at the hospital and will be walking 2 times a day. He’s getting stronger by the day 💪🏾👏🏾

Micah is now out of ICU and in a regular room
Yeahhhhhh!!!!!!!

Day 1 post surgery…moving from the bed to the chair. It was a success (not by the look of Micah’s expression 🤷🏽‍♀️)

It’s a start to recovery 🥰

Best news yet…Micah is out of surgery and doing well…heading to Recovery/ICU

The team ran a little behind but the process has started…this is Micah before we left him and we’ll see him again in the next 4-5 hours with his new “installment” 😏 You gotta smile at some things to keep from crying. Thank you for all continued prayers and keep them coming 😇

Update
OR team just got Micah and they wheeled him in to begin the surgery

Update…
Surgery for Micah will be this morning around 8 am

Everyone…exciting news y’all…Micah received the call tonight

He’s gonna get his kidney…heading out

Micah is progressing during his dialysis treatments…he does have cramps but continues to thrive

We’re still prayerful in hopes of getting the call

We appreciate all prayers, calls, and texts…Micah is home
🥰