CureDuchenne, Newport Beach, CA Videos

Check out this incredible recap of #FUTURES 2024 In #Orlando, FL. Hope to see you all (and more) on May 22-25, 2025 in San Antonio, TX. 💙 WE LOVE OUR DUCHENNE COMMUNITY! Register at the link in the bio OR https://web.cvent.com/event/3d756dbc-811a-4700-954e-ef31538e1a21/summary #futuresforall #Duchenen #DMD #CureDuchenen #DuchenenCommunity

Check out this incredible recap of #FUTURES 2024 In #Orlando, FL. Hope to see you all (and more) on May 22-25, 2025 in San Antonio, TX. 💙 WE LOVE OUR DUCHENNE COMMUNITY! Register at the link in the bio OR https://web.cvent.com/event/3d756dbc-811a-4700-954e-ef31538e1a21/summary #futuresforall #Duchenen #DMD #CureDuchenen #DuchenenCommunity

💙 Un fragmento del taller de hoy en español. Gracias The Akari Foundation 💙

💙 Check out this incredible recap of FUTURES 2024 In Orlando, FL. 💙 Hope to see you all (and more) on May 22-25, 2025 in San Antonio, TX | REGISTER HERE: https://web.cvent.com/event/3d756dbc-811a-4700-954e-ef31538e1a21/summary #futuresforall #Duchenen #DMD #CureDuchenen #DuchenenCommunity

Fathers Day 2024
This Father's Day, we honor the unsung heroes--- our CHAMPION dads. These incredible fathers provide unwavering support, strength, and love to their sons with Duchenne, facing every challenge with courage and resilience. To all the fathers, grandfathers and father figures in our community, thank you for your endless dedication and love. 💙 You are true CHAMPIONS in every sense 💙

We are honored to have Dr. Peter Marks, M.D., Ph.D., director of the Center for Biologics Evaluation and Research (CBER) at the FDA, as our first keynote speaker at the CureDuchenne FUTURES National Family Conference! 🌟 CBER oversees regulation and approvals for all cell and gene therapies, including the accelerated approval of Elevidys, Sarepta’s gene therapy for 4–5-year-olds with #Duchenne. 🔍 Have you ever wondered: What is the difference between gene therapy and exon skipping? 🤔 Watch this video to find out! #CureDuchenne #Duchenne #GeneTherapy #ExonSkipping #FDA #FUTURES2024

Unlock the potential to transform Duchenne research with CureDuchenne Link 🌟. You can be the key to breakthroughs that will help shape the future of treatment. Join us and be part of a movement toward a cure. Together, we can make a difference! Learn more about how to participate: Click to discover more about CureDuchenne Link ➡️ https://cureduchennelink.org #CureDuchenne #DuchenneResearch #duchenne

Thank you to the incredible Atlanta Duchenne community for an awesome workshop! 💙💙💙 If you couldn’t make it please join us in Charlotte, NC for a FREE Duchenne community Dinner Session on Saturday, February 24, 2024. https://web.cvent.com/event/31a97d6d-5425-478e-a652-734053840dc4/summary #duchenne #cureduchenne #charlottenc

See you at the FUTURES e-gaming lounge! 🎮 Join us for FUTURES National Conference in Orlando, FL May 23-26. Register here: https://web.cvent.com/event/8ff259d6-8470-4bcf-8fc4-ff32faf3bd51/summary

🔗 CureDuchenne Link invites carriers and individuals with Duchenne or Becker Muscular Dystrophy to easily contribute to LINK. By participating, you gain access to a comprehensive view of your medical history, thanks to our collaboration with PicnicHealth. Plus, your invaluable contributions of biosamples and survey data will fuel research and therapy development, offering hope and possibilities. Let's unite to accelerate progress. Your participation is more than just data; it's a beacon of hope for the Duchenne and Becker community! Join today @ https://cureduchennelink.org/ #CureDuchenneLink #DuchenneResearch #TogetherWeWillCureDuchenne #ForAllFutures #Duchenne

💙💙💙 Thank you to the Munoz family for putting on another incredible fundraiser to raise funds to cure Duchenne. We are grateful for their dedication and how they rally the community. So much love! 💙💙💙 #CureDuchenne #dealingforduchenne #sanantonio #duchenne Check it out out here:

Play true or false CureDuchenne Link edition with Lucy, Sully and Macy! 🐶🧬🔬 How many did you get right?! Contribute to the cure at cureduchennelink.org

Discover CureDuchenne Link! 🔬 CureDuchenne Link is a data-integrated biobank. Gathering survey data and bio-samples from those with Duchenne or Becker muscular dystrophy and carriers, we're unlocking new paths in research and understanding. Why Join? ✨ Contribute to groundbreaking DMD/BMD research. ✨ Support researchers with vital insights that can lead to treatments. ✨ Participate from home or any remote location through our secure, online portal✨ ✨ All participants have access to a FREE PicnicHealth account! Manage you or your child’s medical history in one central location and share with others as needed Help be the LINK between hope and a cure Learn More & Join Now! https://cureduchennelink.org/

As part of our commitment to improving the care of all individuals with Duchenne, we're excited to announce the launch of our CureDuchenne Caregiver Course! Register & watch now: neuromusculared.org/courses/cureduchenne-caregiver-course This course is for anyone who provides care for someone newly diagnosed with Duchenne. Created by our CureDuchenne physical therapy team, course topics include: -The basics of Duchenne and Becker -Questions to ask your physical therapist -Conservation of energy -Activity modification -The role of your school physical therapist -And more!