Beyond Celiac

Beyond Celiac

Beyond Celiac unites with patients and partners to drive celiac disease diagnosis, advance research and accelerate the discovery of new treatments and a cure.

www.BeyondCeliac.org For more than 15 years, Beyond Celiac has been the leading patient advocacy and research-driven celiac disease organization working to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure. By engaging with the top scientists in the field, awarding research grants, and supporting the community, Beyond Celiac envisions a world in which people with celiac disease can live healthy lives and eat without fear – a world Beyond Celiac.

01/11/2024

Beyond Celiac Chief Medical Officer Dr. Jordan Dubow explains Phase 1 of drug development. Watch the full Town Hall:
https://hubs.ly/Q02WwjPL0

31/10/2024

🎃Happy Gluten-Free Halloween! 🎃

Check out our gluten-free candy list, updated October 2024.
https://hubs.li/Q02WnQrs0

Photos from Beyond Celiac's post 30/10/2024

Beyond Celiac partnered with the American Gastroenterological Association in a special celiac disease edition of journal Gastroenterology to bring digestible write-ups of articles featured in this publication. Chief Science Writer Amy Ratner explores some of the most pressing topics in celiac disease, including what non-GI symptoms people with celiac disease experience. 🤔 Find all the articles here: https://hubs.li/Q02WfzNJ0 🧡

Do you experience non-GI symptoms? Feel free to discuss in the comments! ⬇️💬

Photos from Beyond Celiac's post 29/10/2024

🎃 Tips to help out kids with celiac on Halloween 🎃

It’s tough to be a kid with celiac disease on Halloween. It’s a food-oriented holiday, and often, it’s a child’s first time being independent, perhaps going trick-or-treating or to a party without a grown-up. If you love a kid or teen with celiac, check out some of our best tips to help support them for Halloween!

Also, don’t forget to check out our candy list, updated October 2024. Link in our bio!
https://hubs.li/Q02W4T2N0

28/10/2024

Social Media Coordinator Lauren reviews Hook Line and Savor's certified gluten-free Everything Crusted Cod!

“Five stars! This everything-crusted cod was amazing. It stayed crispy on the outside but was very tender on the inside. I love everything bagel seasoning and fish, so this was the perfect lunch for me! 🌟 🌟 🌟 🌟 🌟 ”

Hook Line and Savor cod is wild-caught from responsibly managed stock in the North Atlantic, using techniques certified by the Marine Stewardship Council. Also, 5% of profits are donated to SeaShare, a non-profit that provides nutritious seafood to food banks nationwide. 🐟
Thanks to Hook Line and Savor for sending Lauren this product to review. Find Hook Line and Savor’s certified gluten-free Everything Crusted Cod at Sam’s Club today! 💚

Photos from Beyond Celiac's post 25/10/2024

Dallas, what a way to finish our yearly Step Beyond Celiac 5Ks! Thank you SO MUCH to our community for attending our fun runs, and participating virtually worldwide! Your support and enthusiasm keep us inspired. We WILL find treatments and a cure for celiac disease!

Tag us in your 5K photos at Beyond Celiac 🧡

Philly, we’ll see you this weekend for our Research Summit!

Photos from Beyond Celiac's post 24/10/2024

A drug that would help heal the intestine is important to patients, according to survey results presented by Beyond Celiac at International Celiac Disease Symposium (ICDS) this year.

Read our full write-up ➡️ https://hubs.li/Q02VyPLg0

Photos from Beyond Celiac's post 22/10/2024

PHOTO DUMP from our recent Step Beyond Celiac 5K in Boston! We had so much fun at all of our 5Ks this year. Dallas, pics coming soon! 📸

If you ran at one of our in-person events or signed up for our virtual 5K, tag Beyond Celiac in your photos! 🧡

Photos from Beyond Celiac's post 21/10/2024

Halloween is coming up, and candy can be a source of concern when you have to eat gluten-free. Our candy list is a handy guide with information about candy manufacturers and their gluten-free options (updated October 2024). https://hubs.li/Q02TKpjs0

It’s also always great to double-check with the manufacturer, so we’ve created a list of questions you can ask to feel safe eating your favorite candy. Don’t let the fear of getting glutened take over spooky season!

18/10/2024

Ann Horsburgh of Florida State University (and Beyond Celiac member) and Liz Bingham Thomas of Brigham Young University are conducting research to understand how familial support influences the experiences of people with celiac disease. 🤝 They are recruiting people with celiac disease, who live anywhere in the US and who are at least 18 years old. Their survey takes about 25 minutes to complete and can be done on a computer or a smartphone. 📱

Survey participants will not only have the tremendous gratitude of the researchers, but will also be entered into a raffle to win a $50 gift card! 🧡You will also be asked if you are interested in being contacted to participate in an interview. If you are interviewed, you will receive a $30 gift card.

Take the survey: https://hubs.li/Q02SScjz0

17/10/2024

Dallas, we can’t wait to see you this weekend! 🏃‍♀️ Join us on Saturday to walk, run, or roll 3.1 miles in support of treatments and a cure for celiac disease! 🧡

Register today! https://hubs.li/Q02SSCLy0

16/10/2024

Will you be in Philadelphia on October 26? Consider joining us at the Beyond Celiac 2024 Research Summit, where you’ll hear about the latest findings in celiac research directly from the researchers themselves! Come for the whole day, or register for one session: it’s up to you! We can’t wait to see you there… register today! 💚

https://hubs.li/Q02TwbQQ0

15/10/2024

Beyond Celiac Chief Medical Officer Dr. Jordan Dubow recently presented in a Town Hall about what it takes to bring pharmaceutical drugs from clinical trials to market.

Watch the full video: https://hubs.li/Q02SSCLs0

Photos from Beyond Celiac's post 14/10/2024

A super common misconception is that gluten is safe to eat for those with celiac if they’re in Europe. Unfortunately, gluten is still gluten, and if you have celiac disease, gluten from anywhere in the world will still cause damage to the intestine. 🌍

That’s why Beyond Celiac is looking for treatments and a cure for celiac disease! 🧡 To learn more and donate, head to https://hubs.ly/Q02T6fJv0.

13/10/2024

Gluten-free finds time! Share your gluten-free find of the week and where you found it in the comments below ⬇️

11/10/2024

Lauren shares some of her experiences starting college with celiac disease. For resources to help navigate university, head to our website at https://hubs.li/Q02SfPWq0 💚

Photos from Beyond Celiac's post 10/10/2024

“It changed my life to have the diagnosis, and to find out I wasn’t just an anomaly!”
Read Tamara’s story and more :
https://hubs.li/Q02SS5Jh0

Photos from Beyond Celiac's post 09/10/2024

It’s not too late to register for our 2024 Beyond Celiac Research Summit in Philadelphia! Come for the whole day, or just one session—it’s up to you! Listen to the brightest minds in celiac research discuss their cutting-edge findings, and mingle with other members of our celiac community. 🧡

Secure your spot: https://hubs.li/Q02SfqwX0 🌟

Photos from Beyond Celiac's post 08/10/2024

Beyond Celiac partnered with the American Gastroenterological Association (AGA) in a special celiac disease edition of journal Gastroenterology to bring digestible write-ups of articles featured in this publication. Chief Science Writer Amy Ratner explores some of the most pressing topics in celiac disease, including what we might see when we finally unlock a treatment. 🤔

Find all the articles here: https://hubs.li/Q02Ssj400 🧡

07/10/2024

Dallas, we’re so excited to see you on October 19 for the annual Step Beyond Celiac 5K! It’s not too late to get a shirt—register today! https://hubs.li/Q02SfgN10 💚

Photos from Beyond Celiac's post 04/10/2024

The 2024 Research Summit is THIS MONTH! We are so excited to gather in Philadelphia to hear from world-renowned experts on celiac disease about their research progressing treatments and a cure.

Get ready to be inspired and informed at the 2024 Beyond Celiac Research Summit—we can’t wait to see you there 🌟 Register today! https://hubs.li/Q02QQwfY0 Link in bio ➡️

03/10/2024

Our Chief Scientific Officer Dr. Deb Silberg recently attended ICDS, and shares some of her takeaways in this video!

We’re looking forward to our 2024 Beyond Celiac Research Summit: register today! https://hubs.li/Q02RW_160 🌟

Photos from Beyond Celiac's post 02/10/2024

Boston, what a delight! We had so much fun at Step Beyond Celiac this year—a special thank you to our staff and volunteers for showing up to make this event happen! We love getting to connect with our community—thank YOU for all the work you do 🌟 More photos to come soon 📸

Dallas, we can’t wait to see you on October 19! And if you’re running virtually, make sure to tag us at 🧡 Register today: https://hubs.li/Q02RHssd0

Photos from Beyond Celiac's post 01/10/2024

“I was referred to a GI specialist, and after another endoscopy, colonoscopy, and a biopsy, I was finally diagnosed with celiac disease. Once I went gluten-free, I saw significant improvements.”

Read Pam’s story and more :
https://hubs.li/Q02R8mpM0

Driving diagnosis, advancing research and accelerating discovery

Our vision is a world in which people with celiac disease can live healthy lives, free from social stigma and fear of gluten exposure – A world Beyond Celiac.

Videos (show all)

Celiac disease is a serious genetic autoimmune condition. Currently, the only treatment is a lifelong 100% gluten-free d...
As a guardian of a child with celiac, it can be difficult to feel comfortable sending your kid to someone else’s house f...
What’s your best advice for guardians sending their gluten-free kids back to school? Do you have a question for a more e...
Going back to school with celiac disease can be tough. Beyond Celiac wants to know: what’s something you’ve struggled wi...
Gluten is sneaky! Whether you’re new to the gluten-free diet, or have been diagnosed with celiac for years, it can still...
Do you use personal hygiene products that contain gluten, or do you avoid them entirely? Let us know in the comments ⬇️ ...
Iain Croall, PhD, speaks on the spectrum of gluten sensitivity in this clip. To learn more, and to donate to find treatm...
Did you know that only 38% of parents with children under 18 know that children who get accurately diagnosed with celiac...
Did you know that celiac disease is genetic? 🤔 It actually occurs in up to 5-10% of family members of people diagnosed. ...
Sometimes when you share that you have celiac disease, people have some interesting responses. We want to hear from YOU!...
Learn more at http://beyondceliac.org/harrispoll/ 💚 The Harris Poll on behalf of Beyond Celiac was conducted nationwide ...
Cooking for people with celiac disease can be intimidating, but it doesn’t have to be! Lauren breaks down some helpful t...

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