ALS United of Georgia

The ALS Clinical Research Learning Institute® (CRLI) is a two-day program designed to provide education and training to individuals impacted by ALS who are interested in clinical research and the therapy development process. Individuals who complete the ALS-CRLI program are considered ALS Research Ambassadors and are eligible to participate in opportunities that influence and improve the ALS research process. Applications are now being accepted for the upcoming in-person event scheduled for October 20th & 21st, 2024, in Clearwater, Florida. Call for applications closes July 15th, 2024. More information and applications at www.neals.org

Another incredible milestone achieved for walkALS Georgia 2024! Have you started your fundraising efforts yet? With only 82 days until Walk Day, we need your help to reach our $550,000 goal to support families living with ALS in Georgia. We can’t do it without you.

✨ SHARE this post
✨ TAG A FRIEND and recruit them to join your team
✨ DONATE today in honor of your loved one

Every dollar raised helps support our mission: To enhance the lives of people living with ALS, every day until we find a cure. ❤️ Visit walkalsgeorgia.org to register or donate today!

Are you a family living with ALS in Georgia? You’re invited to join us at the 2024 Lunch & Learn. This event will highlight care needs impacted by ALS, inform patients and caregivers, educate community providers to work in partnership with clients, and empower those on the journey to make decisions. Our Keynote Address will feature Anna Stallings, an attorney at Hurley Elder Care Law. She’ll be speaking about Medicaid & Long-Term Care Planning. Click here to register: alsgeorgia.org/symposium

ALS United of Georgia encourages our community to register for tomorrow's National Academy of Sciences webinar to learn about their groundbreaking report about the future of ALS care. Tuesday, July 18th | 11 AM EST - 12 PM EST

Register now at: https://events.nationalacademies.org/43048_06-2024_amyotrophic-lateral-sclerosis-accelerating-treatments-and-improving-quality-of-life

Join us for one of our monthly Support Groups in an area near you! Located all over the state of Georgia, these groups are an opportunity to connect in-person or virtually with other people living with ALS, family members, friends, and caregivers who understand what you are experiencing.

Please contact [email protected] for more info

Thrilled to share that we’ve raised $25,000 towards our $550,000 fundraising goal for Walk ALS Georgia 2024! That’s $25,000 that will go towards programs and services to meet the physical, emotional, and financial needs of Georgians living with while allowing them to live their lives to the fullest. THANK YOU to our Team Captains, Walkers, Sponsors and donors for helping us achieve this milestone!

Ready to join the fight against ALS? Register today and join us September 21st as we walk united for a CURE for ! walkalsgeorgia.org

Are you a caregiver to your loved one with ? We invite you to join us on Saturday, June 1st for our quarterly Caregivers Support Group. For more information or to RSVP, please contact [email protected]

Congratulations to Peter Gleichman, ALS Georgia Board Chair and Team Captain of Georgia Rotarians Fighting ALS, for securing a $2,500 gift from the Richard and Barrie Galanti Foundation, along with a $2,500 matching gift from Costco Foundation! What a great way to leverage connections and matching gift programs to make a difference for Georgians living with . Thank you for making this happen, Peter!

Pictured: Peter Gleichman & Kelsey Thomas

Today is the last day to purchase tickets in our reserved section for the June 2nd Braves game honoring Lou Gehrig’s Day! One of our very own pALS will be throwing the first pitch alongside his son. Before the game, stop by ASW Distillery at the Battery for a pre-game social! A portion of the proceeds from ticket sales & ASW event are going back to , so bring your family & friends for a fun day out, cheering on our Atlanta Braves & ALS Heroes!

Purchase tickets: https://fevo-enterprise.com/event/Alsgeorgia2/offer

On May 15th, one of our Heroes Pam Grayboff walked into ‘s office. Later that day, this proclamation was signed... officially declaring May as in Georgia!

This is proof that your voice can be heard - you CAN make a difference! Thank you to Pam for being a voice for the hundreds of families living with ALS in Georgia. We are so grateful for your work as an .

Less than 130 days until Walk ALS Georgia 2024!

May is ALS Awareness Month - have you started your fundraising yet this year? Here’s a graphic you can save & share (along with your fundraising link) to ask your people to support your efforts.

A couple tips to help you get started:
✨personalize your fundraising page w/ your story & a picture of you + your ALS Hero!
✨make a personal donation - it lets people know you are invested too!
✨connect your fundraising center to a Facebook Fundraiser - easy way to collect donations & cast a wide net!

Have questions or want to know how to get involved? Send us a message! [email protected]

Happy Mother’s Day from . Share this post if your mom or grandma is an Hero, and join us on September 21st as we walk in their honor 🫶🏼

Pictured: Walk Team Captains Stephanie Dividu & Christine McKenzie with their moms who they lost to ALS too soon.

Check out the May Support Group schedule!

Led by professionals, United of Georgia Support Groups offer a community that understands what you are experiencing. Members share and learn about living with ALS. Support Group meetings are free and open to Georgians living with ALS and their caregivers. Frequently, guest speakers present on relevant topics. Attendees receive information and strategies for preserving independence and enhancing quality of life. Most importantly, participants discover they are not alone... they discover people who care.

RSVP to [email protected] if you would like to attend a group!

Join us on Sunday, June 2nd for Lou Gehrig's Day at Truist Park with Atlanta Braves! One of our very own pALS will be throwing the first pitch alongside his son. Before the game, stop by ASW Distillery at The Battery Atlanta for a pre-game social! A portion of the proceeds from ticket sales & ASW event are going back to ALS United of Georgia, so bring your family & friends for a fun day out, cheering on our Atlanta Braves & ALS Heroes!

Purchase tickets: https://fevo-enterprise.com/event/Alsgeorgia2
RSVP to Pre-Game Social: [email protected]

May is and we need YOU to join us in the fight for a cure! Wondering how you can support families living with in Georgia? One easy (and FREE!) way is to register for the 2024 Walk ALS Georgia. Create a team, recruit your friends and family to join you, all while helping to raise funds and awareness for ALS.

Every dollar raised through Walk ALS Georgia allows our organization to provide much needed programs, free of cost, to Georgians living with ALS and their families. Support groups, financial reimbursement, accessible transportation, in-home care and respite support - all made possible because of YOU.

Sign up today and join us on September 21st! walkalsgeorgia.org

Today is ! Help us send some love to our sweet Office Administrator, Pam Amy-Cupp! Pam is the kind voice you hear on the other side of the phone when you call ALS United of Georgia. She has been with us for over 8 years, and our team would be lost without her! Pam, thanks for all the behind-the-scenes work you do every day to keep us going. We appreciate you!

It’s Volunteer Appreciation Week! This week we honor and celebrate all of our wonderful volunteers - the work we do here at ALS United of Georgia would not be possible without the people who donate their time and energy to support families in Georgia living with ALS. THANK YOU!

PS We’re currently looking for volunteers for the 2024 Walk ALS Georgia event day! If you or your group is interested in volunteering, please contact us! walk(at)alsgeorgia.org

ALS United of Georgia supports the Justice for ALS Veterans Act. The Senate Veterans Affairs Committee is holding a hearing on this critical legislation.

This bill increases benefit payments for survivors of Veterans who pass away due to ALS. Join our advocacy efforts today to share your story and encourage Congress to pass the Justice for ALS Veterans Act on behalf of all veteran families impacted by ALS.

pictured: pALS Ron Hulbert (veteran) with pALS Tim Liff

Our incredible Care Services team recently took a field trip to Technology Lab, where they were able to learn a ton of great information and helpful tips to share with our families regarding assistive technology and tools to enhance their lives.

Pictured left to right: Robin Racoff MRC, Stephanie Madill CCC-SLP, Anita Flowers MRC

Have you recently lost a loved one to ? ALS United of Georgia is here for you. You’re invited to join us for our monthly virtual Bereavement support group this Thursday at 7:00 p.m. For more information and to get registered, please contact our Care Services team - [email protected] | 404-636-9909

Registration is now open for the 2024 Walk ALS Georgia! Visit walkalsgeorgia.org to register for the largest ALS awareness and fundraising event in Georgia!

MARK YOUR CALENDARS! The 2024 Walk ALS Georgia will be held on Saturday, September 21st at Georgia State Stadium in Atlanta, Georgia.

Walk ALS Georgia is our largest annual fundraising and awareness event. Each year, thousands of people gather together to walk in honor and in memory of their Heroes, while raising money to support the programs and services that help enhance the lives of Georgians living with ALS. None of the work we do here at ALS United of Georgia would be possible without our walk teams, donors, sponsors and volunteers!

More information on registration will be released next week! We hope you’ll join us as we walk UNITED for a cure.

As we look back on last year, we are so grateful to our supporters for making a difference in the lives of Georgians living with ALS. Your generosity has allowed us to achieve some amazing milestones. Here are 23 things ALS United of Georgia was able to accomplish in 2023, because of YOU!

Tomorrow, as part of Rare Disease Day, the House Health Subcommittee will hold a Legislative Hearing on Rare Disease Bills at 10 AM. Several pieces of legislation will be discussed that may have an impact on those living with ALS, in particular H.R. 5663, ALS Better Care Act sponsored by Reps. Schakowsky, Quigley, and Fitzpatrick. The hearing will be open to the public and will be live-streamed online at https://energycommerce.house.gov/

Join us on Saturday, February 24th for our virtual support group! Please contact [email protected] to get the meeting link & info. We look forward to connecting with you!

Calling all Caregivers! ALS United of Georgia is hosting it’s quarterly Caregiver Support Group on Saturday, March 2nd. Join us as we share experiences and discuss strategies to improve the quality of life for yourself and your loved one living with ALS. This group is reserved for caregivers only.

RSVP is required. Please contact our Care Services team to RSVP by calling 404-636-9909 or emailing [email protected].

Tag an ALS Caregiver below to help us spread the word!

Scenes from Tucker Support Group yesterday! Many thanks to Rob Kelley from Pulmonary Care Services & Emory ALS Center for joining us and sharing all about the different ventilator options available to pALS.

Special thank you to for hosting us each month!