Glioblastoma Support Network
Glioblastomasupport.org was formed by a group of mostly GBM widows, family, & friends affected by GBM.
It is our mission to provide support for the patients, family, friends, and Healthcare Providers.
Glioblastoma Support Network admires Alicia Baker for her enduring love and support for Chris. Your journey of defying the odds together inspires us all. Thank you for sharing your remarkable story.
This story was shared with Alicia's written consent.
We'd love to hear your story and share it with our supportive GBM community.
To share your experience and contribute to our cause, click on the following link: https://glioblastomasupport.org/share-your-story/
WeTrials
Glioblastoma Support Network appreciates Rebecca DiTore for her profound story of love and resilience. Your efforts to honor Mike’s memory through your foundation and memoir are deeply moving. Thank you for your strength and advocacy.
This story was shared with Rebecca's written consent.
We'd love to hear your story and share it with our supportive GBM community.
To share your experience and contribute to our cause, click on the following link: https://glioblastomasupport.org/share-your-story/
WeTrials
Glioblastoma Support Network appreciates Tom Dillon for sharing Judy’s unique and colourful journey. Your story of embracing joy even in tough times is truly inspiring. Thank you for your love and dedication.
This story was shared with Tom's written consent.
We'd love to hear your story and share it with our supportive GBM community.
To share your experience and contribute to our cause, click on the following link: https://glioblastomasupport.org/share-your-story/
WeTrials TopFans
Glioblastoma Support Network supports this anonymous caregiver for sharing their journey with their husband. Your story of navigating the challenges of GBM together showcases incredible resilience and love. Thank you for your courage.
We'd love to hear your story and share it with our supportive GBM community.
To share your experience and contribute to our cause, click on the following link: https://glioblastomasupport.org/share-your-story/
WeTrials
Glioblastoma Support Network celebrates Bill Fitzpatrick Jr. for his moving account of caring for his wife. Your experience, captured in your book, provides hope and guidance to many. Thank you for sharing your journey.
This story was shared with Bill's written consent.
We'd love to hear your story and share it with our supportive GBM community.
To share your experience and contribute to our cause, click on the following link: https://glioblastomasupport.org/share-your-story/
WeTrials
Glioblastoma Support Network recognizes Lisa Desautels' dedication as a caregiver. Your story highlights the immense challenges and unwavering love during such a difficult time. We are grateful for your honesty and strength.
This story was shared with Lisa's written consent.
We'd love to hear your story and share it with our supportive GBM community.
To share your experience and contribute to our cause, click on the following link: https://glioblastomasupport.org/share-your-story/
WeTrials Glioblastoma / Brain Cancer & Tumor Group
Glioblastoma Support Network honors Cindy Lamb for sharing her heartfelt journey as a mother. Your love for Jason, through all the ups and downs, is a testament to a mother’s unbreakable bond. Thank you for your courage and strength.
This story was shared with Cindy's written consent.
We'd love to hear your story and share it with our supportive GBM community.
To share your experience and contribute to our cause, click on the following link: https://glioblastomasupport.org/share-your-story/
WeTrials
15/07/2024
I miss Jason just like the rest of you! As his mom, I loved him differently, only a mom knows that kind of love. I loved him even when I did not like him. I loved the challenges he gave me, and there were many! I love when he was 17, screeched into the drive and asked, "Have the cops been here yet?" I loved him when he got in trouble. I loved him when he made me mad. I loved him when he proved me wrong. I loved him when he scared me. I loved him when he acted like me. I loved him when he did EXACTLY the opposite thing I told him to do. When a mother loves her child, it is the good and the bad that make them a whole, so you love them for who they are. Jason was no angel! But he was loving, generous, kind, funny, smart, annoying as hell, and I loved all of him. But today, today I celebrate the lasting impression you made on so many great people. You live on in all you gave to others. The lessons you learned from your own mistakes gave you the foresight to do right when you had another opportunity. The lessons I learned from you are forever imprinted on my heart...and there were many, I just did not admit who my teacher was. Love and Miss you every day! Thank you for letting me be your Mom!
10/07/2024
Share Your Story - Glioblastoma Support Network Glioblastoma Awareness Day July 19, 2023
09/07/2024
Dear friends touched by glioblastoma, whether you're navigating the challenges firsthand, providing steadfast support, or honoring cherished memories, your story is a source of profound inspiration. We invite you to share your journey this month to raise awareness and build a supportive community.
🌟 Why Share?
👉 Inspire Others: Your experience can be a beacon of hope for those going through similar challenges.
👉 Raise Awareness: Educate others about glioblastoma.
👉 Build Community: Create a sense of connection and support.
To share your experience and contribute to our cause, click on the following link: https://glioblastomasupport.org/share-your-story/
Share Your Story - Glioblastoma Support Network Glioblastoma Awareness Day July 19, 2023
01/07/2024
If only we could Freeze Moments in Time. I came across this picture of a hailstone (Photo Credit Tim Marshall) on one of the storm chaser sites that I follow during Hurricane Season. I immediately looked at it as a brain freeze. If only we could freeze time to hopefully find a cure for our warriors. (although I am sure this Hailstorm wreaked havoc on many lives!)
05/06/2024
Supporting GBM Caregivers with Dr. Laurie Minns & Dr. Alireza Mansouri Supporting GBM Caregivers: Experiences , Academic Research and Future InnovationIn this episode, Dr. Minns, a caregiver for a spouse with GBM, and Dr. Mansou...
31/05/2024
Congratulations MISSISSIPPI Heroes, Katherine Sutton and Eric Alverez for the Feature article in the Mississippi Business Journal Today! You are a Hero in my world!
Mississippi Heroes nonprofit taking care of the caretakers Mississippi Heroes is doing a lot for south Mississippi by providing a day of relaxation for caregivers and building wheelchair ramps for those in need.
28/05/2024
Just a few of the 10 Proclamations that the cities and counties in my area presented to recognize "Go Gray in May" for Brain Cancer Awareness! If you are interested in doing this in your community for Glioblastoma Awareness Day on July 17th, I will be drafting a simple "How To" soon. Everyone should be able to get their County and / or City to do a proclamation, and if you are close to the capitol, they will normally do one signed by the Governor. First step is to find which public public meeting is closest & prior to the 7/18/24 date. Most information regarding meeting dates, times and submission deadlines can be found online. Message me if you have trouble finding this information.
23/05/2024
Happy this was finally published! A labor of for Katherine Sutton with MS Heroes. Also a chance to show off my custom Stanga Designs thanks to Elizabeth Fargason Stanga !
21/05/2024
Published! Not my favorite story to tell, but one that needs to be told!
FYI, our website glioblastomasupport.org is going through some changes...check back often for updated information, a webstore for logo merchandise and fundraisers to be able to keep our sites going! GSN knows that Grey Matters!
21/05/2024
27/03/2024
https://glioblastomasupport.org/press-release-new-board/
Glioblastoma Support Network Strengthens Commitment to Fighting Brain Cancer with New Board Appointment. Glioblastoma Support Network Strengthens Commitment to Fighting Brain Cancer with New Board Appointment.
20/02/2024
30/10/2023
https://www.thebraintumourcharity.org/news/blog-post/celebrating-our-international-partners/
Celebrating our international partners for International Brain Tumour Awareness Week We're celebrating International Brain Tumour Awareness Week by shining a spotlight on the people doing amazing work overseas,
26/10/2023
Cerebrospinal Fluid May Play a Role in Brain Cancer Treatment Resistance Human cerebrospinal fluid affects chemoradiotherapy sensitivities in tumor cells from patients with glioblastoma.
22/08/2023
This is what helps us send out the kits.
Donors - Glioblastoma Support Network When you give to Glioblastoma Support, you have the opportunity to make a tremendous difference in the lives of brain cancer patients. Together we can help accelerate the pace of converting scientific discoveries into clinical advances that reduce the devastating effects of glioblastoma cancer. No a...
03/08/2023
Dakota Fred Hurt, miner who starred in 'Gold Rush: White Water,' dies at 80 Fred 'Dakota' Hurt, the rugged white-water gold miner who appeared in Discovery's docuseries 'Gold Rush: White Water,' has died after a short battle with brain cancer.
Glioblastoma Support Network
Our Mission is to provide a one-stop online resource for health care partners, and caregivers of anyone suffering from GBM from diagnosis to life after GBM. Access to clinical trial information, support from other caregivers through a mentorship program, and raising awareness through critical partnerships with other organizations involved in fighting GBM and seeking a cure.
Our Vision
We envision a future with extended lifespan after diagnosis, more dignified deaths, and less trauma to the loved ones caring for the GBM patient at end of life through support and advocacy of the caregivers of GBM.
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