Victor and not Victim

Happy New Year Warriors 💢💢💢💢💢💢💢💢💥💢💢💢

My happy moment was sometime ago. It seems prince charming, God-ordained, revelation receiver and lover boy was finally here. He gave me all the attention necessary regarding my beauty and brains, my small achievements, and my significance in my little sphere. I could not believe it; I was so happy.

The spiritual space box was also ticked – a lover of God, oh yes; a worshipper, absolutely yes; a giver, yes, he was.

Read more https://punchng.com/living-with-scd-sickle-cell-and-intimate-relationships/

Living with SCD: Sickle cell and Intimate relationships - Punch Newspapers Tola Dehinde Published 25 December 2021 A lot of people living with Sickle cell have had hurtful experiences in the area of intimate relationships. People living with Sickle cell have a great deal to deal with, in various areas of rejection, namely, family, school, employment and intimate relationsh...

Merry Christmas Dear Warrior, many people thought we won't make it this far, but we are here celebrating the birth of our Lord Jesus Christ.
Cheers to celebration of more years!!!
Merry Christmas!!!

Sickle cell disease is a condition in which red blood cells are not in tgeir normal shape, red blood cells look like round discs, but in sickle cell disease, they're shaped like sickles instead. These sickle shaped cells get stuck together and block small blood vessels, they stop blood from moving as it should, which can lead to pain and organ damage.

During our interview with , we discuss extensively, knowing your Genotype as Sickle Cell during your teenage stage, the crisis that comes along with it, reactions from self, siblings and individual.

It's such an interesting moment and readily available on our YouTube Channel through this link https://youtu.be/bKFZW8lbFsk

Ensure the Genotype discussions come first in your relationship, don't make this costly mistake, in case there's incompatibility.

Check the graphics to check which of it should come first!!!

I'm talking to you, I mean you.....
Why haven't you gone for your GENOTYPE TEST!!!

Love covereth all things!!! But do love cover genotype compatibility?

Sickle Cell Disorder is the backdrop of my life story and in one clean sweep, she fueled my favorite character traits including passion, resilience, kindness, and service to others.

She knows me more than I know myself and if I try to remember those bittersweet memories, there is one common thread.

Sickle Cell Disorder play a major role in all of my decision making, but in all of this I'm a normal person, I'm amazing, I make life changing decisions.

Nothing can stop my existence, my mental health is balance!!!
I'm a great person!!!

The most important question before you say I do!!!

You can still watch our August Episode through this link https://youtu.be/tB-H6SWaOdQ

Our August Episode is here, we need to be encouraged and always remember that we can do better and greater in life.

Sickle Cell should never be an excuse for you!!!
It's educative, interesting and inspiring
https://youtu.be/tB-H6SWaOdQ

-Adeniyi

Victor and not Victim updated their phone number.

Profile of our Guest in August

Oluwafunmiola Adeniyi (Funmi) is a lawyer with cross sectoral experience and currently a researcher at the Dullah Omar Institute in Cape Town.

Funmi holds a Doctorate in Law and an LLM (Cum Laude) from the University of the Western Cape, South Africa. Her research interests are socio economic rights with particular interest on the right to food, women’s rights and access to justice.

Funmi self describes as a passionate lover of God, wife, super mum, sister, friend and advocate.

We are coming with another great episode

Stem cell transplantation is a potential cure for sickle cell disease. Stem cells can be found in bone marrow. Bone marrow is the substance in the center of your bones that produces red blood cells. A person with sickle cell disease has bone marrow that produces red blood cells with defective hemoglobin S.

But if that bone marrow is replaced with healthy bone marrow, a person's body may start to produce normal hemoglobin.

Stem cell transplants require bone marrow from another person (donor). This is called an allogeneic stem cell transplant.

Sickle Cell Warriors now carry out this transplant in other to have healthy bone marrows

We had a nice time with a Sickle Cell Survivor on her Stem cell transplant journey, you can check it out through this link https://youtu.be/yMOieGHvO-g, it was an interesting moment having her on our channel.

Sickle Cell Disorder can't determine how far you will go in life...

You are a Victor not Victim

Stem cell transplantation (SCT), referred to as bone marrow transplant, is a procedure in which a patient receives healthy stem cells to replace damaged stem cells.

Before SCT, the patient receives high doses of chemotherapy, and sometimes radiation therapy, to prepare the body for transplantation. This is called "conditioning treatment." After the stem cells are infused into the patient’s bloodstream, they travel to the bone marrow and begin the process of forming new, healthy blood cells including white blood cells, red blood cells and platelets. This process is called “engraftment.”

On our episode this month One of our Stem Cell transplant survivor will be discussing in details on our podcast ....

Stay tuned!!!

Wawuu
It's 2nd Half of 2021 already
May we always enjoy good health
Keep warm
Stay safe
Eat healthy
Take enough water
Remember your routine drugs
Serve God
Be kind to Humanity

World Sickle Cell Day 2021.

We celebrate your impact in the Sickle Cell Community, thanks for the awareness and the great work you are doing.

We celebrate you today on World Sickle Cell Day
Thanks for impacting your world, your activities in our society can't be neglected

Simof SickleCell is inviting you to a scheduled Zoom meeting.

Topic: World Sickle Cell Day; The New Age Cure for Sickle Cell Disorder
Time: Jun 19, 2021 08:00 PM West Central Africa

Join Zoom Meeting
https://us05web.zoom.us/j/86153861376?pwd=aFNSWkFRUElpdkVpNjJBZWpPaE1UQT09

Meeting ID: 861 5386 1376
Passcode: vR4k05

“Some research estimates that about 240,000 babies are born with sickle cell disease in sub-Saharan Africa every year, and that at least half of such children die before age five,” said SCDAA President and CEO Beverley Francis-Gibson. “Education and early diagnosis is paramount to extending life expectancies and saving lives, and that is why this partnership is so important.

Check this link https://youtu.be/WGLgy8FnIFo to read through our interview with Lwinba Kasongo on the need for Advocacy in Africa, challenges and the possible solutions.

Sickle Cell Disorder can't stop us, Warriors are always outstanding in whatever they find themselves doing. Putting our best and being focused is very important.

We are many waves in all aspect of life snd this shouldn't change, but we keep being great human in life.

We had an interview with Dr Ronke Lawal where she explained how she's able to overcome the hurdles of life. You can listen to it on our YouTube channel through this link https://youtu.be/WtM-WsWlLSg
"WARRIORS ARE HUMAN, WE MAKE IMPACTS IN EVERY ASPECT "

Know your Genotype and Bloodgroup
It's 8 days to World Sickle Cell Day

Know the difference between Genotype and Bloodgroup!!!!!

Do you know your Genotype?
Do you know anyone with this Genotype?
Be informed about this Genotype trait!!!

The pain associated with sickle cell hits so hard compared to others, one minute a warrior is looking so good the next seconds he's in pain.

Sickle Cell pain differs in individual , don't compare the pain!!!

Unpredictable episodes of vaso-occlusion are the hallmark of sickle cell disorder

The vaso-occlusive crisis, or sickle cell crisis, is a common painful complication of sickle cell disease in adolescents and adults.

Sometimes a genetic test will give you your genotype. Sometimes you just need a bit of genetic luck in your family tree to figure it out. And sometimes you can tell the two genotypes apart just by looking at someone. An obvious way to figure out you genotype is to have a genetic test done.

Get your Genotype test done!!!!

Having a successful career is a goal that many people have, including those with sickle cell or any disability or chronic condition. One thing people often ask is how I manage to have a thriving career while living with sickle cell. There is no simple answer to this.

We often speak about career ladders, but I think that term is one-dimensional and linear. I prefer to liken careers to a mountain climb. Unlike climbing a ladder, climbing a mountain is not as simple as step up, step up, and so on. Instead, a mountain climb may require you to take lateral steps, or even steps backward, to eventually get to the top.

Careers should not be put on hold because of Sickle Cell Disorder but we keep putting our best in every activities.

Listen to this inspiring moment on "MY CAREER AND SICKLE CELL DISORDER "
https://youtu.be/rVcCLUn3NyE