Lupus Foundation of Southern Arizona, Inc.

What's your first response to this question posed on Facebook, "Sharon, what's on your mind today? Lupus Foundation of America, what's on your mind today?" Is it, "do you really want to know, whoever you are?" Or do you dive right in with whatever you were going to share? I often pause, repeat the question and proceed to my response. Today, I'm not pausing. I know what to say.
WE NEED YOUR HELP.
The Lupus Foundation needs your time, talent, contacts, sponsor and golfer requests and presence. Now! The annual Golf Tournament is tentatively set for Friday, November 1, 2024, at El Conquistador Golf, the Canada Course. New place. New menu. New tournament.
We need you to serve on the Golf Committee. We need planners and volunteers. We will meet on Zoom on Thursday, June 20, 2024, at 6 pm. Call us at 520-622-9006 or email Shannon at [email protected]. You will receive meeting details when you call or email. Don't think too much about it. Just do it!

If golf isn't your thing, then join us Saturday, June 22 at 9:30 am for the WALK COMMITTEE MEETING. Yes, WE NEED YOUR HELP! Volunteer to work on this committee for the April 2025 Walk! Planning starts now. I heard from several people at this year's walk who want to help. Now is the time to confirm your eagerness to make next year's walk, BETTER, EXCITING, FUN, FULL OF WALKERS, A GREAT FAMILY AND COMMUNITY EVENT. Call to confirm you will be on the committee. Now. DON'T WAIT. Call us at 520622-9006. You will receive meeting details when you call or email.

Don't just like this page. Share this page. If the Lupus Foundation of Southern Arizona has made a difference in your life, do something. Volunteer your time. Use your talents. If you're just hearing about us, do something. Meet us. Volunteer.

What's on YOUR mind?

Thank You Carly's Bistro!!!!

We are coming together here at the end of Carly’s with a celebration of the music and lives of our friends Amy Lopez & Derrick Ross better known as Nowhere Man and A Whiskey Girl. This will feature our old friends who all performed at Carly’s over the years with Amy & Derrick. They used to play at our place quite a lot, often times when Amy was in treatment down the street for the Lupus that eventually claimed her life. and us have been talking about doing this for many years and we are so happy we finally get to pull this off. We will be passing the hat and trying to raise money for the Lupus Foundation of Southern Arizona in honor of our lost friends. We hope everyone can make it out to show support!

Tribute and Benefit for Lupus Foundation of Southern AZ. In Memory of ( Nowhere Man and Whiskey Girl ) 4/27/24.
If you would like to donate please scan the QR code.
Thank You!

Great to see take the Arizona lead in working with his colleagues on the push for much-needed reform. This will have a direct impact on patients. https://rubengallego.house.gov/imo/media/doc/31524pbmhouseleadershipletter.pdf

Thank you Representative, Gallego, for working to address the exorbitant cost of necessary drugs to people who have lupus as well as other serious health issues. PMB reform is crucial sooner, not later.

rubengallego.house.gov

Registration is working again. Please register here at this link or the QR code on the flyer. If you would like to Donate please go to our website and click the DONATE button in the upper right corner.
Hope to see everyone there!
https://lp.constantcontactpages.com/ev/reg/5wgkn68

Lupus and other autoimmune diseases strike far more women than men. Now there’s a clue why WASHINGTON (AP) — Women are far more likely than men to get autoimmune diseases, when an out-of-whack immune system attacks their own bodies — and new research may finally explain why. It’s all abo…

Hi!
It’s walk time again. Mark your calendar to join us for the 23rd Annual Walk the Loop for Lupus, Saturday, April 20, 2024 at Reid Park. Start gathering your team together. Last year’s competition was fierce. Did you know there was a time the Lupus Walk had 1000 walkers? Really. Let’s make it happen again! Registration and sponsor information will follow soon.

You are invited to join us for this final group event of 2023. COLOR ME GRATEFUL! Mark your calendar for December 6, 2023. RSVP requested. See you there!

The 4th Living with Lupus Support Group scheduled for this Saturday, November 18, 2023, at the Community Foundation Campus has been cancelled. The original speaker is no longer available, and we were unable to find a timely replacement. I enjoyed these Saturday morning gatherings and hope they were good for those of you who participated. Community is so important for us. The opportunities to learn, to share, to laugh, to cry, to create, to be together, to celebrate life make it all worthwhile. I will be planning next year's quarterly schedule soon, so if you have a topic you want to explore or know a speaker, or an activity we all might enjoy (i.e. coloring, outing at another venue), please let me know.

The Coffee Talk scheduled for Wednesday, December 6th, at 5:30 pm at the Community Foundation Campus, is a themed event, following in the footsteps of last year's Celebration of Gratitude. You don't want to miss this one! More details to follow.

Finally, we're looking for a few good people to help us make these events meaningful, memorable, challenging and more inclusive of our lupus population. If you have a bit of time and an idea or two, please give me a call at 303-594-3432. I'd love to have you join up! Thanks Everyone! Enjoy a peaceful, healthy Thanksgiving and know the Lupus Foundation of Southern Arizona is here to help.
Peace to all, Sharon

Coffee Talk Support Group meets this Wednesday, October 4, 2023, at 5:30 at the Community Foundation Campus, 5049 E. Broadway Blvd., Tucson AZ 85711. Come join us for conversation, questions and answers from lupus warriors, updates and an opportunity to get together in person.
Are you planning to attend? Let us know. Virtual attendance is also available on Zoom, Mtg Room #8602591248. It's been a while. Would love to see you!

Last week we received notification from Deanna Kennedy, daughter of Lilly Depka, that her mom had passed away on August 2, 2023. She was the last living founder of the Lupus Foundation of Southern Arizona. A Memorial Mass will be offered at 11:00 am, Saturday, September 30, 2023, with Rosary preceding at 10:30 am at Our Mother of Sorrows Catholic Church, 1800 S. Kolb Rd., Tucson.

I first met Jon and Lilly at the 2016 Gala which honored the founders of LFSA. My husband, Paul, and I had the privilege of sitting at their table and enjoyed a lovely evening. After the Gala, Lilly and I had some wonderful conversations about lupus, the beginnings of the foundation and life in general. I enjoyed her energy, insights and outlook on life and looked forward to one more opportunity in the weeks ahead when we received the call.

Many years ago, three women who had lupus and their husbands decided to form an organization focused on support and education about lupus. They also raised funds for research in hopes of finding a cure in their lifetime. Thank you, Lilly and Jon, Alecia and Gerry Merrill and Catherine Meyer for turning your idea into a reality. May we honor your memory in the programs and services we offer today to women and men with lupus.

Coffee Talk Support Group.
Please join the Lupus Foundation of Southern Arizona for a Coffee Talk Support Group Wednesday October 4th at the Community Foundation Campus, 5049 East Broadway Blvd., Tucson, AZ, starting at 5:30pm in the first-floor meeting room. This is an opportunity to enjoy the company of other lupus patients while sharing personal experiences in a supportive environment.
If you are unable to join us in person, please zoom in at # 8602591248
Hope to see you there!

Lupus patients need help with high drug prices & one way to do that is with . We joined a dozen other Arizona patient organizations in this letter to in advance of today's Congressional hearing.

ONLY 51 DAYS AWAY
Please come join us for a beautiful day of golf and lunch! Please help spread the word by sharing our flyer below or if you have any questions, please feel free to contact me at:
[email protected] or by phone: 520.622.9006. Okay to text as well. Thank you!

Lupus Foundation of Southern Arizona, Inc. LFSA offers support services to those with lupus or to those who are impacted by
lupus. Learn more a

Golf Tournament 2023 - WFB  

Attention all Golfers! Friends and family of Golfers! Tee off with us on Friday, October 27, 2023, or another fun filled good cause! Sponsor this event. Register a foursome. Donate a raffle prize. We'll see you on the Omni Sonoran Course! See details below and register today.

Golf Tournament 2023 - WFB  

Coffee Talk Support Group.
Please join the Lupus Foundation of Southern Arizona for a Coffee Talk Support Group Wednsday August 2nd at the Community Foundation Campus, 5049 East Broadway Blvd., Tucson, AZ, starting at 5:30pm in the first-floor meeting room. This is an opportunity to enjoy the company of other lupus patients while sharing personal experiences in a supportive environment.
If you are unable to join us in person, please zoom in at # 8602591248
Hope to see you there!

reform is long overdue. Hopeful that and the rest of the Ways & Means Committee bring more transparency and more direct discount pass-throughs to patients during tomorrow’s hearing:

Key House panel proposes lowering out-of-pocket drug costs in Medicare The Ways & Means Committee package would ensure that Medicare patients pay for medicines based on the discounted price that insurers negotiate with drugmakers.

It's Hit the Links for Lupus time! Mark your calendars. Invite family, friends, neighbors, co-workers, or anyone else you know who loves to golf and is happy to golf for a cause. We're here to support people with lupus in Southern Arizona. If you're available to volunteer at the tournament, contact Shannon by phone or email at 520-622-9006 or [email protected]. Look for registration details soon.

Please join us for Coffee talk group this coming Wednesday, June 7th from 5:30 to 7pm. We meet at 5049 E. Broadway Blvd. 1st floor.
Conference Room #102, just past the front desk and stairs, on the left. If you cannot make it in person, you can zoom in
@ Meeting Room #860-259-1248.
Hope to see you all then.