The Curtis Family
Keeping up with the Curtis family ❤️
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10/06/2023
Update: Let’s see if I can explain it decently to where it makes sense…
Jace has had routine CT Scans of the chest often & we’ve been lucky enough to have each one come back normal/clear until the last one. There was NO CANCER FOUND (Hallelujah!) but she did see a tear in his lungs that was leaking air into his chest cavity. From the CT Scan it looked as though the air was in the area between the heart and the thin sac that surrounds the heart. His Oncologist wanted him down at UC Davis to look a little more into the location/size of the tear. After spending the day down there it was decided that the tear was small enough that they didn’t feel surgery to repair it was necessary at this time since Jaces vitals were good & he wasn’t in any distress & only showed very mild discomfort.
From what we were told, this can only be caused by a few things, chest trauma, ongoing hard coughing or ongoing vomiting. I tried racking my mind along with Jace to figure out what could’ve caused the tear but he has no idea besides possibly lifting weights 🤷🏼♀️ it would be helpful to know the cause so that he can be cautious from now on but unfortunately, we may never know. They’ve sent him home for now with very strict instructions for rest, no lifting to allow it to hopefully heal on its own. He will have the tear checked again to make sure it is healing & that no bacteria forms in his chest. He has an appointment scheduled for Tuesday with his oncologist.
- I need to respect Jace’s feelings as he is older now & some details will stay between him, his Drs., his therapist & myself. I know that most of you have followed his journey from the beginning & care deeply for Jace so I will update to the best of my ability without stepping over the line & keeping some details private for the wellbeing of my Son ❤️ he knows that he is loved by many far & wide & appreciates all the love, kindness & concern.
PS) The sunset on our way home last night was beautiful 🌅 the picture doesn’t do it justice 🥰
09/06/2023
Jace’s oncologist called me this morning with some unexpected news of some findings from his last chest CT. We are on our way down to UC Davis & I will update as soon as we know more ❤️
Prayers for Jace to be calm & for him to continue to find the strength we all know he has… (pictured is “Auggie”… Auggie has been there through Jace’s entire journey, from the very first surgery until the last car ride away from the hospital with him when he was finally finished chemo. Auggie was the first thing he went & grabbed from his room to bring with us ❤️)
22/05/2023
Please click on the link & vote for Jace ❤️❤️❤️
Is Jace the Skatepark Hero? You decide! One skater will be chosen by the public to win $10k and a skate session with Tony Hawk.
Flashback to the simple days… Before cancer & before he lost his leg. Jace was teaching his little sister how to skateboard 🥰
Jace had been on a skateboard since he was a toddler & could do pretty much anything/everything on his board. He was just made to ride 🛹
I worried that he wouldn’t be able to ride after he lost his leg but I was sooooo impressed when he got back up, relearned almost everything & is currently working on dropping into the bowl at our local skatepark that Tony Hawk designed back in 2018.
I love these little humans of mine so much! The bond between them is so special 🥰
19/03/2023
Ok, I think I’ve come up with a solution for this page that will allow us to keep it but focus on our family as opposed to just Jace...
I have changed the page’s name, gone through & blocked a couple of people that have been causing Jace an unnecessary amount of anxiety/stress. After talking with Jace about options, we’ve decided to make a few changes to it & not allow those people to push us away. This way all the memories, photos, videos, etc that are on this page can be saved to look back on yet focus on a page where our followers can keep up to date & continue to be a part of our family’s growth/journey. Focusing on our family as a whole instead of Jace’s cancer journey ❤️
I ask that you ONLY follow this page if you’re here because you genuinely want to keep updated with our family. If you’re here to potentially use photos of my son for ill intent, I will be keeping an eye out for any & all kids his age & will not hesitate to block/report you.
My son has been through far too much to have to deal with anyone who decides to take something that was an incredibly painful experience & use it in a malice way, which was the main reason to delete his cancer page in the first place. (Sadly)
For all of you who have been with us since the beginning, thank you! There has been much more positive than negative that has come from this page 🥰
Here’s to a NEW chapter: The Curtis Family!
Below are a few pictures to introduce/re-introduce everyone in our family:
Good afternoon everyone, this is Jace’s Mama ❤️
This is going to be somewhat of a difficult update/post for me to make since each & every one of you who have been following Jace’s journey all this time have been such a blessing to my family.
My best friend since elementary school created this page for me as a way to keep family & friends updated on what was happening in Jace’s treatment & it quickly gained followers from all over the world who gave us faith, love, compassion & support that has continued through the last 4 years while he keeps hitting milestone after milestone! I know it means a lot to so many of you to see him grow & become the young man that he’s becoming.
That being said, Jace is 17 years old now, he will be coming up on 5 years cancer-free in November (right around his 18th birthday 🥳) & it’s time for Jace & our family to begin the process of leaving the pain in the past & take down this particular page. To focus on the good ❤️
For those of you who just want to follow along with our family on a page that gets regular updates on all of our life events, photos of all of us & isn’t purely focused on Jace, you’re more than welcome to send me a request or follow my personal page (Ivy Dawn) to keep up with our lives, I’d love to have you! This will also make Jace feel better about sharing where we can manage who sees what.
Again, y’all have been such a huge part of our journey & It’s tough to have to choose to take the page down but we’re only a few clicks away if you’d like to keep up with the family!
Love to each & every one of you!
PS) I’ll keep this post up until Sunday to give as many of you as possible the opportunity to see it & have the chance to find us on our private page. 🥰
California got hammered with snow in areas that don’t usually see it.. I took advantage of it & had a snow day with the kids ❤️
This is Paradise California where most of the town was wiped out by the devastating Campfire wildfire a few years ago. Driving around looking for a good spot to play was challenging as a lot of the places I pulled off to play, had dangerous debris from the fire hidden under the snow. I decided the Paradise Rec Center would be the best (& safest) place for them to get out & goof off ❄️🥰❄️
21/02/2023
Jace got his braces put on today! I’m so proud of him & how far he’s come to make positive changes in his life…🎗️🥰
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Jace’s Fight Against Cancer
On January 1st Jace was transported from Enloe Hospital to UC Davis and later diagnosed with high risk Osteosarcoma (bone cancer). Jace is 12 years old, in 6th grade, and is a very sweet and active boy. Jace loves to skate board, ride bmx, go fishing and camping.
When Jace was complaining of severe pain in his leg, his mom, Ivy, took him to the hospital. They were supposed to go to the park and he and his siblings had really been looking forward to going. When his mom said that since he was in so much pain, she wanted to take him to the hospital, he said, “Lets go to the park first so they don’t have to miss out because of me.” She said that they could go after the hospital. Little did they know that they weren’t going to make it to the park afterall but how he was willing to wait so that his siblings could go have fun even though he was in so much pain is so heart warming. This is a perfect example of how sweet and caring Jace is. He is always putting others first and doesn’t think twice about sacrificing himself to help others.
He was diagnosed with Osgood-Schlatter Disease (growing pains) a week before Christmas, and after several xrays, CT scans and testing they got the news that Jace now has a tumor in his femur that has grown to the size of a golf ball and has begun to fracture the bone within two weeks from his last x-ray. This is when he found out that he had a very rare bone cancer and that he may have to have his leg amputated.
Jace has gone through his first round of treatments and a two week break before his next round. He will be going in for his second round of treatments 1/24/18 and will be spending a majority of the next six months at UC Davis going through several rounds of treatment. It is unknown at this time when his leg will be amputated but we do know that he has chosen Rotationplasty. This is a surgery that will take his foot and ankle, rotate it 180 degrees, and attach it to his femur to create a functioning knee. It was very hard for Jace to hear that he would loose his leg but he really is taking it in stride. He is looking forward to one day being able to run and do activities that any boy would normally do.
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