Moms Spectrum Oasis
A community for autism moms. Guidance, mentoring, and encouragement for Moms.
31/05/2024
As "May is National Mental Health Awareness Month" draws to a close, I am sharing again my guest appearance on this "Island Treasures" podcast for caregivers hosted by Alison van Schie. This is the abridged, "mini podcast" format for a taste of that episode. In it, I talk about the reality of evaporating support in the face of tough diagnosis--as well as the silver lining of this dark time. Let me know if you want the longer version!
https://www.buzzsprout.com/2347817/14839114?fbclid=IwZXh0bgNhZW0CMTEAAR235MWziY3OHCmlJFzjrwNhevM7GPU8plu2AS12HdZ96JXQBkhigKpUp1g_aem_AccOu1_n9ILB2Yijr2-eNNURAR2Zy7Gfy-gg-NVoJCBlkww38u7mcAox1HmVjL4cQO3PBHm6yKLKtsmti_Rwj6pA
Island Treasures Mini Podcast: You Just Have to Love Me: A Mother's Caregiving Journey - Island Treasures This mini episode contains excerpts from the full episode and addresses what happens when friends and family drop away and the social invitations to caregivers cease.Heidi Rome helps us approach this situation and reminds us that there are folks w...
29/05/2024
Coffee with Colin S:6 Ep:16 w/ Heidi Rome Welcome to another inspiring ✨LIVE✨ episode of Coffee with Colin, where I get to chat with Author, Speaker & Founder of Moms Spectrum Oasis, Heidi Rome! ☕️ W...
28/05/2024
Thrilled to be a guest on Gina Kavali's podcast, "Life with the Spectrum"! Please share:
A Moms Spectrum Oasis! Heidi Rome, author of "You Just Have to Love Me," has created a community for autism moms. Through guidance, mentoring, and encouragement, Heidi started A M...
21/05/2024
Worried about where your high-need autistic young adult will live beyond turning 21? Check out this "Life with the Spectrum" podcast hosted by Gina Kavali featuring some innovative new communities springing up around the country!
Life With the Spectrum heads to Texas, South Carolina, and Arizona for some community living! More and more communities are popping up from coast to coast that offer our young adults independent living options or for the more profound, a more supporti...
21/05/2024
May is Mental Health Awareness Month! Join us!
My pleasure to spread the word about "Allyship". No one does anything in this world without the help of others! Thank you to all our friends who walk beside us on the special needs/diversity inclusion journey--we can't effect the loving change we all envision without YOU!
https://www.livingstonnj.org/DocumentCenter/View/25197/2024-Fashionableally-Flyer-PDF?bidId=&fbclid=IwZXh0bgNhZW0CMTAAAR2KnKRcU_NQFVCy3jinzNYBzti_UvsjbCrm-de136tkFJ4_mNHTOxQGd9A_aem_ATZkBgG4QuxpQkXqmK0U2V7UxNA9q1xMMX8jgH-fg6dpAogOkzukjj7rQTkklI5-Wm5lt_MGgtQdBpVbrWJjAHCM
25/04/2024
The Y has always been dedicated to the idea that EVERY heart in our community matters, in whatever body that heart happens to be held! I am honored to be a featured speaker in the Y's series for staff and community partners that accepts, honors, supports, and celebrates each other's diverse abilities, vulnerabilities, perspectives, and gifts.
I hope you'll join us! Please use the QR code below to register!
Hey, friends, don't open any "invitation" from me! That's NOT me! If you did open, please change your FB password ASAP!
21/03/2024
Very important summit affecting nonspeakers and those who care about them!
Early Bird Registration
Sponsorship Opportunities
Brain Developement and Speech
Rapid Prompting Method (RPM)
Speech and Oral Motor Reflexes ( MNRI)
Sensory and Emotional Regulation
Apraxia, Aphasia, Abulia? Which patients will benefit from Spelled Communication.
Special Panel of NonSpeakers…
Does your child have a special message and would like to be a part of the please connect with us .
https://www.akhilautismfoundation.org/qpp/
Akhil Autism Foundation
13/03/2024
Hey! Join me and two of my co-authors for a LIVE book-signing in Westchester county in New York this Wednesday, March 20th!
26/02/2024
Counting down! Two days to my first Lunch and Learn on Wednesday, February 28th, 12pm ET!
Would love to see you there!
How to Win/When Life is Coming at You “Lunch and Learn”, February 28th at noon ET – Heidi Rome How to Win/When Life is Coming at You “Lunch and Learn”, February 28th at noon ET Is life coming at you from every direction? Does it seem like no sooner that you have one situation identified, another one demands attention? Isn’t it time that the never-ending pressure releases you? Has someth...
I'll be sharing a proprietary blend of two questions that are SO powerful to shift us from chaos to calm....
Come join us and hang out!
heidirome.com/peace
23/02/2024
I'll be sharing a proprietary blend of two questions that are SO powerful to shift us from chaos to calm....
Bring your lunch to our virtual event and let's hang out!
22/02/2024
Are you eating yourself ALIVE?
Harsh judgment of ourselves spills over as harsh judgment of others' own vulnerabilities and differences from "the norm" (?!)
There's another path, WAY more effective at getting the best from yourself....
https://us02web.zoom.us/rec/share/OZlYo77TUeplATihvEJkkOle90Gviq7DWmRLZX4xItBGRjVNTA7pFo4HiPueHhhi.Ib-q9zwxUVecp9b6
"I've been underestimated my whole life." --Ethan, 18
It's time to change our view of nonspeakers with severe autism from their being seen as a high-support-need burden to their being recognized as a high-support-need ASSET: https://us02web.zoom.us/rec/share/kHxk1d1EtU8Upx5NIo5JAk0iO4I7m7LB-Bsn8NsSDMgRqSgdwXwBDL9j7daegKkF.bqTo6ZFsEon9Khz3
06/12/2023
TODAY, Wednesday, December 6th, the "Superheroes on the Spectrum" book cover will be on display in Times Square for 60 seconds every hour (on the 12th minute of the hour) at 1560 Broadway, between 46th and 47th Street, right above the Pelé store. Then, at 9:00pm, it will stay on for 15 seconds! Please join us for the celebration there if you can, virtually if not physically. Here's the livestream of the area!
https://share.earthcam.net/tJ90CoLmq7TzrY396Yd88A4kdLdbDd6oQl5D9Ktzt8U
01/12/2023
Welcome! You are invited to join a meeting: Bless & Release 2023. After registering, you will receive a confirmation email about joining the meeting. Welcome! You are invited to join a meeting: Bless & Release 2023. After registering, you will receive a confirmation email about joining the meeting.
SURVEY OF PARENTS AND ALLIES OF PEOPLE WITH SEVERE AUTISM: FIRE SAFETY AND RESISTING HELP
Severely autistic people may panic and RESIST HELP in the face of FIRE. They may refuse to leave a burning building, endangering their frantic parents and first responders in the process.
This is NOT defiance; their nervous system is freaking out and immobilizing them, pinned to the spot. All fire safety precautions I have found focus on advance preparation: Smoke alarms, closing doors, fire drill desensitization, and making a plan for emergency exit and meetup outside.
NONE suggests what to do RIGHT THEN when an adult is REFUSING TO LEAVE. Imagine having only THREE minutes to GET OUT and using that precious time pleading futilely with that person while avoiding their defensive blows? Death is often the result!
I have an idea for EMERGENCY USE ONLY, akin to using an Epi-Pen in the event of severe allergy anaphylactic shock or administering an urgent Narcam injection to someone unconscious from an opioid overdose:
Have an EMERGENCY SEDATIVE INJECTION kit ready in the home of a severely autistic person or anyone else likely to resist help. In the event of a fire, the caregiver can administer the shot or supply it to the first responder to use IMMEDIATELY.
What do you think of this idea? Pro or con, and why? What other SOLUTIONS do you have to address this resisting help issue DURING the emergency itself?
23/09/2022
Join us, it’s now!
How are you this week? What’s going on with your world?
Do you take time to listen to your own needs? How important it is to our balance and health to listen to and honor our own needs.
20/07/2022
Thursday night, July 21st, is our community conversation on ZOOM.
Dr. Elizabeth Joy Shaffer will be our guest. A mother, published researcher, speaker, therapist, and internationally recognized neurodiversity specialist. She has empowered thousands of children and parents worldwide with the knowledge and tools to mindfully approach difficult moments and grow through life's challenges in a way that allows us to live with less stress and more joy.
We hope you’ll join us! Link will go out in email Thursday and will be posted in our group. Dm if you need assistance Thursday evening.
19/07/2022
People whose severe disabilities lessen their independence require a community designed to meet their high level of need. Group homes are not the answer for everyone; some of our young adults with autism require or prefer a loving congregate care setting to thrive. https://www.nytimes.com/2021/07/04/opinion/disability-funding-medicaid.html?unlocked_article_code=AAAAAAAAAAAAAAAACEIPuomT1JKd6J17Vw1cRCfTTMQmqxCdw_PIxftm3iWna3DKDm4eiOMNAo6B_EGKaat4btEy2zWHVZpPLbkjRfp9i-pSM01mQgik5JuYnZBPawMElbWOZEJklZTcQeJ_tjbwcmiyLOo4yeyy5EyMOTP1DaPe0GkmdwszvcNnfV610XQLwvzAReVyjdN7zu5hUs4hPUoIYCSJvvnoCB5sap7RPlyHtF5AC6wOUirTnNWc97sFbA1ZbFvHR3l_6m88g8hObJJVZO2sak59J7etxOkZGWdqL4y2BpwuR4mylr9is7XFqBfk29P84iKWml4CZfRlmco2DhAA&smid=em-share
Opinion | When It Comes to People Like My Daughter, One Size Does Not Fit All Federal funding should not automatically favor smaller settings over larger ones for people with disabilities.
27/06/2022
For those of us who want a deeper spiritual connection with our nonspeaking autistic kids--yes, even if they have dysregulated behaviors--check out this upcoming 10-week workshop being given by two of our autism mom community members, Malena and Olga.
Get ready to laugh and cry as we join our kids in the realms where they are not voiceless. We already know that their empathy and love are limitless even as their mouths do not follow what their brains implore them to express. This is my second time joining; the first was such a beautiful experience that I am back for more!
02/03/2022
My friend Hanna Kok has her own take on an ancient technique to create world peace outside ourselves by looking and taking inspired, truthful action from within ourselves.
Are you brave enough to do it? Are you brave enough to believe that, YES, you ARE powerful enough as an individual to make a difference?
If you hesitate for yourself, would you hesitate to benefit your kids?
And if not now, when?
Thank you, Hanna! https://www.youtube.com/watch?v=3NhgUepfelA&t=27s
How to create world peace from your home Do you dislike war?In this video you will learn a technique that enables you to create peace in your life and in the world. Watching it is 12 min well invested.
My Story
My primary goal is to support moms whose children have been diagnosed with autism. As a Mom Mentor, I guide, support and empower my clients as they navigate their way through the world of autism.
While each mom's personal process is unique, in the world of autism, all moms share the same journey and can find solace in these three principles: Self-Care. Spirituality. Purpose.
For most moms on the autism journey, finding time to think about their own needs not a top concern. However, what brought me to my current state of balance is my philosophy of Self-Care as a priority. By practicing being good to self, as a mom, you are reenergized, rebalanced and revived for the ultimate betterment of the kids and those who depend on you.
My work with moms is built on the premise that Spirituality makes the journey bearable and gives hope in the darkest times. The comfort of having and being connected to a higher power that is the source of all hope and possibility, helps moms get through the hardest days, the darkest nights and the most painful moments.
It's important to remember that we are never alone or abandoned because we are also always accompanied in our hearts by other moms on this difficult journey.
Although the journey of autism is very child-centered, I work with moms to discover the best parts of themselves. In this process of guiding and helping moms to find their voice, clarify their choices and grow into their strongest selves, I lead them to the flowers through the trees. Moving toward that light, these warriors can open their eyes, minds and hearts while finding their place and Purpose as they move forward.
Overall, my three-pronged approach to mentoring helps Moms gain confidence, strength and reassurance in her abilities as a woman on a noble personal mission.
~Heidi Rome
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