Videos by MyLVAD. The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.
💙 Welcome to our LVAD Community Forum! 💙
This space is for anyone on the LVAD journey who wants to connect, share, and get a little support whenever you need it. Our forum is always open whether you’re adjusting to life with an LVAD, managing day-to-day challenges, or supporting a loved one.
You’ll find tips on travel, fitness, meal ideas, mental wellness, and more—and you can jump in any time with questions, stories, or advice. Let’s make this journey a little easier by helping each other out. We’re in this together! 👇👇👇
https://www.mylvad.com/patients-caregivers/discuss-connect/forums
For Those on the LVAD Journey
💙 Welcome to our LVAD Community Forum! 💙
This space is for anyone on the LVAD journey who wants to connect, share, and get a little support whenever you need it. Our forum is always open whether you’re adjusting to life with an LVAD, managing day-to-day challenges, or supporting a loved one.
You’ll find tips on travel, fitness, meal ideas, mental wellness, and more—and you can jump in any time with questions, stories, or advice. Let’s make this journey a little easier by helping each other out. We’re in this together! 👇👇👇
https://www.mylvad.com/patients-caregivers/discuss-connect/forums
Movement Matters!
Staying active with an LVAD is all about finding balance! 🚶♀️ From gentle walks to modified exercises, keeping your body moving helps your heart stay strong.
What’s your favorite way to stay active?
SATURDAY SHARE ❤️
A positive mindset can make all the difference in your LVAD journey. 🌟 Focus on what you can do, embrace the little victories, and always stay hopeful.
How do you stay motivated?
Community Forum
Need a virtual hug?
It takes a village, and the MyLVAD community forum is always here to support you. Share your experiences, lean on others, and find strength in knowing you’re not alone in this journey.
Check it out! 👇
https://www.mylvad.com/patients-caregivers/discuss-connect/forums
Sleep is a Priority
🌙 Sleep is vital to recovery and long-term health, especially for LVAD patients. Here are some tips to ensure you're getting the best rest possible:
Cool it down – Set your room temperature to 68°F or lower to help your body fall into a deeper sleep.
Create a bedtime routine – Wind down with calming activities like journaling, deep breathing, or soft music.
Consistency is key – Go to bed at the same time every night to reinforce your sleep cycle.
Better sleep, better health. Let’s make it a priority!
Travel Thread!
🚗✈️ Traveling with an LVAD can seem daunting, but our community has your back! 🌟 There’s a fantastic thread on our forum where many people have shared their tips and experiences on traveling safely with an LVAD. Whether planning a road trip or flying, you’ll find valuable insights and advice from those who’ve been there.
Head over to the forum, check it out, and feel free to share your own travel stories or ask questions! Let’s support each other on this journey. 👇
https://www.mylvad.com/patients-caregivers/discuss-connect/forums/2566-anyone-have-info-places-travel-safely
Daily Movement
💪 Ready to Get Moving with Your LVAD? 💪
Starting a daily movement routine doesn’t have to be complicated! Here are a few simple tips to help you begin:
1️⃣ Start Small: Gentle stretches or short walks can make a big difference.
2️⃣ Listen to Your Body: Go at your own pace, and stop if you feel tired.
3️⃣ Stay Consistent: A few minutes each day adds up over time.
4️⃣ Find an Accountability Partner: Connect with a friend or family member to keep each other motivated!
5️⃣ Journal Your Progress: Track how you feel each day—it’s a great way to celebrate small victories!
Always check with your healthcare team before starting new exercises. You’ve got this! 🏃♂️
💙 Caregiving Takes Heart and Endurance 💙
Supporting a loved one with an LVAD can be challenging, but you’re not alone. Here are a few quick tips to help you stay strong:
1️⃣ Stay Informed: Learn as much as possible about the LVAD and its care. Knowledge builds confidence.
2️⃣ Take Breaks: Your well-being matters too. Don’t forget to rest and recharge.
3️⃣ Build a Support Network: Lean on family, friends, and online communities like ours for help and advice.
4️⃣ Celebrate Small Wins: Every step forward is progress.
You’ve got this! 💪
Community Advice!
✈️ Planning to Travel with Your LVAD? ✈️
If you have questions about traveling with your LVAD or want to share your experiences, head over to the new thread started by Adrienne on MyLVAD's Community Forum! 🌍
Whether it’s tips for airport security or advice on packing your gear, your insights and questions are always welcome. Let’s keep the conversation going and support each other through every journey. 👇
https://www.mylvad.com/patients-caregivers/discuss-connect/forums/2566-anyone-have-info-places-travel-safely
Healing!
SATURDAY SHARE...
“Everybody has losses — it’s unavoidable in life. Sharing our pain is very healing.”
~ Isabel Allende
Caregive Tips
⭐️ Caregivers, your role is incredibly important and deeply appreciated.
Here are some tips to help make your daily journey a bit easier and more fulfilling:
✔️ Create a Medication Schedule: Use a pill organizer or digital app to track medication times and dosages. Setting reminders can help ensure you never miss a dose and reduce stress.
✔️ Set Small, Manageable Goals: Break down daily tasks into smaller steps. Celebrate each little victory, whether getting through a particularly tough day or simply making time for a quick walk.
✔️ Connect with Other Caregivers: Find a local or online support group where you can share experiences and get advice. Sometimes, just knowing others understand what you’re going through can be incredibly comforting.
✔️ Plan for Your Own Well-Being: Schedule regular breaks and activities that recharge you, whether a hobby, a quiet moment with a book, or a chat with a friend. Your well-being is just as important as the care you provide.
✔️ Document and Reflect: Keep a journal of your daily experiences and any changes you notice. It can be a valuable tool for communicating with healthcare providers and for tracking progress and patterns over time.
❤️ Remember, you’re not alone, and your care makes a profound difference. Let’s support each other by sharing our best tips and practices. 💪💖