XP Grupo Luz de Esperanza, Inc.

We are a non profit organization providing resources & bringing worldwide awareness about Xeroderma Pigmentosum(XP) disease.

Organización sin fines de lucro - proveemos recursos y estamos creando conciencia mundial sobre la Xerodermia Pigmentosa(XP). We are bringing worldwide awareness about XP, especially in the Spanish-speaking countries where resources or information about this disease are scarce. Nosotros llevamos información sobre Xerodermia Pigmentosa a todas las familias afectadas en todo el mundo y en especial

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05/23/2024
05/23/2024

5to Día - IV Seminario Virtual de Concientización sobre Xerodermia Pigmentosa (XP)

05/22/2024
05/22/2024

4to día del IV Seminario Virtual de Concientización sobre Xerodermia Pigmentosa (XP) - XP GRUPO LUZ DE ESPERANZA

05/22/2024

Hoy continuamos con el IV Seminario Virtual de Concientización sobre Xerodermia Pigmentosa

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05/16/2024
05/15/2024
05/15/2024

3er día del IV Seminario Virtual de Concientización sobre Xerodermia Pigmentosa (XP) - XP GRUPO LUZ DE ESPERANZA

05/14/2024
05/14/2024

IV SEMINARIO VIRTUAL- CONCIENTIZACIÓN SOBRE XERODERMIA PIGMENTOSA (XP) - 2DO DÍA

Recuerden compartir el live con todos sus contactos y a través de las diferentes plataformas.

05/14/2024

¡Conéctate a través del IV Seminario Virtual de Concientización sobre Xerodermia Pigmentosa (XP)
Del 13, 14 15, 22, 23 y 24 de mayo, de 5 a 7 pm, transmitiremos en vivo este importante evento para crear conciencia sobre la vida de las personas afectadas por XP. 🌟

Por:
✅Facebook/Instagram de XP Grupo Luz de Esperanza
✅Canal de YouTube: XP Grupo Luz de Esperanza
✅Gurztac.com/TV-on-line
✅ Facebook de: Global Creación sin límites

Nuestro objetivo es mejorar su calidad de vida a través de la educación y el apoyo. 💪

¡No te lo pierdas Comparte este mensaje y ayúdanos a iluminar el camino hacia un futuro más brillante para la comunidad XP. 🌟

05/13/2024
05/13/2024

📣!Desde hoy!

¡Conéctate a través del IV Seminario Virtual de Concientización sobre Xerodermia Pigmentosa (XP)
Del 13 al 24 de mayo, de 5 a 7 pm, transmitiremos en vivo este importante evento para crear conciencia sobre la vida de las personas afectadas por XP. 🌟

Thanks and Giving - Xp Group 12/06/2023

Thanks and Giving - Xp Group The organization XP Grupo Luz de Esperanza was established for the betterment of those individuals affected by Xeroderma Pigmentosum and their families.

iGive - You Shop. Your Charity Gets Money. For Free. 12/04/2023

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iGive - You Shop. Your Charity Gets Money. For Free. Shopping at any of 1882 stores like Travelocity, Macys, Overstock, and many more, means a donation to your favorite cause.

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Our Story

We are bringing worldwide awareness about XP, especially in the Spanish-speaking countries where resources or information about this disease are scarce.

Thank you for your comments. If you would like to contact us, please visit our website: Email: [email protected] / Phone 1-(860) 333-8715

Nosotros llevamos información sobre Xerodermia Pigmentosa a todas las familias afectadas en todo el mundo y en especial a los países de habla hispana, los cuales no tienen la información ni los recursos necesarios para lidiar con la enfermedad.

Muchas gracias por sus comentarios. Si deseas contactarnos, por favor visite nuestra página web: Correo electrónico: [email protected] / Tel. 1-(860) 333-8715

Videos (show all)

IV Seminario Virtual de Concientización sobre Xerodermia Pigmentosa (XP) 5to día
IV Seminario Virtual de Concientización sobre Xerodermia Pigmentosa (XP) 4to día
IV Seminario Virtual de Concientización sobre Xerodermia Pigmentosa (XP) 3er día
IV SEMINARIO VIRTUAL- CONCIENTIZACIÓN SOBRE XERODERMIA PIGMENTOSA (XP) - DIA 2
IV Seminario Virtual de Concientización sobre Xerodermia Pigmentosa (XP)
Muchas Gracias
UK Documentary on Xerodermia Pigmentosum

Telephone

Address

P. O. Box 256
Waterford, CT
06385

Opening Hours

Monday 8am - 5:30pm
Tuesday 8am - 5:30pm
Wednesday 8am - 5:30pm
Thursday 8am - 5:30pm
Friday 8am - 5:30pm
Saturday 9am - 10am

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