ASF Walk - West Monroe, Louisiana

We want to say THANKS, one more time! Your support and effort has raised over $1.1 million! The giving portal is still open, too: https://www.angelman.org/walk/

It’s because of YOU that ASF is able to provide programs like the ASF Family Fund, consultations with Angelman experts, the ASF Clinics, critical research projects and more!!

THANK YOU!!

https://youtu.be/N-cglNjdeME

ASF Walk Recap 2023 Thank you to everyone who participated and supported the 2023 ASF Walk!

ASF Walk t-shirts have started arriving at homes and we have been made aware of some issues. We sincerely apologize for any inconvenience and confusion. We acknowledge the importance of having accurate and personalized merchandise for such events, and we deeply regret any disappointment or frustration this may have caused.

Our intention was to ensure a seamless experience for all participants, and we understand that for some who have experienced a mix-up, we fell short of that expectation. Rest assured, we are actively working to rectify the situation and ensure that everyone receives the correct t-shirt. If you have received the wrong t-shirt or experienced any other issues with the t-shirt delivery, please click here to submit so we can fix the issue ASAP.

https://forms.gle/bUSvtsVaBARG5f9Y6

We value your support and commitment to the ASF Walk, and we are committed to making this right. Our team is diligently addressing the issue, and we will take immediate steps to rectify the distribution errors. We appreciate your understanding and patience as we work towards resolving this matter promptly.

Once again, please accept our sincerest apologies for any inconvenience caused. We remain dedicated to providing you with the best possible experience and look forward to making the necessary arrangements to ensure a successful ASF Walk for everyone involved.

ASF Walk T-shirt Issue If you have received your ASF Walk t-shirt and there was an issue of some kind, please use this form to report the problem. We will contact you to follow up and make any changes/adjustments necessary. We apologize for any inconvenience. PLEASE NOTE: T-shirts will arrive separately and may not arrive...

AST CALL for the Adaptive Trike raffle! The winner will be announced next week on May 10. Get your ticket now. Good Luck!

Purchase raffle tickets: support.angelman.org/rifton23
Proceeds benefit the ASF Walk.

‼️ Fabulous Fundraiser to benefit ASF Walk ‼️
Order yours today!!
https://support.angelman.org/sox

Let's hear it for our Superhero Walk Coordinator for West Monroe, LA!! We love and appreciate you, Chelsea Beebe!

Check out the ASF Store for Mother’s Day, Father’s Day, Walk Day and teacher gifts! Shop & support the ASF.
https://www.yourpromopartners.com/stores/ASFStore

BIG BIG thank you to Dunco Insurance Group for their continued sponsorship of our walk! Thank you, Megan and your associates for your generosity!

Walk T-Shirt Deadline is just around the corner! Learn more and register here: https://www.angelman.org/walk/

ASF Walk Customizable Yard Signs Available
Download and customize your sign. Three formats available.
Then order your sign from ESign.com, Staples, Office Depot a poster from Walgreens or another provider.
Click Here for template & more Info: https://www.angelman.org/walk/fundraiser-toolbox/

Get Your Raffle Tickets Today!!

Proceeds benefit the ASF Walk
https://support.angelman.org/event/adaptive-bike-raffle/e476551

A HUGE Thank You to Ovid Therapeutics for their continued sponsorship of our walk! Hey Ovid Therapeutics Inc., we are grateful for you!

Thank you to our Angelman Strong partner, Ultragenyx Pharmaceuticals. We are honored by your generous sponsorship of the ASF Walk and support for the Angelman community!

It’s Here! ASF Walk registration is OPEN. Receive $5 off all fees through Friday.
Taking place on Saturday, May 20 in most locations.
Go to angelman.org/walk and select your location to find details and register.

ASF Walk – Angelman Syndrome Foundation Saturday, May 20, 2023in most locations Corporate Sponsors Donate Here See benefits of sponsorship Registration OpensJanuary 10SAVE $5 on ALL FEESThrough January 13 Early Bird RegistrationJanuary 14 – April 17Adult – $30Child 0-11- $20Virtual Participant – $30Free for Individuals with AS T-Shi...

Today is REGISTRATION OPENING DAY for the North Louisiana Angelman Syndrome Walk.
Register during “Discount Days” (January 10-13) to get $5 off your registration.

‼️CONTEST Information: The Walk site with the most registrations by end of day, January 13th will receive a Photo Booth & Props for their Walk Site.

Who’s getting registered by the 13th?!
(Link to register is below)

https://support.angelman.org/event/2023-asf-walk-la-west-monroe/e454130

Ambit is working to develop a predictive tool to understand relationships between specific symptoms and certain rare diseases. Follow the link below to complete the survey, and Ambit will donate $50 to the ASF for each response.
Start here: https://fd91u8h6784.typeform.com/to/cvMzzG9z...

The ASF Holiday Shop is Back! Shop for special items and gifts for the holiday season.

www.yourpromopartners.com/stores/ASFStore

Order by December 5th to receive items by Christmas.

Sponsors, Participants, Volunteers, Family, Friends, and the community made this happen!
THANK YOU ALL SO MUCH!

**I have not heard if this is a final number yet, but I will keep you guys up to date**

Chelsea Beebe
ASF Walk Coordinator
West Monroe, LA

If you participated in the West Monroe Angelman Syndrome walk this year, please take the short survey by clicking on the link provided by the foundation. This survey will help make positive changes across all ASF Walk locations!! I’m looking forward to May 20, 2023 with all of you!

Thank you!
Chelsea Beebe
West Monroe, LA Walk Coordinator

If you participated in the 2022 ASF Walk, we'd love your feedback! Please take 5 minutes to complete the survey. 🚶‍♀️🚶🚶‍♂️

www.surveymonkey.com/r/22asfwalk

ASF Walk - West Monroe, WE DID IT!! Thank you to everyone for all your help, donations, love, and support! Year #1 is in the books!

It’s Walk Day!!!

If you are attending the walk, please let the people at the gate know you are with the Angelman Syndrome Walk and your $1 entry fee will be waived!

* we will check this list with the registration list *

We cannot wait to see everyone!

Kiroli Park (Civitan Smiles Park)
Registration: 9:00
Walk: 10:00

Thank you Ionis Pharmaceuticals for your continued support of our families!

This was in 1 of the 5 boxes delivered this week for our West Monroe Angelman Syndrome walk! How real and exciting it is!

I cannot wait to celebrate with our Louisiana families on May 21st at Kiroli Park!

If you have not registered, IT’S NOT TOO LATE!
If you have not signed up to volunteer, IT’S NOT TOO LATE!
If you have not signed up to sponsor or donate. IT’S NOT TOO LATE!

https://secure.e2rm.com/p2p/location/369982/en-CA

Want to know how you can help? Here’s a few things our walk needs:
•Refreshments (breakfast/mid morning snacks- 50-75 people)
•Drinks (Cases of water- 50-75 people)
•Volunteers (a couple people at the entry gate, 3 people for registration/check in table, photographer, a couple people for refreshments)

The ASF Walk is less than ONE MONTH AWAY and it’s CONTEST TIME 🎉! The two top fundraising teams will win a Safety Sleeper by Abram’s Nation! You have until May 13th, so start fundraising!

Communication Apps through AssistiveWare are 50% through April 4th!

Autism Acceptance Month Discount 2022 - AssistiveWare Our mission - making Augmentative and Alternative Communication (AAC) an effective and accepted means of communication would be impossible to achieve without families, professionals and schools having access to AAC.

Great news!!! One of our amazing donors has offered up an amazing safety bed to encourage the community to sign up for the 2022 ASF Walk!!! Anyone who signs up by Monday at 8 am will be entered into a drawing for a safety bed. Even if you do not have a walk site in your area, you can sign up virtually and be part of the contest as well! Click here to register! https://www.angelman.org/walk/