This Is Horse Crap- Tales of A Medical Zebra

This Is Horse Crap- Tales of A Medical Zebra

Follow along my journey of rare diseases and chronic illnesses. Needing to be seen urgently by Mayo Clinic. If you can donate anything, link is in bio.

Photos from Connective Issues's post 25/07/2023
Photos from Cortney Gensemer, PhD's post 08/02/2022
06/02/2022
Being plus-size and LGBT was a physical barrier to treatment 04/02/2022

Being plus-size and LGBT was a physical barrier to treatment No Zebra looks the same. No stripe is the same. Every body, experience, and combination of symptoms for those with Ehlers-Danlos syndrome (EDS) is different. Part of what makes EDS so challenging to diagnose and treat is the fact that we have an infinite number of experiences and combinations of sym...

Photos from The Ehlers-Danlos Society's post 04/02/2022
My Bend or Break Ehlers-Danlos Syndrome Tedx Talk 24/01/2022

My Bend or Break Ehlers-Danlos Syndrome Tedx Talk This is a video of my speech about the story of my disability with Ehlers-Danlos Syndrome. A documentary movie about the struggles myself and others with thi...

Photos from This Is Horse Crap- Tales of A Medical Zebra's post 11/01/2022
11/01/2022

I can’t express how much all the encouraging comments, messages, and emails mean to me.
I’ve been very very tired.
My family and I are still processing it but are staying positive.
It’s hard. My brain is on autopilot trying to manage even the most basic functions of day to day life.

I haven’t eaten enough crab rangoon to let this be my end so don’t worry.

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Neurologic-like symptoms and conditions of Cervical Spine Instability – Caring Medical Florida 10/01/2022

https://www.caringmedical.com/prolotherapy-news/neurologic-like-symptoms-conditions-cervical-spine-instability/

Neurologic-like symptoms and conditions of Cervical Spine Instability – Caring Medical Florida This article is about understanding some of the neurologic-like symptoms that you may be suffering from and tracing the origins of these problems to compression of the nerves, veins, arteries, and the spinal cord by the bones of the neck. In essence, the neurology of cervical spine instability.

Symptoms and conditions of Craniocervical and Cervical Instability – Caring Medical Florida 10/01/2022

https://www.caringmedical.com/prolotherapy-news/craniocervical-instability/

CCI can cause all kinds of issues including Chiari.

Symptoms and conditions of Craniocervical and Cervical Instability – Caring Medical Florida In this article, we have put together a summary of some of the symptoms and conditions that we have seen in our patients either previously diagnosed or recently diagnosed with Craniocervical Instability, upper cervical spine instability, cervical spine instability, or simply problems related to neck...

Videos (show all)

EDS Symptoms Checklist 4
EDS Symptoms Checklist 3
EDS Symptoms Checklist 2
EDS Symptoms Checklist