Meniere's Disease Warrior
My Journey with Meniere's Disease !! Helping other with my experiences with Meniere's
https://youtu.be/DsBev8Lw2k8?si=w3cBkocjmsHVYa9k
Triggers can change !! Last night was the first time salt triggered my Meniere's. Sodium never use to bother me at all. But as time goes by things change. So now it's low salt for ...
https://youtu.be/fOU3irBvuqM?si=lgOzicZjhcVG2nZY
Misinformation !! Misinfomation !! There seems to be a a lot of it going on in Facebook groups and on the internet. People saying they have for a cure for Meniere's. Only to r...
The Beginning of my Meniere's Journey My Meniere's journey. Doctors I've seen and thing I have done and to try to control this beast Meniere's
https://youtu.be/OFtsX-QOXcU?si=elV1e3DcCy6SuhYQ
Resting is Fighting Don't feel guilty because your taking a nap or resting for the day. It's okay. It's all part of Meniere's. You are fighting not being lazy.
You Got to Live !! That's right you got to live !! Just because you have Meniere's or Vestibular issues You still have to live. Better days are coming !!
https://youtube.com/shorts/5n66dT67QDA?feature=share
moving forward and living better Always have to move forward !! yes we always have road blocks but we can find away around them.
Weather !! With Meniere's weather affects most of us with ear fullness and pressure. I usually just ride the storm out and take them as rest days. Because I usually do ...
Amazing the things you can do Things are always difficult for us at times with Meniere's. But you will be amazed at what you can do when you are having a good day.
https://youtu.be/ocZyyr3zPjo?si=kBSBdOKR03CX3eWn
Never Judge a book by it's cover Don't you just hate when people assume we are drunk because we sometimes stumble when walk. I have had people come up to me and ask if I am drunk ?? I hate ...
https://youtu.be/V_VWxgtwZ8s?si=aDSh4ClgOKPYWl05
Let's face it they all aren't going to understand Meniere's is an invisible illness. People can't see how we feel. But remember they really don't understand and probably won't for a while. It's not your jo...
Not Everyday is Bad !! So the Friday and Saturday were really bad days for me. Spent most of the time in bed or on the couch watching the world spin. AWFUL !!! But today was good...
https://youtu.be/kD8jq7f02fw?si=lzX0oNqoqSxQAWzI
Why do people try to fix us Anytime you tell someone who doesn't have vertigo from Meniere's or any other vestibular disorder they all of a sudden become an expert with trying to fix us...
Worrying Worrying doesn't help you at all. With Meniere's and Vestibular Migraines we tend to worry a lot but all it does is stress us out and stress can trigger and ...
https://youtu.be/xfL-5QWPJXM?si=6BzNCvUYoPVJpnpU
oh yes the noise trigger again I have made video's about how noise can be a trigger for Meniere's. Well it happened again.
Vestibular Migraine and Meniere's My doctor explained to me the Meniere's and Vestibular Migraines are on a spectrum. With the VM you get shorter vertigo and no hearing loss but with Meniere'...
https://youtu.be/jaaudu_BwZc?si=C--sCjuX-EW1PqLz
Rough times We all go through rough times with Meniere's. Flare ups that can happen for weks or months. But don't give up. Rough times don't last. There is always a lig...
Central vestibular disorders, like Vestibular Migraine, PPPD, and more, stem from dysfunction in the brain or central nervous system, affecting the processing of vestibular signals, leading to symptoms like vertigo, imbalance, and spatial disorientation. Although the symptoms can be similar, these disorders are distinct from other vestibular conditions caused by damage to the inner ear. Understanding these conditions is crucial for accurate diagnosis and effective management, as they can significantly affect an individual's quality of life and daily functioning.
You can learn more about this important topic at the Life Rebalanced Live virtual conference, happening March 4-8! Register for free at vestibular.org/LRL
Special thank you to our sponsors the Hainlen Discovery Fund and Balancing Act Rehab.
https://youtu.be/ApVhD2RlJcw?si=pEwvb7vuS5LWky06
Don't Listen to Horror Stories What ever you do don't listen to the horror stories !! People will tell you all kinds of thing in support groups when you ask question. Just don't go into pa...
When you have to stop working One of the hardest thing with Meniere's Disease is having to stop working. It can be depressing at times. Let face it it's a big shock. But there is always h...
https://youtu.be/W0pxi1wtM0g?si=LXr5_F5G7LTabyzl
Have patience with sp1 - 1005 Yes I know we are all want some relief from Meniere's. Ebselen sp1-1005 isn't coming out any time soon. I don't believe you can get it even at a compound pha...
https://youtube.com/shorts/eNuthUZhaCY?feature=share
Saying no Yes it's hard. But sometimes you have think of yourself
You look okay Video was inspired by a wonderful woman I had a conversation with yesterday. Yes I look happy and positive on video. But I do have my moments with Meniere's ...
https://youtu.be/Q9K8mMwL0Y8?si=aIuphsEgYXn5284f
Unpredictable Meniere's is very unpredictable as we all know. I had 5 good days. Then bam out of nowhere it hit and hit hard !!
The Flu is not fun Flu stinks and when you have Meniere's it makes everything worse !! Be careful out there. Everything is going around !!
https://youtu.be/Jsot941fc8M?si=Q9LC8TAkW4oNOI5Q
Ear Tubes !! Ear tubes can help relieve some ear pressure by draining some of the fluid. It does help me a lot. Especially if you have a cold. It's keeps the fluid from f...
https://youtube.com/shorts/PLGaI3Dfx8g?feature=share
Overcoming fear with Meniere's disease It's very hard but you can do it !!
Keep trying until you succeed With Meniere's it seems like it's trial and error. Keep trying until you succeed. I know it's hard. But believe me you are stronger than you think.
https://youtu.be/mf8lIz_6zg8?si=5AhBsrUetlFGNB8g
You Can !! If you can over come the fear. You can do anything. Well with safety in mind. A gentlemans post in a Meniere's support group gave me the inspiration for this...
https://youtu.be/DRSHBnyuB6k?si=6_8kqJgGmXEhoUEL
I Don't Know !! I have always been honest on the channel. If I don't know something about a surgery or a drug I'm going to tell you I don't know. I had someone keep asking ...