Black_Eyed_Beatrix

Black_Eyed_Beatrix

Hi I’m Beatrix. I’m severely sight impaired. I have Aniridia, Nystagmus, Cataracts, Photophobia & FovealHypoplasia AKA my special black wobbly eyes.

We set up this page to raise awareness for all Visually Impaired.

Photos from Black_Eyed_Beatrix's post 16/01/2024

HAPPY NEW YEAR TO ALL MY WONDERFUL FOLLOWERS. Im so sorry its been a while. My family and I, had a fun packed, busy Christmas and new year and have only really just got in to the swing of normality!! This weekend my Mummy, Sister, both Nanny’s and I, enjoyed a girly shopping day spending our Christmas money.
I hope you all have a happy and healthy 2024! Lots of love 🖤🖤
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22/11/2023

Today I went to my first Rainbow meet 🌈
It was lots of fun and I met some lovely friends.
Our guide leaders are Magpie and Moonbeam. 🐦🌙
I love trying new things and i can’t wait for next week.
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Photos from Black_Eyed_Beatrix's post 29/10/2023

Pictures of my first concert watching S Club. It was loud at first but then I got used to it and couldn’t stop dancing!! .
My favourite SClub song is, “Don’t stop, never give up!” 🖤
What’s yours?
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08/10/2023

When dollies are life!!
Hope you’ve all had a great weekend 🩷
Goodnight everyone!
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08/09/2023

Yay…Go me! Celebrating me first week in year 2 with getting the principle award!! 😊
Hope you all had a great week back.
Happy weekend.
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Photos from Black_Eyed_Beatrix's post 14/08/2023

Our day in pictures
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Jason Clark
Angie Clarke

24/07/2023

💕I’m a Barbie Girl💕
We went to the cinema to watch the new Barbie Movie that my sister and I were very excited to watch. I don’t usually watch the telly at home, I use my iPad but I do enjoy going to the cinema sometimes as the screen is big. However although I enjoyed the film. I couldn’t see the screen very well as we were nearer the back and I do prefer watching animated films, so it wasn’t the most successful trip but if you haven’t you should watch it, it’s good 💗
If you’ve seen it, what did you think?
ODEON Cinemas
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16/07/2023

Working on my numbers using my giant dice my mum got me from TK Maxx 🎲🎲🎲
Happy Sunday everyone!
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Photos from Black_Eyed_Beatrix's post 27/06/2023

This weekend my sister and I were flower girls at our auntie and uncles wedding. We had the best time ❤️
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18/06/2023

Some evening ready on my trusty iPad 🤍
Who else relies on their iPad a lot. I know I do!!
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14/06/2023

I lost my first tooth. It was a big thing for me as I don’t like change or letting go of things. My tooth had been wobbly for so long and my adult tooth has already come through, so I was brave and let my mummy pulled it out. I got £5 from the tooth fairy 🦷🧚‍♀️
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08/06/2023

Cheers all round this morning when I managed to get dressed all by myself without any help. My mum was super proud of me!! Then at school today we had PE… turns out I forgot to put my knickers on!! 😂😂 oh well we live and learn and I’ll try again tomorrow 😂😂
Anyone else have any funny stories they want to share!!
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Photos from Black_Eyed_Beatrix's post 20/05/2023

We are all bursting with pride at this amazing achievement. I have been through a tough patch recently as you all know, but I’ve smashed through and only gone and earned myself the ultimate ninja award at school and was featured in the school newsletter! Very very happy 🥰

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Photos from Black_Eyed_Beatrix's post 08/04/2023

This week I’ve had gunky, itchy and sore red eyes! Thankfully my GP is super helpful and a quick phone call and confirmation of conjunctivitis, the antibiotic eye drops are waiting at the pharmacy for me!!
I am a pro at putting eye drops in which my mum is super pleased about.
Hopefully it clears up quick 👁️ 👁️
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06/04/2023

My brother Ronnie is also visually impaired. He has congenital, idiopathic nystagmus. He is definitely an everyday hero that I look up to! Today he come home from a weeks skiing holiday in Austria with his school friends. How amazing that he too doesn’t let anything get in his way ❤️ we missed him so so much!
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26/03/2023

Another amazing event with Look Sussex at The Triangle Leisure Centre we had so much fun as always making lots of new VI friends. Really appreciate these days so much 💚
My goggle’s are tinted and have my eye prescription in them which I am very grateful for and makes hours of swimming fun so much more easier and enjoyable.
I also wore my beautiful Melissa Odabash swimsuit from a close friend. How cute is it ❤️
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23/03/2023

How wamazing is this colouring book. 📕
I love to colour, but it can sometimes be hard to find colouring books that are bold and not too cluttered. If they are then I tend to get bored quickly and tired eyes.
My Auntie Leighanne got this for my birthday and I have coloured in a page every day since my birthday as I love it so much! Thank you Leighanne and Peppa Pig
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23/03/2023

Thanks you so much SSW (Sight Support Worthing) for sending me a lovely birthday card in the post. It was such a surprise and I was so happy as I could see the big writing. So kind.
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Photos from Black_Eyed_Beatrix's post 03/03/2023

On World book day…I am one of the 3 Blind Mice! I think I look super cute 🤍 what do you think?
Who else dressed up for
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Photos from Black_Eyed_Beatrix's post 28/02/2023

Happy everyone.
Being born with a few rare conditions doesn’t make me or my brother any less capable.
If anything it helps make us both the strong, resilient and inspirational young people we are!
Here to us all…
Nystagmus Network
Aniridia Network
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23/02/2023

So today I was asked to help out with the doctor exams at my local hospital. This consists of trainee doctors looking at my eyes and trying to diagnose all my eye conditions whilst an examiner is assessing them. Well out of the whole day, only 1 trainee doctor mentioned the word Aniridia and many barely diagnose any of my eye conditions!! Although most got the eye movement or as we no it, ‘nystagmus’ part right, which was good.
One even went as far to say my pupils were so tiny she couldn't examine my eyes!! (If you don’t know, Aniridia means no iris, so i only have GIANT pupils!! Definitely not tiny!!
My consultant knew my special eyes would confuse them! 😂
The examiner told us that my Aniridia is so rare that some of the trainees may never see it again!!!!!
Now that’s why I’m proud of my special black wobbly eyes 🖤
I received vouchers and a certificate for helping out!!
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Photos from Black_Eyed_Beatrix's post 20/02/2023

Happy birthday to my Big Sister Pearl. ❤️

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14/02/2023

Happy Valentine’s Day everyone. Sending Love to you all ❤️❤️
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03/02/2023

🪩DISCO TIME🪩
Had the best time at my school disco.
I danced and ate sweets. Happy weekend everyone!
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02/02/2023

A spot of colouring in my Bluey colouring book and I can always count on my trusty sloping board. My mum got this one from TK Maxx but you can get them from local services or from your QTVI.
Who else loves colouring too?
The brighter and bolder the colours the better!! 🖍️🎨🌈
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08/01/2023

Anyone else who is VI always eat the entire apple? This is what’s left of an apple Ive eaten. My mum thinks it’s funny and probably because I can’t really see what’s the core and what’s not, so I just carry on munching away 😂 am I the only one???
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01/01/2023

Happy New Year to all my followers. Here’s to another year of adventure and smashing more goals! We can do this…!!
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28/12/2022

We went Bowling! 🎳
When we got there the lights were down low and the neon lights turned on and I loved it ❤️
I started off using the children’s frame to roll the bowling ball down but I was determined to try it on my own!! I always try my best.
Lots of fun with family at Tenpin
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14/12/2022

Today was my Christmas performance at school. My Mummy and Daddy sat right at the front so I knew they were there! I sang in my best voice and had a great time. Only 11 more sleeps. 🎅🏻
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09/12/2022

Christmas Jumper and Christmas dinner day at school today for me and my brother and sister. Also a pantomime performance at school in the afternoon. What a festive day! 🎅🏻🎄
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Videos (show all)

Yesterday me, my sister, my mum and Nan went to the S Club good times tour at The O2. It was amazing! We had great seats...
This week I started YEAR 2! A little nervous I wouldn’t find my peg and the layout of my new class was different but I h...
We went to AdventureIsland. I’m not a big fan of rides and I refused to go on the rides when we first got there but with...
Thank you so much Living Paintings for my awesome Coronation gift! We love this charity, and the brilliant feely books a...
I am struggling a little at the moment, with anxiety and various other things. Sometimes you just need to spend the day ...
🐰Little tip for Easter egg hunts🐰 not just to make it easier for VI children but makes it a lot easier for all. Carrots ...
Come and join me as I use public transport to go to my Moorfields Hospital eye appointment. We stayed at the Ronald McDo...
How lucky am I!! I received some lovely post today from VICTA UK and LEGO. I am learning braille at school so now I can ...
HAPPY MONDAY EVERYONE.                         Do something courageous this week and feel proud of yourself.Let me no an...
This week my class did an assembly showcasing what we have been learning. My class mates and I were brave and stood up a...
Had the best time at the Roller Disco! I have been practicing so hard. Yesterday the low lights and large amount of peop...
Throw back to when I was 12months old and already knew how important my outdoor glasses were!! I’m in the shade but I st...

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