Looking for a Hero's Hero

https://youtu.be/jVTQVKc7fqM

Polycystic Kidney Disease Breakthrough (New Research in PKD) - 2023 Polycystic Kidney Disease, the most common inherited kidney disease, has confounded doctors for years because there was/is no treatment for it. New research ...

Gift of Life Donor Sabbath National Donor Sabbath provides an opportunity to discuss the need for organ and tissue donors and encourage organ donor registration in your house of worship.

As Steve Johnson and I are still searching for a living donor, there are so many out there like Steve that have to depend on a machine to stay alive. Please consider being an organ donor. An organ donor can save 8 lives and enhance the lives of up to 75 more!
If anyone is interested in possibly being a living donor for Steve please reach out!

Please everyone consider being a donor!

Did you know? More than 90% of state donor registrations come through the DMV. To our incredible DMV partners across the country — thank you for helping save lives every day!

Sign up to become an organ donor at www.donors1.org/register

PA DONOR DAY is here! 8️⃣lives saved with 1️⃣decision to register ️⃣3️⃣

Pennsylvania Governor Josh Shapiro underscored the importance of organ donation by signing a proclamation honoring August 1 as PA Donor Day.

We can’t wait to see how you’ll join the conversation and show your support for organ and tissue donation across the state. Together, we can get more Pennsylvania residents registered as organ donors and SAVE LIVES.

Join us in celebrating PA Donor Day and learn how you can participate: https://donatelifepa.org/padonorday/

Good morning everyone ! If you don’t have anything planned for July 28th and want a night out, come to stingers for a great night of food and friends! This fundraiser benefits the Fire Company Steve is a member of and is 100% volunteer. They were huge supporters of the comedy night we had in December. If you are interested in attending or would like to donate, email one of the individuals listed below! We hope to see everyone there !

Big thank you Gift of Life Donor Program for sharing Steve’s story! Gift of life is responsible for helping make transplants possible in the Tri state area and has been doing so since 1974. Take a moment to share their post and follow them to spread the word for donor awareness.

Steve Johnson is a doting grandfather, heavy machine mechanic and volunteer fireman. But Steve has had to put his life on hold while he awaits a life-saving kidney transplant.

Born with polycystic kidney disease, Steve started dialysis treatments more than two years ago. The treatments left the Darby resident exhausted and often unable to work, forcing him to step away from his duties as a volunteer fireman after 30 years of community service.

Steve’s family motivates him to keep fighting. He yearns for the day when he can once again fully enjoy life with his family and play with his grandson.

There are more than 100,000 people like Steve waiting for a life-saving transplant. The majority are waiting for a kidney transplant.

Help give people like Steve a second chance at life. Sign up to become an organ donor today: www.donors1.org/register

Did you know that June is ?

This month, and every month, Gift of Life encourages men to take charge of their health and schedule that overdue check-up!

More than 64,000 men are on the national transplant waitlist, and 85 percent are waiting for a life-saving kidney.

Give them hope. Sign up to become an organ donor today: www.donors1.org/register

Connor couldn’t have a bigger smile with having a rare moment with PopPop! Connor really wants PopPop to play! Praying this is the year PopPop gets a kidney and can play. Steve is missing out on a lot with this little guy. These are moments you can never get back ❤️

Signing up as an organ, eye, and tissue donor doesn’t take much time, and it doesn’t cost you a single dime! Take a sec—sign up online: https://www.organdonor.gov/sign-up?utm_source=facebook&utm_medium=page-post-link-ad&utm_campaign=crosby-fy-23&utm_content=donate-that-tshirt

This is Jill, Founder & President of Delco Dawgs Rescue, Inc., speaking on behalf of Andrea Purcell Johnson and her family. Usually we post about animals, but this one is different. We are asking for you to please read and share.
Andrea is on our fundraising team at Delco Dawgs. Her 55-year-old husband, Steve, was born with PKD (Polycystic Kidney Disease), which took his father’s life in his 40’s and Steve's brother has it as well. Unfortunately, Steve’s disease has progressed, and life is far from the same. For the past 2 years Steve spends 3 nights a week at a dialysis center hooked to a machine. Missing events and milestones he should be able to enjoy.
Without dialysis it’s projected he would have 6 months or less to live. By trade Steve is a heavy equipment mechanic, however he often misses work. His enjoyment includes playing with their grandson and being a volunteer firefighter serving our local community.
Steve is approved for a transplant and is on the waiting list with Thomas Jefferson Transplant Center. It’s projected he will be on the list for up to 8 years. To be a kidney donor, you need to be in generally good health. Routine tests are performed to determine the potential donor’s viability. Kidney donors go
on to live long healthy lives with one kidney. All costs incurred by the donor are covered by Medicare. Steve currently only has 1 kidney and it must be replaced.
The average recuperation time in the hospital is two to three days and two to three weeks at home for the donor.
More than anything, Steve wants to enjoy family and life and to be able to return to being a volunteer firefighter that he has done for 37 years.
Below is a link to a live donor website which has a video and written information. It is also where people can apply to donate online by clicking on the blue link that says “Living Donor Medical Assessment and Referral Form.” Once someone submits the form online, a donor nurse will reach out to them directly to review it and discuss the process. The website can be found at:
www.JeffersonHealth.org/LivingDonorForm
For any questions or additional information please contact Ashley Kern, Patient Navigator, 215-503-9396 [email protected], or Vanessa Vuong, Donor Coordinator, 215-503-4043, [email protected]
Please reference Stephen Johnson, DOB March 10,1968 or let us know and we will put you in touch with Andrea. Thank you for reading!

Steve and millions of others
unfortunately live with this every day. Please help raise awareness of this devastating disease! I hope one day there’s a cure!

Today on Valentine’s Day I wanted to take a minute and send a shout out for Donor Day! I am asking for everyone to please share this post and help raise awareness that Donation is greatly needed! While I pray this never happens to you, there could come a day you or your loved one could be faced with needing a donor to save your life or enhance it.
I am praying 2023 is Steve’s year to find a donor! If there is anyone that would like more information to possibly be tested for a match for Steve please reach out to me. Next month will be two years since dialysis started and our world turned upside down. Never take your life for granted. Each day you wake up and be grateful for another opportunity, and hold your loved ones close. ❤️

Happy Weekend! Komedy for a Kure was a phenomenal night! The outpouring of love and support from so many was overwhelming. It’s really difficult to put into words. Thank you does not seem like enough. But we’re saying it anyway… THANK YOU to our family, friends, various businesses and organizations and to complete strangers that gave support, love and donations. None of this would have been possible without all of you!
As some of you know, this year has been incredibly tough for Steve. He had 3 surgeries for skin cancer and in June he had a craniotomy for 2 aneurysms. All the while receiving dialysis treatments. His surgeon said when he went in to clip one of the aneurysms it was getting ready to rupture. If it had, Steve would not have survived. Komedy for a Kure was a fun night after such a tough year.
The journey continues with the hope of finding a living donor as this year ends and a new year starts.
Again THANK YOU! ❤️

Good afternoon everyone! We are just a few hours away from the show! We’d like to remind everyone you must present your ticket at the door. There are several raffle items also so bring cash! As for parking, there is a parking lot at the venue and across the street, If you are unable to find a spot in either lot, down the street at the corner of Marple and Broadway, across from Mary’s tavern there is a business called Capp USA and you may park there free of charge! Stay dry and we will see everyone tonight !

Good morning everyone! We are a little over 24 hours away from the event! We have a very LIMITED number of tickets left. Last chance to purchase tickets is 8pm tonight, there will be NO TICKETS at the door. Please reach out if you are interested in attending. This is very close to a sell out event! We’d like to thank everyone who has donated and or bought tickets, tomorrow night would not be possible without you all! We have approximately 25 items to be raffled off so bring cash!

We look forward to seeing everyone tomorrow night! Have a blessed day!

Happy Monday! We’re 5 days away from the big night! Who needs tickets? Who needs some stress relief? Guaranteed fun night with a lot of laughs! There are still some tickets available. No guarantee there will be any to sell at the door. For those not familiar regarding parking: if the PACA lot is full, additional parking is located down the street at the CAPP USA building (formerly Clifton Precision) 201 Marple Ave.
Plenty of raffles!
Venmo available for the cashless!

Hey everyone! We hope you had a fantastic thanksgiving! We are less then a week from the event.Tickets are still for sale and only a few remain! Get them while they last. We are very close for it being an absolute SELL OUT event! We looking forward to seeing everyone bright smiling faces there!