My Fight With Rhabdomyosarcoma

Lots of you asked what sea moss I use; I managed to get a discount code for you. KIM66690 will get you 15% off your first order.

They also stock a wide range of herbs. I start on Essiac tea today😍

Organic & Natural Products - Shop Online at Myla's Moss UK Seamoss is naturally rich in minerals, protein and iodine. Adding 1-2 tablespoons of Seamoss gel to your daily routine, overtime will help reduce mucus and inflammation throughout the body.

Within 30 minutes of waking up every morning I make these drinks..

Drink 1 - Filtered water with lemon & a teaspoon of bicarbonate of soda. Creating my own alkaline water. This helps to detoxify the body, cancer cells thrive off a acidic environment so we are alkalising the whole body.

Drink 2 - Green tea and sea moss.
Green tea is an antioxidant powerhouse! & has been found to inhibit cancer growth, but also helps to detoxify the body. Sea moss holds a wide range of health benefits, i recommend anyone to use this not just cancer patients. It contains a huge 92 minerals and vitamins. Sea moss helps improve gut health, restore energy, boosts immunity, fights against infections, reduces inflammation, improves skin, holds anti tumour properties, supports respiratory health, protects against radical damage and is a strong antioxidant source.

Drinking these within 30 minutes of waking up allows your body to absorb faster and will flush out the toxins in your system.

💛

£475 for 1x Vit C IV & 1x blood test🤯 But week one is complete🥳 it wouldn’t be possible without you all supporting me and believing in me and donating and sharing and just bloody everything I can’t tell you how grateful I am to be given a chance. Now home to rest for a lil while because I feel queeeezy🤢😅 Will update on any symptoms as time passes for those who are following for similar stories # #

Vit C IV day 1😬😬😬🙏🏽

I wanted to share todays update photo but I can’t. It’s too much for Facebook today, I don’t know what’s happened but it’s a mess, it hasn’t stopped bleeding from the outside & it’s crazy swollen. It’s been a long sleepless night🥱

On the upside it’s new treatment day🌟 Fingers and toes crossed it goes smoothly for me, since having chemotherapy somethings triggered sickness no matter what goes inside intravenously. Could be a drip of antibiotics it’ll still make me violently sick.. so I’m praying this doesn’t!! I will update you all once im out, T minus 4 hours to go🙏🏽🙏🏽🤍

Need to remember to post in here i forget I have people following the page but not friends on my personal profile.

Day 1 Hyperbaric Oxygen Therapy.
I managed the full session🙌🏽 The pain was bare able, it’s only because so much is going on in my face though it’s not painful for most people so don’t let it put you off. The pressure is like when your landing on an airplane and that doesn’t mix well with what’s happening inside of there. We managed to get it to a nice level and it’s definitely a go ahead as far as being part of my treatment protocol.
They said it’s common to feel tired after, I feel wiped out but it’s been one of those days today.
All in all I’m feeling positive about starting and excited about my next appointment❤️

Another awful picture, but real representation of how much this beast is growing. The difference in these photos is less than 48hours 😮‍💨😮‍💨
I start my oxygen tomorrow🙏🏽 Really need to get myself back in a fight mentality but the last couple days have been hard… Im really struggling to get back to messages, I hope you all understand. ❤️

Please keep sharing and donating if you can🙏🏽
https://gofund.me/6de21fab

Mel Magic ✨ - High strength Melatonin.

Unavailable to buy a good quality high dose anywhere in the UK.

What is Melatonin and what is it used for?
Melatonin is a natural neurohormone. The hormone melatonin produces a number of health benefits in terms of your immune system. It’s a powerful antioxidant and free radical scavenger that helps combat inflammation. In fact, melatonin is so integral to your immune system that a lack of it causes your thymus gland, a key component of your immune system, to atrophy.

✨✨✨ In addition to helping you fall asleep and bestowing a feeling of overall comfort and well being, melatonin has proven to have an impressive array of anti-tumor benefits. Melatonin inhibits the proliferation of a wide range of tumor cell types, as well as triggering tumor cell apoptosis (self destruction). The hormone also interferes with the new blood supply tumors require for their rapid growth.

But melatonin’s anti-tumor effects don’t stop there. While causing tumor cells to self-destruct, melatonin also boosts your production of immune stimulating substances such as interleukin-2, which helps identify and attack the mutated cells that lead to tumors. Melatonin’s ability to interfere with tumor cell multiplication and growth (“proliferation“), as well as inducing tumor cell death (“apoptosis”), has been documented in tumor patients.

It has been successfully used in individuals with advanced stage tumours‼️‼️

The more you can take the better but due to the risk of making you sleepy (this is prescribed in the Uk in small doses to help with sleep and anxiety) it is better to slowly build your dose up. I started on 1/2 a capsule twice a day. I can now take 2 capsules a day.

One tub costs £45 and will last me 45 days. Here is the website, 100% legitimate (This has always been a concern - don’t ever try anything you’ve read online without genuine proof it’s real, there is so many con artists that will unfortunately target those who are vulnerable and desperate) I have been actively taking them for 2 months now, slowly building up my doses. There is many more supplements I use but here’s just one…

https://madeongaia.is/eng/

You need to create an account first and answer the questions, you cannot see any products until your account has been checked and verified. It takes approx 5 days to get to me (UK)

🤍

Just wanted to pop on here for those who are following my story for advice. Yesterday i started a new natural protocol flown in from America! Now i cant lie its getting ££££ but what is money when you've a chance at life? Honestly, i read some testimonials & the description of each supplement and cried.. alot😂 its a chance. Its something. I wont give away too much yet as i would like to try them out for a while first to save everyone else having to buy them but i have high hopes - Something i try not have 🙈 My tumours are 100% growing at the moment, one of them right on top of my lip, wrapping round the cheek bone and back down under my lip where its started to form what looks like mini tumours on the outside. Im going to do a 4 week cycle and check back in with an update to see if any change. Then 8 weeks & so on. Less than 12 months my doctor told me, that was almost 9 months ago, i had a wake up call recently. I felt my body giving up, walking was hard, moving around was hard, everything just changed so suddenly it really scared me. I am so glad it did.. within 2 weeks im on my cancer kill phase protocol, 17 supplements per day so far, THC & CBD in oil form (as a suppository - never thought id share that but this way it hits your liver and bloods quicker and the high doesnt hit you as hard as orally) and cream daily, Essential oils daily, lotssss more liquids, lots more food andddd.. im up and about, i opened my small business back up which is thriving and mentally im feeling worlds apart with the odd wobble. 3 months to go? nahh, im here for long run. Lets get cracking🫡🫶🏽♥️

Speak soon, # # #

Had to jump on and recommend this I know some of you are following my story for advice for yourself or someone close to you.. cancer pain is like no other and I personally have been really struggling with it. I don’t like to take strong medications as I like to stay as aware as I can being a mum. I’ve not been sleeping at night, mainly down to the steroids I have to take for my chemo but also because of my pain. This bad boy let me sleep 6.5 hours last night & I didn’t wake up once🎉

It’s lightweight and super easy to use.
6 heat settings & timers.

100% recommended

Deal: Heating pad, Electric Heat Pad with Automatic Switch-Off and 6 Temperature Levels Heating pad for Back Neck Shoulder Belly Heating Technology - Machine Washable. (Silver Gray, 12" x 24") https://amzn.eu/d/i7FyIAr

It’s been a while since we did an update.. I’m officially 3 months into daily chemotherapy and today we started another stronger one on top😬 I’ll be honest, this last week or so has probably been one of the hardest to date both mentally and physically. I’ve felt such a sudden decline in myself it’s been scary. Sleeping every chance that i get, sometimes I when I realllllly don’t even want to sleep😅 my body feels super weak at the moment, walking takes forever, doing the smallest things wipe me out. I’ll get a burst of energy every few days and then I pay for it for days after… such a vicious cycle but needs must! So the cancer itself, it’s definitely growing and is angry but scans are booked to be certain of how much & were. Other than that, a few things are happening in the background but nothing to update as of yet. Just trying my absolute hardest to get through one day to the next. But thank you to those who’ve checked in on me I don’t mean to be so ignorant sometimes and it’s such a nice feeling to know there’s people that genuinely care. Im really hoping I get the energy to make more fun memories with my people again soon, sad that I wouldn’t manage Paris but a relaxing time in our favourite place I’m more than grateful for🤍

Completely locked out of this page for months & hadn’t realised how many messages I’ve missed. I’m just currently at the hospital & im wiped out. I’ll stick a lil update on hopefully later on today & get back to all your messages, thank you for checking in, tough week but we go again🤍

Good morninggg, happy Monday🥰
Been a lil quiet on here recently. It’s not like me to be up & about at this time on a Monday that’s for sure😅 I’ve been finding myself waking myself up from crying in my sleep from the pain i keep getting in my face and my neck, the only way I can describe it is a huge shooting pain that leaves it tingling like pins & needles for what feels like forever. It’s such a weird feeling. My nurse put me back on Oxycodone long release tablets last week, I only managed one day on them. When I say they wipe the floor with me, Jesus I couldn’t open my eyes for at least 12 hours AFTER my sleep😂😂 I just like to stay as aware and normal as I can being a mum, on days I can’t bare it I’ll take them but if I can get away with not then I do.

I start my new chemo this time next week. Trying my best not to think of it just yet but I pray it’s something I can manage this time around🙏🏽

Still taking my THC & CBD - double dosing -
I truly believe this has cleared up the original relapse site. (Remember the cancerous hole in my cheek, it’s not there anymore it’s fully healed, something the doctor said wouldn’t happen) so let’s hope it helps with the bad boy thats wrapped around the front🙏🏽

Last week was a struggle mentally, I found it so difficult to talk to anyone including my family. But we finished it on such a good family weekend, so i promised myself I’d do better this week❤️

There wasn’t much point in this post😅 But thank you everyone for just being there and helping me through the s**t storm⛈

For some reason it’s not letting me access my messages, I do sometimes get people asking for advice so if you need me message my personal page so I don’t miss you💞

Finally got my page back. Here’s my most recent update, it’s been a whirlwind since Christmas🤍

An update as promised. This is going to be a long one so bare with me I’ll try get in what I can.

So this week has been huge for us, 2 out of 4 second opinions completed. 600 miles of driving done🫣

‼️Birmingham, First of wanted to say how quickly we got seen here!! I know it’s nothing major but honest we usually get left waiting for sooooo long and it’s them little things that matter😅
I’ll just be blunt, the word used when talking about doing my surgery was “terrified” not by me, by the surgeon. That on its own is enough to send me legging it out that door👋🏽👋🏽 but I didn’t lol, he got the whole team of surgeons in and each expressed how big this surgery would be, and how little success rate it would actually hold. We did however have a lovely surgeon pop in later into the appointment who actually had confidence that he could actually make me look better than I do now with such a huge surgery, I’m at a point we’re I don’t really care what I look like as long as I’m alive.
Bottom line is, the surgery they are talking about involves removing the whole cheek bone, all of my jaw bone at this side, the full skin of my cheek, replacing this with my skin on my back. & the chances of it working? Slim. They are discussing me in their MDT clinic this week and I will receive a phone call.

‼️London, right let me give you a laugh first. 😂 it’s 1am, we’ve driven 200 miles, paid £150 for a hotel room just to sleep in, Djs fast sleep, I see something in the corner of my eye and don’t pay much attention, minutes later… a mouse!!!! I kid you not a mouse was legging it through my things! I screamed the place down and jumped directly on top of dj🤣🤣🤣🤣🤣 safe to say we got an upgrade and a very big complaint got made🤦🏼‍♀️ what are the chances tho, it’s literally my bad luck!!!!!
Anyway, ULC - kept waiting for almost 2 hours for the sake of a 15 minute appointment. This guy was just blunt from the get go and a little brutally honest, which I mean we need don’t we. Turns out the tumour in my face is much bigger than what’s been made out to us for the last couple months, and the chances of it being a successful surgery (we do not mean cancer removal success we mean actually surviving through the surgery and healing) is 10/20% - not enough to put me and mine through something so huge. The good thing is he spoke to me about using chemo to test the biological background of my cancer, we know it’s aggressive, we know it’s come back quicker that it ever should have, if we can get it to shrink whilst on chemo maybe then the surgery will be worth it.

It’s a lot isn’t it? Can’t begin to tell you the IMPOSSIBLE decisions I have to make any day now.
I’m still banking on Royal Marsden but unfortunately they have cancelled our appointment and won’t reschedule for a couple of weeks due to my case being “too complex” and needing more time. I have expressed that we do not have time and I want something doing sooner, we will see😅

Seeing the size of the cancer. It really scared me and the second I left the hospital I called Liverpool to book me back in for chemo ASAP. So I start chemo again on the 22nd of this month😬

I think I went into this appointments praying for a miracle, & I’ve come out realising I’m asking way too much and it’s time to start accepting where we are now, as hard as that is. - No giving up happening over here thoooo, we go again!! 2 more opinions, 6 cycles of chemo, & it’s time to crack on with my own healing protocol from home. I’ll do whatever it takes.

Love to you all💖💖

BIG day today! On route to Birmingham😬
Our first second opinion appointment. I’m so nervous, this weeks been really difficult, I’ve found every day has been getting harder to deal with things. I think the build up to these appointments just got to me. Sorry for being so ignorant I had to come off Facebook for a couple of days.
Everyone keep your fingers, toes, legs, everything crossed for me please😅😅 my legs literally feel so weak! Ahhhh get me there already😬

Sorrrry. Again not a nice photo to look at😒 but I promised I’d be honest & raw for the sake of awareness.

Would you believe me if I said this looks 100x better than it did 1 week ago? My face completely opened up again & since being home using my cannabis oil directly onto wound & my step to step cleaning guide the hole is starting to heal. -Doctors say this is impossible to heal or even treat & treatment will make it worse- I’m here to prove them wrong as always👏🏽 Now I won’t lie we’ve been here before we’re it’s slightly healed then opened back up days later so it will be interesting to see how it pans out this time and I will make sure I do an update. Keep your fingers and toes crossed for me 🤞🏽

The lump under my lip - Mri scan shows this isn’t cancerous and may be built up tissue from surgery that keeps getting bigger but doctors want a biopsy to be sure. At the moment with no treatment in place or any idea of next steps now I have declined this. This is because after all 3 biopsies I have had in the past aggravated the cancer - first time around making my tumour so much bigger and the second time around it added on two extra tumours in under a week😳 to me it’s not worth it right now considering the title they’ve given me.

I’ve been really poorly over the last couple of days, caught a nasty bug & it floored me!! Hoping I’m over the worst of it now. After having cancer treatments it’s so much harder to overcome illnesses and the smallest cold can literally leave us bed bound it’s insane. I advise to keep up with your healing protocol but it’s harder when your so unwell & I’ve slacked massively the last few days!! Hoping I can get back to it today😖

Happy Tuesday💕

Doing a lot of thinking tonight, time seems to be going super slow with these second opinions looming over us! The hardest part is the unknown, we try so hard to stay positive and hopeful but none of us know what is coming next and it’s scary. It’s so easy to be in denial about the whole thing and I guess that’s where I’m at most days but it’s just a coping mechanism and I tell u without the event coming up and all the fundraising keeping me busy I think I’d go crazy🤣 I’ve slacked on my manifesting & my journaling this week & I can feel it, so much rubbish up in my head that needs to get out. Back to the protocol in the morning‼️ I’ll update this week with some new little tips✨ A juice recipe✨ & hopefully a little update🤞🏽 I’m just venting and it’s 2am🤣🤣🤣

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I’ll be here with a stall from Oh So Ditsy. Would love to see you all, I’m hoping to raise awareness in some way & am getting my thinking cap on!❤️
A huge raffle is taking place too with some insane prizes from local businesses, the perfect way to start the festive season & support my journey❤️

https://facebook.com/events/s/a-miracle-this-christmas/644518264063004/

We have been contacted to do an interview for a national magazine😬😬😬

Stop buying the CBD oils from the supermarket or even the health stores. They aren’t strong enough!!
Try this one instead, I’ve only just received this myself so I will update the page once I’ve tried a couple of weeks on it. I will use this at a ratio of 2:1 RSO oil:CBD the recommended dose for cancer patients.

Do your research on CBD full spec @ 5000mg you won’t find it anywhere. This company has it for £99 and if you use my contact for your RSO I can get you £20 discount. 💚

The process I use every morning when cleaning the wound.
Step 1 - remove old plaster & clean with clean water
Step 2 - dab/spray with colloidal silver & rinse mouth for 10 seconds
Step 3 - apply frankincense oil directly on ulcerative tumour - please be aware ’doTERRA’ is the only brand in the UK that sells this completely pure & safe to digest. It’s pricey but worth it.
Step 4 - apply pure thc oil (RSO oil) cover with a small piece of tissue I find this helps to soak in rather than leak away with the puss coming out.
Step 5 - clean around sides with cotton bud and apply Egyptian magic cream - I find this helps the surrounding skin stay healthy.
Step 5 - re cover with plaster.

- An expensive little bundle of products when you add it all up😅 but each product holds its own healing process. & so so worth trying out.

Pop me a message if you need help finding any of these😊

‼️Trigger warning, not nice to look at‼️
I’ve been back & fourth over posting this sort of thing but it’s just part of the nightmare we are living in right now! So this is a result from the second surgery I’ve had to remove the five multi focal tumours that was inside my face. I had free flap surgery using my arm to replace the skin inside and outside of my face and bones were removed from my skull and jaw were the tumours has wrapped around them. This was by far the hardest time in my life & 5 months down the line it seems to just keep getting worse. My wound opened up within a matter of days of getting home. We & the doctor assumed it was my new skin flap pulling away and a plan was made to have the same surgery all over again… until I had a scan which showed it was infact the cancer returning & I now have an ulcerating tumour on my surgery site😣 An ulcerating tumour is extremely difficult to treat and in many cases will be terminal like mine.
Over the last couple of months it’s healed up, & broke down again within days. It leaks every time I try to open my mouth, to talk, to eat. & the doctors can’t offer me any solution to help this, instead told me my chemo will actually make this worse because my body will not be able to heal. The smell knocks me sick every day. I’ve been using Cannabis oil on the outside which seemed to help for a while but has since broken down again☹️ & I use colloidal silver spray directly onto the hole - do your research on this, it has amazing healing properties I guess this is just a lil too extreme🥴
Putting faith into our second & third opinions now🤞🏽

A little update, I should have started chemo today but it’s been pushed back. We have been given an appointment at The Royal Marsden in London which is the UKs #1 sarcoma hospital!!!! It’s risky putting treatment on hold but if I start chemo before having my second opinion it could well take away potential other options. I also have Southampton discussing my case in their MDT clinic this week🤞🏽 We finally have some movement!!!🤍

I’ve created this page to share updates on my journey, raise awareness for Rhabdomyosarcoma & share an insight into what I’m doing naturally from home in hope that it may help someone else🤍