Lymphedema Awareness & Research

encourages global action towards a future where lymphatic diseases are fully understood, effectively treated, and ultimately cured. Download resources to raise awareness at https://lymphaticnetwork.org/wld/downloads

What's on your mind?

The Lymphatic System: What Is It and Why Does It Matter? | Nose Creek Physiotherapy Many people have never heard of the lymphatic system before as it does not receive the same amount of attention as other bodily systems like the digestive or

It’s a hot one out there on Main Street today! Stay cool everyone. 🥵

We hope you’ve a wonderful Monday so far!

A motivational quote to kickstart the week and to remind yourself that you CAN do it! Stay strong and persevere! 🦋🦋🦋🦋🦋

"Study finds first possible drug treatment for lymphedema"

Study finds first possible drug treatment for lymphedema Collaboration between two Stanford labs has resulted in the discovery of a molecular cause for lymphedema and the first possible drug treatment for it.

July is disability awareness month 💜

Anyone in a support group for the condition for research and wellness?

Watch:

The Woman With The 150lb Leg | BORN DIFFERENT SUBSCRIBE to Barcroft TV: http://bit.ly/Oc61HjA BED-BOUND girl whose leg swelled to a massive 150lb has vowed to restart her life after enduring a radical tw...

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Let’s get these cosponsor numbers up to a super majority! Use these links to see which of your members of Congress are already supporting the Lymphedema Treatment Act, and to take action if they are not.

SENATE - https://lymphedematreatmentact.org/contact-your-senators/
HOUSE - https://lymphedematreatmentact.org/contact-your-representative/

Do you know what it's like?

The Lymphedema Treatment Act just hit 60 Senate cosponsors! Our new map shows the status of your state.

If one or both of your Senators has yet to cosponsor the bill, please take a moment to contact them again.

Call information is below | Click here to send an email - https://lymphedematreatmentact.org/new-map-showing-your-senators-support/

Calls get immediate attention and carry the most weight, but do both for maximum impact.

Each office is unique. Some need only be asked once, while others will have to be contacted many times before cosponsoring, and hear from lots of constituents.

We've gained four more Senate cosponsors in the last week (noted on the list below), thanks to your calls and emails, so keep them coming!

CALL SCRIPTS - leave a message if it's after hours or goes to voicemail:

FOR NON-COSPONSORING SENATORS — “I’m a constituent calling about the Lymphedema Treatment Act, S.1315. This bill was recently reintroduced by Senators Cantwell and Grassley with 52 other original cosponsors, and now has a total of 60 cosponsors. [This issue is important to me because… ] I hope that Senator [name] will join as a cosponsor of this bill. Will you please pass on my message to your Health Legislative Aide?”

FOR COSPONSORING SENATORS — “I’m a constituent calling to thank Senator [name] for being a cosponsor of the Lymphedema Treatment Act, S.1315. I appreciate it so much and hope that [he/she] will work to ensure that the bill becomes law during this Congress. [This is important to me because… ] Will you please pass on my message to your Health Legislative Aide?”

AK-Senate: Lisa Murkowski, 202-224-6665 Original Cosponsor
AK-Senate: Dan Sullivan, 202-224-3004 Original Cosponsor
AL-Senate: Richard Shelby, 202-224-5744
AL-Senate: Tommy Tuberville, 202-224-4124
AR-Senate: Tom Cotton, 202- 224-2353 Cosponsor
AR-Senate: John Boozman, 202- 224-4843 Original Cosponsor
AZ-Senate: Kyrsten Sinema, 202- 224-4521 Original Cosponsor
AZ-Senate: Mark Kelly, 202-224-2235 Original Cosponsor
CA-Senate: Dianne Feinstein, 202-224-3841 Cosponsor *NEW*
CA-Senate: Alex Padilla, 202- 224-3553 Original Cosponsor
CO-Senate: John Hickenlooper, 202-224-5941
CO-Senate: Michael Bennet, 202-224-5852 Original Cosponsor
CT-Senate: Chris Murphy, 202-224-4041 Cosponsor *NEW*
CT-Senate: Richard Blumenthal, 202- 224-2823 Original Cosponsor
DE-Senate: Chris C***s, 202-224-5042 Original Cosponsor
DE-Senate: Tom Carper, 202- 224-2441 Original Cosponsor
FL-Senate: Marco Rubio, 202- 224-3041 Original Cosponsor
FL-Senate: Rick Scott, 202- 224-5274 Original Cosponsor
GA-Senate: Jon Ossoff, 202-224-3521
GA-Senate: Raphael Warnock, 202- 224-3643
HI-Senate: Brian Schatz, 202- 224-3934 Original Cosponsor
HI-Senate: Mazie Hirono, 202-224-6361
IA-Senate: Joni Ernst, 202-224-3254 Original Cosponsor
* IA-Senate: Chuck Grassley, 202-224-3744 Co-lead Sponsor* (replace the words “a cosponsor” in the thank -you script above with “a lead sponsor”)
ID-Senate: Jim Risch, 202-224-2752
ID-Senate: Mike Crapo, 202-224-6142
IL-Senate: Dick Durbin, 202-224-2152 Original Cosponsor
IL-Senate: Tammy Duckworth, 202-224-2854 Original Cosponsor
IN-Senate: Todd Young, 202-224-5623 Original Cosponsor
IN-Senate: Mike Braun, 202-224-4814
KS-Senate: Roger Marshall, 202-224-4774 Cosponsor
KS-Senate: Jerry Moran, 202-224-6521
KY-Senate: Rand Paul, 202-224-4343
KY-Senate: Mitch McConnell, 202-224-2541
LA-Senate: Bill Cassidy, 202-224-5824
LA-Senate: John Kennedy, 202-224-4623
MA-Senate: Elizabeth Warren, 202-224-4543 Original Cosponsor
MA-Senate: Ed Markey, 202-224-2742 Original Cosponsor
MD-Senate: Chris Van Hollen, 202-224-4654 Original Cosponsor
MD-Senate: Ben Cardin, 202-224-4524 Original Cosponsor
ME-Senate: Susan Collins, 202-224-2523
ME-Senate: Angus King, 202-224-5344 Original Cosponsor
MI-Senate: Gary Peters, 202-224-6221 Cosponsor
MI-Senate: Debbie Stabenow, 202-224-4822 Original Cosponsor
MN-Senate: Tina Smith, 202-224-5641 Original Cosponsor
MN-Senate: Amy Klobuchar, 202-224-3244 Original Cosponsor
MO-Senate: Josh Hawley, 202-224-6154
MO-Senate: Roy Blunt, 202-224-5721 Original Cosponsor
MS-Senate: Cindy Hyde-Smith, 202-224-5054 Original Cosponsor
MS-Senate: Roger Wicker, 202-224-6253 Original Cosponsor
MT-Senate: Steve Daines, 202-224-2651 Original Cosponsor
MT-Senate: Jon Tester, 202-224-2644 Original Cosponsor
NC-Senate: Richard Burr, 202-224-3154, then enter #2
NC-Senate: Thom Tillis, 202-224-6342 Original Cosponsor
ND-Senate: Kevin Cramer, 202-224-2043
ND-Senate: John Hoeven, 202-224-2551 Original Cosponsor
NE-Senate: Deb Fischer, 202-224-6551 Original Cosponsor
NE-Senate: Ben Sasse, 202-224-4224
NH-Senate: Jeanne Shaheen, 202-224-2841 Original Cosponsor
NH-Senate: Margaret Wood Hassan, 202-224-3324
NJ-Senate: Cory Booker, 202-224-3224 Original Cosponsor
NJ-Senate: Bob Menendez, 202-224-4744 Original Cosponsor
NM-Senate: Ben Ray Lujan, 202-224-6621
NM-Senate: Martin Heinrich, 202-224-5521
NV-Senate: Jacky Rosen, 202-224-6244 Original Cosponsor
NV-Senate: Catherine Cortez Masto, 202-224-3542 Original Cosponsor
NY-Senate: Kirsten Gillibrand, 202-224-4451 Cosponsor *NEW*
NY-Senate: Chuck Schumer, 202-224-6542
OH-Senate: Sherrod Brown, 202-224-2315 Original Cosponsor
OH-Senate: Rob Portman, 202-224-3353
OK-Senate: Jim Inhofe, 202-224-4721 Original Cosponsor
OK-Senate: James Lankford, 202-224-5754 Original Cosponsor
OR-Senate: Jeff Merkley, 202-224-3753 Original Cosponsor
OR-Senate: Ron Wyden, 202-224-5244
PA-Senate: Pat Toomey, 202-224-4254
PA-Senate: Bob Casey, 202-224-6324 Original Cosponsor
RI-Senate: Sheldon Whitehouse, 202-224-2921 Original Cosponsor
RI-Senate: Jack Reed, 202-224-4642 Original Cosponsor
SC-Senate: Tim Scott, 202-224-6121 Original Cosponsor
SC-Senate: Lindsey Graham, 202-224-5972 Original Cosponsor
SD-Senate: John Thune, 202-224-2321
SD-Senate: Mike Rounds, 202-224-5842 Original Cosponsor
TN-Senate: Marsha Blackburn, 202-224-3344
TN-Senate: Bill Hagerty, 202-224-4944
TX-Senate: Ted Cruz, 202-224-5922
TX-Senate: John Cornyn, 202-224-2934
UT-Senate: Mike Lee, 202-224-5444
UT-Senate: Mitt Romney, 202-224-5251
VA-Senate: Mark Warner, 202-224-2023 Original Cosponsor
VA-Senate: Tim Kaine, 202-224-4024
VT-Senate: Patrick Leahy, 202-224-4242 Cosponsor *NEW*
VT-Senate: Bernie Sanders, 202-224-5141
WA-Senate: Patty Murray, 202-224-7675 Original Cosponsor
* WA-Senate: Maria Cantwell, 202-224-3441 Lead Sponsor * (replace the words “a cosponsor” in the thank-you script above with “the lead sponsor”)
WI-Senate: Tammy Baldwin, 202-224-5653 Original Cosponsor
WI-Senate: Ron Johnson, 202-224-5323
WV-Senate: Shelley Moore Capito, 202-224-6472 Original Cosponsor
WV-Senate: Joe Manchin, 202-224-3954
WY-Senate: Cynthia Lummis, 202-224-3424
WY-Senate: John Barrasso, 202-224-6441

We are grateful that the Lymphedema Treatment Act is supported by so many outstanding organizations. Last week, the letter below was sent to our Senate champions, Maria Cantwell (D-WA) and Chuck Grassley (R-IA). 37 other organizations joined us, the Lymhedema Advocacy Group, in expressing their support and appreciation for the Senators' leadership on this bill. Read the letter online athttps://lymphedematreatmentact.org/wp-content/uploads/2021/05/117th-Cantwell_Grassley-Lymphedema-Treatment-Act.pdf

Learn more about Lymphedema!

https://morethanfat.com/what-is-lymphedema

What is Lymphedema- Causes, Stages and Lymphatic System Overview What is Lymphedema- the collection of fluid, cellular matter and fat products from tissues that results in swelling of one or more limbs, neck, face or abdomen due to a blockage in the lymphatic system. The most common form of Lymphedema is in the arm of women recovering from breast cancer.

Hello folks. Just a reminder...

It’s Lymphedema Awareness Month!
Thank you to all my Family & Friends who have shown their constant love & support to me throughout the years. I continue to struggle with this incurable disease, but I remain positive that a cure will be found in my lifetime. I will not give up hope! - Jess

Millions of people around the world suffer from an often undiagnosed chronic condition - Lymphedema. March is Lymphedema Awareness Month, drawing attention to bring awareness to the public and medical community. Lymphedema is often an undiagnosed and unrecognized medical condition. Without treatment, Lymphedema is progressive, impacts quality of life and causes serious complications. If you have undiagnosed chronic swelling, ask your doctor to consider or rule out Lymphedema.

Wendy said: "Yes, I do have lymphedema- will never go away. How dare you, how dare you, how dare you, make fun of me- the way I walk and the whole bit.” Via Sun UK

Wendy shows swollen ankles & admits she can barely walk in lymphedema battle WENDY Williams showed viewers a close-up of her severely swollen ankles as she suffers from lymphedema. The daytime talk show host admitted she can’t even walk two blocks because of the disea…