Art Activism by Marie D.L. Videos
Videos by Art Activism by Marie D.L.. Pridefully Disabled Thought Leader Dismantling The Ableist Society | Creator of #ChronicallySpooky
When you shop Disabled this holiday season, you’re giving the gift that keeps on giving because you’re sales help support our living 🖤
I’ve got so many ready to ship products just waiting to be stuffed in a stocking! Stickers, earrings, keychains, necklaces, prints and clothes from my @threadless—I promise there’s something for everyone 🖤 link in bio!
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VD:Marie, a pale skinned woman with long black and purple hair wearing a sweater with a gingerbread man on it as she sings an original song to the tune of “deck the halls”.
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#TisTheSeason #HolidayShopping #GiftIdeas #DisabledOwned #DisabledArtist #ActuallyAutistic #Spoonie #DeckTheHalls #ChristmasCarols
to enable soundOther Art Activism by Marie D.L. videos
When you shop Disabled this holiday season, you’re giving the gift that keeps on giving because you’re sales help support our living 🖤 I’ve got so many ready to ship products just waiting to be stuffed in a stocking! Stickers, earrings, keychains, necklaces, prints and clothes from my @threadless—I promise there’s something for everyone 🖤 link in bio! — VD:Marie, a pale skinned woman with long black and purple hair wearing a sweater with a gingerbread man on it as she sings an original song to the tune of “deck the halls”. — #TisTheSeason #HolidayShopping #GiftIdeas #DisabledOwned #DisabledArtist #ActuallyAutistic #Spoonie #DeckTheHalls #ChristmasCarols
Here’s a piece of my origin story, in honor of Multiple Hereditary Exostoses Awareness Week 🦴 MHE was my first diagnosis ever, and has led to a myriad of other ones. I’ve had 5 surgeries with 44 tumors removed so far, and I’ve had to relearn how to walk countless times. I used to LOATHE myself because of my MHE. It was my dirtiest little secret. But after years of internal work, I’ve been able to view my MHE as an integral part of myself—I wouldn’t be who I am if I didn’t have MHE. Now, I am proud of say I have MHE because I am proud to be me 🖤 — VD: Marie, a pale skinned woman with hazel eyes and long black and purple hair wearing a black PROUD tee, graphic black eyeliner and black lipstick. — #OriginStory #MultipleHereditaryExostoses #RareDisease #MHEandMe #BumpyBones #DisabilityPride #Chronicillness #Spoonie #SpoonieLife #SelfAcceptance
HAPPY MULTIPLE HEREDITARY EXOSTOSES AWARENESS WEEK!!!!!!!!! If there is ONE thing I want people to learn this week, it’s that MHE is not a bone disorder. It’s a genetic defect in the heparan sulfate proteoglycans that causes a myriad of symptoms, one of which is multiple bone tumors. Other issues connected to the heparan sulfate defect can include low bone mass, Autism, cognitive issues, migraines, dental defects, pre-diabetes, unusual drug reactions, severe chronic fatigue, severe gastric issues, kidney and bladder issues, vertigo, hyperacusis, lung issues, anemia, endometriosis, slow wound healing, keloid scarring, connective tissue issues, and liver function. Now that doesn’t sound like just a bone disorder to me! — VD: Marie, a pale skinned woman with long black and purple hair wearing a black “BEE THE CHANGE” shirt from her @threadless store. She is wearing Halloween themed makeup, with purple and orange eyeshadow and black lipstick. — #MHEAwarenessWeek #HereditaryMultipleExostoses #MHEAndMe #MHE #HME #BumpyBones #DisabilityPride #InvisibleDisability #Spoonie #SpoonieLife
Let’s take a peek inside my coloring book, Chronically Spooky 2! This page is called “Unmasked” and is very symbolic to me as a invisibly disabled, autistic, soul. Masking has become second nature to me, but ever since I started my anti-ableist journey I’ve been trying to stay unmasked. Now, I am NOT talking about physical masks—I am talking about the metaphorical masks we are forced to create in order to survive in this ableist society. This page serves as a reminder that we don’t need to “mask” our true authentic selves for the sake of the ableist society. We can and should live as we are in all of our disabled glory. This page is also important to me because it helps create more representation for my rare disease, Multiple Hereditary Exostoses. I never saw bones that looked like mine growing up, so now I have the honor of creating some myself, one bumpy boned illustration at a time 🦴 You can find the Chronically Spooky Coloring Book Series on Amazon, so snag your copy today! — VD: the video starts with Marie, a pale skinned invisibly disabled woman with long black and purple hair, showing off the cover of Chronically Spooky 2. It then cuts to an interior page from the book, which shows a bumpy boned skeleton holding a human like mask away from its face to reveal a black hole underneath where the face should be. Then it turns the page to show the back side of the illustration, which has an image description and a reminder. Then, it cuts to the back cover of Chronically Spooky 2. — #SpookySeason #Spooky #ColoringBook #ArtTherapy #ActuallyAutistic #InvisibleIllness #Spoonie #SpoonieLife #DiverseReads #ColoringBookForAdults
This is probably my favorite page from my debut coloring book, Chronically Spooky; it tells the story of a disabled Grim Reaper who attempts to attend a haunted house, only to find it is inaccessible and lacks a ramp. This illustration brings attention to the fact that inaccessibility is rampant in our world. Whether it’s a lack of a ramp, clutter in the way, or lack of empathy I’m more surprised by something being accessible than I am if it is inaccessible…which is sad. This page is only 1 of 21 hand drawn pages, each one filled with art that validates and empowers the disabled experience 🖤 Support a disabled artist by snagging your copy now on Amazon! (🔗 in bio) — VD: the video starts with Marie, a pale skinned invisibly disabled woman with long dark hair wearing fall toned makeup as she holds up a copy of Chronically Spooky. It cuts to an inside page, which features a disabled grim reaper in a wheelchair attempting to attend a haunted house. However, there are only stairs which means it is inaccessible so the grim reaper thinks to itself “stairs only?! If only I could float…” as it sees only ghosts are in the house. On the back of the page is a statement and image description of the art. Then it cuts to the back cover of chronically spooky, which shows the same disabled grim reaper with a speech bubble that says “thank you for supporting a disabled artist”. — #SpookySeason #Spooky #ChronicallySpooky #ColoringBook #ArtTherapy #ColoringBookForAdults #Accessibility #Spoonie #SpoonieLife
Life as a disabled soul would be a heck of a lot easier if ableism didn’t permeate every part of our society…I’m just saying. Let me know if you agree! — VD: Marie, a pale skinned invisibly disabled woman with long dark hair wearing a black and white floral print dress paired with dark black to orange smokey eyeshadow with graphic eyeliner and black lipstick. — #DisabilityPride #Spoonie #SpoonieLife #ChronicIllness #DisabilityAwareness #Advocacy #CounterCulture
Disabled people deserve to exist as disabled people—we shouldn’t have to minimize ourselves just because some may be uncomfortable around disability. — Snag these self love spell jar earrings or this PROUD shirt from my s t o r e! 🔗 in bio — VD: Marie, a pale skinned invisibly disabled woman with long dark hair wearing a black PROUD tee, which has rainbow colored art on it. She is also wearing bright colored eyeshadow consisting of a yellow/orange/hot pink cut crease with smokey purple paired with dark blackish purple lipstick. — #DisabilityPride #AntiAbleism #Ableism #Spoonie #ChronicIllness #SelfAcceptance #DisabilityAdvocate #MotivationMonday #Thoughts
Power in Pride: Trauma Healing from The Ableist Society
Featuring Lisa Lawrence, Nicole Demos, and Garrett Brumfield
Power in Pride: Disability Advocacy in Action
Featuring Nico Meyering, Rebecca Hoyt, Jessica Lopez and Keisha Greaves
Power in Pride: Medical Gaslighting and Dynamic Disability
Featuring Briana Logsdon, Nidhi Jaisoor and Megan Pendleton
Did you know? It took the U.S. 25 years to make Disability Pride Month official. Disability Pride Month has its origins in 1990, to celebrate not just the signing of the Americans with Disabilities Act but the disabled experience, culture and contributions too. 25 years after the ADA was signed, we had the first official celebration of Disability Pride Month. If you learned something new, be sure to follow me for more anti-ableist history! — VD: Marie, a pale skinned invisibly disabled woman with long dark hair wearing a gray “Cure Culture is Toxic” shirt paired with slimey green eyeshadow, graphic black eyeliner and black lipstick. — #DisabilityPride #DisabilityPrideMonth #HistoryLesson #TheMoreYouKnow #FunFact #AntiAbleism #Ableism #ActuallyAutistic
Power in Pride: Ask a Disabled Adult
Featuring Nico Meyering, Bela Gaytan, Emerson Wheeler, and Martin Tran!
Power in Pride: Addressing Ableism
The second part of The Power in Pride Celebration for Disability Pride Month: Addressing Ableism featuring Lisa Lawrence and Whitney Bailey!
Here’s a little taste from The Power in Pride Celebration for Disability Pride Month as Crystal Flores talks about the fact that Disability Pride SAVES LIVES 🖤 I’m literally still tearing up over how amazing yesterday’s Power in Pride Kick Off celebration went. Thank you to my friends Nicole Luongo (@whatcplookslike) and Crystal Flores (@chd_hearts) for helping me make it happen! I am so grateful for you both, and thankful you both exist 🖤 Crystal will be joining me again on 7/5 for the next part of the celebration, “Addressing Ableism”, and that is one you won’t want to miss as we name and shame The Ableist Society! Catch up on the recording and watch the livestream Wednesday on my page, Art Activism by Marie D.L. 🖤 — VD: a zoom recording shows 3 windows, from@top left: Marie Dagenais-Lewis, Nicole Luongo and Crystal Flores. In this clip, Crystal is speaking; she is a Latina artist with brown skin and curly long hair. Her words can be read in the purple and white CC below the videos. Above the videos in purple text are the words “The Power in Pride Celebration for Disability Pride Month KICK OFF”. — #DisabilityPride #DisabilityPrideMonth #PowerInPride #DisabledAndProud #SelfAcceptance #Advocacy #GrassRoots
Being pridefully disabled in a world where The Ableist Society reigns is truthfully the most beautiful form of revolution ✨ The Ableist Society tries do minimize and eradicate the Disabled Experience, so to embrace and celebrate it instead is to revolt against the generations of systemic ableist oppression. Be a rebel, choose to accept yourself in all of your disabled glory 🖤 — VD: Marie, a pale skinned invisibly disabled woman with long black, purple and blue hair wearing a black and white polka dot dress with several cut outs by the neckline, highlighting her spell jar necklace; she is wearing bright smokey pink eyeshadow, graphic black eyeliner and black lipstick as well as dangly crystal skull earrings. — #DisabilityPride #SelfAcceptance #Ableism #AntiAbleism #CounterCulture #InclusionRevolution #Disability #SpoonieLife
Image Descriptions are an important addition that helps make our content more accessible. Basically, act as if you are describing a picture to a friend who can’t see it—that’s exactly what an image description is, just in written text form! First describe the main focal point; are there any words? What is the action happening? What does the person/item look like? Once the main focal point is covered, then go on to the background elements—is it a sunny day? Is there a colored background that text is on? For example, let’s ID this video! What’s the focal point? I am. So we will begin by describing what I look like: “Marie, a pale skinned invisibly disabled woman with long black, purple and blue hair wearing a gray INCLUSION ROCKS ABLEISM KILLS tee paired with heavy purple eyeshadow, graphic black eyeliner and black lipstick.” Now let’s touch on the background—I am sitting in front of my altar, so I’ll add “she is sitting in front of her altar, with art and various items behind her.” And that’s it! When writing an image description, SOMETHING is better than NOTHING—even if it is one quick sentence that describes the focal point of the image. If you have the spoons however to go into more detail, then I encourage you to go as detailed as possible—accessibility is awesome 🖤 — VD: Marie, a pale skinned invisibly disabled woman with long black, purple and blue hair wearing a gray INCLUSION ROCKS ABLEISM KILLS tee paired with heavy purple eyeshadow, graphic black eyeliner and black lipstick; she is sitting in front of her altar, with art and various items behind her. — #Accessibility #AccessForAll #ImageDescription #AltText #Disability #DisabilityPride #Spoonie #ProTip #LifeHacks
For some reason, trolls really hate my term “disabled soul” and decide to tell me I have a “disabled brain” instead. But the best part about being pridefully disabled is that people can not weaponize my disabilities in that way—I am the first to say I have a disabled brain, so that’s not an insult to me. 😘 — VD: Marie, a pale skinned invisibly disabled woman with long black, purple and blue hair wearing a black and white graphic tee paired with sunset eyeshadow (yellow, orange pink and purple), graphic black eyeliner and black lipstick. — #DisabilityPride #Ableism #AntiAbleism #SelfAcceptance #Spoonie
You should care about disability rights and disability justice, because statistically someone you know and love lives with less rights than you simply because of a diagnosis. Yes, it is 2023 and disabled people still live with less rights. Did you know… …disabled people can lose their healthcare and disability benefits simply for getting married. …in 1985, the SCOTUS ruled that the disabled did not qualify for the full protection of the 14th Amendment, which stands to this very day. …if a disabled person was wrongfully terminated from their job and went on disability benefits afterwards to secure a form of income, then the EEOC could not move forward with a disability discrimination case as they only protect “employable” disabled souls. There’s too many injustices to really list, but these should be enough to convince you to fight for disability justice. — VD: Marie, a pale skinned invisibly disabled woman with long black, purple and blue hair wearing a black I’M FINE tee paired with pink eyeshadow, graphic black eyeliner, metallic blackish purple lipstick, crystal skull earrings and a macrame spell jar necklace. — #DisabilityJustice #DisabilityRights #AntiAbleism #Ableism #SocialJustice #Spoonie #DisabilityPride #Reels
June is Post Traumatic Stress Disorder Awareness Month, so I think it’s important to acknowledge how medical gaslighting contributes to C—PTSD. You don’t need to be a Veteran to qualify for a C-PTSD diagnosis—just living medically complex in this Ableist Society is enough to give you life long trauma. A 2022 survey showed that 72% of women surveyed have experienced some form of medical gaslighting from their medical providers. Medical gaslighting is when someone minimizes and dismisses another’s symptoms, and while medical professionals are guilty of it the truth is ANYONE can medically gaslit someone. Medical gaslighting leads medical professionals to ignore, under treat and misdiagnose patients. A common form of medical gaslighting is when doctors make patients feel like their illness is in their head, meaning their psychological state is blamed for their physical symptoms. Denying the reality of medical patients is a form of emotional abuse as it makes us question our own experiences, and can cause anxiety and depression. It can lead to patients avoiding medical care to prevent more mental harm, but that can cause physical harm as we let our symptoms go unchallenged. A good portion of my C-PTSD is related to medical gaslighting. There’s been WAY too many times in my life where medical professionals gaslit me because they didn’t understand my rare genetic disease. When I do finally go to doctors, more often than not my “fawning” trauma response kicks in and I mask my disappointment until I’m safely out of the office. Medical Gaslighting and being accused of misportraying my disability have honestly ruined my life, but I try to make the best out of it anyway. — VD: Marie, a pale skinned invisibly disabled woman with long black, purple and blue hair wearing a black PROUD tee paired with green eyeshadow, thick black eyeliner and blackish purple lipstick. — #MedicalGaslighting #PostTraumaticStressDisorder #CPTSD #CPTSDAwareness
This might be a little spicy, but it has to be said… #Reels #ActuallyAutistic #Autism #Autistic #Neurodivergent #AntiAbleism #Ableism #Spoonie
Statistically we say 1 in 4 American adults are disabled, but realistically? I think that number is much, much higher. #Disability #DisabilityPride #Ableism #AntiAbleism #ActuallyAutistic #Spoonie #Inclusion
Here’s your reminder 🖤 #Reels #Ableism #Spoonie #MentalHealth #BipolarAwareness #ADHD #ActuallyAutistic #Neurodivergent #MentalWellness #SelfCare #SelfCareSunday
Recently, a medical student I encountered gave me a lil’ hope for the future… #Disability #DisabilityRights #Medical #PatientCare #PatientExperience #Ableism #AntiAbleism #ChronicIllness #Spoonie