Nicholas’ leukemia journey

Another lot of bloods done 💪🏼 3 monthly seems so far apart, though the anxiousness never goes away! 😩 proud of our little man 😍

Another lot of bloods done ❤️ you never fail to amaze me nicholas! Today he asked to sit on his own to get his bloods done by a finger prick.. didn’t want mum or dad to hold him! Then he got so excited because he didn’t cry 🥹 his oncologist is super pleased and now we are at the 2 year post chemotherapy mark! Which we were told today lowers the chance of relapse by a lot!! and that he’s proud of Nicholas, as he’s not run into any problems ❤️ **kcancer

2 years ago today Nicholas received his last does of chemotherapy!!! I remember having so many feelings on this day, excitement was the main one but also worry, nervous and scared! The strength and courage he held throughout the whole thing makes me so proud to be his mum ❤️🥺 I love you Nicholas ❤️

Being a cancer parent takes everything out of you - even after remission.

Today 2 years ago, Nicholas was diagnosed with cancer. I had taken Nicholas in to the hospital thinking he just had a bad virus, Harley had flown out to work the day before. Having to call Him and tell him our son had cancer while he was hours and hours away from us and couldn’t get home until the next day replays in my head. 2 years ago our life changed, our life will never be normal 😢 a bruise or a bump or a rash or him saying his tummy hurts, freaks us out. A vomit or snotty nose, makes us panic 😢 every single day is a challenge and I know people don’t understand this but sometimes just a hug can make us feel better.

No one else would remember this date, not friends or even sadly family. But it’s a date that ruined us.

To see how amazing our son is going astounds me, you wouldn’t ever look at him understand the s**t he’s gone through, he makes us proud every day ❤️ he’s my absolute rock, he gets me through my hardest days & I’m so so greatful for him being MY son

I love you Nicholas Colin, keep being the strong amazing kid you are 💛 2 years later & your doing amazing

Big boy had his bloods done yesterday!

All is looking well still ❤️🥹 he’s so used to it now, he knows everything he has to do now which is way less stressful for me and Harley 😅

This little strong man had a big appointment today!

He has some behind the scene stuff going on (nothing to worry about at this stage) and nothing to do with the cancer ! But he had a special eye check today that was cleared of the issue he’s having with his skin 🙂 we will go back in a years time to make sure these bumps don’t grow behind his eyes and cause issues with his sight. I swear he is going to send me grey a lot sooner then I should be 👩🏻‍🦳 I love this kid with all my bloody heart 😍 my little superhero ❤️❤️❤️❤️

Brushing teeth 🪥

Turning into such a big boy 🥰🥹

Bloods are normal 🙂 forgot to post yesterday 🥰❤️❤️❤️❤️❤️

Waiting for his blood results, this never gets easier 😭 he gets them done every 2 months at the moment ❤️

Here comes T R O U B L E 🤭

May 2021 > now 🎗💛

Strongest kid I know 🥰 my little Nicholas

**kcancer

(From Tuesday) More heart scans! This time was an ecg

So proud of him ❤️ heart scans are normal, monthly bloods came back normal & he’s now graduated to 2 MONTHLY BLOODS!!! ❤️ such a big accomplishment for our little warrior 👑

What a crazy ride! It’s been a whole year since we got to bring our beautiful boy home! We are so blessed I swear !! 💙💙💙💙

Big boy had his yearly heart ECHO 💙

Such a good boy, he layed still as a statue which is exactly what they wanted 😅

Over the next few weeks, I will share some stuff. This is memories of coming to the end of nicholas’ biggest fight 💙 today being a HUGE one!!!

Today 1 year ago, Nicholas received his last dose of chemotherapy! A whole year ago 💙 the emotions that run through me, wow I’m so bloody proud! We watched him suffer every single day for months on end, knowing these ’ drugs’ would make our son extremely sick but at the same time would be saving his life. From the hair loss, to the nausea and pain. Me and Harley were both there every single day making sure our son knew he was loved, cared for and in the best hands. We made sure every day seemed like his birthday, and made sure every day he knew just how much we love him! These memories stop my heart, because In those moments of pain and sickness we couldn’t do anything for him, we had to watch on as we let drs & nurses save his life and we had to let them, we had to have trust in them that they would do everything they could. None of our friends or family would truly understand what we felt, and it was hard for them to be able to support us, so a lot of the time we only had each other 💙 looking at that little boy in these pictures, to looking at this big kid we have now, head full of hair, absolute terror & running rings around us. I have a sigh of relief, and know that these memories will forever be embedded in our heads but knowing we have an amazing, strong , crazy boy infront of us about to celebrate his second birthday makes our hearts just melt 🥹💙

Thought I’d fill everyone in at once ❤️

Last wednesday Nicholas had his monthly bloods taken at Rockingham hospital (normally at PCH) I couldn’t get a sitter for marlee so we had them done there and then we had a telephone appt with his oncologist dr.. thinking all would be fine like it has been for the last YEAR!!

We got the dreaded phone call at like 3 to say that they were abnormal & his counts were extremely decreased from last times. And that they were concerned as his bone marrow function came back as higher then it should be. Of course we went into panic mode. We had to wait until 4pm the next day for them to do a blood film which showed to be actually not bad! But they needed to send it to Fiona Stanley to ‘ confirm the results’. Then Friday arvo we got the call to say ‘ yes they agree we can’t see any blasts’ we were then told to come in for an appointment with our oncologist and to have repeat bloods done! That appointment was today! Sitting in the waiting room feeling like my heart was being ripped out of my chest, the oncologist then called us in and told me he is very concerned & not confident with the results. We had to wait an hour for the fresh bloods to come back to then make a plan. Telling me that he would likely be going under unaesthetic to have a bone marrow aspiration on Wednesday! And to be prepared for the next steps 😢😢 fast forward his bloods came back & ✨✨THEY ARE NORMAL!!!! ✨✨I instantly burst into tears calling Harley who also was very emotional! They dunno what caused it but likely just an invalid blood tests!! The fear we felt, the thoughts that ran through our head is just nothing we could ever describe! No one truly understand this feeling unless your apart of the cancer world, something I wouldn’t wish on anyone!! Our boy is absolutely amazing! He’s our superhero & a massive blessing in everyone’s lives 💙 thanks to everyone who checked in & sent prayers! They were definitely answered! He has some specia people looking after him above 🕊🤍

Baby boy is finally over COVID 💙 he tackled it like a little champ 😍

Time has gone so fast, we’ve been out of hospital since June last year! We’re coming up to his 1st year off treatment very soon 💙😍🥰

Little king 👑 his smile lights up our lives ❤️❤️❤️❤️

19.01.2021 • the worst day of my life 💔 I can’t believe it’s been a whole year 🥺

The day our lives changed dramatically, our boy Nicholas was diagnosed with cancer. I was going to go down memory lane but I’m going to be easy on myself as I’ve been up crying all night and this morning. We have the strongest amazing little man, the resilience and strength he showed through the last year is out of this world. We are so proud of you Nicholas & we can’t wait to watch you continue to grow ❤️ I’m going to make this a happy day, you will see mumma smiling and laughing because it really is a day to celebrate you and how far you’ve come!! From a very sick little boy to a thriving, cheeky, adventurous little boy!! You are stronger then I ever will be my son ❤️❤️ our little king 👑

So healthy ❤️❤️❤️❤️

Today we had nicholas’ monthly blood test!

As usual I get the shakes, the fear is horrendous and I can’t stop the feeling of wanting to physically vomit everywhere! It never gets any easier and I’m sure it will be like this forever!

Waiting in the waiting room gives me the shivers, looking around at all the sick kids makes my heart very sad 😣

Anywhooooo! Results came back normal, heathy and perfect! Every single month that goes by the stronger he gets, the better his immune system gets 💙 so proud of our little king 👑

Before and after hair growth 💙 this boy is bloody amazing!!!

💙💙💙

After watching our boy ring the bell on Friday, we started to celebrate at home & when I went to put Nicholas to bed I noticed he had blood in his nappy, straight to emergency & back on the oncology ward we went.. we have spent the past few days riddled with worry & lots of tests and crying. All of his blood tests looked normal & he still looks so healthy and happy ❤️ they are happy with him & sent us home. Awaiting stool sample, but they don’t think it’s any thing to worry about or anything associated with his initial diagnosis ❤️

Today was a day NOTHING could top!!

Our little hero rang the gold bell 💙💙💙 most amazing moment in my life, tears were shed & lots of proud faces joined us! I could never put into words how proud I am of Nicholas 💙 the journey he has been on, no one should ever go through but he done it with a constant smile on his face ❤️ hands down my greatest moment in my life, watching my boy ring the bell 🔔

Such a beautiful moment this morning, last Thursday Nicholas had his central line out, he’s had a dressing covering it to keep him safe from infection, he pulled it off this morning and it’s healed perfect! The first time in over 6 months I’ve seen his chest bare!! the surgeon that took it out told us when he’s older he can get cosmetique surgery to fix his scars if we wanted.. my response - no way, he will know about his battle, these are his battle scars & we want him to be proud of what he’s overcome ❤️❤️ little warrior has had 3 central lines in, since January due to infection and line being placed wrong resulting in the line sucking his vein wall and not being able to take bloods etc which he needed daily! So lots of little scars 💙

My biggest hero 💙💙💙💙

❤️ big day for our special little man ❤️❤️❤️❤️

Getting his central line out 🎉🎉🎉🎉

Siblings ❤️ just missing Marshall 🥰

Always showing his strength ❤️ our real life superhero 😭❤️😍

This arvo we went to the beach, the sun was shining and it was absolute bliss! Nicholas hasn’t been to the beach for over 6 months, & his face lit up! So blessed to be able to do these things ❤️❤️❤️