I'm Dying To Tell You Podcast

I'm Dying To Tell You Podcast

Hi, I’m Lorri. Living with ALS for 20 yrs. I created this podcast to share stories of inspiration.

Woman plans to honor Reds Opening Day parade grand marshal with signs amid ALS battle 27/03/2024

If you missed us on the news tonight, here's the segment.
Let's go Cincinnati and show "Good Old" Jim Scott he is loved!!
Hope to see you on Thursday at the Red's Opening Day Parade.
Thank you Lindsay Stone at WLWT.

Link to my chat with Jim Scott: https://podcasts.apple.com/us/podcast/radio-legend-jim-scott-living-positively-with-als/id1500657074?i=1000631093959

700WLW, Grippo Potato Chip Company, The Salvation Army USA, March of Dimes ALS United Ohio Cincinnati Reds Rosie Reds The Joe Nuxhall Miracle League Fields

Woman plans to honor Reds Opening Day parade grand marshal with signs amid ALS battle Opening Day is two days away and one of the many people being honored at this year's Findlay Market Parade is retired 700 WLW radio host Jim Scott.

26/03/2024

This Channel 5, WLWT-TV news team stopped by the house today! Story at 6 pm tonight!
https://www.wlwt.com/
WLWT

25/03/2024

When someone gets diagnosed with ALS, their entire family and community is affected. Within this podcast we witness how helpful connection is especially when life is incredibly tough. Listen in to my chat with Tanya Hageman and Dawn Delaloye of ALS Family of Faith and hear how they are focusing on providing one on one support to anyone with ALS in their life. Listen links: http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle
ALS Family of Faith Center

Photos from I'm Dying To Tell You Podcast's post 23/03/2024

I wasn’t planning on visiting my friends today, but something led me there. Afterwards, I was reminded that it was 8 years ago TODAY that Smilin’ Paul was diagnosed with ALS. Hmmmm 🙂. I sure do miss Karl & Paul. I’m so grateful for our friendships & our chats on this podcast that will be cherished forever! 💜🙏💜

22/03/2024

Coming up soon! ⚾️ I’m hoping to surprise our friend, Jim Scott and need your help!! If you’re from Cincinnati, you know “Good Old Jim Scott”, WLW-AM (700) morning radio host who was on the radio for 55 years. You might also know Jim was diagnosed with ALS. Jim has been named the honorary grand marshal for the upcoming Reds Opening Day Parade. He has marched in the Findlay Market Parade for 54 years, but due to his ALS he’s unable to walk this year - so he’ll actually be riding for his 55th year! He sent me pictures of him & his team practicing how they’ll get him in and out of the convertible for the parade. For all that Jim has done for our community, I thought it would be super special to flood the parade route with signs for Jim showing him how much he’s loved. He said his “waving arm” still works & I know he’s counting on using it on Reds Opening Day!

So ..... get crafty with me, make an encouraging sign for Jim and join me at the Findlay Market Parade on Thursday, March 28. The Reds Opening Day parade will begin at noon.

Help spread the word, but keep it a surprise from Jim.

Thank you! Go Reds! Strike Out ALS!

21/03/2024

"I'm tired of this, I don't know if I can go on." - If you've had this thought & are affected by ALS ... whether you have ALS, you're a caregiver or even a friend, listen in and hear how ALS Family of Faith can help! Listen links: http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle
ALS Family of Faith Center

19/03/2024

If you know ALS, you KNOW the mental, physical and spiritual strain that can come with it. I know it! Which is why I'm excited to share my latest episode featuring ALS Family of Faith, a nonprofit founded by the inspiring Steve Cochlan, who is battling ALS. They offer free emotional and spiritual support to everyone affected by ALS. Tune in to learn more about their incredible work and the impact they're making. Listen in to our chat: http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle
ALS Family of Faith Center

18/03/2024
17/03/2024

Lucky all the way around!!! ☘️
Our chat: https://podcasts.apple.com/us/podcast/im-dying-to-tell-you/id1500657074?i=1000645198021

14/03/2024

Dawn Delaloye is a Care Partner with ALS Family of Faith. In this episode, Dawn shares examples of where she was able to make a positive impact on someone with ALS. The one-on-one connections they are building is beautiful. Listen in to our full chat: http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle

13/03/2024

NEW SEASON, NEW Episode!
In episode 93, I talk to Dawn Delaloye & Tanya Hageman from ALS Family of Faith. ALS Family of Faith is a nonprofit that offers free one on one emotional & spiritual support to anyone affected by ALS. If you know ALS, you know it’s incredibly difficult and is so heavy mentally & physically. Living with a fatal disease with no cure can be dark & isolating. This beautiful outreach was started by Steve Cochlan, who was diagnosed with ALS in 2019. Dawn & Tanya share what positive impact they’ve witnessed as they partner up with those in the ALS community that are wanting the extra support. Listen in to our conversation: http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle
🌻 ALS Family of Faith Center

11/03/2024

Have you heard? 🎧 Last episode of Season 4! This episode, "20 Years Living with ALS: A Special Q&A with My Sons Co-Hosting" was incredibly special! Answering your questions and my son's here: http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle Thanks for listening in. 💜

10/03/2024

4 years ago today, I published my very first episode of "I'm Dying To Tell You Podcast" - I never imagined all the beautiful friends and blessings that would follow. So thankful! Season 5 coming soon! Subscribe and be ready@
www.ImDyingToTellYouPodcast.com
http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle

07/03/2024

SEASON 5 STARTING SOON!
Subscribe and be ready!!
www.ImDyingToTellYouPodcast.com
http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle

06/03/2024

🎙️ To wrap up Season 4, I recorded this special Q&A session where I answer questions from you incredible listeners and from my sons about navigating life with ALS for 20 years. This chat with my sons, Paul and Christian as co-hosts was full of emotions and such a blessing to me. In this clip, Christian expresses how he feels like we are living in the second chance at life. Take a listen to this powerful moment and catch our entire conversation here: http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle Thank you!

01/03/2024

Join me and my sons as we dive into life with ALS the past 20 years, defying odds, and answering your questions. Tune in for this heartfelt conversation. Thank you for being here with us. It means the world. Direct Listen Links: http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle

29/02/2024

Coming up in May! I AM ALS will host it's first ALS Community Summit and continue the ALS Awareness Month flag event which displays 6,000 flags on the National Mall, honoring those living with ALS, those we have lost to ALS, and those who are ALS gene carriers. Submit names and sign up info here: https://www.iamals.org/2024-i-am-als-community-summit/
I AM ALS

22/02/2024

I will cherish this conversation forever. In this episode with my sons, Paul and Christian, we reflect on our 20 year ALS journey, answer listener questions, and questions they had for me as well. Thank you for being a special part of this and sharing with a friend! Direct Listen Links: http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle

Photos from I'm Dying To Tell You Podcast's post 22/02/2024

Happy to hug Leslie Stewart Gafford today at her beautiful John-boy's Place💜. I always thought that Leslie & her children spent time with her husband John at this accessible lakefront home. I learned today, that Leslie actually purchased this home a couple months after her John passed from ALS so that other families would be able to have meaningful vacations together. She told me as soon as she pulled up to the property, she knew it was perfect for creating her dream & knew instantly she would call the home, “John-Boy’s Place.” Leslie said that John would of loved to have spent his last adventures somewhere like John-Boy’s Place. As she said, “We never got our last good adventure, ALS beat us to the punch line.” I absolutely love Leslie’s big heart & big mission! Visit her website to learn more: https://windchimeresources.com/
Follow: Windchime Wishes Limited

21/02/2024

In my most recent episode, I answered questions from listeners & my sons, Paul & Christian. They joined me as co-hosts & we reflected on the past 20 years with ALS in our lives. Listen in here: http://bit.ly/ListenOnApplePodcast🎧

Photos from I'm Dying To Tell You Podcast's post 20/02/2024

Hellooooooo Alabama! Wrapping up this Winter Adventure at John-boy's Place💜. My heart is bursting as I see firsthand this beautiful, accessible vacation spot born from love! After losing her husband, “John-Boy” to ALS, Leslie Gafford set out to create a special space where a family can come stay & have a full vacation all on site. This amazing home is modified inside & out for those who need it. I’m so grateful to witness this incredible tribute to John-Boy that is pouring love forward to those in the ALS community & beyond! Windchime Wishes Limited

19/02/2024

Anyone else today?

Photos from I'm Dying To Tell You Podcast's post 15/02/2024

SHOW NOTES: "20 Years Living with ALS: A Special Q&A with My Sons Co-Hosting"

When I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago. Today, alongside my two sons, Paul and Christian, we reflect on this journey, answer listener questions, and explore the lessons learned along the way. I answer your questions about life with ALS, my thoughts on the future and advice to others finding themselves in the face of adversity. Then, I find out what questions my sons have for me after 20 years with ALS. Although their questions were tough to answer, I think it was good for all of us to discuss. I’m incredibly grateful for these bonus years since only 5% of ALS patients live longer than 20 years. Join us for an intimate and candid conversation as we commemorate this significant milestone and look towards the future with hope & gratitude. Help celebrate with me by sharing this episode with a friend and leaving a review wherever you listen. Thank you for your incredible support. Hugs, Lorri

Follow Lorri: https://www.instagram.com/imdyingtotellyoupodcast/
Follow Christian: https://www.instagram.com/seldonite/
Follow Paul: https://www.linkedin.com/in/paul-carey-9884411b/
Follow Kids4Cure: https://www.instagram.com/kids4cure/

Direct Listen Links: http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle

15/02/2024

IDTTY Birthday!!
Happy Birthday to my guest, friend and ALS sister, Amy Stiens. She ALWAYS makes me smile 😃 Keep celebrating!! .8009

14/02/2024

New Episode Available!
A special Q&A - where I answer listener questions & my son’s questions about family, faith & even death. Listen in here: https://podcasts.apple.com/us/podcast/im-dying-to-tell-you/id1500657074?i=1000645198021

13/02/2024

NEW! In this episode, I mark a huge milestone of living with ALS for 20 years. To “celebrate” this, my sons, Paul and Christian joined me as co-hosts for my 20th ALS-versary Q&A episode. Our precious conversation is deep and raw, but just what I needed. I invite you to listen in today. If you like the episode, you can simply share or leave a review on Apple Podcasts or Spotify to help bring others to it. That would be an incredible blessing to me & this community. Thank you so much!!!!! Listen Links: http://bit.ly/ListenOnApplePodcast or http://bit.ly/ListenOnGoogle

09/02/2024

Caught up with friends & IDTTY guests, tonight at concert in Florida!! ☀️🌴🎶

07/02/2024

NEXT UP!
Subscribe and get notified when released: http://bit.ly/ListenOnApplePodcast

Hello, I’m Lorri - Nice to Meet you!

Thank you for being here with me. I’m 55 and a midwest girl who has 3 guys in my life. My husband Paul, and two sons, Paul and Christian - also known as Kids4Cure. They are my every day inspiration fueling me with a desire to fight and encouraging me to welcome new challenges.

I was given 2-5 years to live on that Friday the 13th in 2004. " You have ALS" - three words that forever changed my world, my perspective, everything. What I didn't know then is that I would outlive that death sentence as currently I've had ALS for 16 years. I've been lucky to be in the 10% that live more than 10 years. My faith, my family and the power of community keep me LIVING each day! I take note of those who inspire me, big or small, and focus on what I learn from them. I’m pretty good at focusing on the positive and on things that I can control. It's on my heart to find & share stories of inspiration while I still have the ability to speak. I hope you'll listen & be blessed in some way.

I’d love to have you join my private podcast community group here. You can hear my podcast on Apple, Spotify, Google or wherever you listen. If you’d like to follow me, catch me on Instagram @ImDyingToTellYouPodcast and Twitter @LorrisPodcast.

Thank you and know you are LOVED & NOT ALONE!

Videos (show all)

"I'm tired of this, I don't know if I can go on."  - If you've had this thought & are affected by ALS ... whether you ha...
Have you heard?  🎧 Last episode of Season 4!  This episode, "20 Years Living with ALS: A Special Q&A with My Sons Co-Hos...
🎙️ To wrap up Season 4, I recorded this special Q&A session where I answer questions from you incredible listeners and f...
Clip from my son, Paul
NEW Episode!!Just me talking about "How to Find Gratitude During Hard Times" and how participating in #GivingTuesday can...
Amanda Stevens
Brain & Life
Audio clip from Episode 85
Amanda Stevens, AxeALS
Catch my LIVE chat with Amanda Stevens, AXEALS Foundation to hear more on the FDA's upcoming public advisory committee m...