Gagne-Coto Epilepsy Treatment Foundation

Gagne-Coto Epilepsy Treatment Foundation

Welcome to The Gagne-Coto Epilepsy Treatment Foundation page. The GCET Foundation supports survivorship by facilitating access to existing interventions.

08/03/2023

It never gets old!!

The conversation where we are able to inform a family in need that GCet Foundation will be able to provide funds for assistance!

The silence, their cry and then their story! It’s priceless and we are so very honored.

Thank you Boston Children's Hospital for the referral!!

GCet Foundation was able to provide $1,500.00 in assistance to a family in need for housing this month.

15/08/2022
21/04/2022

When it comes to giving The Liquid Garage Co.is EVERYTHING to GCet Foundation.

We need more support from our community!!

We have families who need help to transport their children to facilities that are equipped to provide the care these children need to live and thrive.

Please consider supporting our mission today!

We love to give. Gagne-Coto Epilepsy Treatment Foundation are great people and a fantastic organization and we love what they do for the families that have to travel coast to coast for Epilepsy treatment. Thanks to the Pasco Brewers Guild - PBG for the winning recipe of "Dill With It" shandy from their Iron Brewer Competition. Thanks to all of our patrons who support us and our great causes. Beer is a gift and we can do amazing things with it. Cheers!

theliquidgarage.com
(727) 645-5885
1306 Seven Springs Blvd, New Port Richey

25/03/2022

Tomorrow, March 26th, is PURPLE DAY.

πŸ’œ1:26 𝑷𝒆𝒐𝒑𝒍𝒆 π’˜π’Šπ’π’ 𝒅𝒆𝒗𝒆𝒍𝒐𝒑 π’†π’‘π’Šπ’π’†π’‘π’”π’š.

πŸ’œπ‘¬π’‘π’Šπ’π’†π’‘π’”π’š π’Šπ’” 𝒕𝒉𝒆 4𝒕𝒉 π’Žπ’π’”π’• π’„π’π’Žπ’Žπ’π’ π’π’†π’–π’“π’π’π’π’ˆπ’Šπ’„π’‚π’ π’…π’Šπ’”π’π’“π’…π’†π’“.

πŸ’œπ‘¬π’‘π’Šπ’π’†π’‘π’”π’š π’Œπ’Šπ’π’π’” π’Žπ’π’“π’† 𝒑𝒆𝒐𝒑𝒍𝒆 𝒕𝒉𝒂𝒏 𝒃𝒓𝒆𝒂𝒔𝒕 𝒄𝒂𝒏𝒄𝒆𝒓 π’‚π’π’π’–π’‚π’π’π’š.

πŸ’œπ‘Όπ’‘ 𝒕𝒐 75% 𝒐𝒇 𝒑𝒆𝒐𝒑𝒍𝒆 π’˜π’Šπ’•π’‰ π‘¬π’‘π’Šπ’π’†π’‘π’”π’š 𝒅𝒐𝒏'𝒕 π’“π’†π’„π’†π’Šπ’—π’† π’•π’“π’†π’‚π’•π’Žπ’†π’π’•. 70% 𝒐𝒇 𝒑𝒆𝒐𝒑𝒍𝒆 π’˜π’Šπ’•π’‰ π’†π’‘π’Šπ’π’†π’‘π’”π’š 𝒄𝒐𝒖𝒍𝒅 π’π’Šπ’—π’† 𝑺𝑬𝑰𝒁𝑼𝑹𝑬-𝑭𝑹𝑬𝑬 π’Šπ’‡ π’…π’Šπ’‚π’ˆπ’π’π’”π’†π’… 𝒂𝒏𝒅 𝒕𝒓𝒆𝒂𝒕𝒆𝒅 π’‘π’“π’π’‘π’†π’“π’π’š.

πŸ’œπ’€π‘¬π‘», 25% 𝒐𝒇 π‘¨π’Žπ’†π’“π’Šπ’„π’‚π’π’” 𝒇𝒆𝒆𝒍 𝒏𝒆𝒓𝒗𝒐𝒖𝒔 𝒂𝒓𝒐𝒖𝒏𝒅 𝒂 𝒑𝒆𝒓𝒔𝒐𝒏 π’˜π’Šπ’•π’‰ π’†π’‘π’Šπ’π’†π’‘π’”π’š π’”π’Šπ’π’„π’† π’•π’‰π’†π’š π’Žπ’‚π’š π’˜π’Šπ’•π’π’†π’”π’” 𝒂 π’”π’†π’Šπ’›π’–π’“π’†.

WE CAN DO BETTER

WORLD EPILEPSY AWARENESS DAY IS TOMORROW

WE NEED YOUR HELP TODAY. PLEASE DONATE NOW.

https://www.gcetfoundation.org/donors

24/03/2022

Parents of children with seizures are at risk of mental health symptoms because of the emotional toll that uncontrolled seizures have on the family unit.

A family-centered approach is essential to alleviate the emotional impact of this debilitating disease.

With your generous donation we can connect children to the care facilities which recognize and placed into practice the principles of family centered care.

Donate today. We have children who need your help.

https://www.gcetfoundation.org/donors

19/01/2022

GCet Foundation extends it thoughts and prayers to Demario and the Creaco Family!

Please keep this family in your thoughts.

Former Broncos receiver Thomas dies at age 33 10/12/2021

SUDEP can happen to anyone who is suffering from seizures.

GCet Foundation sends its prayers to the family, friends and Denver Broncos Demaryius Thomas was amazing human and talented athlete.

Rest In Peace #88

https://www.espn.com/nfl/story/_/id/32834405/former-denver-broncos-wr-demaryius-thomas-33-found-dead-home-police-say

Former Broncos receiver Thomas dies at age 33 Demaryius Thomas, who spent nine of his 10 NFL seasons with the Broncos, was found dead in his home, police in Roswell, Georgia, said. Thomas was 33.

06/12/2021

We are so thankful for the support from our local community. THANK YOU The Liquid Garage Co. and Pasco Brewers Guild - PBG for supporting our mission to get children with epilepsy to life saving treatments!!!

We love to give. Gagne-Coto Epilepsy Treatment Foundation are great people and a fantastic organization and we love what they do for the families that have to travel coast to coast for Epilepsy treatment. Thanks to the Pasco Brewers Guild - PBG for the winning recipe of "Dill With It" shandy from their Iron Brewer Competition. Thanks to all of our patrons who support us and our great causes. Beer is a gift and we can do amazing things with it. Cheers!

theliquidgarage.com
(727) 645-5885
1306 Seven Springs Blvd, New Port Richey

28/09/2021

Come out and support us!!

$2 Off Tuesday! Come in and get $2 off a pint of "Dill With It" Lemon Shandy to support our friends at the Gagne-Coto Epilepsy Treatment Foundation. We colaborated with the Pasco Brewers Guild - PBG and The Chill Dill to brew this and proceeds from this beer are helping families with expenses going through treatments.Cheers to you all!

theliquidgarage.com
(727) 645-5885
1306 Seven Springs Blvd, New Port Richey

23/09/2021

According to the latest estimates from the CDC, about 0.6% of children aged 0-17 years have active epilepsy.

Think of a school with 1,000 studentsβ€”this means about 6 of them could have epilepsy.

The everyday costs, including transportation, lodging, gas, and parking fees, continue to stand as a barrier to competent care and effective treatments.

When you choose to donate to GCet Foundation, you're choosing to be part of the solution in removing these barriers and facilitating access to care.

Donate today!

https://www.paypal.com/donate?hosted_button_id=UMYNRMXPEJPUC

Photos from Gagne-Coto Epilepsy Treatment Foundation's post 21/09/2021

We are proud to welcome Kinsley Walker and her family from Sidney, Maine to the GCet Foundation family!!

Kensley had her first seizure at the age of one. At the time, she was ill and had a fever. With febrile seizures being common among small children Kinsley’s parents, Justin and Candice, trusted their medical professionals when they were told it was nothing to worry about.

Kinsley went an entire year without a seizure before they aggressively returned. Kinsley was placed on many medications which failed to keep her life-threatening seizures at bay.

At now 5 years old, Kinsley is still fighting life-threatening epilepsy. Some of her seizures are so severe that her rescue medication isn’t effective in stopping them.

Justin and Candice knew this placed their little girl at risk for SUDEP (Sudden Unexpected Death in Epilepsy) so they sought out the help of Harvard trained physicians at Boston Children’s Hospital. Kinsley was evaluated and found by her epileptologist to be appropriate for a Level 1 Evaluation for brain surgery.

Justin and Candice were relieved to have their child under the care of the right doctors, however, they now faced a new challenge…. the real-life expenses associated with treatment.

They weren’t sure how they would be able to afford the expense of a weeklong hotel stay, manage the expense of gas and handle the cost of parking fees in Boston.

Boston Children's Hospital referred Justin and Candice to GCet Foundation. 24 hours after referral GCet was able to assist in covering the expenses of the hotel, gas, and parking expenses.

GCet Foundation is proud to have the opportunity to help support Kinsely and her family during their journey through brain surgery evaluation.

GCet Foundation may be a small non-profit, but we are nimble and able to quickly respond to the financial needs that tend to cause families distress and create barriers to receiving competent, lifesaving medical care. To continue helping families like Kinsley’s we need your help today.

Every penny matters. Please consider donating to GCet Foundation today!

09/09/2021

We are proud to welcome Liam Ennis and his family from Tampa, Florida to the GCet Foundation family!!

Stacia and Jeff Ennis were at their 36-week pregnancy check-up when they were told that Liam had a heart defect and had a 50% chance of survival.

Never did they imagine that Liam would begin having life threatening seizures at 19 months old only later to face brain surgery. After being on 6 different anti-epileptic medications, Stacia and Jeff turned to Cleveland Clinic for help to save their son’s life.

Liam would go on to have a portion of his left hemisphere removed and the remainder of the left hemisphere disconnected to relieve his constant epileptic activity.

This was a HUGE surgery. Thankfully this kiddo has a Rockstar advocate in his mom! Liam has come a long way and is doing amazing!

However, the long-term care is enough to take a toll on any family!

GCet Foundation is proud to have the opportunity to help support Liam and his family during this journey through brain surgery follow-up at Cleveland Clinic.

GCet Foundation has been in existence for 8 months now and has done SO MUCH with so little to help as many families as possible. To continue doing the amazing work that we do, we need your help today!!!

Please help by donating to GCet Foundation today!

Sea Isle City event teaches kids with epilepsy to surf 21/07/2021

Amazing job done!!!

Sea Isle City event teaches kids with epilepsy to surf SEA ISLE CITY β€” Before Wednesday, Reagan Schenkel had never tried to surf.

09/07/2021

Thank you to East Lake Fire Rescue for sharing our story and spreading the word about our tomorrow!!!

We hope you all are able to come share a drink with us!!

On November 20, 2012 , Emma, who was only 3 days old, suddenly went into respiratory arrest. Emma came home as a very healthy baby, but only three hours after finally getting home with their newborn baby, the family was administering CPR. DC McLain, LT Sullivan and their crew responded to the family’s residence and continued rescue efforts. Once the child was taken to the hospital, the family learned that Emma had sustained a stroke. From there, Emma was in and out of the hospital, but between visits, the family did stop by the station to take a picture with their heroes (picture below). Emma began having seizures which worsened over several years and when she turned 3 years old, she was diagnosed with epilepsy. The seizures got so bad that Emma’s parents were eventually forced to decide between either putting her into a medically induced coma or moving to Boston Children’s hospital to obtain a higher level or care.

The family decided to travel to Boston and worked hard to find a treatment. Eventually, Emma had an internal responsive nerve stimulator installed and thanks to this procedure, this year she will be attending her first year of school! Emma’s mother, Lynda, realized how important it is to eliminate financial barriers that stand between children with life threatening seizures and finding treatments that are effective for them, so she started her own non-profit, Gagne-Coto Epilepsy Treatment Foundation. Tomorrow, July 10th, from 12pm to 11pm, the foundation will be hosting a fundraiser event at the Liquid Garage Co. For more information on the event, check out their event page: Sipping Shandy for Children's Epilepsy Survivorship

04/07/2021

GCet Foundation wishes you and yours a very happy and seizure free 4th of July.

29/06/2021

Meet Lily Peters!!

Lily is GCet Foundation’s β€˜Donor of the Month.’

Read why Lily choose to give back for her birthday. Thank you Lily. We are honored!!

β€œI decided to have people donate to the GCet Foundation for my birthday because I want to help families who have kids with epilepsy. My little brother has epilepsy and he might need to have surgery to get his seizures to stop. My mom told me that the GCet Foundation helps families pay for the tons of doctors visits, getting to appointments, and all of the other things you have to pay for when you have a kid with epilepsy. I hope asking people to donate to the GCet Foundation raised a lot of money to help kids with epilepsy!”

26/06/2021

YOU can make a BIG impact by donating today!

We need your help...

https://www.classy.org/campaign/champions-for-children-supporting-epilepsy-survivorship/c346010

23/06/2021

Epilepsy is a chronic illness that requires proper management and treatment. However, when access is denied it can have devastating consequences.

Every child deserves access to healthcare that will improve their quality of life.

That's why GCet Foundation is asking you to partner with us to remove the financial barrier that stands between epilepsy and life-saving treatment.

Just a few dollars a month is enough to cover the real-world expenses associated with the task of seeking life-saving treatment for a child with epilepsy.

CLICK the link below and DONTATE TODAY!

You have a chance to improve the quality of life for children, increase their access to healthcare and support children needing life-saving epilepsy treatment.

https://www.classy.org/campaign/Champions-for-Children-Supporting-Epilepsy-Survivorship/c346010

23/06/2021

70% of people with epilepsy could live seizure-free if diagnosed and treated properly.

The thought of having a productive conversation with your child's neurologist about medication changes or neurosurgery can be intimating.

With a registered nurse on staff, GCet Foundation offers supportive services to parents interested in learning how to effectively advocate for their children.

Support Gagne-Coto Epilepsy Treatment Foundation by shopping at AmazonSmile. 21/06/2021

IT'S PRIME DAY!! TWO days of EPIC DEALS!!!!

Be sure to follow this link to support GCet Foundation while shopping.

https://smile.amazon.com/ch/85-4258979

Support Gagne-Coto Epilepsy Treatment Foundation by shopping at AmazonSmile. When you shop at AmazonSmile, Amazon will donate to Gagne-Coto Epilepsy Treatment Foundation. Support us every time you shop.

18/06/2021

We are proud to welcome Paul and his mom, Colleen to the GCet Foundation family!

Paul began having seizures in 2018. His seizures initially involved eye twitching. However, over time they progressed into a more dangerous type of seizure.

Colleen looked to a well known hospital for answers and help. But Paul was turned away being told that they needed to seek treatment from a psychologist as his presentation was psychological.

After having a seizure while at a doctor's appointment, Paul was finally referred for more testing and finally received a diagnosis of epilepsy.

Paul was placed on medication but at a significant cost to his quality of life. The side effect impaired his ability to effectively function like a typical teen.

Paul soon began to experience dangerous breakthrough seizures.

Being a single parent comes with its own set of challenges. Colleen is a single parent to a child fighting life threatening epilepsy. This type of parenting comes with a level of stress that is difficult to cope with.

GCet Foundation is proud to have the opportunity to help support this family during they journey through Paul's neurosurgery evaluation at Children's Hospital of Philadelphia.

Thank you to all of our donors for making this possible!

17/06/2021
16/06/2021

Meet the Creaco Family!

In October, 2020 Demario (pictured next to his dad, Dominic) experienced his first seizure. Over time Demario's seizures became more severe, causing him to turn blue during each episode.

After failing several medications, doctors informed Demario's mom and dad that a neurosurgery workup would be necessary.

Having a child with uncontrolled seizures which requires close monitoring has placed a strain on this beautiful family.

Thanks to our donors, GCet Foundation has been able to assist the Creaco family with accommodations, paid hospital parking and prepaid gas!!

Amy and Dominic can now sleep a little easier knowing that they can focus on being present for Demario.

GCet Foundation by eliminating the financial barriers that stand between epilepsy and treatment!

We are all rooting for you Demario!!









We have more families who desperately need help!! Donate now! We can't do our amazing work without you!!

https://www.gcetfoundation.org/donors

07/06/2021

Get ready for Prime Day!

Sign up for AmazonSmile and select Gagne-Coto Epilepsy Treatment Foundation as your preferred charity at smile.amazon.com/ch/85-4258979.

Remember to shop for deals at smile.amazon.com, or with AmazonSmile ON in the Amazon app, and AmazonSmile will donate to us at no cost to you.

24/05/2021

We can help!!

If you are a parent with a child fighting epilepsy and need financial assistance with accommodations for medically necessary neurological evaluations or follow-up. We currently have funds available for a candidate who qualifies.

Together with our community partner SONDER the Gagne-Coto Epilepsy Treatment Foundation has funds available for accommodations at a Sonder Property.

There is an application process and approval is determined on medical necessity. Apply today by calling us or via our website https://www.gcetfoundation.org/about-3.

10/05/2021

"The meaning of life is to find your gift. The purpose of life is to give it away"

-Picasso

Through supporting survivorship are committed to serving our community.

-GCet Foundation

https://www.gcetfoundation.org/about-us

08/05/2021

Studies show that Epilepsy is frequent among school-aged children.

Studies also state that 88% of patients with seizures miss school which have a significant impact on academic performance and self esteem.

If only these children had access to effective treatments that are currently available........we could improve the pediatric epilepsy patient's educational experience and quality of life!

The financial barrier is REAL... and you can help us remove that barrier by donating today.

https://www.gcetfoundation.org/donors

Photos from Gagne-Coto Epilepsy Treatment Foundation's post 05/05/2021

The Gagne-Coto Epilepsy Treatment Foundation recognizes Pediatric Stroke Awareness during the month of may.

Do you know what signs to look for in a child who may be having a stroke.

Support Gagne-Coto Epilepsy Treatment Foundation by shopping at AmazonSmile. 29/04/2021

Supporting the GCet Foundation just got easier!

When you shop smile.amazon.com and select the Gagne-Coto Epilepsy Treatment Foundation as your charity of choice you help a child with epilepsy get closer to a better quality of life!

Go shopping TODAY!!!

https://smile.amazon.com/ch/85-4258979

Support Gagne-Coto Epilepsy Treatment Foundation by shopping at AmazonSmile. When you shop at AmazonSmile, Amazon will donate to Gagne-Coto Epilepsy Treatment Foundation. Support us every time you shop.

15/04/2021

β€˜Many hands can make a BIG difference!’

GCet Foundation is now part of the **PayPal Giving Fund**.

It’s easy to donate to GCet. Follow the link and choose Gagne-Coto Epilepsy Treatment Foundation as your preferred charity.

100% of the fund go directly to GCet.

paypal.com/us/fundraiser/charity/4216250

06/04/2021

According to research, hospitalizations for epilepsy‐related complications are increasing. However, many patients with drug resistant epilepsy who might otherwise benefit from surgery continue to have intractable seizures. Many lack access to timely treatment due to a knowledge gap among treating physicians. https://onlinelibrary.wiley.com/doi/epdf/10.1111/epi.16572

We can do better to provide appropriate and prompt surgical referrals to patients with DRE.

GCet is a nonprofit corporation exempt from federal income tax under Section 501(c)(3) of the Internal Revenue Code.

05/04/2021

Read a note from our Founder discussing the significance of GCet Foundation’s logo.

Every person and family involved in fighting against epilepsy possesses qualities that demonstrate the epitome of strength, perseverance and compassion.

https://www.gcetfoundation.org/our-logo

19/03/2021

THANK YOU to all of our donors!

With your your donations, we were able to provide supportive services to the Scott Family.

WIth your help we provided free transportation and meals through our partners Uber and Uber Eat to Liza Scott, her mother Elizabeth Scott and family.

In partnership with Sonder, GCet Foundation was also able to facilitate discounted accommodations to the Scott Family in a comfortable 2 bedroom apartment.

100% of your donation went to our efforts to support this family.

There are MANY children waiting for their chance to live a seizure free life.

Surgery is a common, yet underutilized treatment for epilepsy. Removing the financial barrier would allow more children to get treatment sooner, improving their overall medical outcome and future.

We need your help! We need your help to get children to life saving surgical interventions sooner.

PLEASE donate today!

β€˜I hope I make it’: 7-year-old Alabama girl selling lemonade to fund her own brain surgeries 26/02/2021

GCet Foundation is raising money to help Elizabeth, single mom of 7 year old Liza remove the financial barrier to life saving brain surgery.

You can donate to this cause by following this link: https://www.gcetfoundation.org/donors

You can learn about Liza and her mom Elizabeth here: https://www.cbs42.com/news/local/i-hope-i-make-it-7-year-old-alabama-girl-selling-lemonade-to-fund-her-own-brain-surgeries/

β€˜I hope I make it’: 7-year-old Alabama girl selling lemonade to fund her own brain surgeries Liza Scott, an Alabama 7-year-old, is selling lemonade to help pay for brain surgeries she desperately needs.

25/02/2021

The Gagne-Coto Epilepsy Treatment Foundation is proud to announce the latest addition to our Board. Christina Delgado will serve the Foundation as Secretary, Treasurer and Chief Marketing Officer.

She is positioned to be the backbone of the Foundation. We look forward to watching Christina do what she does best!

To learn more about Christina's background visit our Leadership Page on our website: https://www.gcetfoundation.org/our-leadership