Angioedema News

While all types of angioedema are typically highly treatable, researchers continue to explore new therapies and treatment approaches. We cover several here: https://bit.ly/3YLl6aw

According to Phase 1 findings, most patients were completely free from swelling attacks after a single dose of the therapy. https://bit.ly/3yR6taV

Catch up on the Column of the Week here: https://bit.ly/4dIUOtM

No gene therapy has been approved for HAE, but a pivotal Phase 3 trial testing an experimental one is expected to start later this year. Learn more about it: https://bit.ly/3YKobHE

Here is this week's most read article featured on our website! Are you caught up? https://bit.ly/4dKMOsh

In case you missed it, we offer some useful tips for navigating attacks when they can’t be avoided. Check them out here: https://bit.ly/3Yvy0cx

How has your diet changed since your diagnosis?

This HAE parent used to be annoyed when others offered not-so-similar health comparisons. Now she recognizes the attempt to connect. https://bit.ly/3SQnKIi

Recent findings show many patients delay or don’t treat their attacks. But why? Dive into the research here: https://bit.ly/3LXcJkD

Did you know irritability, anxiety, and other emotional changes can be an early sign of a swelling attack? Here are others: https://bit.ly/3Ack50R

Being an HAE caregiver used to challenge Danita LaShelle Jones, a planner who thrives in logistical situations. Now, she embraces the storms, knowing they’ll inevitably pass. https://bit.ly/3AjHUnx

One of the most common HAE attack triggers is stress, so managing its impacts in your life is crucial. Review possible triggers and how you can better cope with them: https://bit.ly/3YAkkgv

While racial disparities in HAE trials have improved in recent years, they still remain pervasive. Here’s what researchers found: https://bit.ly/3AfU3K8

Catch up on the Column of the Week here: https://bit.ly/3Yzo6qa

Use of angioedema medications depends on several factors. We break them down here: https://bit.ly/3SDCBFT

Explore “clinically relevant evidence” showing the oral therapy may be effective for HAE types not caused by a low or faulty C1-inhibitor: https://bit.ly/46yGGAH

Here is this week's most read article featured on our website! Are you caught up? https://bit.ly/46yEvxj

In case you missed it, we take a deep dive into HAE inheritance and explain why it’s not always as straightforward as a person with the disease passing it on to their children. https://bit.ly/3ykynfr

How long did it take you to receive a diagnosis?

Caregiving comes with its fair share of storms, ones that Danita LaShelle Jones used to have trouble weathering. Nowadays, she knows they’ll pass in due time. https://bit.ly/4ccAFLp

The increased risk applied to all substance use disorder subtypes, including excessive use of alcohol, to***co, cannabis, co***ne, and opioids. https://bit.ly/3Wu1wwG

There are a number of non-swelling symptoms that can signal an attack is coming. See if you recognize any of these: https://bit.ly/4c92JiR

Findings add to the “metabolite profile of HAE,” which, researchers say, isn’t presently well-defined. See why defining it is important: https://bit.ly/3WP2rcz

Those with rare diseases may struggle to understand what their “normal” feels like. One parent touches on the importance of listening to our body’s clues: https://bit.ly/3ysorQX

HAE inheritance is not always as straightforward as a person with the disease passing it on to their children. Learn why: https://bit.ly/3WuBSrB

See what factors contribute to markedly delayed diagnoses and the burden it puts on patients: https://bit.ly/4dsG8hY

The findings add to scarce research about differences in outcomes between type 1 and 2 patients and those with normal C1-inhibitor levels. Read more: https://bit.ly/3WN4Ow9