mothering_kimberley

mothering_kimberley

A SEN family on their journey with a daughter who has a rare genetic syndrome SYNGAP1 ID,Autism & OCD

05/10/2022

๐Ÿ’œ๐Ÿ’š๐Ÿ’™ ๐Ÿงฌ
SYNGAP1

18/05/2022

Iโ€™ve noticed that some people donโ€™t know how to communicate or interact with kimberley & itโ€™s sad to say itโ€™s closest ones to kimberley too which is heartbreaking as Kimberleys mom๐Ÿ’”

Kimberley loves nursery rhymes being sang to her she joins in , she loves ambulances ,police emergency services,peppa pig & loves being pushed on her hammock swing & loves water hot tub and swimming is her favourite.
I just wish some people would get to know kimberley for who she is.

If kimberley is ignored and not shown any interaction please donโ€™t expect kimberley to acknowledge or interact with you.

Kimberley is 10 years old ,she has complex needs & is moderate to severely impaired due to her SYNGAP1 intellectual disability and complex needs but when sheโ€™s shown interaction in any of the ways ok list above she will more than likely let you in her world and interact back.

I think it is either ignorance because kimberley isnโ€™t into what most 10 year olds are into or that someone just doesnโ€™t know how to interact with kimberley because of her complex needs which is sad but if you donโ€™t know how just ask me.

She isnโ€™t there to put on a show for you or to say this โ€ฆdo this. She just simply wonโ€™t acknowledge you if you donโ€™t show her youโ€™re willing to show patience and interact on her level.
Itโ€™s that simple ..INCLUSION โค๏ธ
This full video which is on YouTube
https://youtu.be/4INwx_tmTKw
Shows a little girl showing the boy who is on wheelchair love and acceptance and INCLUSION!!!!
โค๏ธ
Itโ€™s a sad ending but that little boy is shown love & INCLUSION which is all children with disabilities want at the end of the day

19/04/2022

A LITTLE EXPLANATION OF KIMBERLEYS SYNGAP1 BRAIN ๐Ÿง  ๐Ÿงฌ

Mutations in the SYNGAP1 gene occur randomly in s***m or eggs, leaving developing brains with half the amount of the brain with half amount of a crucial protein it needs for normal development. This protein, called not surprisingly the SYNGAP1 protein, stops neurons from sprouting too many connections. Without enough of this protein, young brains grow wild and unruly.
Their brain circuits become extra sensitive to stimulus, impeding learning by failing to extract much useful information about the world.
These overly connected brains are prone to epilepsy and a host of other symptoms.

๐Ÿ’œ

Photos from mothering_kimberley's post 13/03/2022

๐•๐•€๐•Š๐•Œ๐”ธ๐•ƒ ๐”ธ๐•€๐”ป๐•Š & โ„‚๐•†๐•„๐•„๐•Œโ„•๐•€โ„‚๐”ธ๐•‹๐•€๐•†โ„•

๐˜’๐˜ช๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ญ๐˜ฆ๐˜บ ๐˜ช๐˜ด ๐˜ง๐˜ช๐˜ฏ๐˜ฅ๐˜ช๐˜ฏ๐˜จ ๐˜ฉ๐˜ฆ๐˜ณ ๐˜ท๐˜ช๐˜ด๐˜ถ๐˜ข๐˜ญ ๐˜ต๐˜ช๐˜ฎ๐˜ฆ๐˜ต๐˜ข๐˜ฃ๐˜ญ๐˜ฆs & ๐˜•๐˜ฐ๐˜ธ,๐˜•๐˜ฆ๐˜น๐˜ต & ๐˜›๐˜ฉ๐˜ฆ๐˜ฏ ๐˜ต๐˜ช๐˜ฎ๐˜ฆ๐˜ต๐˜ข๐˜ฃ๐˜ญ๐˜ฆ ๐˜ฆ๐˜ข๐˜ด๐˜บ ๐˜ต๐˜ฐ ๐˜ค๐˜ฐ๐˜ฎ๐˜ฎ๐˜ถ๐˜ฏ๐˜ช๐˜ค๐˜ข๐˜ต๐˜ฆ ๐˜ธ๐˜ช๐˜ต๐˜ฉ ๐˜ข๐˜ด ๐˜ด๐˜ฉ๐˜ฆ ๐˜ค๐˜ข๐˜ฏ ๐˜ด๐˜ต๐˜ณ๐˜ถ๐˜จ๐˜จ๐˜ญ๐˜ฆ ๐˜ข๐˜ต ๐˜ต๐˜ช๐˜ฎ๐˜ฆ๐˜ด, ๐˜ด๐˜ฐ ๐˜ ๐˜ฐ๐˜ณ๐˜ฅ๐˜ฆ๐˜ณ๐˜ฆ๐˜ฅ ๐˜ต๐˜ฉ๐˜ฆ๐˜ด๐˜ฆ ๐˜ง๐˜ณ๐˜ฐ๐˜ฎ ๐˜ต๐˜ฉ๐˜ฆ๐˜บ ๐˜ข๐˜ณ๐˜ฆ ๐˜ท๐˜ช๐˜ด๐˜ถ๐˜ข๐˜ญ ๐˜ณ๐˜ฆ๐˜ด๐˜ฐ๐˜ถ๐˜ณ๐˜ค๐˜ฆ๐˜ด ๐˜ต๐˜ฐ ๐˜ฆ๐˜ฏ๐˜ฉ๐˜ข๐˜ฏ๐˜ค๐˜ฆ ๐˜ค๐˜ฐ๐˜ฎ๐˜ฎ๐˜ถ๐˜ฏ๐˜ช๐˜ค๐˜ข๐˜ต๐˜ช๐˜ฐ๐˜ฏ ๐˜ข๐˜ฏ๐˜ฅ ๐˜ญ๐˜ฆ๐˜ข๐˜ณ๐˜ฏ๐˜ช๐˜ฏ๐˜จ.

๐˜’๐˜ช๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ญ๐˜ฆ๐˜บ ๐˜ธ๐˜ช๐˜ญ๐˜ญ ๐˜ด๐˜ฐ๐˜ฐ๐˜ฏ ๐˜ฃ๐˜ฆ ๐˜ถ๐˜ด๐˜ช๐˜ฏ๐˜จ ๐˜ข ๐˜ˆ๐˜ˆ๐˜Š ๐˜‹๐˜ฆ๐˜ท๐˜ช๐˜ค๐˜ฆ ๐˜ฃ๐˜ถ๐˜ต ๐˜ง๐˜ฐ๐˜ณ ๐˜ต๐˜ฉ๐˜ฆ ๐˜ฑ๐˜ข๐˜ด๐˜ต ๐˜ค๐˜ฐ๐˜ถ๐˜ฑ๐˜ญ๐˜ฆ ๐˜ฐ๐˜ง ๐˜บ๐˜ฆ๐˜ข๐˜ณ๐˜ด ๐˜ด๐˜ฉ๐˜ฆโ€™๐˜ด ๐˜ฃ๐˜ฆ๐˜ฆ๐˜ฏ ๐˜ถ๐˜ด๐˜ช๐˜ฏ๐˜จ ๐˜—๐˜Œ๐˜Š๐˜š ๐˜ค๐˜ฐ๐˜ฎ๐˜ฎ๐˜ถ๐˜ฏ๐˜ช๐˜ค๐˜ข๐˜ต๐˜ช๐˜ฐ๐˜ฏ ๐˜ฃ๐˜ฐ๐˜ฐ๐˜ฌ ๐˜ข๐˜ต ๐˜ด๐˜ค๐˜ฉ๐˜ฐ๐˜ฐ๐˜ญ & ๐˜ต๐˜ฉ๐˜ฆ๐˜ด๐˜ฆ ๐˜ข๐˜ต ๐˜ฉ๐˜ฐ๐˜ฎ๐˜ฆ & ๐˜ฐ๐˜ถ๐˜ต & ๐˜ข๐˜ฃ๐˜ฐ๐˜ถ๐˜ต ๐˜ต๐˜ฐ ๐˜ฅ๐˜ฆ๐˜ค๐˜ณ๐˜ฆ๐˜ข๐˜ด๐˜ฆ ๐˜ฎ๐˜ฆ๐˜ญ๐˜ต๐˜ฅ๐˜ฐ๐˜ธ๐˜ฏ & ๐˜ง๐˜ณ๐˜ถ๐˜ด๐˜ต๐˜ณ๐˜ข๐˜ต๐˜ช๐˜ฐ๐˜ฏ ๐˜ต๐˜ฉ๐˜ข๐˜ต ๐˜ฌ๐˜ช๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ญ๐˜ฆ๐˜บ ๐˜ฉ๐˜ข๐˜ด ๐˜ฃ๐˜ฆ๐˜ค๐˜ข๐˜ถ๐˜ด๐˜ฆ ๐˜ด๐˜ฉ๐˜ฆ ๐˜ค๐˜ข๐˜ฏโ€™๐˜ต ๐˜ด๐˜ฆ๐˜ฆ ๐˜ธ๐˜ฉ๐˜ข๐˜ตโ€™๐˜ด ๐˜ฉ๐˜ข๐˜ฑ๐˜ฑ๐˜ฆ๐˜ฏ๐˜ช๐˜ฏ๐˜จ ๐˜ฏ๐˜ฆ๐˜น๐˜ต ๐˜ฃ๐˜ถ๐˜ต ๐˜ต๐˜ฉ๐˜ฆ๐˜ด๐˜ฆ ๐˜ข๐˜ณ๐˜ฆ ๐˜ฉ๐˜ฆ๐˜ญ๐˜ฑ๐˜ช๐˜ฏ๐˜จ ๐˜ฌ๐˜ช๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ญ๐˜ฆ๐˜บ ๐˜ธ๐˜ช๐˜ต๐˜ฉ ๐˜ต๐˜ณ๐˜ข๐˜ฏ๐˜ด๐˜ช๐˜ต๐˜ช๐˜ฐ๐˜ฏ.
๐˜Œ๐˜ท๐˜ฆ๐˜ณ๐˜บ ๐˜ต๐˜ช๐˜ฎ๐˜ฆ ๐˜ด๐˜ฉ๐˜ฆโ€™๐˜ด ๐˜ค๐˜ฐ๐˜ฎ๐˜ฑ๐˜ญ๐˜ฆ๐˜ต๐˜ฆ๐˜ฅ ๐˜ด๐˜ฐ๐˜ฎ๐˜ฆ๐˜ต๐˜ฉ๐˜ช๐˜ฏ๐˜จ , ๐˜ด๐˜ฉ๐˜ฆ ๐˜ต๐˜ข๐˜ฌ๐˜ฆ๐˜ด ๐˜ช๐˜ต ๐˜ฐ๐˜ง๐˜ง ๐˜ต๐˜ฉ๐˜ฆ ๐˜ต๐˜ช๐˜ฎ๐˜ฆ๐˜ต๐˜ข๐˜ฃ๐˜ญ๐˜ฆ & ๐˜ฌ๐˜ฏ๐˜ฐ๐˜ธ๐˜ด ๐˜ธ๐˜ฉ๐˜ข๐˜ตโ€™๐˜ด ๐˜ฏ๐˜ฆ๐˜น๐˜ต.

๐Ÿ’š

06/03/2022

Our kimberley ๐Ÿ’œ

Meet 10yo Kimberley, a beautiful, sweet Peppa Pig and Roblox loving kiddo!

In 2020 Kimberley received a life-changing diagnosis through Genomics England project, finally explaining her learning disability.

Massive thanks to mum Gabrielle Tonks Brown for sharing her story with our partner Rare Disease UK and raising awareness of - related disorder.

https://www.raredisease.org.uk/rduk-news/our-syngap1-story/

02/02/2022

๐˜’๐˜ช๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ญ๐˜ฆ๐˜บ ๐˜ด๐˜ฑ๐˜ฆ๐˜ญ๐˜ญ๐˜ช๐˜ฏ๐˜จ ๐˜ฐ๐˜ถ๐˜ต ๐˜ธ๐˜ฐ๐˜ณ๐˜ฅ๐˜ด โ€ฆ..
๐˜š๐˜ฐ ๐˜ฑ๐˜ณ๐˜ฐ๐˜ถ๐˜ฅ ๐˜ฐ๐˜ง ๐˜ฉ๐˜ฆ๐˜ณ ๐ŸŒŸ๐Ÿ™Œ๐Ÿผ

02/02/2022

SYNGAP1 ๐Ÿงฌ๐Ÿ’œ๐Ÿ’™๐Ÿ’š

09/10/2021

Please head over to my stories to watch the full videoโ€ฆ

https://www.instagram.com/tv/CT4-RWOlprR/?utm_medium=copy_link

๐Ÿ’œ๐Ÿ’™๐Ÿ’š๐Ÿงฌ

09/10/2021

So far 883 SYNGAP1 patients have been diagnosed around the world .
โ€ข
โ€ข
3Q21 = ๐ŸŒ 883

๐Ÿ‡บ๐Ÿ‡ธ246
๐Ÿ‡ฌ๐Ÿ‡ง115
๐Ÿ‡ซ๐Ÿ‡ท73
๐Ÿ‡ฉ๐Ÿ‡ช71
๐Ÿ‡จ๐Ÿ‡ณ41
๐Ÿ‡ณ๐Ÿ‡ฑ37
๐Ÿ‡ช๐Ÿ‡ธ32
๐Ÿ‡จ๐Ÿ‡ฆ29
๐Ÿ‡ฎ๐Ÿ‡น25
๐Ÿ‡ฆ๐Ÿ‡บ23
๐Ÿ‡ต๐Ÿ‡ฑ21
๐Ÿ‡ง๐Ÿ‡ท16
๐Ÿ‡ธ๐Ÿ‡ช๐Ÿ‡ฉ๐Ÿ‡ฐ11
๐Ÿ‡ท๐Ÿ‡บ10
๐Ÿ‡ง๐Ÿ‡ช9
๐Ÿ‡ฎ๐Ÿ‡ช8
๐Ÿ‡ณ๐Ÿ‡ด๐Ÿ‡จ๐Ÿ‡ญ7
๐Ÿ‡น๐Ÿ‡ท6
๐Ÿ‡จ๐Ÿ‡ฑ๐Ÿ‡จ๐Ÿ‡ด5
๐Ÿ‡ฐ๐Ÿ‡ท๐Ÿ‡ซ๐Ÿ‡ฎ๐Ÿ‡ฎ๐Ÿ‡ฑ๐Ÿ‡ช๐Ÿ‡ช๐Ÿ‡ต๐Ÿ‡น๐Ÿ‡ง๐Ÿ‡พ๐Ÿ‡ฆ๐Ÿ‡ท4
๐Ÿ‡ฆ๐Ÿ‡น๐Ÿ‡ฏ๐Ÿ‡ต๐Ÿ‡จ๐Ÿ‡ฟ๐Ÿ‡ธ๐Ÿ‡ฎ๐Ÿ‡บ๐Ÿ‡ฆ3
๐Ÿ‡ญ๐Ÿ‡ฐ๐Ÿ‡ท๐Ÿ‡ด๐Ÿ‡ท๐Ÿ‡ธ๐Ÿ‡ธ๐Ÿ‡ท๐Ÿ‡ฎ๐Ÿ‡ณ๐Ÿ‡ช๐Ÿ‡ฌ๐Ÿ‡ฒ๐Ÿ‡ฆ๐Ÿ‡ฒ๐Ÿ‡ฝ๐Ÿ‡ฒ๐Ÿ‡พ๐Ÿ‡ญ๐Ÿ‡บ2
๐Ÿ‡ง๐Ÿ‡ฆ๐Ÿ‡ธ๐Ÿ‡ฐ๐Ÿ‡น๐Ÿ‡น๐Ÿ‡ฉ๐Ÿ‡ฟ๐Ÿ‡ป๐Ÿ‡ช๐Ÿ‡ญ๐Ÿ‡ท๐Ÿ‡ฝ๐Ÿ‡ฐ๐Ÿ‡ธ๐Ÿ‡ฌ๐Ÿ‡ธ๐Ÿ‡ฆ๐Ÿ‡ฒ๐Ÿ‡จ๐Ÿ‡ถ๐Ÿ‡ฆ๐Ÿ‡ฉ๐Ÿ‡ด1
If we missed you, let us know!

https://www.syngapresearchfund.org/post/syngapcensus-2021-update-75-in-q3-2021

https://www.facebook.com/cureSYNGAP1/posts/884143132468150

30/09/2021

SYNGAP1
๐Ÿงฌ๐Ÿ’œ

07/09/2021

แดกสœแดโ€™๊œฑ สŸแดแดแด‹ษชษดษข แด€๊œฐแด›แด‡ส€ แดแดœส€ แด„สœษชสŸแด…ส€แด‡ษด แดกสœแด‡ษด แดกแด‡โ€™ส€แด‡ ษขแดษดแด‡?
โ€ข
โ€ข
โ€ข
What do you worry about the most in life?โ€ฆ.
Well let me tell you that this is my worst fear in life when weโ€™ve gone (myself & Mark) who looks after Kimberley?

Kimberley has already lost her Dadda as she called him at the age of 8 years old last year.
People often say to me donโ€™t think like that , donโ€™t worry but I have to else who will take care of my daughter with the needs she has?
โ€ขWill they undo what Kimberley wants ?
โ€ขWho will look after her like we do?
โ€ขwho will have the patience?
โ€ขwill she be okay?
โ€ขWill she be safe?
โ€ขWill she be happy?
โ€ขwill she cry for us?

I know from Nick passing away that itโ€™s so important to put things into place.

I wish I could take SYNGAP1 away us parents of syngapians really do, sheโ€™s Kimberley & who would she be without SYNGAP1โ€ฆ I have no idea but her life would be very different I know thatโ€ฆ
I canโ€™t go into what Kimberleyโ€™s life would be like because itโ€™s too heartbreaking.
Until youโ€™re all in my shoes you have no idea what us parents got brought on a daily basis with children that have needs.
Iโ€™m grateful for Kimberley but I do grieve the child she would of been.
You have plans when you have a child, you envision what your childโ€™s life might look likeโ€ฆ
no one prepared me for this life but I that Iโ€™m doing my best.

Photos from mothering_kimberley's post 02/09/2021

๐™ฑ๐šŠ๐šŒ๐š” ๐šƒ๐š˜ ๐š‚๐šŒ๐š‘๐š˜๐š˜๐š• ๐Ÿ“š
โ€ข
โ€ข
โ€ข
This morning was a success ๐Ÿ™Œ๐Ÿป
Kimberley was excited this morning to go back to school.
Last night we prepared uniform together ,talked about her new class using her PECS visuals & packed her bag.
We mama her to get up ,get ready & have some breakfast without any meltdowns ๐Ÿ™Œ๐Ÿป
Obviously she went out the door saying โ€œwโ€ for work โ€ฆ๐Ÿ˜…

Photos from mothering_kimberley's post 11/08/2021

โ„๐• ๐•ฃ๐•ค๐•– ๐•ฃ๐•š๐••๐•š๐•Ÿ๐•˜ ๐Ÿด
โ€ข
โ€ข
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๐˜š๐˜ฐ ๐˜ฑ๐˜ณ๐˜ฐ๐˜ถ๐˜ฅ ๐˜ฐ๐˜ง ๐˜’๐˜ช๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ญ๐˜ฆ๐˜บ ๐˜ต๐˜ฐ๐˜ฅ๐˜ข๐˜บ ๐˜ด๐˜ฉ๐˜ฆ ๐˜ข๐˜ค๐˜ฉ๐˜ช๐˜ฆ๐˜ท๐˜ฆ๐˜ฅ ๐˜ฉ๐˜ฆ๐˜ณ ๐˜Ž๐˜ณ๐˜ข๐˜ฅ๐˜ฆ 1 ๐˜ข๐˜ต ๐˜ฑ๐˜ฐ๐˜ฏ๐˜บ ๐˜ค๐˜ญ๐˜ถ๐˜ฃ ๐˜ต๐˜ฐ๐˜ฅ๐˜ข๐˜บ ,๐˜ด๐˜ฉ๐˜ฆ ๐˜ญ๐˜ช๐˜ด๐˜ต๐˜ฆ๐˜ฏ๐˜ฆ๐˜ฅ ๐˜ด๐˜ฐ ๐˜ธ๐˜ฆ๐˜ญ๐˜ญ ๐˜ต๐˜ฐ ๐˜ช๐˜ฏ๐˜ด๐˜ต๐˜ณ๐˜ถ๐˜ค๐˜ต๐˜ช๐˜ฐ๐˜ฏ๐˜ด ,๐˜ค๐˜ฉ๐˜ข๐˜ฏ๐˜จ๐˜ฆ ๐˜ฐ๐˜ง ๐˜ฑ๐˜ฐ๐˜ฏ๐˜บ ๐˜ต๐˜ฐ๐˜ฅ๐˜ข๐˜บ ๐˜ฃ๐˜ถ๐˜ต ๐˜ต๐˜ฉ๐˜ข๐˜ต ๐˜ธ๐˜ข๐˜ด ๐˜ฏ๐˜ฐ ๐˜ฑ๐˜ณ๐˜ฐ๐˜ฃ๐˜ญ๐˜ฆ๐˜ฎ ๐˜ด๐˜ฉ๐˜ฆ ๐˜ข๐˜ค๐˜ค๐˜ฆ๐˜ฑ๐˜ต๐˜ฆ๐˜ฅ ๐˜ต๐˜ฉ๐˜ฆ ๐˜ค๐˜ฉ๐˜ข๐˜ฏ๐˜จ๐˜ฆ ๐˜ธ๐˜ฆ๐˜ญ๐˜ญ.
๐˜’๐˜ช๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ญ๐˜ฆ๐˜บ ๐˜จ๐˜ณ๐˜ฐ๐˜ฐ๐˜ฎ๐˜ฆ๐˜ฅ ๐˜ฉ๐˜ฆ๐˜ณ ๐˜ฑ๐˜ฐ๐˜ฏ๐˜บ ๐˜™๐˜ฐ๐˜ด๐˜ช๐˜ฆ ๐˜ต๐˜ฐ๐˜ฅ๐˜ข๐˜บ ๐˜ถ๐˜ด๐˜ช๐˜ฏ๐˜จ ๐˜ข๐˜ญ๐˜ญ ๐˜ต๐˜ฉ๐˜ฆ ๐˜ค๐˜ฐ๐˜ณ๐˜ณ๐˜ฆ๐˜ค๐˜ต ๐˜ฃ๐˜ณ๐˜ถ๐˜ด๐˜ฉ๐˜ฆ๐˜ด.
๐˜’๐˜ช๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ญ๐˜ฆ๐˜บ ๐˜ญ๐˜ฆ๐˜ข๐˜ณ๐˜ฏ๐˜ต ๐˜ข๐˜ญ๐˜ญ ๐˜ข๐˜ฃ๐˜ฐ๐˜ถ๐˜ต ๐˜ฉ๐˜ฆ๐˜ณ ๐˜ด๐˜ข๐˜ฅ๐˜ฅ๐˜ญ๐˜ฆ & ๐˜ฃ๐˜ณ๐˜ช๐˜ฅ๐˜ญ๐˜ฆ (๐˜ต๐˜ข๐˜ค๐˜ฌ).
๐˜’๐˜ช๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ญ๐˜ฆ๐˜บ ๐˜ณ๐˜ฐ๐˜ฅ๐˜ฆ ๐˜ข๐˜ฎ๐˜ข๐˜ป๐˜ช๐˜ฏ๐˜จ ๐˜ต๐˜ฐ๐˜ฅ๐˜ข๐˜บ ๐˜ค๐˜ฐ๐˜ฏ๐˜ด๐˜ช๐˜ฅ๐˜ฆ๐˜ณ๐˜ช๐˜ฏ๐˜จ ๐˜ด๐˜ฉ๐˜ฆ ๐˜ณ๐˜ฐ๐˜ฅ๐˜ฆ ๐˜ข ๐˜ฏ๐˜ฆ๐˜ธ ๐˜ฑ๐˜ฐ๐˜ฏ๐˜บ ๐˜ต๐˜ฉ๐˜ข๐˜ต ๐˜ด๐˜ฉ๐˜ฆโ€™๐˜ด ๐˜ฏ๐˜ฐ๐˜ต ๐˜ฎ๐˜ฆ๐˜ต ๐˜ฃ๐˜ฆ๐˜ง๐˜ฐ๐˜ณ๐˜ฆ.
๐˜“๐˜ฐ๐˜ฐ๐˜ฌ๐˜ช๐˜ฏ๐˜จ ๐˜ง๐˜ฐ๐˜ณ๐˜ธ๐˜ข๐˜ณ๐˜ฅ ๐˜ต๐˜ฐ ๐˜ด๐˜ฆ๐˜ฆ๐˜ช๐˜ฏ๐˜จ ๐˜’๐˜ช๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ญ๐˜ฆ๐˜บ ๐˜ข๐˜ค๐˜ฉ๐˜ช๐˜ฆ๐˜ท๐˜ฆ ๐˜ฎ๐˜ฐ๐˜ณ๐˜ฆ ๐˜จ๐˜ณ๐˜ข๐˜ฅ๐˜ฆ๐˜ด & ๐˜ต๐˜ฐ ๐˜ด๐˜ฆ๐˜ฆ ๐˜ฉ๐˜ฆ๐˜ณ ๐˜ธ๐˜ฉ๐˜ฆ๐˜ฏ ๐˜ด๐˜ฉ๐˜ฆโ€™๐˜ด ๐˜ฎ๐˜ฐ๐˜ด๐˜ต ๐˜ฉ๐˜ข๐˜ฑ๐˜ฑ๐˜บ ๐˜ธ๐˜ฉ๐˜ช๐˜ค๐˜ฉ ๐˜ช๐˜ด ๐˜ฃ๐˜ข๐˜ค๐˜ฌ ๐˜ช๐˜ฏ ๐˜ต๐˜ฉ๐˜ฆ ๐˜ด๐˜ข๐˜ฅ๐˜ฅ๐˜ญ๐˜ฆ & ๐˜ข๐˜ณ๐˜ฐ๐˜ถ๐˜ฏ๐˜ฅ ๐˜ฑ๐˜ฐ๐˜ฏ๐˜ช๐˜ฆ๐˜ด.

05/08/2021

Life โค๏ธ

Photos from mothering_kimberley's post 04/08/2021

๐”ธ๐•Ÿ๐• ๐•ฅ๐•™๐•–๐•ฃ ๐••๐•’๐•ช ๐•š๐•Ÿ ๐•™๐•–๐•ฃ ๐•™๐•’๐•ก๐•ก๐•ช ๐•ก๐•๐•’๐•”๐•– ๐Ÿด
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๐˜’๐˜ช๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ญ๐˜ฆ๐˜บ ๐˜ด๐˜ต๐˜ข๐˜ณ๐˜ต๐˜ฆ๐˜ฅ ๐˜ฉ๐˜ฐ๐˜ณ๐˜ด๐˜ฆ ๐˜ณ๐˜ช๐˜ฅ๐˜ช๐˜ฏ๐˜จ 4 ๐˜บ๐˜ฆ๐˜ข๐˜ณ๐˜ด ๐˜ข๐˜จ๐˜ฐ & ๐˜ฅ๐˜ช๐˜ฅ๐˜ฏโ€™๐˜ต ๐˜ณ๐˜ช๐˜ฅ๐˜ฆ ๐˜ต๐˜ฉ๐˜ณ๐˜ฐ๐˜ถ๐˜จ๐˜ฉ๐˜ฐ๐˜ถ๐˜ต ๐˜ค๐˜ฐ๐˜ท๐˜ช๐˜ฅ, ๐˜ด๐˜ฉ๐˜ฆ ๐˜ช๐˜ด ๐˜ญ๐˜ฐ๐˜ท๐˜ช๐˜ฏ๐˜จ ๐˜ฃ๐˜ฆ๐˜ช๐˜ฏ๐˜จ ๐˜ฃ๐˜ข๐˜ค๐˜ฌ ๐˜ฅ๐˜ฐ๐˜ช๐˜ฏ๐˜จ ๐˜ธ๐˜ฉ๐˜ข๐˜ต ๐˜ด๐˜ฉ๐˜ฆ ๐˜ญ๐˜ฐ๐˜ท๐˜ฆ๐˜ด ๐˜ต๐˜ฉ๐˜ฆ ๐˜ฎ๐˜ฐ๐˜ด๐˜ต, ๐˜ด๐˜ฉ๐˜ฆโ€™๐˜ด ๐˜ข ๐˜ฅ๐˜ช๐˜ง๐˜ง๐˜ฆ๐˜ณ๐˜ฆ๐˜ฏ๐˜ต ๐˜จ๐˜ช๐˜ณ๐˜ญ ๐˜ธ๐˜ฉ๐˜ฆ๐˜ฏ ๐˜ด๐˜ฉ๐˜ฆโ€™๐˜ด ๐˜จ๐˜ฐ๐˜ต ๐˜ฉ๐˜ฆ๐˜ณ ๐˜ซ๐˜ฐ๐˜ฅ๐˜ฉ๐˜ฑ๐˜ถ๐˜ณ๐˜ด ๐˜ฃ๐˜ฐ๐˜ฐ๐˜ต๐˜ด & ๐˜ฉ๐˜ข๐˜ต ๐˜ฐ๐˜ฏ.
๐˜‰๐˜ณ๐˜ช๐˜ฏ๐˜จ๐˜ด ๐˜ฃ๐˜ข๐˜ค๐˜ฌ ๐˜ฎ๐˜ฆ๐˜ฎ๐˜ฐ๐˜ณ๐˜ช๐˜ฆ๐˜ด ๐˜ง๐˜ฐ๐˜ณ ๐˜ฎ๐˜ฆ ๐˜ธ๐˜ฉ๐˜ฆ๐˜ฏ ๐˜ ๐˜ถ๐˜ด๐˜ฆ๐˜ฅ ๐˜ต๐˜ฐ ๐˜จ๐˜ฐ ๐˜ถ๐˜ฑ ๐˜ต๐˜ฉ๐˜ฆ ๐˜บ๐˜ข๐˜ณ๐˜ฅ ๐˜ฎ๐˜ถ๐˜ค๐˜ฌ ๐˜ฐ๐˜ถ๐˜ต & ๐˜ณ๐˜ช๐˜ฅ๐˜ฆ ๐˜ด๐˜ฐ ๐˜โ€™๐˜ฎ ๐˜ญ๐˜ฐ๐˜ท๐˜ช๐˜ฏ๐˜จ ๐˜ช๐˜ต ๐˜ต๐˜ฐ๐˜ฐ & ๐˜ด๐˜ฉ๐˜ข๐˜ณ๐˜ช๐˜ฏ๐˜จ ๐˜ต๐˜ฉ๐˜ช๐˜ด ๐˜ฉ๐˜ฐ๐˜ฃ๐˜ฃ๐˜บ ๐˜ต๐˜ฐ๐˜จ๐˜ฆ๐˜ต๐˜ฉ๐˜ฆ๐˜ณ ๐˜ช๐˜ด ๐˜ฑ๐˜ฆ๐˜ณ๐˜ง๐˜ฆ๐˜ค๐˜ต ๐˜ง๐˜ฐ๐˜ณ ๐˜ถ๐˜ด ๐˜ฃ๐˜ฐ๐˜ต๐˜ฉ.

Photos from mothering_kimberley's post 28/07/2021

๐™ท๐š˜๐š›๐šœ๐šŽ๐šœ ๐š›๐šŽ๐šŠ๐š•๐š•๐šข ๐šŠ๐š›๐šŽ ๐š๐š‘๐šŽ ๐š‹๐šŽ๐šœ๐š ๐š๐š‘๐šŽ๐š›๐šŠ๐š™๐šข๐Ÿ’•

๐˜”๐˜ฆ๐˜ฆ๐˜ต ๐˜˜๐˜ถ๐˜ช๐˜ฏ๐˜ค๐˜บ ๐Ÿด

๐˜’๐˜ช๐˜ฎ๐˜ฃ๐˜ฆ๐˜ณ๐˜ญ๐˜ฆ๐˜บ ๐˜ญ๐˜ฐ๐˜ท๐˜ฆ๐˜ด ๐˜ต๐˜ฐ ๐˜ณ๐˜ช๐˜ฅ๐˜ฆ & ๐˜ต๐˜ฉ๐˜ช๐˜ด ๐˜ธ๐˜ช๐˜ญ๐˜ญ ๐˜ฃ๐˜ฆ ๐˜ฐ๐˜ถ๐˜ณ ๐˜ญ๐˜ช๐˜ต๐˜ต๐˜ญ๐˜ฆ ๐˜ฉ๐˜ฐ๐˜ฃ๐˜ฃ๐˜บ ๐˜ธ๐˜ฆ ๐˜ฏ๐˜ฐ๐˜ธ ๐˜ฉ๐˜ข๐˜ท๐˜ฆ ๐˜ต๐˜ฐ๐˜จ๐˜ฆ๐˜ต๐˜ฉ๐˜ฆ๐˜ณ โ€ฆ ๐˜ค๐˜ข๐˜ฏโ€™๐˜ต ๐˜ธ๐˜ข๐˜ช๐˜ต ๐˜ง๐˜ฐ๐˜ณ ๐˜ต๐˜ฉ๐˜ฆ ๐˜ง๐˜ถ๐˜ต๐˜ถ๐˜ณ๐˜ฆ ๐˜ธ๐˜ฉ๐˜ฆ๐˜ฏ ๐˜ธ๐˜ฆ ๐˜ค๐˜ข๐˜ฏ ๐˜ฉ๐˜ข๐˜ค๐˜ฌ ๐˜ฐ๐˜ถ๐˜ต ๐˜ต๐˜ฐ๐˜จ๐˜ฆ๐˜ต๐˜ฉ๐˜ฆ๐˜ณ.
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๐™†๐™ž๐™ข๐™—๐™š๐™ง๐™ก๐™š๐™ฎ ๐™›๐™ค๐™ง ๐™ฉ๐™๐™š ๐™›๐™ž๐™ง๐™จ๐™ฉ ๐™ฉ๐™ž๐™ข๐™š ๐™ž๐™ฃ ๐™–๐™œ๐™š๐™จ ๐™–๐™ก๐™ก๐™ค๐™ฌ๐™š๐™™ ๐™ข๐™š ๐™ฉ๐™ค ๐™ฅ๐™ก๐™–๐™ž๐™ฉ ๐™๐™š๐™ง ๐™๐™–๐™ž๐™ง ๐™ฉ๐™ค๐™ค ๐ŸŒŸ


SYNGAP1

Photos from mothering_kimberley's post 28/02/2021

Today is RARE DISEASE DAY 2021

Our Kimberley is rare ,one of a kind ,beautiful in every way.
Kimberley was diagnosed nearly a year ago with a rare condition called SYNGAP1.

A SYNGAP1 gene mutation can cause a variety of symptoms.
Symptoms vary between each individual affected and can range from mild to severe. The most common symptoms include:

โ€ขLearning Disabilities
โ€ขEpilepsy
โ€ขBehavioural Challenges
โ€ขAutism
โ€ขSensory Processing Disorder
โ€ขSleep difficulties
โ€ขIntellectual disability
โ€ขGlobal developmental delay
โ€ขLanguage
โ€ขHypotonia
& many more....

๐Ÿ’œ300 million people living with rare disease worldwide.There are over 6000 different rare diseases.

๐Ÿ’œ 72% rare diseases are genetic.

๐Ÿ’œ 70% of those genetic rare diseases start in childhood.

On rare disease day we call for action for people living with a rare disease to have equal opportunities to realise their full participation in family ,work & social life.

โ™ก Rare is MANY
โ™ก Rare is STRONG
โ™ก Rare is PROUD

11/02/2021

Kimberley wants to sign a huge thank you!
Honestly to all that have kindly shared & donated thank you so much.... this means so much to usโค๏ธ

Kimberley is 1 of 705 around the world to date diagnosed with a rare condition called SYNGAP1, we are raising awareness & funding for a treatment or cure one day for all affected by SYNGAP1.

SYNGAP1 is so rare & this is why we need to raise as much awareness as we can.
Iโ€™ll be fundraising till the end as a mom you want the best fit your children & I wonโ€™t stop till we find a treatment. Kimberleyโ€™s life is different to others her age & has,does & will affect her.
I feel so passionate as any parent would do about their child.

Our journey began when our concerns were raised when Kimberley was 6 months old but was told by a HV that Kimberley woukd soon meet her milestones in time, but milestones were not being reached, there was no babbling & Kimberley was non verbal , after many blood tests, examinations,assessments & mri scans ,consultants had said she was delayed but were unsure why.
Weโ€™d taken part in a the 100,000 genomes project which was for the findings of rare diseases of patients without findings of a diagnosis, we knew weโ€™d might not get any results but weโ€™re determined & remained positive.
After a long wait of 4 years we were called to go to B*H to see our consultant back in March 2020 where she told us what Kimberleyโ€™s results were.
I remember crying in the room with Kimberleyโ€™s dad
Nick , the relief of finally having some answers of what had been a hard journey of what Kimberley had been through.
We were told SYNGAP1 was very rare & that only 250 in the world to date had it but were adamant that there were others & if awareness wasnโ€™t raised we wouldnโ€™t find treatment or even a cure.
Since that day I have not stopped researching Iโ€™ve virtually met other families in the uk and around the world, we are all working together to raise awareness & fundraise for a treatment or cure one day!
I will be doing a personal video of how SYNGAP1 affects Kimberley & us as a family soon to go inn more depth of SYNGAP1, so if anyone has any questions please pop them in the comments below & Iโ€™ll gladly answer them on the v

Timeline photos 31/01/2021

REPOST

แด„แดษด๊œฐแด‡๊œฑ๊œฑษชแดษด๊œฑ แด๊œฐ แด€ ๊œฑแด˜แด‡แด„ษชแด€สŸ ษดแด‡แด‡แด…๊œฑ แดแด€แดแด€: ษชแด› ๊œฐแด‡แด‡สŸ๊œฑ สŸษชแด‹แด‡ แด›สœแด‡ แด„แด€ส€แด‡ษขษชแด แด‡ส€ ส€แดสŸแด‡ แดแด แด‡ส€แด›แด€แด‹แด‡๊œฑ แดแดแด›สœแด‡ส€สœแดแดแด…โฃ
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๊œฑแด„สœแด‡แด…แดœสŸษชษดษข แด€แด˜แด˜แดษชษดแด›แดแด‡ษดแด›๊œฑ. แด€แด…แดษชษดษช๊œฑแด›แด‡ส€ษชษดษข แดแด‡แด…๊œฑ แด€ษดแด… แด…แด€ษชสŸส ษชษดแด›แด‡ส€แด แด‡ษดแด›ษชแดษด๊œฑ. แดกแดส€แด‹ษชษดษข แดษด แด›สœแด‡ส€แด€แด˜ส ษขแดแด€สŸ๊œฑ. แด…แดแด„แด›แดส€ แด€แด˜แด˜แดษชษดแด›แดแด‡ษดแด›๊œฑ. แด˜ส€แดแด„แด‡แด…แดœส€แด‡๊œฑ. แด˜สœแดษดแด‡ แด„แด€สŸสŸ๊œฑ .ส™แด‡ษชษดษข แด›สœแด‡ แด›สœแด‡ แด˜แดษชษดแด› แด˜แด‡ส€๊œฑแดษด ๊œฐแดส€ แดแด€ษดแด€ษขษชษดษข ๊œฑแด‡แด แด‡ส€แด€สŸ แด…ษช๊œฐ๊œฐแด‡ส€แด‡ษดแด› ๊œฑแด˜แด‡แด„ษชแด€สŸษช๊œฑแด›๊œฑ แด€ษดแด… แด„แด€ส€แด‡ แด›แด‡แด€แด๊œฑ. แดส€แด…แด‡ส€ษชษดษข แดแด‡แด…ษชแด„แด€สŸ ๊œฑแดœแด˜แด˜สŸษชแด‡๊œฑ แด€ษดแด… แดแด‡แด…ษชแด„ษชษดแด‡ ส€แด‡๊œฐษชสŸสŸ๊œฑ. แด›สœแด‡๊œฑแด‡ แด€ส€แด‡ แด€สŸสŸ แดส แด…แด€ษชสŸส ส€แด‡แด€สŸษชแด›ส แด€ษดแด… ๊œฑแดแดแด‡แด›ษชแดแด‡๊œฑ, ษช ๊œฐแด‡แด‡สŸ แดแดส€แด‡ สŸษชแด‹แด‡ แด€ แด˜แด‡ส€๊œฑแดษดแด€สŸ แด€๊œฑ๊œฑษช๊œฑแด›แด€ษดแด› ส€แด€แด›สœแด‡ส€ แด›สœแด€ษด แด€ แดแดแด แด€ษดแด… แด›สœแด€แด› ษช ๊œฑแดแดแด‡แด›ษชแดแด‡๊œฑ แดษช๊œฑ๊œฑ แดแดœแด› แดษด แด›สœแด‡ ส™แดษดแด…ษชษดษข แด˜แด€ส€แด› แด๊œฐ แดแดแด›สœแด‡ส€สœแดแดแด….โฃ
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แดกสœแด‡ษด ษช แด‡ษดแด ษช๊œฑษชแดษดแด‡แด… แดแดแด›สœแด‡ส€สœแดแดแด… ส™แด‡๊œฐแดส€แด‡ ษช สœแด€แด… แด‹ษชแดส™แด‡ส€สŸแด‡ส, ษช แด„แด€ษดโ€™แด› ๊œฑแด€ส ษช สœแด€แด… ส€แด‡แด€สŸษช๊œฑแด›ษชแด„ แด‡xแด˜แด‡แด„แด›แด€แด›ษชแดษด๊œฑ ส™แด‡แด„แด€แดœ๊œฑแด‡ แดแดแด›สœแด‡ส€สœแดแดแด… ษช๊œฑ ษดแดแด› ๊œฑแดแดแด‡แด›สœษชษดษข สแดแดœ แด„แด€ษด แด‡แด แด‡ส€ แด€แด„แด›แดœแด€สŸสŸส ส™แด‡ แด˜ส€แด‡แด˜แด€ส€แด‡แด… ๊œฐแดส€, ส™แดœแด› ส™แด‡ษชษดษข แด€ ษดแดœส€๊œฑแด‡, แด›สœแด‡ส€แด€แด˜ษช๊œฑแด›, แด˜แด‡ส€๊œฑแดษดแด€สŸ แด€๊œฑ๊œฑษช๊œฑแด›แด€ษดแด›, แด€แด…แด แดแด„แด€แด›แด‡, สŸษชแด€ษช๊œฑแดษด ส™แด‡แด›แดกแด‡แด‡ษด ๊œฑแด˜แด‡แด„ษชแด€สŸษช๊œฑแด›๊œฑ, แด‡แด›แด„ แดกแด€๊œฑ ษดแดแด› ๊œฑแดแดแด‡แด›สœษชษดษข ษช แด‡แด แด‡ส€ ษชแดแด€ษขษชษดแด‡แด… แดกแดแดœสŸแด… ส™แด‡ แด€ แด˜แด€ส€แด› แด๊œฐ แดแดแด›สœแด‡ส€สœแดแดแด…. โฃ
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แด›สœแด‡ส€แด‡ แด€ส€แด‡ แด…แด€ส๊œฑ แด›สœแด€แด› ษช แดกษช๊œฑสœ ษช แด„แดแดœสŸแด… แดŠแดœ๊œฑแด› ๊œฐษชx สœแด‡ส€ แด„สœษชแด„แด‹แด‡ษด ษดแดœษขษขแด‡แด›๊œฑ แด€ษดแด… แดกแด‡ แด„แดแดœสŸแด… สœษชแด…แด‡ แด€แดกแด€ส ษชษด แด€ ส™สŸแด€ษดแด‹แด‡แด› ๊œฐแดส€แด› ๊œฐแดส€ แด€ ๊œฐแด‡แดก สœแดแดœส€๊œฑ ษดแดแด› ษขแด‡แด›แด›ษชษดษข ษชษดแด›แด‡ส€ส€แดœแด˜แด›แด‡แด… ส™ส ษข-แด›แดœส™แด‡ ๊œฐแด‡แด‡แด…๊œฑ, แดแด‡แด…ษชแด„ษชษดแด‡ ๊œฑแด„สœแด‡แด…แดœสŸแด‡๊œฑ, แด€แด˜แด˜แดษชษดแด›แดแด‡ษดแด›๊œฑ, แดส€ แด„แด€สŸสŸ๊œฑ ๊œฐส€แดแด แด…แดแด„แด›แดส€๊œฑ. โฃ
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สœแดแดกแด‡แด แด‡ส€, แด›สœแด€แด› ษช๊œฑ ษดแดแด› แดแดœส€ ส€แด‡แด€สŸษชแด›ส แด€ษดแด… แด›สœแด€แด›โ€™๊œฑ แดแด‹แด€ส. แดแด€สส™แด‡ แดษดแด‡ แด…แด€ส, ษชแด› แดกษชสŸสŸ ส™แด‡ ส™แดœแด› ๊œฐแดส€ ส€ษชษขสœแด› ษดแดแดก ษช แดกษชสŸสŸ ส€แด‡แดแด‡แดส™แด‡ส€ แด›สœแด€แด› แด›สœแด‡๊œฑแด‡ แด‡xแด›ส€แด€ ส€แดสŸแด‡๊œฑ ษช สœแด€แด แด‡ แดแด€แด…แด‡ แดแด‡ แด›สœแด‡ แด˜แด‡ส€๊œฑแดษด ษช แด€แด แด›แดแด…แด€ส. แดแดแด›สœแด‡ส€สœแดแดแด… แดแด€ส ส™แด‡ แด€ สŸษชแด›แด›สŸแด‡ แดแดส€แด‡ แด„แดแดแด˜สŸแด‡x แดกสœแด‡ษด ส€แด€ษช๊œฑษชษดษข แด€ แด„สœษชสŸแด… แดกษชแด›สœ แด…ษช๊œฐ๊œฐแด‡ส€แด‡ษดแด› ษดแด‡แด‡แด…๊œฑ, ส™แดœแด› ษชแด› สœแด€๊œฑ แด›แด€แดœษขสœแด› แดแด‡ สŸแด‡๊œฑ๊œฑแดษด๊œฑ แด›สœแด€แด› ษช ษดแด‡แด แด‡ส€ แดกแดแดœสŸแด… สœแด€แด แด‡ สŸแด‡แด€ส€ษดแด‡แด… ษช๊œฐ แด‡แดแด‡ส€ส แดกแด‡ส€แด‡ แด›สแด˜ษชแด„แด€สŸ. แด…แด ษช ๊œฑแดแดแด‡แด›ษชแดแด‡๊œฑ แดกษช๊œฑสœ ๊œฑสœแด‡ สœแด€แด… แด€ษด แด‡แด€๊œฑษชแด‡ส€ ส€แดแด€แด…? แด€ส™๊œฑแดสŸแดœแด›แด‡สŸส. แด…แด ษช ๊œฑแดแดแด‡แด›ษชแดแด‡๊œฑ แดกษช๊œฑสœ ษช แด„แดแดœสŸแด… แด›แด€แด‹แด‡ แด€แดกแด€ส ๊œฑแดแดแด‡ แด๊œฐ แดส แด‡xแด›ส€แด€ แด…แดœแด›ษชแด‡๊œฑ? สแด‡๊œฑ. แด›สœแด€แด› แด…แดแด‡๊œฑษดโ€™แด› แดแด‡แด€ษด ษช แด…แดษดโ€™แด› สŸแดแด แด‡ แด€ษดแด… แด€แด…แดส€แด‡ แดส ๊œฑแดกแด‡แด‡แด›, แด˜ส€แด‡แด„ษชแดแดœ๊œฑ ษขษชส€สŸ ๊œฐแดส€ แด‡แด แด‡ส€ส ส™ษชแด› แด๊œฐ แดกสœแด ๊œฑสœแด‡ ษช๊œฑ แด€ษดแด… สœแดแดก ๊œฑสœแด‡ สœแด€๊œฑ แด„สœแด€ษดษขแด‡แด… แดส สŸษช๊œฐแด‡. โฃ
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๊œฑแด, ษช แดกษชสŸสŸ แด‹แด‡แด‡แด˜ แดษด ๊œฑแดแด€แด‹ษชษดษข แดœแด˜ แด‡แด แด‡ส€ส สŸษชแด›แด›สŸแด‡ แดแดแดแด‡ษดแด› แด๊œฐ แด›สœแด‡ แด›ษชแดแด‡๊œฑ ษชษด ส™แด‡แด›แดกแด‡แด‡ษด แด€แด˜แด˜แดษชษดแด›แดแด‡ษดแด›๊œฑ, แด›สœแด‡ แด›ษชแดแด‡๊œฑ ษชษด ส™แด‡แด›แดกแด‡แด‡ษด แดแด‡แด…ษชแด„ษชษดแด‡๊œฑ, แด›สœแด‡ แด›ษชแดแด‡๊œฑ ษชษด ส™แด‡แด›แดกแด‡แด‡ษด แด›สœแด‡ส€แด€แด˜ส แด€ษดแด… ส€แด‡แดแด‡แดส™แด‡ส€ แด›สœแด€แด› แดแดแด›สœแด‡ส€สœแดแดแด… ษช๊œฑ ส™แด‡แด€แดœแด›ษช๊œฐแดœสŸ แด‡แด แด‡ษด แดกสœแด‡ษด ษชแด›โ€™๊œฑ แดแด‡๊œฑ๊œฑส. โฃ
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Photos from mothering_kimberley's post 24/01/2021

๐˜๐จ๐ฎ ๐ง๐ž๐ฏ๐ž๐ซ ๐ค๐ง๐จ๐ฐ ๐ฐ๐ก๐š๐ญโ€™๐ฌ ๐ ๐จ๐ข๐ง๐  ๐จ๐ง ๐ข๐ง ๐š๐ง๐ฒ๐จ๐ง๐žโ€™๐ฌ ๐ฅ๐ข๐Ÿ๐ž... ๐ฌ๐จ ๐›๐ž ๐ค๐ข๐ง๐.

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Our Mental health matters more than ever right now !
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Please reach out to a family member, a friend, your GP , even someone on here ...anyone!!
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These are just a few pics that were taken after or during me going through depression & anxiety.
I smile on all them but you can see in my eyes that thereโ€™s so much pain but I just felt so numb.
Iโ€™m in a better ,happier & healthier place now I spoke out & got the help I needed & now I cope with life & its tribulations with a clearer head & Iโ€™m here to tell my story.
Donโ€™t give up on yourself ...Iโ€™m here a DM or call away to listen.
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Timeline photos 23/01/2021

๐™ฒ๐šŠ๐š—โ€™๐š ๐š›๐šŽ๐š™๐š•๐šŠ๐šŒ๐šŽ ๐šข๐š˜๐šž๐š› ๐š–๐š’๐š—๐š, ๐š‹๐šŽ ๐š”๐š’๐š—๐š ๐š๐š˜ ๐šข๐š˜๐šž๐š›๐šœ๐šŽ๐š•๐š
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Timeline photos 21/01/2021

๐—ฆ๐—ฌ๐—ก๐—š๐—”๐—ฃ๐Ÿญ ๐˜€๐˜†๐—บ๐—ฝ๐˜๐—ผ๐—บ๐˜€ ๐Ÿงฌ๐Ÿ’œ

19/01/2021

แด›สœแด‡ สŸแด€แดก สœแด€๊œฑ ษขษชแด แด‡ษด แดœ๊œฑ ส€ษชษขสœแด›๊œฑ ส™แดœแด› แด…แดษดโ€™แด› ษดแด‡แด„แด‡๊œฑ๊œฑแด€ส€ษชสŸส แด„สœแด€ษดษขแด‡ แด›สœแด‡ แดกแด€ส สœแดแดก ๊œฑแดแด„ษชแด‡แด›ส ๊œฑแด‡แด‡ แดœ๊œฑ ...
แดกแด‡โ€™แด แด‡ แด„แดแดแด‡ แด€สŸแดษดษข แดกแด€ส ส™แดœแด› ๊œฑแด›ษชสŸสŸ สœแด€แด แด‡ แด€ สŸแดษดษข แดกแด€ส แด€สœแด‡แด€แด… แด๊œฐ แดœ๊œฑ.
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Timeline photos 10/01/2021

๐‘ฐ๐’‡ ๐’š๐’๐’–โ€™๐’—๐’† ๐’๐’†๐’—๐’†๐’“ ๐’•๐’‰๐’๐’–๐’ˆ๐’‰๐’• ๐’‚๐’ƒ๐’๐’–๐’• ๐’•๐’‰๐’‚๐’• ... ๐’ƒ๐’† ๐’•๐’‰๐’‚๐’๐’Œ๐’‡๐’–๐’.
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๐™ฐ๐šœ ๐™บ๐š’๐š–๐š‹๐šŽ๐š›๐š•๐šŽ๐šข ๐š’๐šœ ๐š๐šŽ๐š๐š๐š’๐š—๐š ๐š˜๐š•๐š๐šŽ๐š› ๐™ธ ๐š˜๐š๐š๐šŽ๐š— ๐š๐š‘๐š’๐š—๐š” ๐š˜๐š ๐š‘๐šŽ๐š› ๐š๐šž๐š๐šž๐š›๐šŽ & ๐š‘๐š˜๐š  ๐šœ๐š‘๐šŽ ๐š ๐š’๐š•๐š• ๐šŠ๐š•๐š ๐šŠ๐šข๐šœ ๐š•๐š’๐š—๐šŽ ๐š ๐š’๐š๐š‘ ๐šž๐šœ .
๐š’๐šโ€™๐šœ ๐š‘๐šŠ๐š›๐š ๐š๐š˜ ๐šŒ๐š˜๐š–๐šŽ ๐š๐š˜ ๐š๐šŽ๐š›๐š–๐šœ ๐š ๐š’๐š๐š‘ ๐š๐š‘๐šŽ ๐š๐šŠ๐šŒ๐š ๐šœ๐š‘๐šŽ ๐š ๐š˜๐š—โ€™๐š ๐š๐š˜ ๐š‘๐šŽ๐š› ๐šŽ๐šก๐šŠ๐š–๐šœ, ๐šŠ๐š๐š๐šŽ๐š—๐š ๐šŒ๐š˜๐š•๐š•๐šŽ๐š๐šŽ/๐šž๐š—๐š’๐šŸ๐šŽ๐š›๐šœ๐š’๐š๐šข, ๐šœ๐š‘๐šŽ ๐š ๐š˜๐š—โ€™๐š ๐š๐š˜ ๐š๐šŽ๐š ๐š๐š›๐šž๐š—๐š” ๐š ๐š’๐š๐š‘ ๐š‘๐šŽ๐š› ๐š๐š›๐š’๐šŽ๐š—๐š๐šœ, ๐šœ๐š‘๐šŽ ๐š ๐š˜๐š—โ€™๐š ๐š‘๐šŠ๐šŸ๐šŽ ๐š๐šŠ๐š•๐š• ๐š˜๐šž๐š๐šœ ๐š ๐š’๐š๐š‘ ๐šŠ ๐š‹๐š˜๐šข๐š๐š›๐š’๐šŽ๐š—๐š ๐š˜๐š› ๐š๐š’๐š›๐š•๐š๐š›๐š’๐šŽ๐š—๐š & ๐šŒ๐š˜๐š–๐šŽ ๐šŒ๐š›๐šข๐š’๐š—๐š ๐š๐š˜ ๐š–๐šŽ. ๐šœ๐š‘๐šŽ ๐š ๐š˜๐š—โ€™๐š ๐š‘๐šŠ๐šŸ๐šŽ ๐š‘๐šŽ๐š› ๐š™๐šŽ๐š›๐š’๐š˜๐š๐šœ ๐š‹๐šŽ๐šŒ๐šŠ๐šž๐šœ๐šŽ ๐šœ๐š‘๐šŽ ๐š ๐š’๐š•๐š• ๐š‘๐šŠ๐šŸ๐šŽ ๐š๐š˜ ๐š‘๐šŠ๐šŸ๐šŽ ๐š๐š‘๐šŽ๐š– ๐šœ๐š๐š˜๐š™๐š™๐šŽ๐š ๐š ๐š‘๐šŠ๐š ๐š‘๐šŽ๐š› ๐šŽ๐š•๐š๐šŽ๐šœ๐š ๐šœ๐š’๐šœ๐š๐šŽ๐š› ๐š ๐š’๐š•๐š• , ๐šœ๐š‘๐šŽ ๐š ๐š˜๐š—โ€™๐š ๐š‘๐šŠ๐šŸ๐šŽ ๐š๐š‘๐šŽ ๐šœ๐šŠ๐š–๐šŽ ๐š˜๐š™๐š™๐š˜๐š›๐š๐šž๐š—๐š’๐š๐š’๐šŽ๐šœ ๐™ธ ๐š‘๐šŠ๐š ๐š๐š›๐š˜๐š ๐š’๐š—๐š ๐šž๐š™.
๐šœ๐š‘๐šŽ ๐š ๐š˜๐š—โ€™๐š ๐š๐šŽ๐š ๐š–๐šŠ๐š›๐š›๐š’๐šŽ๐š ๐š˜๐š› ๐š‹๐šŽ ๐š•๐š˜๐šŸ๐šŽ๐š ๐š‹๐šข ๐šŠ ๐š™๐šŠ๐š›๐š๐š—๐šŽ๐š›, ๐šœ๐š‘๐šŽ ๐š ๐š˜๐š—โ€™๐š ๐š‘๐šŠ๐šŸ๐šŽ ๐šŠ ๐š๐šŠ๐š–๐š’๐š•๐šข ๐š˜๐š ๐š‘๐šŽ๐š› ๐š˜๐š ๐š—.

๐‘จ๐‘บ ๐‘ฐ ๐‘ป๐’€๐‘ท๐‘ฌ ๐‘ป๐‘ฏ๐‘ฐ๐‘บ ๐‘ฐ ๐‘ช๐‘น๐’€ ๐‘ฐ ๐‘ฎ๐‘น๐‘ฐ๐‘ฌ๐‘ฝ๐‘ฌ ๐‘ป๐‘ฏ๐‘ฌ ๐‘ช๐‘ฏ๐‘ฐ๐‘ณ๐‘ซ ๐‘ฐ ๐‘ป๐‘ฏ๐‘ถ๐‘ผ๐‘ฎ๐‘ฏ๐‘ป ๐‘ฐ๐‘ซ ๐‘ฏ๐‘จ๐‘ฝ๐‘ฌ ๐Ÿ’”

๐–ช๐—‚๐—†๐–ป๐–พ๐—‹๐—…๐–พ๐—’ ๐—๐—‚๐—…๐—… ๐—‡๐–พ๐—๐–พ๐—‹ ๐—€๐—‹๐—ˆ๐— ๐—Ž๐—‰ ๐—†๐–พ๐—‡๐—๐–บ๐—…๐—…๐—’ ๐—Œ๐—๐–พโ€™๐—…๐—… ๐—Œ๐—๐–บ๐—’ ๐–ผ๐—๐—‚๐—…๐–ฝ ๐—…๐—‚๐—„๐–พ ๐–ฟ๐—ˆ๐—‹๐–พ๐—๐–พ๐—‹.

๐—ˆ๐—‡๐–พ ๐–ฝ๐–บ๐—’ ๐—๐–พ ๐—†๐—‚๐—€๐—๐— ๐—๐–บ๐—๐–พ ๐—๐—‹๐–พ๐–บ๐—๐—†๐–พ๐—‡๐— ๐—ˆ๐—‹ ๐—Œ ๐–บ๐—Œ ๐–ผ๐—Ž๐—‹๐–พ ๐–ป๐—Ž๐— ๐—๐–พ ๐–บ๐—…๐—Œ๐—ˆ ๐—†๐—‚๐—€๐—๐— ๐—‡๐—ˆ๐— , ๐–จ ๐–ฟ๐—‚๐—€๐—๐— ๐—๐—‚๐—๐— ๐—ˆ๐—๐—๐–พ๐—‹ ๐–ฒ๐–ธ๐–ญ๐–ฆ๐– ๐–ฏ1 ๐–ฟ๐–บ๐—†๐—‚๐—…๐—‚๐–พ๐—Œ ๐–ฟ๐—ˆ๐—‹ ๐–บ ๐—๐—‹๐–พ๐–บ๐—๐—†๐–พ๐—‡๐— & ๐—๐—‚๐—…๐—… ๐–ฝ๐—ˆ ๐—๐—๐–บ๐—๐–พ๐—๐–พ๐—‹ ๐—‚๐— ๐—๐–บ๐—„๐–พ๐—Œ. ๐–ป๐—Ž๐— ๐–จ ๐—๐–บ๐—๐–พ ๐—๐—ˆ ๐–ฟ๐–บ๐–ผ๐–พ ๐—‹๐–พ๐–บ๐—…๐—‚๐—๐—’ ๐—๐—๐–บ๐— ๐—‚๐— ๐—†๐—‚๐—€๐—๐— ๐—‡๐—ˆ๐— ๐–ป๐–พ ๐—๐—๐—‚๐—…๐—Œ๐— ๐–จโ€™๐—† ๐–บ๐—…๐—‚๐—๐–พ.

๐—Œ๐—ˆ ๐—๐—๐—‚๐—Œ ๐—‚๐—Œ ๐—๐—๐–บ๐— ๐—‚๐—Œ ๐–บ๐—…๐—๐–บ๐—’๐—Œ ๐—ˆ๐—‡ ๐—†๐—’ ๐—†๐—‚๐—‡๐–ฝ ๐–ผ๐—ˆ๐—‡๐—Œ๐—๐–บ๐—‡๐—๐—…๐—’ ... ๐—๐—๐—ˆ ๐—๐—ˆ๐—Ž๐—…๐–ฝ ๐—…๐—ˆ๐—ˆ๐—„ ๐–บ๐–ฟ๐—๐–พ๐—‹ ๐—๐–พ๐—‹ ๐—๐—๐–พ๐—‡ ๐–จโ€™๐—† ๐—€๐—ˆ๐—‡๐–พ , ๐—๐–พ๐—‹ ๐–ฝ๐–บ๐–ฝ ๐—‰๐–บ๐—Œ๐— ๐–บ๐—๐–บ๐—’ ๐—…๐–บ๐—Œ๐— ๐—’๐–พ๐–บ๐—‹ ๐—Œ๐—ˆ ๐–จ ๐—๐—ˆ๐—‹๐—‹๐—’ ๐—๐—๐–บ๐— ๐—†๐—Ž๐–ผ๐— ๐—†๐—ˆ๐—‹๐–พ.
๐—†๐—’๐—Œ๐–พ๐—…๐–ฟ & ๐–ฟ๐—‚๐–บ๐—‡๐–ผรฉ ๐–ฌ๐–บ๐—‹๐—„ ๐—๐–พ๐—‹ ๐—Œ๐—๐–พ๐—‰ ๐–ฝ๐–บ๐–ฝ ๐—๐–บ๐—๐–พ ๐—๐—๐—‚๐—Œ ๐—๐–บ๐—…๐—„ ๐–ฟ๐—‹๐—ˆ๐—† ๐—๐—‚๐—†๐–พ ๐—๐—ˆ ๐—๐—‚๐—†๐–พ ,๐—๐–พ ๐—„๐—‡๐—ˆ๐—๐—Œ ๐–พ๐—๐–พ๐—‹๐—’๐—๐—๐—‚๐—‡๐—€ ๐–บ๐–ป๐—ˆ๐—Ž๐— ๐–ช๐—‚๐—†๐–ป๐–พ๐—‹๐—…๐–พ๐—’ & ๐—๐—๐–บ๐— ๐—†๐—’ ๐—๐—‚๐—Œ๐—๐–พ๐—Œ ๐–บ๐—‹๐–พ ๐–ฟ๐—ˆ๐—‹ ๐—๐–พ๐š›.
๐“ˆโ„ด ๐’ทโ„ฏ ๐“‰๐’ฝ๐’ถ๐“ƒ๐“€๐’ป๐“Š๐“โค

Timeline photos 04/01/2021

๐ป๐‘’๐“‡๐‘’ ๐’พ๐’ป ๐’ถ๐“ƒ๐“Ž๐‘œ๐“ƒ๐‘’ ๐“ƒ๐‘’๐‘’๐’น๐“ˆ ๐“‰๐‘œ ๐’ธ๐’ฝ๐’ถ๐“‰...
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๐’ด๐‘œ๐“Š ๐“‚๐’ถ๐“‰๐“‰๐‘’๐“‡
๐ผ ๐“‚๐’ถ๐“‰๐“‰๐‘’๐“‡
๐ธ๐“‹๐‘’๐“‡๐“Ž๐‘œ๐“ƒ๐‘’ ๐“‚๐’ถ๐“‰๐“‰๐‘’๐“‡๐“ˆ
โค๏ธ

Timeline photos 04/01/2021

แ—ทแ—ฉแ‘•K TO แ”•แ‘•แ•ผOOแ’ช
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Andddddddd sheโ€™s back off to to school she goes , one of her happy places!
We have been a little out of routine for the Christmas holidays to say the least!
We have had major early wake up calls ,sleep routine has gone out the window , more aggression than ever , meltdowns you name it weโ€™ve had it.
Thankfully Kimberleyโ€™s school has opened up today so going back to our family means a happy settled family.
As much as Kimberley LOVES Christmas she also LOVES her usual routine so any changes that happen can unsettle her & become very overwhelming for her she doesnโ€™t cope well.
Last year was a write off when the schools closed, she had to deal with that then loosing her Dadda,moving house not being able to understand why she canโ€™t go to the park on usual days out ...
So many changes to go through which mostly lead to challenging behaviour/sleep problems ....
We had no respite so for Kimberley & us as a family as a whole know that TODAY couldnโ€™t of come any quicker !๐Ÿ™Œ๐Ÿผ
I understand whatโ€™s going on in the world right now but MENTAL HEALTH is so important right now & Kimberleyโ€™s NEEDS are at top of the list!!!!!

Whatever you choose to do regarding sending your children back to school or not...
just remember you have no idea whatโ€™s going on behind closed doors with families....
We should all be able to choose whatโ€™s right for our families ๐Ÿ’ฏ

I DOUBT BORRIS IS GONG TO POP ROUND & GIVE US SOME FAMILY RESPITE & DEAL WITH THE TOUGH CHALLENGES WERE UP AGAINST WITH HAVING OUR SEN CHILD OFF SCHOOL..... weโ€™ll just leave that on that ending!

I think a huge THANK YOU to all the teachers & staff in schools is needed... I take my hats off to you all in SEN OR MAINSTREAM SCHOOLS
It canโ€™t be easy right now but Iโ€™m so grateful youโ€™re working trying to give our children some normality.
โค๏ธ๐Ÿ’ฏ
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