Chronically Cute
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Chronically ill Living Chronically Cute
A personal health journal giving hope, sharing ideas, and showing love to our community to better our everyday lifestyles emotionally, mentally, physically and spiritually
Keep S'myelin
thiiiisssssš§”
Multiple Sclerosis Foundation - Why I recommend enrolling in TSA Precheck with MS
Hey Yāall, Happy Monday! First Iād like to say thank yāall for the overwhelming amount of love yāall have shown me in the past few daysā¦yāall ALMOST made me cry but ya didnātš (itās the dawg in meš)
Incase you didnāt know March is MS Awareness Month & Iād just loveeee to see yāall look good in orange to show support this monthā¦donāt be shy, take a pic and tag me in itš„°
& I canāt forget to wish yāall a HAPPY WOMENāS HISTORY MONTH! I plan to shed some light on the disease by sharing some of the experiences my MS Sisters & I have and are continuing to have because you canāt talk about Womenās History and not mention Womenās Healthš¤·š¾āāļøš§”
Hope yāall have a beautiful day & donāt forget to drink ya water and mind yo business on this beautiful Mondeeš¦
See yāall later!
Jade SymonĆ©š¤
ahwww, this is so sweetā¦the support is realš§”š
Minnetonka girls basketball team raises money as team official battles MS As the director of operations for the Minnetonka girls basketball team, Barry Cosgriff takes care of all the teamās off-the-court worries, so his players can focus on having success on the court. But Tuesday night was Barryās night, an opportunity for the team and community to take care of him.
Itās Rare Disease Day! With a worldwide population of roughly 7.6 billion, the percentage of people with MS is approximately 0.03%š§ š¦
you seeeee meeeeš just to further show yāall what Chronically Cute isā¦yeah Iām sick but Ima still be cute š
š§”
Jade SymonĆ©š¤
Thanks to the Multiple Sclerosis Foundation for featuring my story for Black History Month!š¦š¤
Jade SymonĆ© š¤ š§”
"Hey yāall! Iām Jade SymonĆ©, and I live in Polk County, FL.
I strive to live my life what I call Chronically Cute. Weāre often judged by our outer appearance; however, MS is an invisible disease. Weāre still dealing with the toughest battles MS has to offer. Just because we struggle and have chronic illnesses doesnāt mean we canāt still be beautiful people inside and out. Thatās one of my main focuses is to help people see that Iām still sick and struggling with my symptoms even when I donāt look like it.
MS affects me every single day, and on the easier days, I do what Iām capable of doing. On the tougher days, I do what I can and try not to hold it against myself if I canāt accomplish what I once could.
Iād encourage those just diagnosed to know this isnāt the end. It may feel like it, but please take the time you need to understand and accept this new life that now includes MS. Grow into your new person. & always, always, always be nice to yourself and love yourself!"
~ Jade SymonƩ Bell, .chronicallycute on Instagram
Hey Latoyaš§”
"In 2018, amidst the stress of completing a demanding work program and a 4-month detail in Atlanta as a single mom, I woke up a week before the detail ended with no feeling on the left side of my face. Ignoring it initially, the numbness persisted, leading me to the emergency room. After a prolonged wait, a physician recognized potential auto-immune issues and conducted tests and an MRI, which revealed three active brain lesions and a diagnosis of trigeminal neuralgia. I was also told to follow up with a specialist. Two months later, in November, a neurologist confirmed my diagnosis of Relapse Remitting Multiple Sclerosis (RRMS), marking the beginning of a challenging journey with active flare-ups and necessary IV steroid infusions, as well as the complicated task of how to treat my MS.
Having MS has undeniably granted me a new perspective on life. Despite its challenges, it has taught me the paramount importance of maintaining positivity and staying in good spirits. Each day's unpredictability has emphasized the value of cherishing moments and finding joy in small victories. A robust support system has become my lifeline, reinforcing the significance of surrounding oneself with understanding and uplifting individuals. Through this journey, I've learned that cultivating a positive mindset and fostering meaningful connections are essential for navigating the complexities of life with MS."
~ Latoya J., Owner of MS Scents Candle Co
I need aāØdependableāØtshirt printing business. Someone who can complete more than 20 shirts at a time with a decent turn around time AND can ship them to me instead of asking me to pick them up because I am āØdisabledāØš„°
thanks,
Chronically Cuteš¤
hey yāall! Iām just here to say that American Health Insurance is a fawking joke! Iāve been back and forth and forth and back since my diagnosis withāØChronic FatigueāØ. Iāve been charged every where from $20 to $700 for it and even those prices can be ridiculous too cause itās all dependent upon what Rx savings programāØIāØ can find (cause of course the patient has to put in all the workšš¾š). but this!? THIS S**T IS UTTERLY LUDICROUS! Yāall canāt possibly expect working class people to pay these prices YET ALONE folks like me on a fixed income.
So check this, lemme walk yāall through the processā¦
1st - itās the consultation with Doc then youāre prescribed your Rx.
2nd - sent to the pharmacy of your liking to be filled.
3rd - notice of denial from the insurance.
4th - doctors are made aware of the denial and then have to submit appeals which include appointment summaries and proofšthat you need the Rx. mind you (insider, the girls that get it, get itšš), this is typically a step repeated two or three times.
5th - final denial. that then leads to this šš©
Chronic Fatigue causes more issues than youād think. The obvious I canāt get up, I literally sleep all day, body stiffness from being in the bed for 18-20 hours a day, vision blurryness because sleeping for so long causes my optic neuritis to flare, worsening brain fog, and I donāt even have the strength to conjur up an appetite to eat.
All I want is to be awake more than 4-6 hours a day. And letās not even get started on the money Iāve dished out for the
āØMS TREATMENTSāØš
āitās always donāt give upā & āyou can do itā & though I appreciate the encouragement, we all (most chronically ill folks, Iām sure) appreciate the encouragement, but yāall this s**t is hard. Mentally weāre depleted and of course some of us are physically weak, and I absolutely hate that for us.
before I go, fun fu***ng fact: if you have federal health aid/insurance most copay assistance programs offered through Rx manufacturers you automatically donāt qualify forš
Rant Over. If you made it this far, I appreciate you for hearing me out & I love youš
One Love.
Jade SymonĆ©š¤
Gāday! the Patient Advocate Foundation just sent this email for copay assistance, go apply! š¦š§”
links in the comments!š«¶š¾š
Jade SymonĆ©š¤
š¦š«¶š¾š§”
Jade SymonƩ
good morning š
š§”š§”š§”
GUESS WHAT TODAY ISā¦
& because itās MS AWARENESS Week Iām kicking it off with my āOn Wednesday We Wear Orangeā presale. All presale orders will be entered for a chance to win a raffle AND be shipped for FREE, so who wants a shirt???š¦š§”
Cashapp: $ChronicallyCute
ApplePay, Zelle, & Venmo: 8637120449
Jade SymonĆ© š¤ š«¶š¾
a good word from Auntie Tabā¦some peoples support for us comes with a lot more BS than necessary, either do it with love or donāt do it at allš¦
HAPPY MULTIPLE SCLEROSIS AWARENESS WEEK!š§”
Tabitha BrownāØ
who can relate??š
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Credit: twitter
āyāall better come get yāall one of theseā¦ā
itās a heating pad bout twice the size of the standard one and you can wrap it, fold it, and twist every which way you need toā¦I LOVE MINEš«¶š¾
Jade SymonĆ© š¤
non gentle reminder to those who love someone with a chronic illnessā¦
just cause they donāt show their pain, doesnāt mean itās not there. most of us canāt explain it and feel you wonāt understand so we often respond āIām fineā when indeed we are not fine.
š¦š§”
to have a partner who truly supports you in your illness and works just as hard as you to understand, AND research, plus make the tough ass sacrifices for your illness and itās disabiling ability is the blessing I didnāt think Iād get. this girl is Heaven sent and I absolutely adore her.
thank you for taking on my journey as your own and commiting to selflessly helping me get through.
me loves you long timeš¤š¾š„°
Jade SymonĆ©š¤
š¦ā¢š§” ā¢šļø
Run, donāt walk to Flame319.com! EVERYTHING is restocked and weāre waiting for your orders! š„³š„
ORANGE WEDNESDAY IS COMING!š§”
ššš
Today's the day!
āØFollow us on instagram.com/alternative.disney
today was really one of those daysš a symptom I suffer from are mood swingsā¦I literally be losing my mind. confusion, happy, crying, laughing, crying againā¦and againš„“, itās tough and the anxiety really be kicking my ass, family checkin in and I canāt even explain whatās wrong because I DONT FāN KNOW. yeah today was hard. yāallās continued prayers be getting me through cause Lord knows I be giving upš¦
& thank you Kandi & Shantis for giving me the encouragement I needed to start my day. & of course Jamal & Mrs. Marie for making me feel better at work (never a dull momentš).
I love yāallāš¾
Jade SymonĆ©š§”
š§”š§”
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Depression is weird af. Sometimes my girlfriend is just sad. It used to offend me because I felt like I wasnāt making her happy or I would just keep asking her āwhatās wrongā over and over again for her to give me the same response... āI donāt knowā.
Iām learning tho. People with depression donāt need a reason to be sad. Read that last sentence again! Some days sheās just not motivated. Itās not my fault. Itās not her fault. Me asking her āwhatās wrongā doesnāt make her feel any better. Depression is REAL and random for some people. People can really get into a dark place they canāt get out of. If you love someone with depression, my advice is to just love them patiently and unconditionally. The sad days are temporary. Her smile tho... I want that forever š©š¤
You are not alone! Register now
happy pride month!š¤š¾
š³ļøāš
ArtLikeAsh supports and stands with the LGBTQ community! HAPPY PRIDE MONTH! ā¤ļøš§”šššš
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āhowās your infusion going?ā
me: šš„“
Iām okay, this first one was not nice to me at all todayšŖš¾š§”
~Jade SymonƩ