An NCS group raising awareness and money for SMA trust. SMA is a genetic neuromuscular disease which affects how the muscle function. Please share & like.
NCS for SMA is a team of young people fundraising for SMA Trust Foundation. Our goal is to raise £1000 to donate to the charity for research. SMA (Spinal Muscular Atrophy) is a genetic disorder expressed by a faulty SMN1 gene which prevents the SMN protein from being produced. This leads to difficulty in walking, eating and breathing. There are four types of SMA:
Type 1 - Occurs in babies under 6
months old. Type 2 - Occurs in babies from 7-18 months. Type 3 - Occurs in children from 18 months to late childhood. Type 4 - Occurs in adults and teenagers. SMA is the leading cause of death in babies in the UK. Type 1 is the most severe because young children stand no chance with the disorder and SMN protein isn't produced during the key time of development, thus causing death. Type 4 is rarely fatal, but it does lower the quality of life as it causes the person suffering to lose the ability to move. Rehabilitation can be very helpful. We hope that our events will raise both money and awareness about SMA and SMA Trust, and will encourage the community to help those suffering from it, and help donate money for research to find a cure. Links:
SMA NHS: http://www.nhs.uk/conditions/Spinal-muscular-atrophy/Pages/Introduction.aspx
SMA Trust: https://www.smatrust.org/
Donate: https://www.gofundme.com/ncs-for-sma
All donations are highly appreciated. Thank you to those who have donated and who are considering donating and taking part in our events, and also to those who have taken the time to visit our page and read about the condition.
