Let's Talk MECFS, LongCovid & Chronic Fatigue Syndrome.

Good morning family ❤️ Today, I embrace the wisdom of self-compassion.

“Today, I embrace the wisdom of self-compassion. In the gentle embrace of kindness towards myself, I recognize that my journey is unique, and so am I. With each tender moment, I sow seeds of love and understanding, nurturing a garden of self-acceptance. The blossoms of compassion unfurl, creating a sanctuary where judgment has no place. As I navigate the complexities of chronic illness, I find solace in the gentle reminder that in my own journey, I am both the traveler and the compassionate guide.
”

- From “Find Joy, Cultivate Peace and Live Well.”

https://amzn.to/41zqwEJ

Maybe I’ll find inner peace, happiness and well-being on our journey through life. 🙏

Find Joy, Cultivate Peace, and Live Well : 365 Contemplative Affirmations for Chronic Wellness & Well-Being Find Joy, Cultivate Peace, and Live Well : 365 Contemplative Affirmations for Chronic Wellness & Well-Being

Good morning family ❤️ Today, I embrace the beauty of adaptability, finding strength in flexibility.

“Today, I embrace the beauty of adaptability, finding strength in flexibility. Like a resilient tree in the wind, I bend but do not break. In adjusting to the twists of life with chronic illness, I discover the art of thriving in the face of change. Each shift becomes a dance, and in the rhythm of adaptation, I uncover new layers of resilience. As I sway with the uncertainties, I realize that flexibility is not a compromise but a mastery of the intricate choreography of life.”

- From “Find Joy, Cultivate Peace and Live Well.”

Find Joy, Cultivate Peace, and Live Well : 365 Contemplative Affirmations for Chronic Wellness & Well-Being Find Joy, Cultivate Peace, and Live Well : 365 Contemplative Affirmations for Chronic Wellness & Well-Being

Good morning family ❤️

“Today, I embrace the ebb and flow of my energy.

In the quiet moments, understanding that self-care is not a luxury but a necessity, I discover the power of rest, allowing my body and spirit to rejuvenate.

Each pause is a step towards healing, a gentle reminder that amidst the challenges, I am crafting a sanctuary of well-being.

Here's to the harmony found in honoring the rhythm of my own life.”

- From “Find Joy, Cultivate Peace and Live Well.”

Find Joy, Cultivate Peace, and Live Well : 365 Contemplative Affirmations for Chronic Wellness & Well-Being Find Joy, Cultivate Peace, and Live Well : 365 Contemplative Affirmations for Chronic Wellness & Well-Being

“Today, I celebrate every step forward, every triumph over adversity. My journey through life is not a linear path, but a dance of progress and setbacks. In acknowledging these triumphs, big and small, I find a renewed sense of purpose and strength. As the dawn breaks, I carry these reflections with me, knowing that each day is an opportunity to add another brushstroke to the canvas of resilience. Here's to the unwritten pages and the triumphs that await.”

Find Joy, Cultivate Peace, and Live Well : 365 Contemplative Affirmations for Chronic Wellness & Well-Being Find Joy, Cultivate Peace, and Live Well : 365 Contemplative Affirmations for Chronic Wellness & Well-Being

In the intricate journey of living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), the concept of “wise understanding” emerges as a guiding light. Let’s explore how embracing this wisdom can transform our experience of living with ME/CFS.

**The Foundation of Wise Understanding: Acknowledging Truths**

Wise understanding involves recognizing the fluctuating nature of our energy levels, the daily challenges posed by ME/CFS, and the imperative of pacing ourselves accordingly.

**Embracing Limitations Mindfully**

Wise understanding involves embracing our limitations with mindfulness. For example, recognizing our triggers, both internal and external, empowers us to make wise and informed choices that promote well-being.

**Paving the Path to Balance**

Applying wise understanding to our lives with ME/CFS revolves around finding balance and alleviating the mental suffering associated with this condition. It's about navigating our lives within our energy envelope, making choices that respect our body's needs, and establishing a harmonious equilibrium between tasks and self-care.

**The Integration of Wise Understanding in Daily Living**

Applying "wise understanding" to life with ME/CFS is a transformative journey. It involves recognizing the truths of our condition, embracing our limitations with mindfulness, and cultivating a path to balance. This wisdom becomes a powerful tool for those of us living with ME/CFS, aiding us in navigating our unique journey with resilience, compassion, a deeper understanding, and a sense of self-awareness.

In conclusion, the integration of "wise understanding" offers a framework for personal growth and well-being. The practice of "wise understanding" can lead us to greater acceptance, balance, and a harmonious coexistence with the intricate dance of living with chronic fatigue syndrome.

Share your thoughts below, and let's create a space for mutual support and inspiration on this journey of living well with chronic fatigue syndrome. 🌻💖

🙏💖🙏

To all those who seek the light within and the power of positive transformation. May we all discover a guiding light on our journeys toward inner peace, joy, and well-being.

May we find solace and strength in our community and may our hearts be filled with joy and tranquility. May we navigate the challenges of with resilience and grace, and may each day bring us closer to inner peace.

May we embrace our unique journeys and discover the beauty of self-love, self-compassion and self-acceptance.

May we find moments of deep reflection and insight, and may our paths be guided by wisdom and understanding.

May we experience the transformative power of mindfulness and cultivate a positive mindset that radiates positivity and well-being.

May we live each day with gratitude and an open heart, and may we find comfort and inspiration in the simple joys of life.

May we journey toward chronic wellness with a spirit of compassion and resilience, and may we be a source of light and love and hope for others on similar paths.

May we all be blessed in all these ways and more on our journeys of well-being and self-discovery as we cultivate a positive mindset that radiates positivity and well-being within ourselves as well as to all those around us.

🙏💖🙏

🌟Navigating the Landscape of Pain: A Mindful Approach for Moving Forward🌟 Pain, an intrinsic part of the human experience, manifests not only in the physical realm but also in the intricate landscapes of our minds.

Beyond the raw, physical sensations lies an additional layer of suffering, one woven by our habitual responses and conditioned reactions. And in the realm of mindfulness, this secondary suffering is referred to as the "second arrow"—a self-inflicted wound that compounds the inherent challenges of pain.

My journey of constantly living with chronic pain has been a testament to the transformative power of changing my relationship with suffering. It goes beyond mere acceptance; it's a profound shift in perspective, a conscious decision to cease adding unnecessary layers of mental commentary, likes, dislikes, and preferences to the already challenging experience of physical pain. It's an embodiment of what could be likened to Toughlove—an acceptance of pain's presence with a simultaneous outpouring of compassion toward oneself.

The key revelation in my experience has been understanding that the most crucial aspect of dealing with pain lies in the mind. While the physical facts of pain are undeniable, the manner in which we relate to it mentally plays a pivotal role in shaping our overall experience. By unraveling the threads of habitual responses and conditioned reactions, I've discovered a space where compassion and acceptance coexist with the pain.

This paradigm shift isn't a magical cure, but rather a significant milestone on the path to healing. It involves acknowledging the pain's existence without being consumed by it, fostering a relationship with pain that allows for hope and enjoyment to coexist. It's a conscious decision to refrain from feeding the second arrow, recognizing that our mental landscape has the power to magnify or alleviate our suffering.

In cultivating this mindful approach, I've found a reservoir of strength within myself. The journey isn't about denying the reality of pain but reshaping my response to it. It's about viewing pain not as an enemy to be conquered but as a companion on my life's journey—a companion that, when met with compassion and understanding, loses some of its power to dictate the terms of my experience.

As I navigate the ebb and flow of daily pain, this mindful relationship has become a source of resilience. It has allowed me to shift my focus toward the hopeful and enjoyable facets of life, creating a space for gratitude and joy to flourish alongside the persistent presence of pain. In the grand tapestry of existence, pain is but one thread, and my response to it does redefine the entire narrative of my life.

And so that is why I choose to weave a tapestry that embraces not just the threads of pain but also the vibrant hues of gratitude, joy, and resilience. In every mindful breath, I am sculpting a narrative that transcends the limitations of pain, celebrating the richness of life's diverse experiences. The threads of suffering may be present, but my choice to craft a story interwoven with hope and appreciation transforms the ordinary into an extraordinary masterpiece of existence.

In heartfelt dedication, I offer this narrative to all of us who are navigating the intricate landscape of pain, with the hope that my words be helpful on the path forward, and toward a mindful relationship with suffering. May these words resonate with each person who suffers the second arrow, encouraging a shift from the burden of unnecessary suffering to the empowering embrace of compassionate self-awareness. Together, let us redefine the narrative of pain and, in doing so, find collective strength in transforming the second arrow into a catalyst for profound growth and resilience.

May we all find inner peace, happiness, and will being on our journey through life with chronic pain, chronic illness, and chronic fatigue syndrome. 🙏

😂 Benevolent Bountiful Binges, Bring Blissfully Bedazzling Bedridden Breakthroughs. 🙃

Day 01 💖 365 Days of Positive Affirmations For Those of us Living With Chronic Illness. 😊 Either Click the one-minute video below to hear the affirmation spoken aloud, Or….. Simply read the full text which is in the image.

Being mostly homebound is so much more fun when computers are involved. 🙃

https://youtu.be/h7uvIRlxlHI?si=GemgGBWGviAYO3KP

May we all find inner peace, happiness and well-being on our journey living with chronic fatigue syndrome. 🙏

Day 01 💖 365 Days of Positive Affirmations 😊 #Love #PositiveVibes #Healthy #SelfCare #Affirmations Embark on a transformative journey of self-discovery with "365 Days of Positive Affirmations." This collection invites you to explore universal principles th...

✨Navigating the ME/CFS Journey with AI: A Poetic Reflection 👉 Dear resilient, kind an compassionate Facebook community, In the quiet aftermath of a creative surge, my body speaks volumes—eyes aching, head pounding. Today, as I sit with the consequences of pushing beyond…🤦🏻

I find myself compelled to share a revelation. You all give me the strength and motivation and reason to carry on and continue sharing my experiences with ME/CFS. Even in the midst of physical discomfort, I'm unveiling a facet of my journey. It's a revealing, a baring of the soul amidst the symptoms that wrap around me like a familiar cloak. This, I believe, is the essence of authenticity — sharing the beauty and the struggle in one harmonious melody.

As I pen this amidst the lousiness that accompanies me today, there's a profound acknowledgment I wish to weave into our shared narrative. The beauty of this piece is made possible not just by my own resilience, but by the magic of AI. In moments when my eyes can barely open, and speech falters, these tools become a lifeline.

Gratitude echoes through these digital corridors for the marvel that is AI. It's the magic that allows me to speak, and words appear on my screen. It's the wizardry that transforms my ramblings into a symphony of shared understanding. In the hushed moments of laying in bed, with eyes struggling to stay open, AI becomes my companion.

This technological tapestry weaves itself around us, granting the power to communicate, to create, even when our bodies may feel confined. In this amazing time we find ourselves, let's marvel at the tools that bridge the gap between our thoughts and shared expressions.

With a heart full of gratitude for the AI magic that shapes my words, and for the resilient spirit that binds our community, let us continue navigating this journey with grace, understanding, and the shared beauty of our collective experiences.

In companionship and gratitude,
Richard

Hello everyone! 💖

I've begun writing a short story about living with ME/CFS, and I hope you enjoy it. It's titled "Unveiling the Lost Letters of Elias Lindenwold to a Dear Friend Living with ME/CFS." You can either read part one of the story here, or watch the video.

The video includes illustrations depicting various scenes from the story, along with images of Elias Lindenwald. I will be posting the actual five letters that were found, beginning with the first one tomorrow, and subsequently as they become ready, and as I am able.

There is much more to discover about this enigmatic soul, as well as his heartfelt insights and revelations that are found in these letters. Elias Lindenwold’s words are a guiding light for us all, illuminating the path ahead with courage and understanding.

Together, we will explore the depth of Elias's wisdom, one letter at a time, revealing these timeless truths. His writing and friendship transcends time and space, offering hope and healing to all of us today, who are living with ME/CFS.

CHAPTER ONE: In the heart of an ancient oakwood desk, tucked away from the world for decades, a hidden treasure lay waiting to be discovered. These treasures were a collection of heartfelt letters penned by a compassionate soul named Elias Lindenwold.

Elias was a man shrouded in mystery, renowned for his kind and understanding nature, yet a recluse who kept his life's work and wisdom closely guarded.

Recently, a serendipitous turn of events led to the unearthing of these long-lost letters. Stored away in a dusty attic of an old Bavarian manor, they were preserved through the passage of time, waiting for the moment when their message of empathy and hope would find its rightful audience.

Through the miracles of chance and fate, these letters found their way into the hands of the Compassion Matters YouTube channel, a sanctuary for those seeking solace and understanding in the midst of life's challenges. It was as if the universe conspired to bring Elias Lindenwold's compassionate words to light once more, making them publicly available on the Compassion Matters YouTube channel for the benefit of all concerned.

Within these letters, Elias has poured out his heart to a dear friend living with ME/CFS, offering comfort, understanding, and the warmth of true friendship. His words were a balm for the wounds of isolation and a beacon of light amidst the darkness of chronic illness.

With each page turned, a journey of connection and empathy unfolds, as Elias shares not only his profound insights but also his own vulnerabilities and struggles. His words resonate deeply, for they were born from a place of lived experience and genuine compassion.

As you embark on this intimate journey through the rediscovered letters, you will find a rare glimpse into the soul of Elias Lindenwold. You will witness the unfolding of a friendship that transcends time and space, and discover the enduring power of compassion to heal and uplift the human spirit.

In these letters, Elias emerges not only as a philosopher and writer but as a true friend—a friend who understood the struggles of living with ME/CFS and offered unwavering support to someone facing the challenges of chronic illness.

May this treasure trove of letters serve as a guiding light for all who walk the path of chronic illness, illuminating the way with the wisdom of compassion and the embrace of understanding.

It is with great honor and privilege that the Compassion Matters YouTube channel shares these letters, ensuring that Elias Lindenwold's legacy of kindness continues to touch lives and hearts for generations to come.

May the wisdom of Elias Lindenwold's words bring solace to those in need and forge connections among kindred souls, reminding us all that compassion truly matters, and that we are never alone on this journey of life.
https://youtu.be/FBxX7p_aZNk

May we all find inner peace, happiness, and wellbeing on our challenging journey with ME/CFS. Stay strong, my friends. Stay hopeful, and take care. 🙏

💖 To a Dear Friend Living with ME/CFS - The Heartfelt Letters of Elias Lindenwald (Introduction #01) Elias Lindenwald: "A Journey of Compassion and Enlightenment". Elias Lindenwald was born on a tranquil spring day in the quaint village of Wiesenfeld, nestle...

💖 Hello Everyone.... Please enjoy this ME/CFS Poetry Reading

"Inspiring Hearts to Soar in the Gentle Embrace of Love & Self-Compassion."

🙏I wasn't feeling well enough to read it myself, so I utilized new computer tools to read it for me. These tools enable me to express myself fully and creatively without triggering flare-ups and crashes. They have become a valuable resource, allowing me to engage and share in a way that respects my health limitations. I'm grateful for these tools and the opportunities they provide.

Thank you for watching this video poetry reading. If you enjoyed the content, please give it a thumbs up and feel free to leave your comments in the comment section. I value your feedback and I will make sure to respond to all comments. Your engagement is greatly appreciated.

https://youtu.be/GTa07J9uGXk

NOTE: Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), is a complex and debilitating condition that affects a person's energy levels and overall well-being. It is important to understand that ME/CFS is not simply feeling tired but involves a profound fatigue that doesn't improve with rest.

May we all find peace, joy, and wellbeing as we navigate life with Chronic Fatigue Syndrome. 🙏

#MECFS Poetry Reading 💖 Inspiring Hearts to Soar in the Gentle Embrace of Love & Self-Compassion. 🙏 🙏 Please feel free to ask questions or leave comments in the section below. I will be more than happy to provide my best answers and assistance. Thank you f...

💖 The #1 Absolutely Best, Most Helpful Book, I Have Ever Found For Living Well with Chronic Fatigue. Greetings Everyone.... This video is about one of the absolutely best, most helpful books, I have ever found, about living with ME/CFS. I personally, highly ...

‎The One You Feed: Toni Bernhard on Apple Podcasts ‎Show The One You Feed, Ep Toni Bernhard - Jan 12, 2016

Pain and Fear, But Not Defeat: Shakespeare's Resilience in Sickness #MECFS Myalgic Encephalomyelitis (Animation by D-ID.com ) Welcome to my YouTube channel dedicated to providing valuable resources and information for those suffering from Myalgic Encephalomy...

Good News for People Living with #MECFS & #LongCovid👉 Regular Physical, Emotional & Mental Relaxation Can Help Manage & Reduce Symptoms. Calm abiding practice is a type of focused relaxation practice that involves focusing the mind on an object, such as the breath, to develop concentration and calmness. Research has shown that regular

💖 #MECFS Tips: Greater Ease & Relaxation are the Benefits of #Mindfulness #Meditation & #SelfCare Medical research has shown that even small amounts of meditation can have significant benefits to a person's wellbeing. Studies have found that regular meditation can reduce stress, anxiety, and depre

#MECFS 💖 Using This App is Improving My Life by Improving My Sleep Hygiene & Lifestyle Choices. The "Nightly Recharge" feature on the Polar Pacer sports watch is a valuable tool for people living with ME/CFS. It assesses the quality and recovery of my s...

Polar Pacer For #MECFS 💖 Sleep Hygiene: A Path to Improving Overall Wellbeing & Fewer flare-ups. 😀 Hello everyone, Sleep hygiene refers to the practices and habits that promote good sleep quality. For those of us living with ME/CFS, adopting proper sleep h...

Polar Pacer For #MECFS 💖 Empowering My Life with a Vibrating Watch & it's Zone Lock App Feature. 😀 As the Polar Pacer watch was not specifically designed for ME/CFS, the Training Zone feature only functions during physical activity. I have chosen yoga as t...

Promoting Relaxation for Chronic Fatigue. 💖 The Best Breathing Pattern 👉Deep Diaphragmatic Breathing Welcome to my YouTube channel dedicated to providing valuable resources and information for those suffering from Myalgic Encephalomyelitis, Chronic Fatigue, ...

#MECFS 💖 Advancing the Understanding & Treatment of This Terrible & Terribly Misunderstood Condition Hello everyone, Welcome to this video dedicated to advancing the understanding and treatment of Myalgic Encephalomyelitis Chronic Fatigue Syndrome. Please li...

💖Part 3: Improve Sleep CONTINUITY & Improve Wellbeing For Those With #MECFS Chronic Fatigue Syndrome Part 3: Enhancing Sleep Continuity for Better Well-being in ME/CFS. 👉Sleep continuity, which refers to uninterrupted and consolidated sleep, is of utmost im...

Part 4: The Importance of #Relaxation Techniques Before Sleep for Those of Us with #MECFS Part 4: Harnessing the Power of Relaxation Techniques Before Sleep.For people with ME/CFS, incorporating relaxation techniques before sleep can be highly ben...

💖 Part 5: The Importance of the "Rest & Digest" Mode During Sleep for Those of Us with #MECFS Please feel free to ask questions or leave comments in the section below. I will be more than happy to provide my best answers and assistance. Thank you for ...

Hello Everyone 💖

Making this video is my Clarion Call to the World & My Hope for Improving Lives with the Advancement of More & Better Quality Research, Understanding & Treatment for Myalgic Encephalomyelitis Chronic Fatigue Syndrome .

I hope you like it. 🙏

Please listen carefully as I explore the evolving landscape of Myalgic Encephalomyelitis Chronic Fatigue Syndrome research, the importance of accurate research criteria, the evolving nature of Myalgic Encephalomyelitis Chronic Fatigue Syndrome research, and the collective goal of advancing understanding and treatment for individuals affected by this debilitating condition.

Please also, forgive my use of a computer avatar to express my message. Given my level of disability and fatigue, this seems like a logical and helpful approach.

https://youtu.be/SwIJ4G7aNdk

Thank you! 🙏

#MECFS 💖 Advancing the Understanding & Treatment of This Terrible & Terribly Misunderstood Condition Hello everyone, Welcome to this video dedicated to advancing the understanding and treatment of Myalgic Encephalomyelitis Chronic Fatigue Syndrome. Please li...

Part 3: Enhancing Sleep Continuity for Better Well-being in ME/CFS. 👉
Sleep continuity, which refers to uninterrupted and consolidated sleep, is of utmost importance for individuals with ME/CFS. Poor sleep continuity can worsen symptoms, such as fatigue and brain fog, and disrupt the body's restorative processes. Establishing healthy sleep habits, maintaining a consistent sleep schedule, and creating a relaxing pre-sleep routine can help improve sleep continuity in individuals with ME/CFS. By prioritizing sleep continuity, individuals can experience more restful and rejuvenating sleep, leading to increased energy levels and improved daily functioning.

💖Part 3: Improve Sleep CONTINUITY & Improve Wellbeing For Those With #MECFS Chronic Fatigue Syndrome Part 3: Enhancing Sleep Continuity for Better Well-being in ME/CFS. 👉Sleep continuity, which refers to uninterrupted and consolidated sleep, is of utmost im...

My dear subscribers, Thank You! 🙏 I am incredibly grateful to each and every one of you for joining my Compassion Matters YouTube channel. Your support and interest in my ME/CFS journey mean the world to me. I started this channel with the intention of providing genuine support by sharing my experience of living with Myalgic Encephalomyelitis chronic fatigue syndrome.

I encourage you all to actively engage in the comments section. Ask questions, share your thoughts, and make requests for topics you'd like me to explore. Together, we can create a community of understanding and support.

Thank you again for being a part of this journey. Your presence inspires me to continue sharing and to hopefully be a positive force in the lives of those of us facing similar challenges. Stay tuned for more insightful content and let's embark on this path of compassion and understanding together.

#MECFS 💖 I am Incredibly Grateful to Each and Every One of my YouTube Subscribers. Thank You. 🙏 My dear subscribers, I am incredibly grateful to each and every one of you for joining my Compassion Matters YouTube channel. Your support and interest in my...

Hello everyone, yesterday, I did some laundry, although I only managed to complete less than half of it… Typically, I would power through the task, but my heart rate alarm repeatedly went off as I left the desired green zone. I responded to each alert, by stopping, and doing slow, deep breathing, to lower my heart rate. Without a doubt, this experience is improving my pacing skills. However, time will tell if mindful pacing actually increases my capacity for activity while reducing flare-ups and crashes. Stay tuned.

#MECFS 💖 Without a Doubt, this Experience of Heart Rate Monitoring is Improving my Pacing Skills. Hello everyone, yesterday, I did some laundry, although I only managed to complete less than half of it… Typically, I would power through the task, but my he...