Heal With Liz
Real stories and recovery insights from people who have healed from ME/CFS.
I had the honor of interviewing Dr. Eleanor Stein, MD, a changemaker from Calgary, Canada who is paving the path to change the standard of care for ME/CFS and Long Covid. Her inspiring recovery story from post-viral ME/CFS shares a lot of resemblance from my own. Hear what key layers added together helped her heal in 2017 (after 27 years) and how she's helping others. I appreciate her expertise and her cognitive flexibility. I learned a lot from our chat about the medical and research history of ME/CFS, as well as the science behind things that don't come in a pill.
A Medical Doctor's ME/CFS Recovery Story (after 27 years!) Dr. Eleanor Stein, MD, from Calgary, was knocked down by ME/CFS in residency in 1989. After a rough first 8 years, careful pacing, and a drug, her functional...
This is an amazing video, I recommend watching the whole thing. (James fully recovered from 8+ years of severe chronic illness.)
Attitude of wellness compared to sickness Question from Linda on discord Join us https://discord.gg/B6n4vnVE
Hindsight is 20/20. Here is the doctor strategy I learned the hard way on my ME/CFS recovery journey. I hope it can help people dealing with post-viral illness.
At the end, I wrote what the standard of care should be. Sending my support!✨
Doctor strategy for ME/CFS and Long Covid recovery | Heal with Liz When my sensible computer scientist husband offered to make a Voodoo doll of my infectious disease doctor in order to console me, I suspected I might have a problem. The confident doctor assured me my…
Our CFS Recovery Programs Guide is finally here!
After our own journeys with CFS, Lindsay Vine of the Post Viral Podcast and I analyzed 22 lifestyle, pacing, and nervous system regulation programs for ME/CFS recovery (and related illnesses) to make things easier for others.
We factored real feedback from dozens of people who did these programs into our detailed analysis. This guide includes:
- Detailed descriptions of program content
- What they don't include
- Who each program is for / not for (opinions)
- Price, duration, amount of content
- About the creator & style
- Things to keep in mind (based on participant feedback)
Get it here: https://healwithliz.com/programs-guide/
Note: This guide is not medical advice, and does not contain medical or naturopathic protocols that may be helpful for recovery. Most creators of programs featured in this guide healed from ME/CFS (and/or related conditions) themselves. This guide is independent from any programs featured.
CFS Recovery Programs Guide Independent, constructive analysis of 22 lifestyle, pacing, and nervous system regulation programs for ME/CFS recovery (and related chronic illnesses).
We think of the crash as a failure. I admit I went into fear and who/what’s-to-blame mode countless times.
I eventually learned to see it as an opportunity to show my ability to bounce back. ✨
After all, ME/CFS isn’t about what we can do, it’s about what we can recover from. ✨
In this video, I share what things helped me support my body’s recovery mechanisms.
How to bounce back from ME/CFS setbacks My metaphor for ME/CFS recovery. I filmed this for my Instagram in June 2020 and am sharing here. We think of the crash as a failure. I went ...
Remember the ME/CFS research fundraiser Raelan Agle and I shared in October? Here's an update from Dr. Greally, the lead researcher on the study, himself! He also explains what this study could lead to: https://www.youtube.com/watch?v=po_f_t-Pisg
Where to donate: https://kernls.com/projects/foundation-to-treat-cfs/donate
Note: The DNA samples have already been collected. It costs around $100 to sequence each sample. We're over 70% of the way there! Please share.
Groundbreaking ME/CFS Genetic Research (Update From the Lead Researcher - Dr. John Greally) In this video Dr. John Greally, the lead researcher on a team conducting chronic fatigue syndrome (ME/CFS) genetic research shares an update on the exciting ...
I'm so honored to share Carly's recovery story! She was an elite endurance athlete before Lyme and post-viral ME/CFS knocked her down. Her turning point epiphany is the most powerful I've heard.
She shares powerful insights and also useful resources and tools, including what podcast gave her a new paradigm for approaching symptoms, the Wim Hof method 🧊 (and what symptom it provided immediate relief from), and several other modalities she found helpful including one I never heard about before.
She shares how she is living life now and what this journey was really about for her.
Our chat: https://www.youtube.com/watch?v=0upUJz7R6bY&t=23s
Carly's powerful ME/CFS and Lyme recovery story Carly, an endurance athlete from Vermont, shares her inspiring recovery story from viral-onset ME/CFS, which knocked her down 3 years ago after Lyme and Over...
We didn’t plan to match, I swear. ☺️ Really enjoyed our chat ❤️. Pamela visited from the UK and we share key takeaways (and some laughs) from our recovery journeys. Thanks Raelan Agle for recording!
ME/CFS Recovery - With Pamela Rose & Liz Carlson In this video, Liz Carlson, Pamela Rose, and I meet for a somewhat impromptu chat sharing our experiences and insights with chronic fatigue syndrome (ME/CFS)...
You may have seen my powerful interview with Dr. Cathleen King who healed from over a decade of severe Chronic Lyme and CFS. Her next live cohort of her Primal Trust Mentorship begins this Tuesday Jan. 25th at 10 am PT / 1 pm ET / 6 pm UK time. I signed up as a student myself.
The reason I'm taking this is because -- even though I recovered from ME/CFS -- I had some situations recently that really affected my nervous system. And I don't want to live anymore in that defensive place. I also want to gain greater confidence in my life's purpose.
The 5-month weekly program centers on regulating the nervous system (which is often dysregulated for people with chronic illnesses) and self-discovery (it's so much more than that I've been told, but you can find out more on her site.) Recordings are included.
Scroll down to Level 2: Primal Trust Mentorship, Join Now to reserve your spot for the live mentorship. It's $24/week ($96/month). I have heard only good things from friends who took the last cohort, though please read through to make sure it fully resonates with you. [Note: nothing I share is medical advice nor meant to be prescriptive.]
And if you haven't seen our interview yet, just google: Heal With Liz - Dr. Cat YouTube. She also shares helpful content on her Instagram .
Primal Trust - Academy & Community is proven to calm the overactive limbic system and it is easy to do. In addition to Brain Retraining, the program includes the best physical therapy hacks for the Vagus Nerve and Somatic Body as well as Energy Medicine techniques and practices.
Thank you to everyone who donated to this exciting research project, which could lead to a definitive diagnostic test for ME/CFS and unlock potential treatment options. We've already raised over 25% of our $40,000 target!
Background: Researchers have recently found that there are small changes in the genetic expression of people with M.E./ Chronic Fatigue Syndrome *after* exertion. Dr. Greally and his team will sequence the genomes of 100s of participants to determine what specific changes may exist and potentially identify different phenotypes.
My friend Raelan and I were connected to Dr. Greally, an epigenetics researcher at Albert Einstein College of Medicine in the Bronx, through a wonderful fundraising platform called Kernls where 100% of donations go directly to medical research labs.
Donate & learn more here: https://kernls.com/projects/foundation-to-treat-cfs
Any amount truly helps! ❤️
Learn about ME/CFS through genome sequencing | Kernls See the research focused on developing a deep understanding of ME/CFS through genomic sequencing. Donate directly today!
New recovery story!
Phil Murray shares practical insights from his 8-year recovery journey from M.E. / Chronic Fatigue Syndrome.
Overview: Phil was a 33 year with a rising career and an active sporting and social life. Then a viral illness knocked him down - he was disabled within 6 weeks. For the next 3 years, he was mostly house-bound. Post-exertional crashes would leave him fully bed-bound.
Today, he's living an active life in his 50's, running and rock climbing.
Phil shares wisdom on pacing, why it's about feeling better (not doing more!), how overstimulation is a big problem with M.E. (and *how* he reduced it), and why (even though he's on the other side) he's STILL involved with this illness working to advance research:
https://www.youtube.com/watch?v=2Tu_4zcBLqY&t=24s
There are many gems. One of my favorite parts of our chat, is when he talks about his experience as a phone operator for a local ME charity and shares heartfelt words for mums / parents with this illness who lack adequate support. If something in this interview resonates with you, please give it a like or leave a comment on YouTube.
Here is the written transcript:
https://healwithliz.com/phils-me-cfs-recovery-story-call-for-more-research-funding/
Phil's ME/CFS full recovery story & call for more research funding Phil Murray had M.E. / Chronic Fatigue Syndrome for 8 years in his 30's. He's now living an active life in his 50's, running & rock climbing. Chat starts: 0:...
New Recovery Story!
One of my first blog subscribers reached out to me, said my blog helped her heal, and wanted to come and tell her full story. I feel so honored. I dreamed of this, and my dream is here. ✨
Lauren from Rhode Island is 43 and says she is now in better health than in her 20s. But in early 2020 she could not do her laundry or walk more than 5 minutes without crashing. She also struggled with many immune and pain symptoms.
One of her major turning points was realizing her "If I have energy I should be doing" mentality HAD to change for her to recover.
We go into so many useful topics from diet, to how she improved her sleep, pacing, finding free neuroplasticity resources, mindset shifts, and more. I hope something from our interview inspires you.
Lauren's ME/CFS and Fibromyalgia FULL Recovery Story Lauren from Rhode Island shares her 1-year full recovery story from ME/CFS & Fibromyalgia. When I started http://healwithliz.com in early 2020, it was my dre...
New Recovery Story!
After a 4+ year journey with Chronic Fatigue Syndrome (1 year fully bed-bound), a synchronous encounter with a hospital doctor gave Miguel answers that were key for him to reclaim his health.
Miguel breaks down the science behind the root cause that was driving his condition and shares insightful and actionable takeaways.
This kid's only 26, but his insights are wise beyond his years.
You'll want to stay tuned till the end where he reveals some gems. I made time-stamps of our interview in the Description.
https://www.youtube.com/watch?v=jVKbnSBqUiE
Miguel's FULL recovery from Severe CFS and POTS Miguel Bautista is a video producer based in Vancouver who fully healed from severe Chronic Fatigue Syndrome and POTS after a 4.5 year journey. Chat starts a...
Do you feel overwhelmed by all the options out there for health recovery?
Check out this amazing 12-minute video on my friend Raelan's channel. ✨
PS. Even if you don't have CFS, I highly encourage anyone who wants to improve their life, happiness, and wellbeing to WATCH this!
Chronic Fatigue Syndrome - Finding Your Recovery Strategy Don't forget to SUBSCRIBE and click the bell for notifications for new videos! This way you won't miss anything (and the YouTube algorithm will also show my ...
New CFS recovery story interview! After healing last year, Katie from Boston can fully exercise again and recently started a new job.
YouTube link: https://www.youtube.com/watch?v=6wCklUD63cI
Katie shares her hunch about what was driving her condition (that her doctors brushed off), which was later confirmed by the latest scientific research.
This is one of my more specific interviews on diet, blood sugar stabilization, and the autonomic nervous system. I learned stuff about sound therapy. Katie explains why she preferred a different neural retraining program than the one I did.
We also talk about walking the fine line between discipline and balance. Katie is the coolest person, and she made a handy free recovery guide, which I link to in the description.
The Biohacks that Helped Katie Heal from Chronic Fatigue Syndrome Katie from Boston shares her full recovery story from Chronic Fatigue Syndrome / M.E. She shares practical tips and powerful truths. Katie was at the top of ...
"It doesn't matter what you do. You could be a musician, a painter, or a skier. If you lose it due to a neurological condition, you can get it back." - Phil
Interview: https://www.youtube.com/watch?v=R0DdqSUzuiA
I connected with a musician named Phil who played keyboards, drums, and the bass guitar in 80's bands. Then he lost his abilities due to MS.
Through neuroplasticity, passion and persistence he was able to regain his abilities. He now helps other musicians with neurological conditions including TBI's do the same at a free program called Get Back Your Music in Seattle.
Neuroplasticity was a part of my healing journey, too, from ME/CFS, which is why I wanted to share his story! ✨
There are many good parts, especially where he talks about the stories of recovery of his bandmates including Patty Padden, who played drums for Big Mama Thornton.
You'll want to watch this one till the end (I don't want to ruin the surprise!)
Phil wants nothing more than to spread the message of hope. You can leave a message in the YouTube comments, and he'll surely read it!
How Neuroplasticity Helped Phil Regain Abilities He Lost from M.S. Phil is a musician. He played in 80's bands. In 2002, MS took his abilities away. Through neuroplasticity, which he calls our built in superpower, he was abl...
"I was living in a tent in my parent’s backyard at rock bottom for what seemed like the thousandth time. I had no choice but to try neural retraining."
Astra shares her full recovery story from severe CFS, Lyme, and food/chemical sensitivities (after 27 years, 13 years bedridden).
Watch our interview: https://www.youtube.com/watch?v=WGMWx8iPX-Q
She shares helpful insights for others doing a neuroplasticity program and getting through setbacks. We dance at the end.
Astra's Powerful CFS and Lyme Full Recovery Story (After 27 years) Astra healed herself from severe Chronic Lyme, CFS, and CIRS (after 27 years). For our written interview go to http://healwithliz.com. We chat about:2:06 Ast...
Today, I'm excited to launch a Health Recovery Coaches page featuring 10 coaches who healed from Chronic Fatigue Syndrome (ME/CFS). ✨
You don't have to do this alone. 💙
https://healwithliz.com/cfs-health-coaches/
I encourage you to check them out before they book up.
If I missed someone good (maybe you), let me know. I'm keeping it selective, but plan to feature more.
CFS Health Recovery Coaches | Heal with Liz Here are some amazing health coaches to support you on your healing journey from Chronic Fatigue Syndrome (ME/CFS).