Health Rising by Cort Johnson

Health Rising by Cort Johnson

Supporting people with chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, and related disea

Cort Johnson founded Phoenix Rising and Health Rising to support people with chronic fatigue syndrome and fibromyalgia. Health Rising provides the latest treatment and research information for people with fibromyalgia and chronic fatigue syndrome.

Simmaron's ME/CFS Trial of Rapamycin - a Mitochondrial Enhancer - to Begin Soon - Health Rising 16/11/2023

Simmaron’s ME/CFS Trial of Rapamycin – a Mitochondrial Enhancer – to Begin Soon

Suddenly ME/CFS is awash in clinical trials! On the heels of the OMF's unique 2-fer LDN/Mestinon trial comes the Simmaron Research Foundation's rapamycin trial.

Rapamycin is a potential mitochondrial enhancer that is able to restore autophagy - an important cellular clean-up process that Simmaron found disturbed in ME/CFS - and which can affect mitochondrial functioning. Last year Health Rising posted the story of a doctor who recovered from a ten-year journey with ME/CFS via rapamycin.

Kudos to both the OMF and Simmaron Research Foundation for taking the bull by the horns and moving forward on these clinical trials!

Find out more about this very interesting trial in

Simmaron's ME/CFS Trial of Rapamycin - a Mitochondrial Enhancer - to Begin Soon - Health Rising Clinical trials – once a rarity for chronic fatigue syndrome (ME/CFS) – suddenly seem to be popping up all around the place. The Open Medicine Foundation just announced its first two-fer (two drugs tested together) clinical trial, Solve M.E. has funded at least 4 small trials over the past coupl...

Lifting ME/CFS: The OMF's Unique Two-Drug Clinical Trial to Begin Soon - Health Rising 13/11/2023

Lifting ME/CFS: The OMF’s Unique Two-Drug Clinical Trial to Begin Soon

Now this is a welcome development. We know that - at least for now - one drug is not going to do it for a complex disease like ME/CFS. If it takes a variety of treatments to really move the needle on it, why not test them that way?

That's what OMF's new clinical trial is going to do. Besides creating the first full-fledged low-dose naltrexone and Mestinon ME/CFS trial, it's also going to dig deep into the participants' physiology to identify biomarkers and learn more about what's going on in this disease.

If successful it may be able to identify who stands to benefit, if it's better to use these drugs together, help us figure out what the heck is going on in these diseases - and give primary care doctors new options for treating ME/CFS patients.

Not bad at all! Check it out in

Lifting ME/CFS: The OMF's Unique Two-Drug Clinical Trial to Begin Soon - Health Rising The Open Medicine Foundations LIFT trial will explore the effects of two drugs - low dose naltrexone and Mestinon on chronic fatigue syndrome (ME/CFS)

11/11/2023

How to Decide Which Treatments To Try for ME/CFS and Fibromyalgia: The Ric Arseneau Talk

It's a great question - given the limitations of energy, resources, and time that we face - how to decide which treatments to try?

Dr. Ric Arseneau, the former director of the Complex Chronic Diseases Clinic in British Columbia, is a good person to answer that knotty question - he used to teach medical students how to do just that.

Check out how Dr. Arseneau decides what's worth trying and what's not as he winds his way through about a dozen treatments in

How to Decide Which Treatments To Try for ME/CFS and Fibromyalgia: The Ric Arseneau Talk

Immunosuppression Underlies Energy Deficits That Drive ME/CFS Symptoms Pt. II - The Armin Alaedini Interview - Health Rising 03/11/2023

Immunosuppression Underlies Energy Deficits That Drive ME/CFS Symptoms Pt. II – The Armin Alaedini Interview

Thanks to Bronc from Phoenix Rising for allowing Health Rising to post his interview with Dr. Armin Alaedini.

Dr. Alaedini recently published a remarkable study suggesting that problems in the immune system, the gut, and the metabolism could be “conspiring” together to produce post-exertional malaise in ME/CFS.

Check it out in

Immunosuppression Underlies Energy Deficits That Drive ME/CFS Symptoms Pt. II - The Armin Alaedini Interview - Health Rising Armin Alaedini PhD talks about how immune, metabolic and gut problems may work together to produce the fatigue, exercise, gut and cognitive problems in chronic fatigue syndrome (ME/CFS)

Floating All Boats... Iwasaki's ME/CFS, Long COVID and Lyme Disease Awards Promises New Insights into Post-Infectious Diseases - Health Rising 31/10/2023

Floating All Boats... Iwasaki’s ME/CFS, Long COVID and Lyme Disease Awards Promises New Insights into Post-Infectious Diseases

One way to trace how well ME/CFS, long COVID, and other post-infectious diseases are doing to is chart large gifts for them.

Two just went to Yale researcher, Akiko Iwasaki, perhaps ME/CFS's foremost champion amongst long COVID researchers. She got a nice pile of private money to study ME/CFS, long COVID, and post-treatment Lyme Disease.

The money couldn't have gone to a better place for any of these diseases or for the field of post-infectious disease research in general. Check out the good news in

Floating All Boats... Iwasaki's ME/CFS, Long COVID and Lyme Disease Awards Promises New Insights into Post-Infectious Diseases - Health Rising “The pandemic has opened the world’s eyes to the fact that many chronic illnesses have been largely ignored, dismissed, and ridiculed. Long COVID has taught the world that these diseases are real, there is a biological basis for them, and we need to study them.” Akiko Iwasaki, PhD One way […...

29/10/2023

Patreon #4: Kaufman and Ruhoy on Craniocervical Instability in ME/CFS and Allied Disorders

It's no surprise that Drs. Kaufman and Ruhoy quickly tackled the craniocervical instability question in their Patreon podcast.

The subject may be difficult and scary, yet both agree that it is "super-relevant" to the complex illnesses they're focused on. Dr. Kaufman stated that unless he's shown otherwise, he's come to believe that it's probably present in every bedbound patient.

These doctors, one of them a neurologist, have probably seen more CCI cases than any others. Check out what they have to say in

The "Serotonin Surprise": Massive Study Suggests Low Serotonin is Key Factor in Long COVID and Post-Infectious Diseases - Health Rising 26/10/2023

The “Serotonin Surprise”: Massive Study Suggests Low Serotonin is Key Factor in Long COVID and Post-infectious Diseases

This long COVID study really made waves - and it should have. This massive effort which included over 50 researchers may have plucked out a key factor not just in low COVID but ME/CFS and other post-infectious diseases as well. The authors even went so far as to suggest its findings might help explain multiple sclerosis.

Check out why serotonin has suddenly become a topic of intense interest in long COVID (and other post-infectious diseases) in

The "Serotonin Surprise": Massive Study Suggests Low Serotonin is Key Factor in Long COVID and Post-Infectious Diseases - Health Rising A massive study suggested that infection triggered low serotonin levels in long COVID and other post-infectious disease may play a key role in these diseases.

AI to the Rescue? AI-Driven ME/CFS Project Unearths Clues Ahead of its Time - Health Rising 22/10/2023

AI to the Rescue?… AI-Driven ME/CFS Project Unearths Clues Ahead of its Time

Artificial intelligence is all the rage right now. It can perform complex calculations and analyses faster and more accurately than humans, and recognize patterns in large amounts of data that no human could ever find.

About 6 years ago Efthymios Kalafatis, a data scientist who'd recovered from ME/CFS using AI methods, took on ME/CFS. The results were astonishing - Kalatafis's analysis predicted several themes - liver issues, peroxisomal dysfunction and others - that, in some cases, only showed up recently in ME/CFS research studies.

Find out what Kalafatis did and what he thinks AI can do for ME/CFS and similar diseases in

AI to the Rescue? AI-Driven ME/CFS Project Unearths Clues Ahead of its Time - Health Rising An artificial intelligence driven hunt for the cause of chronic fatigue syndrome (ME/CFS) picked up clues that studies only later suggested might be core problems

The "Septad" - a Treatment Roadmap for ME/CFS, POTS, Long COVID : From "Unraveled" a Patreon Broadcast from Dr. Kaufman and Ruhoy - Health Rising 13/10/2023

The “Septad” – a Treatment Roadmap for ME/CFS, POTS, Long COVID: From "Unraveled" a Patreon Broadcast from Dr. Kaufman and Ruhoy

Picture two experienced ME/CFS/FM/POTS/EDS/MCAS doctors (Dr. David Kaufman/Dr. Ilene Ruhoy) sitting back and talking about their experiences with their complex patients over dozens of podcasts and you have "Unraveled: Understanding Complex Illness" - a Patreon podcast.

"Unraveled" is a unique opportunity to watch two doctors on the cutting edge of understanding and treating these illnesses digging into them.

"Septad" - the first of Health Rising's overviews - focuses on an interlocking set of seven factors that these doctors use to better understand and treat these complex illnesses. Be sure to take the poll at the end and tell us how many of the factors in the "Septad" your doctor is up on.

Check it out in...

https://www.healthrising.org/blog/2023/10/12/septad-chronic-fatigue-syndrome-pots-long-covid-kaufman-ruhoy/?

The "Septad" - a Treatment Roadmap for ME/CFS, POTS, Long COVID : From "Unraveled" a Patreon Broadcast from Dr. Kaufman and Ruhoy - Health Rising Two doctors discuss the seven distinguishing factors that tie diseases like chronic fatigue syndrome, fibromyalgia, POTS, long COVID, joint hypermobility syndrome together.

11/10/2023

Finding the Keys to Long COVID? The Keystone Long COVID Conference Day I

The first international conference on long COVID research and treatment recently took place in a spiffy hotel in Santa Fe.

There wasn't much on treatment on day I, but research - yes. Monocytes continued to impress, hormones rose to the fore, viral persistence seems like a real thing, EBV reared its head again, and an intriguing study of an ME/CFS-like long COVID cohort suggested that small subsets of immune cells could be having a major impact.

Check it out in

Finding the Keys to Long COVID? The Keystone Long COVID Conference Day I

Their Lives Were Interrupted by ME/CFS, Fibromyalgia or Long COVID: Pt I - Mima's Story - Health Rising 10/10/2023

Their Lives Were Interrupted by ME/CFS, Fibromyalgia or Long COVID: Pt I – Mima’s Story

Health Rising's Lives Interrupted project seeks to, in dramatic fashion, illustrate the impacts that diseases like ME/CFS, fibromyalgia, long COVID, POTS, and post-treatment Lyme disease have on one's finances, careers, relationships, and living situations.

Guess what? It worked. The stories are stunning.
Check out what former police officers, doctors, authors, researchers, ministers, and others have told us about the impacts these diseases have had on their lives.

This first blog brings a special focus to Mima's story. Mima was a decorated police officer in Phoenix (with no sick days in 10 years) who was laid low by multiple pathogen exposures.

Their Lives Were Interrupted by ME/CFS, Fibromyalgia or Long COVID: Pt I – Mima’s Story

Their Lives Were Interrupted by ME/CFS, Fibromyalgia or Long COVID: Pt I - Mima's Story - Health Rising Thanks to the 31 people who have posted their stories on Health Rising’s Lives Interrupted project! The Lives Interrupted project seeks to, in dramatic fashion, illustrate the impacts on finances, careers, relationships, and living situations that these illnesses can have – and it has! Its goal ...

Efthymios's Artificial Intelligence-Aided ME/CFS Recovery Story - Health Rising 03/10/2023

Efthymios’s Artificial Intelligence Aided ME/CFS Recovery Story

Health Rising's series of recovery stories continues with something new - our first artificial intelligence-aided recovery story.

Check out how Efthymios used his data analysis background to first stabilize his ME/CFS, and then used artificial intelligence to uncover possibly key factors in ME/CFS (and allied diseases). They led him to take an approach I haven't seen before - and he recovered.

Efthymios's Artificial Intelligence-Aided ME/CFS Recovery Story - Health Rising Check out how an ME/CFS patient with a data analysis background used artificial intelligence to recover from chronic fatigue syndrome (ME/CFS)

"Provocative" PET Study Finds Unexpectedly Wide Immune Activation in Long COVID - Health Rising 19/09/2023

“Provocative” PET Study Finds Unexpectedly Wide Immune Activation in Long COVID

Once again long COVID has sparked a study into long COVID that still hasn't been done in ME/CFS but has long been desired.

In a finding the investigators called "unexpected" and provocative a body-wide PET scan study keyed on T-cells found them activated seemingly everywhere two years after the initial infection.

In long COVID they were especially activated in the brainstems - a place the authors said they should not be - and which studies suggest plays a role in ME/CFS.

Hopefully, this will open doors to this kind of study being done in ME/CFS and other post-infectious diseases.

"Provocative" PET Study Finds Unexpectedly Wide Immune Activation in Long COVID - Health Rising Could ME/CFS be next? There’s nothing like a pandemic to open new doors on post-infectious diseases, and it’s no surprise that the Henrich/Peluso team at the University of California at San Francisco would be the ones to do that. With their LIINC project, they have embraced long COVID like no [....

Enhancing the Endocannabinoid System in ME/CFS, Fibromyalgia and Long COVID: the Beta-Carophyllene Option - Health Rising 14/09/2023

Enhancing the Endocannabinoid System in ME/CFS, Fibromyalgia and Long COVID: the Beta-Carophyllene Option

The endocannabinoid system with its role of returning things - like overheated nervous systems - to balance seems tailor-made for diseases like ME/CFS, fibromyalgia, and long COVID.

Cannabis products are one way to do it but problems with legality, bad highs, and tolerance make them a poor option for some.

Cannabis, however, contains a unique terpene found on the hairs of the plant called beta-caryophyllene (BCP) which in some ways turns on the endocannabinoid system more effectively than the better-known CBD.

Plus it's entirely legal, does not produce a high, and does not appear to induce tolerance. Lastly, when it works, it works quickly - no need to endure several months trying it out. Check it out in

Enhancing the Endocannabinoid System in ME/CFS, Fibromyalgia and Long COVID: the Beta-Carophyllene Option - Health Rising Beta-carophyllenes might be able to helpful for people with chronic fatigue syndrome (ME/CFS), fibromyalgia and long COVID by enhancing the endocannabinoid system.

A Potential Blood Test for Chronic Fatigue Syndrome (ME/CFS)? - Health Rising 09/09/2023

A Potential Blood Test for Chronic Fatigue Syndrome (ME/CFS)?

Combining artificial intelligence with a technique called Raman spectroscopy Oxford and other researchers' ability to very clearly differentiate ME/CFS patients from healthy controls and multiple sclerosis patients - suggest they may be getting closer to diagnostic biomarker for ME/CFS.

The study also validated past findings that ME/CFS patients' cells are turning to "dirty fuel" - breaking down amino acids - for energy (instead of glucose and fatty acids) and highlighted the role tryptophan metabolism may be playing.

Some oddities did crop up - and more work needs to be done to validate the results - but the researchers were already looking forward to using the AI-driven technique in diseases such as fibromyalgia, Lyme disease, and long COVID. Find out more in

A Potential Blood Test for Chronic Fatigue Syndrome (ME/CFS)? - Health Rising Using a tool called Raman spectroscopy UK researchers state they have gotten closer to producing a long-sought diagnostic biomarker for chronic fatigue syndrome (ME/CFS)

Could Green Light Therapy Help Fibromyalgia and ME/CFS? - Health Rising 30/08/2023

Could Green Light Therapy Help Fibromyalgia and ME/CFS?

Green light therapy - it seems like the ultimate in "woo-woo" but there are biological reasons it might be helpful in diseases like fibromyalgia and ME/CFS. For one, it might be able to help restore some of the "feel-good" chemicals that have been depleted.

With two green light FM studies out, it was time to take a dive into this surprisingly inexpensive, do-at-home approach: what it is, where we are with it, and what the future portends. Find out more in

Could Green Light Therapy Help Fibromyalgia and ME/CFS? - Health Rising Could green light therapy be a safe and inexpensive way to reduce pain, im prove mood, and sleep in fibromyalgia? Two recent studies suggest it might.

NIH Researchers Find New Mitochondrial Abnormality in ME/CFS - Health Rising 23/08/2023

NIH Researchers Find New Mitochondrial Abnormality in ME/CFS

Sometimes serendipity strikes. An odd result from a person with ME/CFS in a cancer study gets linked up with a finding from an obscure ME/CFS study and bang - you have a team of NIH researchers digging doing a really deep dive - and coming up with yet another mitochondrial abnormality in ME/CFS.

This ended up being a full-court press from inside the NIH on the mitochondria - and that's very good news. The team is looking into drugs to test in a clinical trial. Check it out in

NIH Researchers Find New Mitochondrial Abnormality in ME/CFS - Health Rising The “WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome” study is fraught with possibility. For one, it was published in The Proceedings of the National Academy of Sciences – one of the most prestigious science jo...

"Uplifts" Associated with Improvement in ME/CFS Study - Health Rising 14/08/2023

“Uplifts” are Associated with Improvement in ME/CFS Study

With both of the major stress axes of the body dysregulated in ME/CFS is it any wonder that emotional events might have an impact?

A six-month study from a researcher who has ME/CFS found that people who worsened experienced more hassles and fewer uplifts than people who improved. While pacing may have been helpful, it was not associated with improvement. The authors suggested that making an effort to experience more uplifts might be helpful.

This finding jives with studies that indicate more hassles are associated with more inflammation even in healthy people. Find out more in

"Uplifts" Associated with Improvement in ME/CFS Study - Health Rising Researchers haven’t explored the impact that emotional stressors or their opposite – uplifts – might be having on health in ME/CFS, but perhaps they should. The stressors associated with chronic fatigue syndrome (ME/CFS), after all, can be immense and more severe in ME/CFS than in diseases lik...

The ME/CFS Finnish F***l Matter Transplant Study Flounders - Health Rising 11/08/2023

The Finnish F***l Matter ME/CFS Transplant Study Flounders

The small ME/CFS Finnish f***l matter transplant study failed - showing no treatment effects. We can't close the door on f***l matter transplants in ME/CFS, however. It's possible that it simply didn't use enough p**p to make the difference.

Find out more about it, a case-series study that was promising, and the big ME/CFS study that's currently underway (which will use more p**p) in

The ME/CFS Finnish F***l Matter Transplant Study Flounders - Health Rising With the gut microflora (the gut-brain axis) able to affect the brain and cognition and with dysregulated gut microflora implicated in chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) – not to mention diseases like Parkinson’s and Alzheimer’s – a finding a corrective gut flora treatme...

Dr. Pridgen and his Antivirals Take on Long COVID as his Fibromyalgia Effort Nears its Endgame - Health Rising 09/08/2023

Dr. Pridgen and his Antivirals Take on Long COVID as his Fibromyalgia Effort Nears its Endgame

Ten years after Dr. Pridgen began his effort to bring a novel antiviral treatment to market for fibromyalgia, he's cast his eyes on long COVID as well.

The first effort - a small pilot study - to target herpesvirus reactivation in long COVID went very well with dramatic reductions in fatigue and significant improvements in an array of symptoms.

Meanwhile, Pridgen's fibromyalgia effort hit a bit of a road bump but is continuing apace with its very large - and apparently determinative - phase 3 trial to begin shortly. On that note, Tonix pharmaceuticals has begun its own long fibro-long COVID trial and is very near the end of its phase 3 trial for FM.

Could we have 2 new drugs for FM next year? Time will tell. Check it all out in

Dr. Pridgen and his Antivirals Take on Long COVID as his Fibromyalgia Effort Nears its Endgame - Health Rising Dr. Pridgen's duo antiviral drug trial for long COVID produces promising results.

Could Alpha-Gal Syndrome Be Mimicking ME/CFS, FM, MCAS, Post-Lyme Disease, and POTS? - Health Rising 05/08/2023

Could Alpha-Gal Syndrome Be Mimicking ME/CFS, FM, MCAS, Post-Lyme Disease, and POTS?

The loopy name - alpha-gal syndrome - belies a potentially serious condition. This strange condition - which consists of an allergic reaction to red meat (and possibly red meat products - which are ubiquitous) - is triggered by a tick bite, no less.

It's a tough syndrome to identify as the symptoms generally occur hours after eating red meat or being exposed to red meat byproducts and most doctors are unaware of it.

Because it produces symptoms similar to those found in ME/CFS, FM, IBS, Lyme disease, and others, though, it's possible that it's been missed in some people. Find out more about the alpha-gal syndrome in

Could Alpha-Gal Syndrome Be Mimicking ME/CFS, FM, MCAS, Post-Lyme Disease, and POTS? - Health Rising The kind of loopy name – alpha-gal syndrome – belies its significance. The alpha-gal syndrome is no joke and may even be mimicking diseases like post-treatment Lyme Disease, irritable bowel syndrome, mast cell activation syndrome (MCAS), orthostatic intolerance, or even fibromyalgia or chronic f...

"Long Vax" (Coronavirus Vaccine-Induced Injury) Starting to Make Inroads in the Medical Community - Health Rising 02/08/2023

“Long Vax” (Coronavirus Vaccine-Induced Injury) Starting to Make Inroads in the Medical Community

Some people with ME/CFS have been reporting for decades that vaccines either triggered or worsened their illness but vaccine-induced chronic illness has been virtually ignored.

With "long vax" patients hitting doctors' offices and a major "long vax" study underway, things are changing. Find out how in

"Long Vax" (Coronavirus Vaccine-Induced Injury) Starting to Make Inroads in the Medical Community - Health Rising Long vax or vaccine induced injury has long been a issue in chronic fatigue syndrome. It's finally getting attention with the coronavirus pandemic

The Plasmalogen Possibility for ME/CFS and Long COVID - Health Rising 28/07/2023

The Plasmalogen Possibility for ME/CFS and Long COVID

Check out why a distinguished microglial researcher thinks low plasmalogen levels may play a key role in ME/CFS and long COVID and why “therapeutic plasmalogen” replacement could end up being a "valuable therapeutic tool" in these disorders.

Problems with plasmalogens - a major constituent of cellular membranes - and their producer peroxisomes - could affect everything from energy production to inflammation, clotting, etc. Could they be the core component we've been looking for? Time will tell...

Check it out in

The Plasmalogen Possibility for ME/CFS and Long COVID - Health Rising A distinguished researcher proposes that plasmalogen deficiency plays a key role in ME/CFS and long COVID. While plasmalogen drugs are not available, plasmalogen supplements are. They do tend to be quite expensive, however.

Metrodora - a High-Tech Clinical / Research Center for ME/CFS, FM, Long COVID, POTS - Opens - Health Rising 27/07/2023

Metrodora – a High-Tech Clinical / Research Center for ME/CFS, Fibromyalgia, Long COVID, POTS – Opens

Another "ME/CFS moment" - a sign that things are changing for the better for it and related diseases - recently occurred.

It's the emergence of Metrodora - a high-tech clinical and research facility devoted entirely to people with ME/CFS, fibromyalgia, POTS, and related diseases.

Co-founded by a top female entrepreneur who, after coming down with dysautonomia, spent years trying to get a diagnosis, the 55,000 sq ft facility will bring AI-enhanced diagnosis and research to bear on these illnesses. Find out more in

Metrodora - a High-Tech Clinical / Research Center for ME/CFS, FM, Long COVID, POTS - Opens - Health Rising Metrodora is bringing a high-tech approach to diseases like chronic fatigue syndrome, dysautonomia, and fibromyalgia that the medical profession has largely ignored.

Convergence - How Gut, Immune and Metabolic Issues May be Producing PEM in ME/CFS - Health Rising 25/07/2023

Convergence - How Gut, Immune, and Metabolic Issues May be Producing PEM in ME/CFS

Convergence was the word indeed as enterprising researchers dug deep into blood samples kept in the deep freeze for almost a decade to show how immune, metabolic, and gut issues may be combining together to produce exercise-induced post-exertional malaise in ME/CFS.

Solving this disease is going to require finding ways to connect these different systems. This study is particularly intriguing because it was able to show how energy production problems could effect the gut and the immune system.

Find out more in

Convergence - How Gut, Immune and Metabolic Issues May be Producing PEM in ME/CFS - Health Rising We know the gut is in play in some way in ME/CFS. Gut symptoms are common and studies have evidence of dysregulated gut flora and leaky gut (gut bacteria in the blood). The big question, though, is what it all means. We know that gut issues have the potential to […]

Infections, ME/CFS, Long COVID and Psychosis - Is There a Link? - Health Rising 17/07/2023

Infections, ME/CFS, Long COVID and Psychosis - Is There a Link?

A young woman with severe ME/CFS who began experiencing hallucinations and psychotic episodes prompted the question - are infections or other factors associated with severe ME/CFS such as sensory deprivation trigger hallucinations and psychotic episodes in some people?

Case reports and studies from the coronavirus pandemic indicate that the answer is a clear yes - in some people, infections and well as drugs can induce psychotic episodes plus the low stimuli environments that some people with very severe ME/CFS find themselves in presents another risk factor.

Find out more and if you've experienced these issues yourself or know someone who has please take the Infections, ME/CFS. Long COVID and Psychosis poll in

Infections, ME/CFS, Long COVID and Psychosis - Is There a Link? - Health Rising This blog was prompted when I learned of a family that had been riddled with chronic fatigue syndrome (ME/CFS), one of whose members began experiencing psychotic symptoms, and ultimately, full psychotic episodes after being given fludrocortisone. Her severe illness had resulted in her existing in a....

Health Rising's Brief Hiatus Explained - Health Rising 12/07/2023

Health Rising's Brief Hiatus Explained

With just one blog published in the last 9 days, Health Rising has been on something of a hiatus lately.

"Life" basically happened. The van (the yellow one) that I've been living out of suddenly and completely failed resulting in a search for a new vehicle. When it was found (the white one) the work to move the solar and other contents of the old van into the new one began.

Thankfully, I have managed better than I would have thought but it has been all-consuming and the work is not done yet. If you want to know the gory details check out the blog.

The blogs will start again shortly but perhaps at a slower pace for a little while. Thanks for your patience!

Health Rising's Brief Hiatus Explained - Health Rising Life happens! You’re moving along and then out of the blue, something unexpected happens that gets in the way, I actually had a feeling 8 days ago that “life” might be about to happen as I slowly and ever so carefully nudged the Big Yellow Van into the service bay […]

Finally! A Cookbook for People with ME (and similar illnesses) by a Person with ME - Health Rising 09/07/2023

Finally! A Cookbook for People with ME (and similar illnesses) by a Person with ME

Before she came down with ME Rachel Riggs was a professional 'foodie" who was passionate about creating good food for people.

Not only did ME cause her to give up her business and career, but like many of us she was soon cooking for survival. She told me that “I never imagined my passion for food would ever return.”

But slowly, as she found treatments that restored some of her own functioning, she began to develop new recipes – recipes that were easy to prepare and accommodated her burgeoning food sensitivities.

Now she's created cookbook like you've never seen before. Many gluten-free, dairy-free, etc. cookbooks are out there – but none have been created specific people with energy issues.

Rachel is committed to bringing the possibility of easy to prepare and delicious food to the ME and chronic illness communities. Find out more

Finally! A Cookbook for People with ME (and similar illnesses) by a Person with ME - Health Rising As almost anyone with ME can attest, we often have a complicated relationship with food. We likely have an increased need for nutrients, yet often have little stamina to cook for ourselves. And then there’s the ever-growing list of foods that don’t play nicely with our ME and similar diseases. [...

Lorrie Rivers' Holistic Health Summit for ME/CFS and Long COVID is Upon Us - Health Rising 02/07/2023

Lorrie River’s Holistic Health Summit for ME/CFS and long COVID is Upon Us

Lorrie River's 3rd free online Summit for ME/CFS and Long COVID is a bit different. Having recovered from fibromyalgia, ME/CFS, and long COVID, she has personal experience with all three. Plus she's been running a course for people with ME/CFS/FM and now long COVID for years.

Lorrie Rivers' Holistic Health Summit for ME/CFS and Long COVID is Upon Us - Health Rising Lorrie Rivers Holistic Health Summit for ME/CFS and Long COVID focuses on alternative medicine and mind/body techniques to further health.

The Lives Interrupted Project for ME/CFS, Fibromyalgia, Long COVID, POTS and Lyme Disease is Here! - Health Rising 29/06/2023

Was your life interrupted by ME/CFS, FM, Long COVID, post-Lyme disease, or POTS? Do you ever feel that people just don't get it about these diseases?

These diseases are amongst the most functionally disabling around yet they are still met too often with ignorance and even derision.

The Lives Interrupted program seeks to change that mindset by making clear in a dramatic way the financial, career, and personal costs that these diseases impose. Find out how in

[The Lives Interrupted Project for ME/CFS, Fibromyalgia, POTS, and Long COVID is Here!](https://www.healthrising.org/blog/2023/06/24/lives-interrupted-chronic-fatigue-syndrome-fibromyalgia-pots-long-covid/)

**Donation Drive Update!**

We'll be winding up the drive over the next couple of days. Thanks to the over 200 people who have contributed to Health Rising!

https://www.healthrising.org/blog/2023/06/28/lives-interrupted-chronic-fatigue-syndrome-fibromyalgia-pots-long-covid/

The Lives Interrupted Project for ME/CFS, Fibromyalgia, Long COVID, POTS and Lyme Disease is Here! - Health Rising After many delays and missed promises, the Lives Interrupted Project is here. The goal of the Lives Interrupted project to make crystal clear the costs that diseases like chronic fatigue syndrome (ME/CFS), fibromyalgia, POTS, post-treatment Lyme Disease, and Long COVID wreak on the people who have t...

Amber's Long MCAS, POTS, MCS, ME/CFS Recovery Story - Health Rising 27/06/2023

Amber’s Long MCAS, POTS, MCS, ME/CFS Recovery Story

All 8 of Health Rising’s recent recovery stories series, thus far, have featured different pathways and so it goes with Amber.

Everything is different with Amber – she is different – and her pathway to wellness is different. Her's is the first story to prominently feature mast cell activation syndrome (MCAS), and her onset of "ME/CFS" and exertional intolerance came much later in her illness.

Her path is a long and twisting one that involved many symptoms - not all MCAS related - and many specialists. For Amber, though, it simply took finding a few good practitioners who got her healthy enough for her to keep searching and ultimately find the unusual treatment that boosted her back (mostly) to health.

Find out more in

https://www.healthrising.org/blog/2023/06/26/ambers-long-mcas-pots-mcs-me-cfs-recovery-story/

Health Rising's Donation Drive Update

We're in the last week of the drive. Thanks to the over 200 people who have donated to HR thus far!

Amber's Long MCAS, POTS, MCS, ME/CFS Recovery Story - Health Rising All eight of Health Rising’s recent recovery stories have featured different approaches thus far and so it goes with Amber’s story. Everything is different with Amber – she is different – and her pathway to wellness is different. Amber’s is the first story to prominently feature mast cell ...