Bentley's Journey with CMV
Bentley blessed this world and our family with his entry on February 5, 2013. Bentley has been diag
CMV is a simple virus that most of the population has by the time they are an adult. The incidence of a primary CMV infection in pregnant women in the United States varies from 1% to 3%. When infected with CMV, most women have no symptoms and very few have a disease resembling infectious mononucleosis. It is their developing fetuses that may be at risk for congenital CMV disease. CMV remains the m
27/08/2023
I will be putting something together about our sweet Bentley's Journey with CMV this week as the deadline is approaching
This will be hard …. As there was so much that embodied our sweet boy
Forever in our heart💜🦋💜
The CMV Public Health and Policy Conference planning committee is dedicated to sharing stories of families impacted by cCMV at the 2023 conference. This year, we would like to honor children lost to cCMV by having an “In Memoriam” presentation. If you are the parent of child who has passed away from cCMV and wish to participate, please provide information about your child using the link belowby September 1st:
https://ow.ly/7uGU50PClNP
27/08/2023
Doctor explains the cause of some birth defects The CDC says about one in 200 babies are born with this.
Bentley knew what he wanted all the time! Giving the gift of movement was always exciting….Bentley just loved his train and it was wonderful motivation for him!
Bentley made me soft, he made me patient…he made me a better person
I am forever grateful
29/04/2023
There wasn't much that would put this boy down...he had a real zest for living!
May we all seize the day like Bentley did!
Happy Saturday
14/04/2023
This was such a good day!
10/04/2023
What we color the eggs and the bunny hides them?!
23/03/2023
Beautiful B
22/03/2023
We knew time was running thin...we just never know how or when
Bentley literally lived until he went peacefully into his cocoon preparing for his beautiful flight
I learned so much from you...thank you
Oh Bentley you will always have my heart
You were so smart, so aware and so determined
We spent many days modifying and texturing Bentleys favorite books and it was worth every moment!
Bentley LOVED reading and he loved participating
If you don't know about please go to Stop CMV AZ to learn how to prevent this virus from effecting your pregnancy
20/03/2023
Lucky Leprechaun
04/03/2023
Riding was Bentley's joy! His first taste of movement and he loved it!
This smile makes my day
02/03/2023
March is Cerebral Palsy Month
The hardest part of CP is trying to control the body to move...the challenging part for parents is finding items that encourage touch and body control
Bentley loved touching and looking and playing with all the things
We loved the dollar store...it had all fun things
Love you Bentley!
If you dont know about please go to to learn how to prevent cmv from effecting your pregnancy and your childs life
25/02/2023
Sally Rana
💜
Modifications to almost every typical toy made Bentleys life so fun and wild
We called this toy his kamikaze helicopter...because it was just damn lucky when it was flying that it didnt fly into me🤣🤣🤣
Man we had so much fun!
If you dont know about then please go to Stop CMV AZ to find out how to prevent CMV from affecting your pregnancy
23/02/2023
One of the many boxes sent to Bentley from his friend Heather
He was so excited to wear all the medals!
05/02/2023
10 years ago you had me at hello!
We are so grateful we were blessed with you ...kind, funny, and so smart and stubborn!
We had one hell of a ride kiddo...so much trialed and so much more witnessed and accomplished!
We had a beautiful life together and we will go out today and continue to celebrate the beauty you brought into the world on 2/5/2013!
Whisper to mommy today that we love and miss her too! Big hugs sweet B
Happy 10th birthday my angel...I am sure heaven is beautiful today
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