CARE Sickle Cell Support & Awareness

Wear Lips Red TODAY! World Sickle Cell Awareness Day 2024.

Why do we do ‘Wear Lips Red’?

Its is symbol that we need to be talking about Sickle Cell. Let’s make it a normal part of conversation. Knowing if you have a Sickle Cell trait is great. Asking friends and family if they have a Sickle Cell trait even better.

Let’s save the next generation from a life of pain and fear!

Get tested before you get connected.

To everyone living with sickle cell disorder - I love you and will do all I can to make a difference. May all our friends and family who have died due to Sickle Cell Disorder RIP .

This is shameful. I would encourage everyone to watch the drama series depicting the story of Stephen Lawrence’s murder.

Watch ‘Stephen’ x

Stephen Lawrence detectives will not face prosecution

SCDF is leading a collaborative effort to collect real-world patient health data to promote better and more personalized disease care. https://buff.ly/3xvpCOX

In honor of World Sickle Cell Day, join the Sickle Cell Disease Association of Illinois for their 12th Annual Sickle Cell Awareness Bowling Fundraiser on June 29! Enjoy a lively night of bowling, delicious food, exciting raffles and heartwarming fellowship. For more information and to register, visit: https://buff.ly/4epTayj

Are you ready to on sickle cell? Find a World Sickle Cell Day event near you: https://buff.ly/3g5qzlJ

We care about Sickle Cell. This World Sickle Cell Awareness Day, let’s talk about sickle cell. Let’s teach the next generation.

Hope you like the monologue in the stories. Tell me what you think. I would love to hear from you.

Ms Treasure (May she rest in Peace) used to - Get tested before you get connected.

Every child is precious and we don’t believe in terminating pregnancies. Therefore the best option is to simply talk about sickle cell before deciding on a partner.

World Sickle Cell Day is 19th June 2024

Let’s talk about sickle cell because we CARE. Love you all. ❤️💪🏾🩸🌙❤️

It was announced on the 14th February that hundreds of Sickle Cell patients in England will soon benefit from a £1.5m investment in 25 Spectra Optia devices. Read more here https://bit.ly/3OKWV6c

🌟 Exciting News! 🌟

We're thrilled to announce a series of upcoming workshops designed to gather invaluable insights from individuals with sickle cell disease, sickle cell carriers, and carers. These sessions will focus on identifying priority research areas in sickle cell and genomics.

📅 Throughout July and early August, join us for both face-to-face and online workshops to ensure everyone can participate! In-person sessions will be held in London, Birmingham, and Manchester, while our online workshops will be accessible to all.

This is your chance to voice your opinions and shape the future of sickle cell and genomics research. Your input is essential in prioritizing areas that will enhance treatments and therapies for sickle cell disease.

📢 Stay tuned for specific dates and details on how to register. We can't wait to hear your valuable perspectives!

Happy Father’s Day to all our Father’s living with Sickle Cell or caring for children with the disorder. We see you and appreciate all you do. Stay strong. Never give up. Big respect! 🤩🩸🌙❤️🤩💕

Join Our Team as a Link Worker

We are seeking a dedicated Link Worker to provide advocacy support to patients, especially those in areas with low prevalence of sickle cell disorders.

Our goal is to address inequities in sickle cell patient care, ensuring equal access and support for all patients, no matter where they live.

If you have strong communication, networking, and advocacy skills and are passionate about building relationships with key stakeholders, we want to hear from you!
https://buff.ly/3yC3v9Y

This is why we have to speak up!

June 19th 2024 is Sickle Cell Awareness Day. Let’s get ready. What are you doing this year to bring awareness to this hereditary condition which affects 20 million people worldwide.

We are wearing our lips red again this year. 💋

Do you know why?

It’s because wearing our lips red focuses on our mouth. We cannot be silent. We have to continue to speak up.

As women in particular it is important to ask our to be possible husbands about Sickle Cell. To get our children tested for a trait.

If we don’t, our babies can be born with Sickle Cell. Our BABIES!

Join CARE this year in raising awareness.

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