Pediatric Dermatology Research Alliance - PeDRA

Check out the latest PeDRA Publication Presentation! PeDRA member Angel Pagan, BS, presents a single-site research study about the success of Dupilumab in children and adolescents.

Listen on PeDRA Pearls wherever you get your podcasts or click here to watch this presentation 👉 https://pedraresearch.org/course/pedra-publication-presentation/

📢 ICYMI: The PeDRA Board of Directors has committed to match the first $12,500 of donations received between now and end of the year with a goal of funding a $25,000 PeDRA Research Fellowship in 2024. Your generosity has been instrumental in driving positive change so far, and we invite you to consider making an end-of-year donation now to help us support research and further our mission.

Double Your Impact. Donate TODAY ➡️ https://pedraresearch.org/donate/

🌟 New Community Spotlight 🌟

In this mini Community Spotlight, PeDRA shines a light on The Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID). Learn about the work AHSID does for patient and provider communities in an interview with founder and CEO Jasmine Espy.

Listen on the PeDRA Pearls Podcast Channel wherever you get your podcasts or click here to watch now 👉 https://pedraresearch.org/course/ahsid/

So you’ve got the funding—what steps can you take to turn that funding into impactful research? In this week's Monday Podcast Rerelease, you'll hear from three funded PeDRA investigators and learn how they assembled their teams, tackled the paperwork, and got their projects off the ground. Don’t miss this great opportunity to learn from their experiences! This program originally aired in April 2021.

Listen on PeDRA Pearls wherever you get your podcasts or click here ➡️ https://pedraresearch.org/course/early-investigator-webinar-catalyzing-your-research-from-idea-to-action/

⏰ ONE WEEK LEFT! Applications for the following two grant programs are due next Thursday, December 7:

🌟 2023 Consensus Grant Program: up to $25,000 of support for the creation of consensus recommendations, best practice recommendations, or consensus treatment plans for the treatment of diseases in the field of pediatric dermatology in US and/or Canada.

🌟 2023 Hidradenitis Suppurativa Pilot Grant: up to $25,000 of support with the aim of improving the quality of care and long-term health outcomes for pediatric and adolescent hidradenitis suppurativa (HS) patients, with a particular focus on their transition to adulthood.

Apply today 👉 https://pedraresearch.org/pedra-grants-and-fellowships/

Double your impact by donating to PeDRA on Giving Tuesday! 💥

The PeDRA Board of Directors has generously pledged to match the first $12,500 of donations received between now and end of the year in support of a $25,000 PeDRA Research Fellowship in 2024.

With a dedicated 100% matching pledge from PeDRA’s Board of Directors and your generous support, we can provide funding for one year of mentored research experience for medical students or recent graduates interested in pediatric dermatology and working under the guidance of an established PeDRA Member. Join us in developing the next generation of physician scientists and advancing research in the field as we pursue the vision of changing lives and healing all children with skin disease through collaboration and discovery.

Double Your Impact. DONATE TODAY! ➡️ https://pedraresearch.org/donate/

In this week's Monday Podcast Rerelease, we highlight the significance of research funding. Dr. Jennifer Schoch delves into the achievements of the research program at the University of Florida Dermatology, emphasizing the importance of funding, spanning topics from the NICU to Eczema and the Value of Research Funding. Originally aired as a webinar in July 2020, this program underscores the crucial role that funding plays in advancing research.

Listen on PeDRA Pearls wherever you get your podcasts or watch the original webinar ➡️ https://pedraresearch.org/course/from-the-nicu-to-eczema-and-the-value-of-research-funding/

🌟 PeDRA Member Spotlight 🌟

Fonette Fonjungo is a fourth-year medical student at Meharry Medical College. Raised in a Cameroonian-American family, her cultural roots fueled her passion for public health and community enrichment. While completing her graduate degree, Fonette was selected as a USAID Research Fellow and briefly moved to Indonesia to work with scientists and members of the Ministry of Health on vaccine implementation strategies for middle-income countries. With a passion for health equity in dermatology, Fonette dedicated a year of her medical education to pilot a digital remote skin monitoring tool with Dr. Eleni Linos at Stanford Dermatology. She was awarded a PeDRA Conference Travel Scholarship and presented at the 2023 NextGen Research Forum, highlighting the utility of digital remote monitoring tools in the longitudinal management of infantile hemangioma.

Learn more about Fonette and what she plans to focus on in her final year of medical school ➡️ https://pedraresearch.org/member-spotlight/

Our deepest gratitude goes to our community of purpose-driven individuals helping us pursue the vision of changing lives and healing all children with skin disease through collaboration and discovery. Thank you for your unwavering support and dedication today and always 💛

📢 Calling all PeDRA Members! Continue to connect and collaborate with our vibrant network and enjoy member-exclusive resources by renewing your PeDRA Membership. Take advantage of early bird pricing and renew by December 31, 2023.

Renew your membership today 👉 https://pedraresearch.org/membership-renewal/

ICYMI: November is Hyperhidrosis Awareness Month! Be sure to visit the International Hyperhidrosis Society to learn more and find ways to improve the quality of life among those affected by 💦

Your support makes a difference! 💙

Sincerest thanks to everyone who has supported PeDRA so far in 2023, including our members, sponsors, donors, and the 100 participants who helped us raise almost $5,000 through the 2023 Dash for Discovery.

While we’ve come a long way, our fight is not over and we are excited to announce that the PeDRA Board of Directors has committed to match the first $12,500 of donations received between now and end of the year with a goal of funding a $25,000 PeDRA Research Fellowship in 2024. PeDRA Research Fellowships have become an integral part of PeDRA’s research support efforts, by advancing science while cultivating the next generation of investigators in the field, many of whom would be unable to gain pediatric dermatology research experience without us. Your generosity has been instrumental in driving positive change so far, and we invite you to consider making an end-of-year donation now to help us support this critical program and further our mission.

DONATE TODAY ➡️ https://pedraresearch.org/donate/

In honor of National Healthy Skin Month, we're rereleasing a lively Points of Discussion – Is Sunscreen Safe in Infants under 6 Months? In this series, Dr. Jen Schoch moderates a podcast discussion on the pros and cons of sunscreen use in children under the age of 6 months. Joined by two esteemed guests, Dr. Irene Lara-Corrales and Dr. Jeannette Jakus, this conversation identifies not only the pros and cons but also offers sunscreen alternatives and discusses future potential research projects. This program originally aired in December 2021.

Listen on PeDRA Pearls wherever you get your podcasts or click here ➡️ https://pedraresearch.org/course/pod-neonatal/

Investigators are seeking participants for a PeDRA study about reactive infectious mucocutaneous eruption (RIME). The study includes collection of medical information and photographs, and optional DNA samples from saliva or blood. If you have been diagnosed or have diagnosed patients with RIME, please visit https://dermatology.wisc.edu/research/clinical-research/rime/

Current and past PeDRA Fellows practice for residency interviews! Best of luck to all of our PeDRA medical students during interview season - we're rooting for you 🎉🎉🎉

🎥 Season three of Getting to Know You concludes with an interview featuring Sonal Shah, MD. Dr. Shah is the Director of Pediatric Dermatology at University Hospitals Rainbow Babies & Children’s Hospital and holds the position of Associate Professor of Dermatology at Case Western Reserve University School of Medicine. Alongside Dr. Leah Lalor, she is a co-founder and co-leader of PeDRA’s newest Focused Study Group (FSG) – Education.

Tune in to discover more about Dr. Shah’s research and ways to get involved in the Education FSG 👉 https://pedraresearch.org/course/getting-to-know-sonal-shah-md/

Thanks to everyone who was a part of the 2023 PeDRA Annual Conference! We hope that you enjoyed the opportunity to connect with the PeDRA community in support of our mission to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease.

We hope to see you all in Phoenix next year! 🌵

Today is the last day of the 2023 PeDRA Annual Conference! We have the final round of Breakout Sessions, followed by Oral Presentations from Selected Abstracts and the Conference Capstone Session. Thank you so much for joining us! 💛

Thanks to all our supporters for making the 11th PeDRA Annual Conference possible! A special thanks to Incyte Eli Lilly and Company Sanofi US Regeneron 💙

It's Day 2 of the 2023 PeDRA Annual Conference! Grab some breakfast and we’ll see you soon. Continue to follow along and share your pics using 🎉

✨ Just Announced: 2023 PeDRA Award Recipients ✨

Please join us in congratulating three PeDRA members who have been recognized for outstanding contributions to the field of pediatric dermatology research as part of the 2023 PeDRA Awards Program!

🏅 Francesca Tenconi, MBA
2023 Community Member of the Year

🏅 Jillian Rork, MD
2023 Volunteer of the Year

🏅 James Treat, MD
2023 Mentor of the Year

Learn more about each of these award recipients 👉 https://pedraresearch.org/2023/11/09/inaugural-cohort-of-pedra-award-recipients-announced/

🎉 Welcome to Day 1 of the 11th PeDRA Annual Conference – we are so glad you are joining us! We have an exciting first day, including the Welcome Session, Poster Viewing Reception, our exciting Keynote, and more!

📲 Make sure to download the App to get the full Conference experience. Instructions are in your welcome emails or on the Conference webpage: https://pedraresearch.org/2023-annual-conference/

If you have questions, stop by the check-in table.

Be sure to follow along and share your pics using . Let’s do this! 🚀🚀🚀

Together with the Society for Pediatric Dermatology Junior Faculty & Fellows Committee, we will be hosting the next Virtual Journal Club on Thursday, November 16, 2023 at 5:30PM PT / 8:30PM ET!

During the one-hour session, we will discuss the following articles:

🌟 Paradoxical Psoriasiform Eruptions in Children Receiving Tumor Necrosis Factor α Inhibitorsfrom JAMA Dermatol. with Joshua Eickstaedt, MD
🌟 Safety and efficacy of topical nitric oxide-releasing berdazimer gel for molluscum contagiosum clearance: A systematic review and meta-analysis of randomized controlled trials from Pediatric Dermatol. with Izabela Pera Calvi, MD and Laís Lopes Almeida Gomes, MD
🌟 Prevalence of allergic contact dermatitis in children with and without atopic dermatitis: A multicenter retrospective case-control study from JAAD with Jeff Yu, MD and Hadley Johnson, BS

Join us for a lively discussion with expert authors. Register now ➡️ https://pedraresearch.org/programs-related-to-pedra-spd-virtual-journal-club/

⏰ ONE MONTH LEFT!

PeDRA is thrilled to continue its investment in research and is committed to funding studies, investigators, and high-priority initiatives through its grants and fellowships program. Applications for the following grant programs are due on Thursday, December 7:

🌟 2023 Consensus Grant Program: Up to $25,000 of support for the creation of consensus recommendations, best practice recommendations, or consensus treatment plans for the treatment of diseases in the field of pediatric dermatology in US and/or Canada.

🌟 2023 Hidradenitis Suppurativa Pilot Grant: Up to $25,000 of support with the aim of improving the quality of care and long-term health outcomes for pediatric and adolescent hidradenitis suppurativa (HS) patients, with a particular focus on their transition to adulthood.

Apply today 👉 https://pedraresearch.org/pedra-grants-and-fellowships/

Our Monday Rerelease features a two-part miniseries on How Patients Fuel Innovation. In this series, Suz Schrandt, JD, discusses the important role patients play in capturing meaningful data and how PeDRA investigators can engage them as strategy partners in data collection. This program originally aired as a webinar in the spring of 2020.

Watch or listen now ➡️ https://pedraresearch.org/2020/02/26/how-patients-fuel-innovation/

The 2023 PeDRA Annual Conference begins this Thursday - let us know you're joining us by posting this graphic and using 🎉

📲 Don't forget to download and install the Conference App TODAY to connect with other attendees, flag sessions and posters you plan to see, start playing the Conference Game (enter the code EARLY BIRD before November 8 to earn 200 points), and more. Check your inbox for further instructions or visit the Conference webpage ➡️ https://pedraresearch.org/2023-annual-conference/

We cannot wait to see you! 🎉🎉🎉

Ready. Set. DASH! 🏃🏃‍♂️🏃‍♀️

The 2023 Dash for Discovery begins TODAY! 🎉 Virtual runners and walkers can complete their Dash anytime, anywhere now through November 12.

📸 Send us your best shots! We want to see you having fun while supporting research and collaboration in the field of pediatric dermatology. Don't forget to tag us for a chance to win a prize:

Looking to complete the race in person? Run, walk, or do yoga with fellow colleagues and friends on Saturday, November 11 during the 11th PeDRA Annual Conference in Atlanta!

The registration deadline for both virtual and in-person participants is Friday, November 10 at 1:30PM ET.

Sign up today 👉 https://runsignup.com/Race/GA/Atlanta/PeDRADashforDiscovery

Check out the new Points of Discussion – Spitz Nevi: To Monitor or Excise? That is the Question. Steve Humphrey, MD, and Valerie Carlberg, MD, moderate a discussion on the complicated nomenclature, the challenges in monitoring versus excision, and how important genomics is when it comes to defining and treating Spitz Nevi. You’ll hear from special guests Kristen Berrebi, MD, Clinical Professor of Dermatology at the University of Iowa, and Pedram Gerami, MD, Professor of Dermatology (Dermatopathology), Pathology, and Pediatrics at Northwestern University.

🎧 Listen now ➡️ https://pedraresearch.org/course/points-of-discussion/

📢 Attention 11th PeDRA Annual Conference attendees: Conference is just ONE WEEK AWAY!

📲 Download and install the Conference App TODAY to connect with other attendees, flag sessions and posters you plan to see, start playing the Conference Game (enter the code EARLY BIRD before November 8 to earn 200 points), and more.

📥 Check your inbox for further instructions or visit the Conference webpage ➡️ https://pedraresearch.org/2023-annual-conference/

We are rounding out with this Monday’s Podcast Rerelease. Originally airing in April of 2021, this Abeona Sponsored Webinar, Gene Therapy for Large Chronic Wounds in Recessive Dystrophic Epidermolysis Bullosa, was presented by Jean Tang, MD, PhD. Dr. Tang provided an update on the EB-101 pivotal Phase 3 VIITAL study and answered questions from the audience.

🎧 Listen now ➡️ https://player.captivate.fm/episode/01e48f04-afec-4e76-af14-1284f98a0735

👟 Lace up your running or walking shoes! The 2023 PeDRA Dash for Discovery begins in ONE WEEK! 🎉🎉🎉

Virtual runners and walkers can complete their Dash anytime, anywhere between November 3-November 12, 2023. Looking to complete the race in person? Run, walk, or do yoga with fellow colleagues and friends on Saturday, November 11, during the 11th PeDRA Annual Conference in Atlanta!

The registration deadline for both virtual and in-person participants is Friday, November 10 at 1:30PM ET.

Sign up today 👉 https://runsignup.com/Race/GA/Atlanta/PeDRADashforDiscovery

🌟 PeDRA Member Spotlight 🌟

Colleen Cotton, MD, is a pediatric dermatologist in the Division of Dermatology at Children’s National Hospital and assistant professor of dermatology and pediatrics at George Washington School of Medicine and Health Sciences. Dr. Cotton joined PeDRA in 2014 as one of the first PeDRA Fellows under the mentorship of PeDRA’s first Executive Director, Sheila Rittenberg. In addition to her current role as vice chair of the Acne/HS Focused Study Group, she is the co-chair for the Early Investigator Forum and a featured speaker for the Mentorship Mingle Session at the upcoming 11th PeDRA Annual Conference. Furthermore, Dr. Cotton will be the co-chair for the upcoming HS Podcast Series. Learn more about Dr. Cotton and her research ➡️ https://pedraresearch.org/member-spotlight/

📢 Want to meet Dr. Cotton and other amazing PeDRA members in person? Join us in November at the 11th PeDRA Annual Conference - REGISTRATION CLOSES TODAY ➡️ https://pedraresearch.org/2023-annual-conference/

In honor of Epidermolysis Bullosa (EB) Awareness Week, we are rereleasing an audio version of an Amryt Pharma sponsored webinar that originally aired in December 2021. Listen as Dr. John Browning from Baylor College of Medicine and Dr. Lara Wine-Lee from the Medical University of South Carolina discuss a promising new treatment for wound healing in EB patients.

🎧 Listen on PeDRA Pearls wherever you get your podcasts or click here to access this episode ➡️https://player.captivate.fm/episode/a719bb4f-12e2-451c-a2f6-6e5c409a9547

🚨 REGISTRATION CLOSES TOMORROW 🚨

Only one day left to register for the 11th PeDRA Annual Conference! 🎉🎉🎉

Join us November 9-11, 2023 at the Westin Buckhead Atlanta to connect and collaborate with dedicated scientists, trainees, industry partners, patients, and advocates to advance research that improves the lives of children with skin diseases and conditions. Whether you’re a longtime PeDRA member or collaborator, parent of a child with skin disease, or considering research in the field for the first time, we hope you’ll join us this November in Atlanta.

⏰ Registration closes TOMORROW, Thursday, October 26!

DON'T MISS OUT - REGISTER NOW ➡️ https://pedraresearch.org/2023-annual-conference/

Looking forward to another WONDERful summer together 😊 As always, Camp Wonder is FREE to all campers, all costs are covered including airfare, thanks to our generous sponsors.

If you know anyone who is interested in being a NEW camper or a volunteer, please have them visit www.csdf.org/sign-up to get on the list for applications.

Eligibility reminders:

- Campers: any child, diagnosed with any skin disease, age 6 – 17, living in North America

- Staff: 18 years and older

- Medical staff: Licensed doctors, nurses and physician assistants from any medical field

Join us for a week of WONDER!

PeDRA is excited to give runners and walkers the opportunity (totally optional!) to use the 2023 PeDRA Dash for Discovery to raise funds in support of pediatric dermatology research. Please consider creating a team to help encourage each other and inspire competition between the teams!

Help us reach our goal of $7,500 👉 https://runsignup.com/Race/Donate/GA/Atlanta/PeDRADashforDiscovery

🌟 ANNOUNCING: New interviews from 🌟

Earlier this month, PeDRA had the privilege of attending the Symposium on Hidradenitis Suppurativa Advances (SHSA) in Phoenix, AZ, and PeDRA’s Associate Director of Educational Programs interviewed four amazing presenters to discuss the incredible work being done in this space.

🎧 Listen on PeDRA Pearls wherever you get your podcasts or click here to listen now ➡️ https://pedraresearch.org/course/pedra-at-shsa/

SHSA is an annual meeting organized by the Hidradenitis Suppurativa Foundation (HSF) to bring experts from around the world to share their experiences with HS. Thanks to the Hidradenitis Suppurativa Foundation for an amazing event 💙

🚨 LAST CHANCE 🚨

Only ONE WEEK left to register for the 11th PeDRA Annual Conference!

Join us November 9-11, 2023 at the Westin Buckhead Atlanta to connect and collaborate with dedicated scientists, trainees, industry partners, patients, and advocates to advance research that improves the lives of children with skin diseases and conditions. Whether you’re a longtime PeDRA member or collaborator, parent of a child with skin disease, or considering research in the field for the first time, we hope you’ll join us this November in Atlanta.

Registration closes NEXT Thursday, October 26!

REGISTER NOW ➡️ https://pedraresearch.org/2023-annual-conference/

📺 New episode on Season 3 of Getting to Know You!

Get to know Cristy Garza-Mayers, MD, PhD. Dr. Garza-Mayers is an Instructor at Harvard Medical School and a pediatric dermatologist at Mass General Brigham with an interest in vitiligo. In addition to her work on PeDRA's Early Investigator Committee, she also serves as a mentor through the PeDRA Mentorship Program and has received funding for her research projects through two grant programs. Learn more about her research, what led her to pediatric dermatology, and listen to the end to hear her answer some fun, rapid fire questions.

Watch or listen now 👉 https://pedraresearch.org/course/getting-to-know-you-2/