Your ALS Guide

Have you signed up for our free newsletter?

Twice a month, we'll share tips, resources, and information to help you navigate the road ahead. Subscribe at www.youralsguide.com/newsletter

ALS Town Hall The ALS Town Hall, hosted by ALS TDI, is a virtual forum for that allows the ALS community to safely convene while social distancing and discuss ALS research.

Braces can help you stay safe, have more energy, and feel less pain and discomfort. Find helpful tips, trusted information, and expert video clips on neck, wrist, and ankle foot braces (AFOs) at www.youralsguide.com/braces

As ALS progresses, it is important to reevaluate your home safety situation and make adjustments as needed. Learn how you can safely enter and exit your home, prevent falls, develop an alert system, and more at www.youralsguide.com/als-home-safety

www.YourALSguide.com

In case you missed it...Our online directory of medical equipment and assistive devices includes helpful products that you can purchase if they are not already covered by insurance or available in a loan closet. Visit www.youralsguide.com/als-equipment-guide

As ALS progresses, it can be hard to consider giving up the independence that comes with driving. But if you continue to drive after it has become unsafe, you could hurt yourself and put others at risk. Learn how to gauge whether you can still drive safely at www.youralsguide.com/driving-and-als

When you’re living with a disease like ALS, accepting support can help you find peace of mind and have a renewed sense of control. Learn how you can improve your mental, emotional, social, and physical well-being at www.youralsguide.com/als-mental-health

www.YourALSGuide.com

Start off the new year by learning what you can do to have more energy and experience a better quality of life. Find recommendations and information about nutrition, sleep, stretching, exercise, and more at www.youralsguide.com/self-care

If ALS is affecting your ability to walk and move around, there are a variety of assistive devices that can help. Getting the right mobility device at the right time can help you stay safe, save energy, and be more independent. Learn more on our new mobility page: www.youralsguide.com/mobility-and-als

When her mother was diagnosed with ALS, Latoya left her job, moved in with her parents, and became one of her mom’s primary caregivers. Now she serves as the Patient Services Coordinator at the ALS clinic where her mom received care. See Latoya’s interview at www.youralsguide.com/latoya-weaver

The Vivo 45 LS by Breas Medical weighs 5.3 pounds and is one of the smallest ventilators on the market. You can use it for breathing support at night, intermittent breathing support during the day, or as a full-time life support ventilator. Learn more at www.youralsguide.com/vivo-45-ls

We would like to remind the ALS community that today is Giving Tuesday, which means that it is a good time to make a donation to an ALS nonprofit organization that has provided meaningful support to you or your loved ones.

Caregivers often feel guilty for taking care of their own needs. Yet the better you are to yourself, the better caregiver you will be. Finding time to get out of the house, do something fun, exercise, or see friends can help you recharge. Three former ALS caregivers talk about this at www.youralsguide.com/taking-care-of-yourself

We would like to thank our military veterans for their service. If you are a veteran living with ALS, you should be eligible for service-connected benefits. Learn more at www.youralsguide.com/veterans-with-als

We've just revamped our ALS Caregivers page. Now you can find more information about self-care, respite care, support groups, support services, care options, and more. Visit www.youralsguide.com/caregivers

We would like to recognize all of the love and energy ALS caregivers share every single day.

For Caregiver Month, we are collecting words of wisdom and inspiration that can be helpful for ALS caregivers. If you are a current or former ALS caregiver, we would love to hear from you. Share your thoughts at www.youralsguide.com/quotes-for-als-caregivers

The Freedom Bed by Pro Bed Medical is a programmable, rotating bed for immobilized people that helps relieve pressure and prevent pressure injuries. It also eliminates the need for manual turning and repositioning, which can help you and your caregiver sleep through the night. Learn more at www.youralsguide.com/freedom-bed

There are many assistive devices that can help you stay safe and be more independent in the bathroom. Learn about toilet safety frames, portable commode chairs, bidets, raised toilet seats, and more on our new Toileting Devices page: www.youralsguide.com/toileting-devices

ALS Driving Study Seeks Survey Participants
This occupational therapy research study aims to better understand driving safety, required adaptive equipment, and resources for the ALS community. You can help advance research in this area by completing this online survey at https://hofstra.co1.qualtrics.com/jfe/form/SV_8qsOrwqW1Tg6dEi