National Scleroderma Foundation Northwest Chapter

Time to register for the 2024 National Scleroderma Conference right here in our own backyard in Seattle, July 19-21! Register today: https://scleroderma.org/conference-registration/

The moment you've all been waiting for is finally here ... 👏👏👏 REGISTRATION for the 2024 National Scleroderma Conference in Seattle, July 19-21, is OFFICIALLY OPEN!

With seminars, panel discussions, and other educational events presented by prominent researchers and medical experts, this year’s conference — along with the Kids Get Scleroderma, Too! Conference — promises to be an event you don’t want to miss.

Register today: https://scleroderma.org/conference-registration/

Finding the perfect gift just got easier.

Whether launching new support groups for patients, teaching our community how to manage the disease, or directly supporting scientific and medical professionals with research funding, your gift personally expands our Chapter’s reach and makes a real-life difference for people living with in Alaska, Idaho, Oregon & Washington.

Deck the halls with boughs of hope for a cure by making your holiday gift today at https://national.scleroderma.org/site/Donation2?df_id=9922&mfc_pref=T&9922.donation=form1

Prefer to give another way? You can:

• Send us a check made payable to National Scleroderma Foundation
• Call us at (800) 722-4673
• Use appreciated securities
• Give from your IRA
• Give through your DAF
• And more!

If you have any questions, give us a call at (800) 722-4673. Our staff is happy to help you make a gift that will change lives, give hope, and spread love during the holidays.

is just around the corner! Your gift will help people like Erion find support and educational resources to better manage life with scleroderma.

Last year, you helped us raise a record number of funds for the community. This year, we hope you can help our Pacific Northwest chapter raise even more in honor of the Foundation’s 25th Anniversary!

We know the holidays are a busy time. If you don’t want to forget, go to https://national.scleroderma.org/site/Donation2?9902.donation=form1&df_id=9902&mfc_pref=T now to give the gift of support, education, and research to people living with scleroderma and all who love and care for them.

Remember that Amgen will match your GivingTuesday gift dollar for dollar up to $25,000, so be sure to take advantage of this special opportunity!

The National Scleroderma Foundation is proud to announce that the 2024 National Conference is slated for July 19-21 in Bellevue, Washington – just outside of Seattle. Learn more about our decision to take the conference to the Pacific Northwest in our latest press release.

"My scleroderma is in remission thanks to the efforts of Dr. Sergio A. Jimenez of Thomas Jefferson Medical Center in Philadelphia. By remission, I mean that the disease has stopped progressing and so, my condition is not getting worse. My life is back to normal because of Dr. Jimenez's care and guidance."

We are so grateful for all of the medical and scientific professionals in our community who have treated hundreds of people with scleroderma. Can you think of one you'd like to give a shoutout to?

The latest Mogil’s Mobcast is now available to listen to! Ann continues the conversation on interprofessional education. She talks with Heather Frenz, who is a scleroderma warrior, and teaches the art of interviewing and active listening for both the students and patients involved in the IEP day. Listen to learn more!

https://podcasts.apple.com/us/podcast/mogils-mobcast-a-scleroderma-chat/id1577244121?i=1000622915007

There is still time!

There is still time to register for next weekend's conference on July 14, 15, and 16. You can attend in person in Orlando, FL, or virtually. Sign up now at scleroderma.org/conference

Does your child have scleroderma? Join us at the Kids Get Scleroderma, Too! Conference in Orlando, Florida, July 14-16. This annual conference is a great opportunity to learn more about scleroderma-related topics and connect with other individuals with similar experiences. Sign up now at https://ow.ly/1ohN50OJnks

Early bird pricing for the conference ends May 21 - register today!

2023 National Scleroderma Conference - National Scleroderma Foundation If you are interested in exhibiting at this year’s conference or have any questions, please email our development team at [email protected] or call (800) 722-HOPE (4673)

We warmly thank all of the dedicated volunteers for their service. We celebrate you not only during National Volunteer Week but every week – thank you for all you do! To learn how to get involved, visit scleroderma.org

Happy National Volunteer Week! We have the best volunteers who selflessly support our mission work by holding leadership positions on our Chapter Advisory Councils, National Board of Directors, Medical & Scientific Board, Patient Advisory Board, plan education and fundraising events such as Stepping Out to Cure Scleroderma, lead support groups, and advocate for scleroderma both nationally and locally. We are grateful to ALL our volunteers – thank you!

Latest conference update!

2023 National Scleroderma Conference Update:
On Friday, July 14, the conference will feature a research poster hall of new and exciting scleroderma research. Don’t miss out on your chance to speak to the researchers live!

http://ow.ly/7Hlq50Nugel

Today is the last day to apply for scholarships for the 2023 National Scleroderma Conference, and Kids Get Scleroderma, Too! Download the form to apply. We look forward to seeing you in Orlando, July 14-16!
https://scleroderma.org/wp-content/uploads/2023/02/National-Scleroderma-Foundation-Scholarship-2023.pdf

Interested in learning more about arterial hypertension and pulmonary fibrosis? Listen to the latest edition of Mogil's Mobcast with Dr. Virginia Steen!

‎Mogil's Mobcast-A Scleroderma Chat: Episode #44 Virginia D. Steen: MD on Apple Podcasts ‎Show Mogil's Mobcast-A Scleroderma Chat, Ep Episode #44 Virginia D. Steen: MD - Mar 27, 2023

Interested in scleroderma and dentistry? Join us on April 19 - open to all! Registration required!

Join us for the Minnesota and Michigan Chapter's first monthly collaborative virtual Lunch and Learn session on scleroderma and dentistry with Dr. David Leader! April 19, 12p-1:15p. Everyone is welcome, registration required! National Scleroderma Foundation Michigan

Register now: https://tinyurl.com/yvxu3cxf

Interested in becoming a volunteer? Volunteers can become a part of local chapter committees, help plan events, lead support groups and so much more! The spring will kick off many awareness events and the lead up to Scleroderma Awareness Month in June. Will you join us? Reach out to us at [email protected].

We wish you Happy Holidays! The National Scleroderma Foundation offices will be closed through Jan. 2. We look forward to another great year serving the scleroderma community in 2023! It's our 25th anniversary!

We at the National Scleroderma Foundation know the winter months and holidays can be a challenging time for everyone. We have many support resources available for you. Find support now on our website: https://scleroderma.org/scleroderma-support-groups/ or by calling our Hope Line (800) 722-4673.

The Scleroderma Foundation of California invites YOU to attend our 2022 Virtual Patient Education Day featuring renowned scleroderma specialist from Cedars Sinai Scleroderma Center of Excellence Saturday, November 19th from 9:00 AM - 12:30 PM PST on zoom.

We hope you will join us while hearing from the experts in scleroderma: Dr. Francesco Boin, Director of the Division of Rheumatology and Scleroderma Center at Cedars-Sinai Medical Center

Dr. Nunzio Bottini, founding Director of the Kao Autoimmunity Institute and staff physician in the Division of Rheumatology and Scleroderma Center at Cedars-Sinai Medical Center

Dr. Ali Rezaie, Medical Director of the GI Motility Program at Cedars-Sinai, Los Angeles, and Program Director of the GI Motility Fellowship Training.

AGENDA:

9 AM- 9:10 AM - Opening Remarks

9:10 AM 9:25 AM - Dr. Francesco Boin and Marianne Bernardo: Introduction to the Cedars-Sinai Clinical and Research Program

9:30 AM - 10:15 AM - Dr. Francesco Boin: Clinical Updates in Scleroderma

10:20 AM - 11:05 AM - Dr. Nunzio Bottini: Research Updates in Scleroderma

BREAK: 11:05 AM - 11:10 AM

11:10 AM - 11:55 AM - Meet the Expert: Dr. Ali Rezaie – Understanding Small Intestinal Bacterial Overgrowth In Scleroderma Patients.

12:00 AM - 12:30 PM - Open floor Q&A for all speakers

Each speaker has 10-15 minutes for Q and A during their talk, allowing three questions each. After all speakers have finished, any remaining questions will be addressed in the open floor Q and A from 12 PM - 12:30 PM

You will need to register in advance to attend by clicking the link below:
https://us02web.zoom.us/meeting/register/tZ0tdumqrzMqGtDnMFXSWLbMaJXUDjek_y_U
After registering, you will receive a confirmation email about joining the meeting.

Only 4 more days until the 2022 Virtual Patient Education Day with renown scleroderma specialists from Cedars Sinai's Center of Excellence. Have you registered yet? It's not too late!!! Just click the link below: https://us02web.zoom.us/meeting/register/tZ0tdumqrzMqGtDnMFXSWLbMaJXUDjek_y_U

WHEN: Saturday, November 19th from 9:00 AM - 12:30 PM PST on zoom.

We hope you will join us while hearing from the experts in scleroderma:

Dr. Francesco Boin, Director of the Division of Rheumatology and Scleroderma Center at Cedars-Sinai Medical Center

Dr. Nunzio Bottini, founding Director of the Kao Autoimmunity Institute and staff physician in the Division of Rheumatology and Scleroderma Center at Cedars-Sinai Medical Center

Dr. Ali Rezaie, Medical Director of the GI Motility Program at Cedars-Sinai, Los Angeles, and Program Director of the GI Motility Fellowship Training.

AGENDA:

9 AM- 9:10 AM - Opening Remarks

9:10 AM 9:25 AM - Dr. Francesco Boin and Marianne Bernardo: Introduction to the Cedars-Sinai Clinical and Research Program

9:30 AM - 10:15 AM - Dr. Francesco Boin: Clinical Updates in Scleroderma

10:20 AM - 11:05 AM - Dr. Nunzio Bottini: Research Updates in Scleroderma

BREAK: 11:05 AM - 11:10 AM

11:10 AM - 11:55 AM - Meet the Expert: Dr. Ali Rezaie – Understanding Small Intestinal Bacterial Overgrowth In Scleroderma Patients.

12:00 AM - 12:30 PM - Open floor Q&A for all speakers

Each speaker has 10-15 minutes for Q and A during their talk, allowing three questions each. After all speakers have finished, any remaining questions will be addressed in the open floor Q and A from 12 PM - 12:30 PM

SEE YOU THERE!!

Join National Scleroderma Foundation on November 18 to learn about Stem Cell Transplant in Scleroderma: Past, Present and Future. Our speakers will include patients who have successfully completed treatment, and physician scientists who have participated in trials.

Friday, November 18, 2022 | 12:00 pm PT / 3:00 pm ET

>> Register online at

Welcome! You are invited to join a meeting: Stem Cell Transplant for Scleroderma. After registering, you will receive a confirmation email about joining the meeting. Welcome! You are invited to join a meeting: Stem Cell Transplant for Scleroderma. After registering, you will receive a confirmation email about joining the meeting.